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.Jerry.

Should I be that parent? Medical saga continued...Updated

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.Jerry.

Some of you may have read previous threads of mine regarding my daughter's medical saga.  **NB I don't want medical opinion really, as I know that is for an expert, just what would you do next**

Short version:  She exhibited lower right quadrant abdominal pain a few years ago.  Sent for u/s - off to hospital with enlarged appendix.  No clinical signs.  All settled a bit.  Over the past 2-3 years she has had continued pain in this spot.  It stops her dancing (her great love) at times, makes her miserable.  She says the pain is always there (dull) but sometimes hits sharply and can stop her in her tracks.

We had plenty of u/s, a CT and most recently exploratory laparoscopic abdominal surgery:  showed clear bowel area, ovaries fine, no endo, appendix ok.  Gastro has asked us to trial no dairy (no change) and no gluten )no change). She's had blood tests and CRP stool test.  Nothing exceptional found.
We are now staring down the barrel of a "functional abdominal pain" diagnosis, which means "we don't know but we believe you".  This would mean treatment is anti depressant (ended) and hypnotherapy.

 

But....  A friend suggested, after seeing where DD pointed, that maybe it is her hip causing the issue.  The area (quite specific) is close to hip bone between bony part of hip and the groin area.  So now I have quizzed her a bit more and done some investigating and am thinking maybe this is worth exploring.  DD is still in pain.  Today she is at her loved dance workshop and has texted saying she is in pain.  She loves it there, so not trying to get out of it.  Pain is definitely worse during / after activity.  There are plenty of anterior hip conditions mentioned on dr google, and some which specifically often occur in dancers.

 

So,  TL:DR, would you persist in trying to find an answer ?  We've been looking abdomen, maybe it is orthopaedic in origin?  What if we were barking up the wrong tree (based on the earlier swollen appendix??)?

Will I been see as "that" mother, Munchausen by proxy-style?   

Would you seek more info, maybe from a sports medicine doctor?  

Or do I accept the anti-depressant and hypnotherapy treatment....

Thanks for humouring me. :)

Edited by .Jerry.
updated title

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Silverstreak

Nothing wrong with getting a second opinion and pursuing things a bit further, I'd see what the sports medicine doctor has to say. Good luck!

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DQMission

Given the suspected new development, could you consult a Physio first? Otherwise, if your gp has been in the loop, then could you ask if her presentation could also be consistent with a musculoskeletal issue?

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fruitfairy

I think any pain that stops you in your tracks absolutely needs to be investigated. 

It's possible you could have both types of pain. I had endo and bowel, and now have hip issues.  She could just be a bit complicated. Does she have other bowel issues like bloating and wind etc?

That being said, I believe hypnotherapy is very good for IBS. Sorry I am of no real use other than definitely keep looking into it. 

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TheGreenSheep

Definitely worth investigating. It’s very reassuring to know that they’ve taken you and your DD seriously, thoroughly investigated, there is nothing internally happening.

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SkeptiHandsOnMum
30 minutes ago, .Jerry. said:

Will I been see as "that" mother, Munchausen by proxy-style?   

Oh no, you would have to try a WHOLE lot harder to be *that* mother ... believe me. 

I would go to a physiotherapist and/or sports physician before starting tricyclic antidepressants.

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Living Type

Definitely worth checking out a physio for sure.

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*bucket*

When I had exploratory abdominal surgery, they took my appendix out. It was the problem, but he said beforehand that he would take it out regardless, to avoid it becoming a problem in the future. That was a while ago, so maybe thinking has changed, but if they'd done that, at least the possibility of it being involved for your DD would have been ruled out for all time. I join the chorus of 'yes' keep investigating this. Would definitely consult a physio at least, and see what they say. They can usually order x-rays too, if required.

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born.a.girl

All I can say is I wish my mother had been 'that mother' over 50 years ago instead of 'yes doctor', after being told my symptoms were psychosomatic. 

Gofrit! 

I find good language to use is to talk about the cause not being found, yet.   Doctors understandably want to rule out serious, life limiting conditions and I've had plenty of experiences of being told 'it's great, your tests are negative', and that's the end of it.  (Some of this was a while ago, so different times and attitudes.)  Now when I have any tests done for something, I want to know, before I have them, the next step whether they be negative or positive.

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Treasure Island

Absolutely I would see a physio. I have some hypermobility and was born with clicky hips. It is quite normal for me to have hip. lower back or neck pain that affects mobility. I can wake up with it in the morning! or get it from activity etc. Eg: I have been moving soil this arv so I may well wake up with issues tomorrow.

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Hypnic Jerk

That's so not being THAT parent.  On the assumption that being THAT parent is being annoying.

