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The Little Engine

Low grade temperature for over 2 months

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The Little Engine

I will start this post by saying I know posters cannot give medical advice... but I am after ideas of what to do next.

Essentially I had what I first thought was a flu etc begin in mid August - Being from Vic it was impossible to get into the Dr without a negative covid test - when this eventually came (over a week after the symptoms started) I still couldn't get a face-to-face appointment.  After 2 weeks of symptoms I was able to have a 5 min appointment in the treatment room - and got a referral for X-ray etc.  A few days later I was diagnosed with 'atypical pneumonia' and given some antibiotics.

The antibiotics improved many of the symptoms (especially the major breathing issues and pain on breathing) and slowly I started to feel a bit better. Only issue is I STILL have a low grade temperature - over 10 weeks after the onset of symptoms!

My regular GP organised some blood tests a few weeks ago and they didn't show up anything, nor show any signs of infections.  At that point I was told it would just be another week or so for the body to recover from being so sick and to rest as much as possible and all will be ok.   Unfortunately this hasn't happened... - and I still can't get a proper face-to-face appointment because I have fever and a few other minor symptoms - that could be covid.  Even when I had another negative covid test 2 weeks ago and I had a text on my phone stating that the receptionist refused to allow me a proper appointment!  

My temp has mostly been between 37.5-38.2 - Sometimes it is 'normal' and sometimes it goes a little higher.   Mostly I have got used to coping with the raised body temp - but it is exhausting and I feel so blah much of the time.  If I try to do anything remotely strenuous or have a glass of wine the temp goes up quickly.  I have tried to avoid panadol etc unless the headache and other symptoms are worse with the fever.

2 weeks ago my Dr wrote a certificate till the end of last week for me to work half days  - to allow me to rest and (hopefully) recover.  This time has finished and I am meant to return to full days on Tues.  Only issue is I STILL have a temp and am exhausted.  My asthma isn't great and is further triggered by all the cleaning chemicals etc due to covid rules.

Any suggestions?  i know the obvious is to go back to Dr - but to get even a phone appointment with my GP is over 2-3 week wait - and I can't see anyone at my Dr's because I still have a fever.  

Has anyone else had a raised temp (I won't really call it a fever as it's mostly under 38c) for so long?    I even went and got a new thermometer 2 weeks in - because I couldn't believe the temperature could last so long!  

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Not Escapin Xmas

Sounds awful. I went through similar with night sweats. It took months to figure out the cause.

on the off chance you are on anti-depressants, that can raise your temp. I was told to try taking Panadol each night to assist with sleep. It definitely helps.

However, if nothing has changed then you really need someone to investigate more thoroughly.

and also make sure that you ARE getting rest, which I know is probably very difficult.

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PrincessPeach

Given the situation in Victoria at the moment, I’d be organising things so you can take yourself into emergency, especially with the fact your GP is understandably reluctant to see you for a face to face consult. Ring the hospital first to find out their protocol, but still having temperatures this long after the initial illness, there is something not right.

 

ETA - the only person I know who had a temp longer than about 3 days was my mum when she had food poisoning. That was 3 weeks of high temps & she was hospitalised for the majority of that time. Dehydration was the biggest risk with such a high temp.

Edited by PrincessPeach
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22Fruitmincepies

I’ll suggest the possibility of an autoimmune disease, like rheumatoid arthritis. RA can cause lung issues, and many people suffer from a raised temperature when having flares etc, and exhaustion is common. I know it’s a bit of a long shot, but something to keep in mind. You don’t have to have the stereotypical swollen joints and joint pain to have RA. 

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PuddingPlease

Is there the option to see another doctor? A 2-3 week wait for a phone appointment seems far too long even if it's the best doctor in the state.

I'd also tend agree with the PP who suggested a visit to A & E for help if your cannot see a GP, it sounds debilitating.

You poor thing, I hope you get some answers soon! 

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Chill-Pill

Did you have contact with anyone that was COVID positive? 

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Soontobegran

I presume that thyroid function tests were done OP ? I had a temp at the same time I was hyperthyroid.

 

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MooGuru

What's your heart rate doing between lying down and standing?

I know someone who had very similar symptoms to what you're describing who was later diagnosed with dysautonomia.

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PocketIcikleflakes

Did you have more x-rays to confirm your lungs are fully cleared? 

I agree with PPs though to call A&E and go there.

