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Hysterectomy Support Group #2

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julie1jet

Hi I don't know if anyone reads this support thread anymore, but I am hoping there are more people that want to join the thread.

 

I am scheduled for a hysterectomy next month. It will be a total hysterectomy ( adominal ). I will be keeping my ovaries.

 

I have had terrible periods since I was young.

 

For the past two to three years I have had my period almost every three weeks. We tried a mirena but it only slowed thing down a little.

 

I have recently been told from my recent scan that I have adenomyosis, bulky uterus, it causes a lot of pain, I feel bloated a lot and have cysts as well.

 

Being with my husband has been difficult, I start to spot as soon as we have bd, so we just don't do anything anymore.

 

I am looking forward to not being tender anymore, no more periods, hopefully feeling happier and healthier, and getting my life back again.

 

For those of you that have stayed to finish reading my post, thanks. I hope it wasn't tmi.

 

Julie

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ellie1326

Good luck Julie. Hope it all goes well for you.

 

I wanted to ask, I had hysterectomy - total, ovaries removed etc 3 years ago.

 

I can't have HRT.

 

I have no sex drive at all, none at all. Plus any sex I have is very very painful.

 

I've gone to the clinic, where they told me that without HRT they can't help me at all.

 

Anyway, after some discussions with DH we decided on sexless marriage.

 

Just wondering, am I alone? Can it work?

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Expelliarmus

Can't help there PP, but I have a few questions if anyone can help?

 

If you leave the ovaries, do you need HRT?

 

How do you find a good GYN to perform the operation?

 

I know you need 6 weeks off - does it really take all 6 weeks to recover? I know that varies ... but I had to recover for 6 weeks post re suspension but felt fine after 3 so, is it possible to feel fine earlier? And even if you feel fine do you still have to obey rules of some sort?

 

I really need to get this done but it's just so murky :(

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julie1jet

Hi

So nice to see a few people pop in.

 

I am just over four weeks post op.

 

My hysterectomy, went well, but during the surgery they found that my uterus had fused to my bowel, so surgery took a long time.

 

I did have terrible bowel pain and that is still settling down, I have found peppermint water helps a lot with the wind.

 

I did ok for the first two weeks, then nearing the end of the two weeks I started feeling sick, achy, glands were up and my temp wouldn't come down. Had to go back to the gyno, and a blood test found my white cell count to be super high. The gyno put me on two different antibiotics, I've just finished the repeat and now I feel better but I have this terrible chesty cough. :(

 

Sorry I can not help about the sex drive its too early for me, but have a look at the hystersisters website, they are really helpful.

 

I kept both my ovaries so I hope my sex drive is ok, but in saying that we haven't had sex for so long now, due to all the pain I was having and the continual spotting over the past three years. I could count on one hand how many times we have been intimate.

 

I believe if you have a stable relationship and your relationship has a really strong bond, like soul mates, best friends, not just based on a sexual attraction, you will be ok without sex. I am trying to find the right words to explain what I mean sorry if it isn't clear.

 

I have been told straight after my surgery that I may experience pain during sex as my V, is much smaller now as my cervix is gone.

 

So far no regrets having my hysterectomy done, but it is early days. I have a follow up appt in a few weeks.

 

Came back to add definately no driving for six weeks after a total adominal hysterectomy, this is one of the longest recovery times, I think vaginal and keyhole surgery have a better recovery time.

 

Any questions please ask, sorry if this has been too much info, sorry for any typos have replied on a tablet.

 

Cheers

 

Julie

Edited by julie1jet

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Erricson

Hi'

I was considering if hysterectomy can cause beginning menopause?

 

I had my hysterectomy almost a season and a 50 percent ago and have been getting unusual signs for the last weeks time. I am almost 43 and have lupus ~ which I know lupus can cause beginning the change of life. My signs are sweating, hot quick flashes during the day, getting up once or twice in the evening to pee and losing bodyweight and hunger reduction. I am fairly fed up with lupus rheumatoid osteoarthritis, so it could very well be new and frustrating signs, but am considering it could also be hormone. I am getting blood work in a couple of several weeks so hopefully can discover out more then.

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Expelliarmus

From what I have read 43 is also a normal age to begin menopause..

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k-ko

Hi everyone,

I'm popping in here in the hope I can get some info for my mum.

She's just found out she has 2 large cysts attached to her ovaries, ultrasounds and blood work haven't been able to determine if its there cancerous so the specialist has advised a full hysterectomy is needed as the cysts are massiv (10cm) .

 

I'm after some info for her on the procedure, I've been on the cancer council website and found some info but wondering if anyone who has been through the surgery can point me to any great resources you found helpful.

 

At this stage I'm just after hysterectomy info as we don't yet mow what the doctors will find, we're hopeful. Just want mum to be prepared for the procedure, maybe read bait aou what to expect etc.

 

Thanks in advance.

