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Wonderstruck

Normal newborn/premmie behaviour or something else?

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Wonderstruck

I never experienced a 'normal' newborn so not sure if what I'm seeing with DD2 is normal.

DD1 was born term, had severe reflux and non-ige CMPA. She power spewed and comfort fed a lot.

DD2 was born at 34+6, she spent 24 days in special care learning to feed and adjusting to the outside world. She will be 4 weeks tomorrow (38+6 corrected). She is just shy of 3kg.

She basically wants to feed all the time - if she's awake she's rooting, if she's finished a feed she's rooting. She's taking 180ml/kg/day 4 hourly so 90ml feeds. She polishes these off in 15-20 minutes on a pigeon wide neck SS teat and gulps it down. If I offer bigger feeds she has more reflux and belly pain.

She grimaces, raises her legs and grunts during most sleeps - most of the time. She is awoken by reflux and gags. She's been fully formula fed for a week (previously EBM and formula) and her poos to me look like they have mucus - they're runny, wet and shiny.

I'm trying to determine if she's just a hungry baby or comfort feeding to soothe pain such as reflux or gut pain from possible CMPA.

Is it normal that she eats as if her life depends on it? I don't want to underfeed her but she seems to have no full button then ends up in more pain?

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Ellie bean

That sounds very much like my dd with severe reflux and cmpi. Right down to the mucousy stringy poos (she was bf until diagnosed).  It did advance to hours of constant screaming in her case though by about 5 weeks. What helped us was losec, prescription formula and thickener, also on medical advice we spaced her feeds out- she was comfort feeding which led to a cycle of pain, feed, pain etc and made things worse. Obviously I definitely wouldn’t do any of that without medical advice and she was full term so I have no idea about premmies sorry. I’d be trying to get a paed appointment ASAP to see what they think. Also the dr browns bottles that take the air out seemed to help a bit.

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Wonderstruck
7 minutes ago, Ellie bean said:

That sounds very much like my dd with severe reflux and cmpi. Right down to the mucousy stringy poos (she was bf until diagnosed).  It did advance to hours of constant screaming in her case though by about 5 weeks. What helped us was losec, prescription formula and thickener, also on medical advice we spaced her feeds out- she was comfort feeding which led to a cycle of pain, feed, pain etc and made things worse. Obviously I definitely wouldn’t do any of that without medical advice and she was full term so I have no idea about premmies sorry. I’d be trying to get a paed appointment ASAP to see what they think. Also the dr browns bottles that take the air out seemed to help a bit.

Thanks heaps. This morning she weirdly had a normal looking poo but most have been wet and mucusy.

I ended up holding her in her sleep last night for a few hours as she was trashing around upset and swallowing. 

GP tomorrow so hoping she gets us on the right track.

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Ellie bean

Ahhh I remember holding dd up constantly, so exhausting! Really feel for you and hope you get answers soon

i haven’t been on it for ages so it sure what it’s like now but the RISA reflux website had amazing info and support at the time 

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-Belinda-

GP and/or maternal health seems to be a good idea to check. I'm a bit nervous to suggest, but trying a dummy may be a good way to satisfy that sucking/comfort urge (assuming its not due to pain) in between feeds. Mine both liked it and we had no issues getting rid of it.

Congrats on your bub and I hope she settles soon.

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Wonderstruck

She's a bit reluctant with the dummy! My first still loves hers but she will take it at times. 

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*holdontight*
2 hours ago, -Belinda- said:

GP and/or maternal health seems to be a good idea to check. I'm a bit nervous to suggest, but trying a dummy may be a good way to satisfy that sucking/comfort urge (assuming its not due to pain) in between feeds. Mine both liked it and we had no issues getting rid of it.

Congrats on your bub and I hope she settles soon.

I was going to suggest this, one of mine had severe reflux & ended up having 2 Nissen Fundoplications, our gastro specialist suggested the dummy & not get rid of until we had his reflux sorted out , he was close to 4 before this time but it really did help, sucking helps ease the pain but putting more milk into their system makes the pain worse so the dummy was the alternative (weak peppermint tea was also suggested but I wouldnt do it without medical advice & our little one was much older) & we didnt have any issues weaning the dummy, I think because he no longer needed it to help his pain.  Good luck, silent reflux is so cruel but hopefully your Bub grows out of it quickly.

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Ellie bean

My second loved the dummy but dd wouldn’t take one, it might be worth trying a few different shapes dummies too

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