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The Little Engine

Thanks to all the replies.  The fever is still there... 12 weeks today :(  I have not been able to get back in to my Dr and I'm not sick enough to go to ED so it's just a case of treating the fever when it gets too high or if I have other symptoms (headache, dizziness etc)

I have noticed that if I am getting warm at all my temp spikes even higher (ie cooking, shower, in a warm car etc).  My temp also fluctuates quickly (can be 37.3 and 10 mins later over 38, then 10 mins later dropping again).  

I have had thyroid issues in the past so blood tests included checking this.   All major infections were ruled out.  I guess I need to try and push for a 'real' appointment.  I have been brushed off so far and because I was largely 'better' after the pneumonia except for  extreme fatigue and the low grade temp the Dr wasn't too concerned...

 

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magic_marker

Just a thought. Do you consider you may have an infection in your gum? An infection can often go undetected for ages until you get pain in the mouth.

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Grrrumbles

My DH is just waiting to see the specialist to confirm inflammatory bowel disease. He often has fevers and feels exhausted. We used to think he just had a lot of tummy bugs but no one else gets sick in the household. Finally he saw a different GP that did stool testing. 

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skicat

Any possibility of TB? Visited high risk overseas countries?

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nasty buddha

Hmmm.

I don't think you are being managed well. Your GP just needs to wear appropriate PPE  if concerned regarding covid or refer to someone who can see you. 

Can you see another GP?

Can you call health direct and see if they advise going to emergency?

12 weeks of a fever ? How old are you OP? 

 

You said they ruled out common infections? Usually that's just chest and utis. So I'm guessing you've  given a urine specimen and it's been cleared and they have listened to your chest with a stethoscope. Have you had a chest xray?

What is your blood test showing your CRP and white blood cell count levels to be? 

You mentioned being quite fatigued after overdoing things. Your body is fighting something, you need to let your body rest. 

Is your neck sore? Swollen lymph nodes in your neck?  Glandular fever might keep temps up that long and not have been something your gp looked for. But really, it could be anything. You need a more thorough investigation. 

I wouldn't hesitate going to emergency if you can't get  GP to review you.  You could have something that might benefit from earlier intervention. 

 

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nasty buddha

Also forgot to ask, apart from chest and uti"s, what else has your gp ruled out?

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Soontobegran

You definitely need to see a new GP.

Low grade fever for 12 weeks with other symptoms of being unwell require tests until you do find out what is happening, they should not stop looking just because what they've done has not revealed anything....they just haven't tested the right things.

Good luck. :(

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Baily

I think if you have had a temp for 12 weeks and your Gp isn’t helping.  Then maybe you should go to the ED.

That’s not normal, a hospital will have access to a wide range of tests, X-rays ect  The fact you had pneumonia and still have a temperature, probably needs looking into again. 
 

 

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WaitForMe

You need to go to emergency.

Do you have a copy of your blood test results? They'll want to do their own but I'd take that, a good book and some snacks and head to the hospital.

 

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Redchick2

Like others have said fever of unknown origin for that long has to be thoroughly investigated. So hard to push when you are already feeling rubbish- can someone go to A&E with you? 

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Pearson

I would be attending an ED or be pushing back at your doctors for a more urgent appointment. Three months of a low grade fever is not good, fever is the body fighting infection, so something is happening there that needs to be dealt with, and you never know what it could be.
I feel for you being in Vic not being able to get into doctors, but you need to be a little pushy about this. This is why they were trying to stop people getting COVID, so it wouldn't come to this, making it hard to seek treatment for people with non-covid health matters. 

 

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The Little Engine

Just back from the Dr (a different one who I have seen before with the kids and is very thorough) I gave just had a repeat x Ray and more extensive blood tests and will see if anything shows up.  

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bakesgirls

Have you been tested for tuberculosis? 

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Kiwi Bicycle
1 hour ago, bakesgirls said:

Have you been tested for tuberculosis? 

I assume a repeat chest xray plus bloods will be including TB.

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The Little Engine

I have no idea about TB...   

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The Little Engine

The X-ray and all blood tests came back as 'normal'.  I have asked for a copy of the results to be sent out so I know what they have tested.  I am now at a loss.  I am EXHAUSTED - 15-20 mins of moderate 'work' - ie gardening, vacuuming etc knocks me for 24 hours and anything remotely physical or being warm spikes the temp too.  Right now after cooking tea then sitting down to eat my temp is still 38.4 - Who knows what it was when I had finished cooking!

I am a positive person and can cope with a LOT - but this is starting to wear me down!  

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