K

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**Kylie**

I had a hysterectomy on 13 May 2013. Retained both ovaries. Was severely anemic, had fibroids, and periods had been steadily getting worse over the past few years.

 

I am now just over 3 weeks post-op and so far, all seems fine. Healing process has been way better than expected and I am back at work for half days.

 

No more periods, yay!!!

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Lucky05

Hello

There used to be a prolapse group on EB. Does anyone know if it's still here as I haven't been able to find it? I'm waiting to have surgery on my prolapse, back wall and I have a leaking bladder valve and I'm considering asking my surgeon to give me a partial hysterectomy as I"m just in so much pain every month! So much worse after having our 3, 5 and 6 years olds. I also have a 19 and 22 year old and compared to now and back then the pain I go through every month is unbelievable! :( We have discussed it briefly but that's as far as the discussion got.

So any advice would be wonderful regarding hysterectomy's would be wonderful :)

 

Chyloe that's wonderful, congrats!

Edited by Lucky05

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Expelliarmus

How do you define a partial hysterectomy?

 

There is a prolapse group somewhere but I think it gig pushed down the lists.

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Lucky05

Just uterus, not ovaries.

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~Bean~

Leaving ovaries is still a full hysterectomy.

 

Keeping the ovaries is standard procedure, unless like the PP there is an issue with the ovaries in which case they will remove them.

 

 

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Arthur or Martha

.................................

Edited by ambwrose

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Expelliarmus

I'm six weeks post op with no abdo pain (never had any to speak of) and no longer any bowel issues. I had my bladder fixed with a few stitches but not a sling and the continence issues are less than they were - I will need some pelvic floor exercises to take care of it 100% I think - but the continence is much improved.

 

ambwrose, I think you need to see your doctor because pain relief for two months is excessive.

 

And now to my question.

 

What do the dissolvable stitches look like when they come out? Because I have this ... thing coming out and it sort of looks like a thread but I though dissolvable stitches looked different - like black maybe ... I have little miniature rope-like fibrous thingies happening and am most disconcerted!

 

Does that sound right? It looks like thin string and is coming out in bits up to a cm long. I can't see it would be anything else but I am, indeed, most disconcerted!!!

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Soontobegran

Sounds like your body is getting rid of some of your dissolving sutures and this is okay. If otherwise everything is well then you'll be healed and they are finding an exit route.

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Expelliarmus

Oh good :) I had a Dr appointment today but she was unwell and had to cancel it :( so I couldn't ask her about the weird thingies!

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Soontobegran

Sometimes they just dissolve internally, sometimes the body rejects the suture material but only after healing. It could be gut or it could be another synthetic suture made of polylactic acid or the like but it is fibrousy looking stuff :smile:

I lost a large piece of suture material from my episiotomy after about 3 months.....it was sticking out and I pulled and pulled and it was about 6 cms long.

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~iMum~

Hi ladies.

 

My PHi has finally been in place 1 year and I'm now getting excited about my hysterectomy on 2nd September. Wooo!

 

I haven't seen my surgeon since last December, and h wasn't very personable at the time, so I'm hoping for some advice from the ladies here.(I have checked out hystersisters, but found it to be all a bit melodramatic TBH).

 

I'm scheduled to have a Total Laparascopic Hysterectomy, with my ovaries being left.

 

The surgeon said to expect anything up to 3 nights in hospital. I would like to be home ASAP, is there any chance of being out sooner? I am having the operation on a Monday morning.

 

Will I be able to wear 2 piece pj's in hospital after the operation, or should I get some nighties?

 

I've heard varying stories about when I'll be able to drive again after. Assuming no complications, is one week after a likely option? Our kids need to be driven to and from school and, when DH is working, there's really only me. My parents live half an hour away, they could help out, but it would be a big ask for more than a few days.

 

I've organised for a weekly house cleaner to come in for a while, but when should I expect that I'll be able to change bed linen and cook dinner etc?

 

We have about 14 stairs to each of our front and back doors. Will I be able to get up and down them safely in the few days after?

 

I'll need some maternity/night pads for a few weeks after, wont I?

 

I have a uni assignment due the week after the operation, am I likely to be coherent enough to be able to work on it, or should I seek an extension beforehand?

 

Anything else I should know?

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Expelliarmus

Hi ladies.

 

My PHi has finally been in place 1 year and I'm now getting excited about my hysterectomy on 2nd September. Wooo!

 

I haven't seen my surgeon since last December, and h wasn't very personable at the time, so I'm hoping for some advice from the ladies here.(I have checked out hystersisters, but found it to be all a bit melodramatic TBH).

Me too! Crazy site ...

 

I'm scheduled to have a Total Laparascopic Hysterectomy, with my ovaries being left.

I had this but vaginally. It was much superior to any laproscopic procedure I have had. No incision was the best. However I have had a lap before with my resuspension.

 

The surgeon said to expect anything up to 3 nights in hospital. I would like to be home ASAP, is there any chance of being out sooner? I am having the operation on a Monday morning.

While my experience was not typical I would not anticipate anything shorter than 2 nights. I had the leg stimulator thingies on for 24 hours and was in bed for that length of time. Then they have to remove the catheter and make sure you can wee. Now If you are not having a bladder repair they may do this Tuesday morning but I expect they will continue to observe you for another 24 hours until at least Wednesday morning.

 

Will I be able to wear 2 piece pj's in hospital after the operation, or should I get some nighties?

Get nighties.

 

Seriously. Don't even debate this one. Just trust me :D

 

I've heard varying stories about when I'll be able to drive again after. Assuming no complications, is one week after a likely option? Our kids need to be driven to and from school and, when DH is working, there's really only me. My parents live half an hour away, they could help out, but it would be a big ask for more than a few days.

Erm ... no. If you drive an automatic then 3 weeks is a possibility but one week? Um just no.

 

Even if the Gyn did give that clearance (which I would find unbelievable), I had to drive on the 1st day - literally 3 weeks and it KILLED. I was in so much pain - and I didn't have any external incisions.

 

I was unable to drive without pain for at least 4 weeks.

 

I've organised for a weekly house cleaner to come in for a while, but when should I expect that I'll be able to change bed linen and cook dinner etc?

Six weeks.

 

I'm not exaggerating. you are not allowed to lift anything heavier than a dinner plate for six weeks. Cooking was near impossible because you need to lift pots full of vegies and so forth. I needed my kids to help me if I attempted it.

 

Ditto changing bed linen. Collagen takes six weeks to knit/reform/solidify - whatever term the gyn used, I forget, and you must take it easy for the full six weeks.

 

No vacuuming, no bin emptying, no laundry, no scrubbing the toilet. As my gyn said you can lift your coffee cup and take it to wash up - but no stacks of dishes. You can rinse your knickers out and peg them up - but nothing else, no laundry baskets, no wet towels, no wet jeans.

 

We have about 14 stairs to each of our front and back doors. Will I be able to get up and down them safely in the few days after?

I didn't find climbing stairs a problem. I was slow for a few weeks but it didn't cause great difficulty.

 

I'll need some maternity/night pads for a few weeks after, wont I?

I needed them for five weeks.

 

I have a uni assignment due the week after the operation, am I likely to be coherent enough to be able to work on it, or should I seek an extension beforehand?

Seek an extension. If you have complications you will need it. For example I had a 10 day hospital stay due to an infection.

 

Anything else I should know?

It's not a small operation. It's a major serious one. You will need lots of rest.

 

Good luck!

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~iMum~

Thanks for the in depth reply!

 

Maybe a dumb question, but why the not driving for so long after? I drive auto. Surely it would be more stress and strain to be walking around and doing 'things' than driving?

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Expelliarmus

When driving I found that the foot pedal action pulled at and put strain on stomach muscles that prior to the hysterectomy I didn't even know I was using to drive.

 

The twisting to check the blind spot or to reverse also pulled at a lot of internal muscles that hurt.

 

Gentle walking was not nearly as taxing as driving. Although, I couldn't walk very long distances for at least three weeks. I reckon I was walking only about 200-400 metres for the first two weeks. I actually found getting in and out of the car quite the concentrated effort for six weeks. There was no scrambling in and out the way I was used to, it was very much swing out, knees together, brace pelvis, stand slowly.

 

For a good 5 weeks and occasionally now - 7 weeks post on Friday, I had to consciously use my legs and where possible my arms/hands to stand.

 

Do not underestimate the impact. I was rarely in pain from the surgery but it was definitely a six week recovery, no exaggeration.

Edited by Expelliarmus

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~iMum~

Doh. I knew it was a dumb question. lol.

 

Would you recommend support briefs for afterwards? I've been doing some reading online overnight and some ladies have suggest that these can help by keeping the tummy firm when moving about.

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Expelliarmus

I didn't wear support briefs.

:shrug:

 

I don't know anything about the use of them post hysterectomy, sorry.

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yellowtulips74

Hi everyone

 

Later this week I'm having a hysterectomy and repair to both anterior and posterior walls. It will all be done vaginally.

 

I assume (although I don't know this for a fact) that the pregnancy hormones 'prepare' the vagina for all that stretching in childbirth. (...is that right?)

 

But my body isn't really expecting this!! So does this surgery usually involve an episiotomy-type incision?

 

Any words of wisdom would be much appreciated!

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Expelliarmus

No there is no episiotomy type incision for a vaginal hysterectomy. I didn't ask but assume they use those duck bill thingos to stretch things down there.

 

Seriously I have forgotten the name of the instrument! LOL The thingy they use for pap smears. There were no external incisions or stitches at all.

 

With the repairs, if my recovery is anything to go by, you'll have packing in there for 24 hours or so and a catheter for a bit. I had mine in longer than the packing because of a bladder repair. Wear a nightie! I only took pyjamas. Big mistake. You need a nightie or two.

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