Seeing a physio is way down on the list of the extreme.  And as a bonus, no woo

Plus if she's a dancer I'm surprised she doesn't see one regardless.  Another alternative (and I mean alternative - some woo) would be a NST or Bowen therapist.  I'd probably go physio for this one though.

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NannyPlumPudding

Definitely no that parent!  

Try and find a physio who specializes in dancers :) 

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22Fruitmincepies

Keep going Jerry. I’m currently helping a family member with mysterious abdominal pain - the list of specialist seen and things ruled out is impressive, but nothing found yet which is so frustrating. Theirs is also linked to their favourite activity, and it’s so hard when they can’t participate as they want to. 

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YodaTheWrinkledOne

Should you continue to be an advocate for your child to find a true diagnosis for her painful and ongoing symptoms and to avoid hard-core medications unless absolutely necessary for effective treatment and management of her condition?

HELL YES!

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Paddlepop
1 hour ago, .Jerry. said:

So,  TL:DR, would you persist in trying to find an answer ?  We've been looking abdomen, maybe it is orthopaedic in origin?  What if we were barking up the wrong tree (based on the earlier swollen appendix??)?

Will I been see as "that" mother, Munchausen by proxy-style?   

Would you seek more info, maybe from a sports medicine doctor?  

Or do I accept the anti-depressant and hypnotherapy treatment....

Yes, keep looking for the answer. Keep advocating for your DD. There is a real physical cause for her pain. The doctors just haven't found it yet. Definitely see a sports medicine doctor or one with an interest in musculoskeletal conditions. A physio could be useful too. Perhaps ask the dance school for recommendations or some of the other parents for their recommendations. 

If you are seen as "that" mother then screw them. Just because the current doctors haven't worked out what is wrong with your DD doesn't mean that there isn't something wrong with her or that you're an overbearing crazy mum. If that's the case then I'm "that" wife trying to get DH's health issues sorted out and working out WTF is wrong with him. Current neuro wants to refer him to a pain management specialist and stop investigating his health. Hell no. Something is very wrong with him, and it's progressing, and this neuro hasn't even done all of the tests that he could. I'm trying to convince him to see a different neuro, preferably one who is more hands on and will do tests and biopsies. 

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rosie28

Definitely not “that” parent! I’d see a sports Physio, at the very least it can’t hurt. I have some hip issues and the pain is sometimes in my hip, as in I can tell it’s in my hip, and sometimes in my abdomen closest to my hip, if I’d never had the proper hip pain I would assume I had abdo pain. 

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Charli73

I have hip issues and when I have myotherapy done She massages a muscle in my abdomen to release the tight hip muscle, Psoas. Definately see a physio or sports doctor... 

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kadoodle

Absolutely see a physio, and try to find one who’s experienced with dancers. 

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SplashingRainbows

Another vote for yes follow up. And I too would start with a physio. 

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immismum

My daughter had a hip problem after a rough house session with her cousin. We knew it was a hip problem as her cousin landed on her hip bone, but later the pain was more in her abdominal. 

Massive pain, and it failed to settle. Problem was no investigation showed anything wrong. 
The list of doctors, specialists, Tests etc we had done was impressive. I counted 15 different doctors. 

She ended up at the pain management clinic at the Children’s hospital, where they did a full half day investigation to basically see if they thought it was all in her head. (Which they will then help with)

They decided it probably  wasn’t, but they didn’t know what was causing it. (My kid was on crutches most of the time by this stage and missing lots of school) 

The professor at the children’s actually ended up referring us to a myotherapist, the least qualified and least professionally trained person we had seen thus far. 
 

Bloody man was a miracle worker!

He diagnoses a psoas muscle problem, gave her exercises to fix it and she was back playing basketball within a month. 
 

So, moral is, keep going and don’t be afraid to go the unconventional route, but get recommendations from people you trust. I’d look into a myotherapist and osteotherapisr as well as a sports physio. 
 

Mind you a sports physio was one on the first people we saw and he didn’t help...

From what you describe I’d actually suspect a psoas muscle problem. One way to see if that might be the problem. 
Get her to lie on her back with her bad leg bent and her good leg straight. Then get her to lift her good leg up by 45 degrees, then out to the side, about 45 degrees, then lower to the ground and bring it back straight. All done slowly. 
Then swap legs. 
When my daughter started that exercise  she could only do 1 on her bad leg. She had to do that exercise every day, adding one extra one each day until she got to 10.

Edited by immismum
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timtam92

If you are in Melbourne, there is a physio clinic that specialises in Dancers and their issues. https://www.clinicalpilates.com
 

im not a dancer but have been there and they fixed me right up.

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annodam

100% I would!

I would also (& I know she or you may not want to go down this path) cease vigorous activity until a solution be found.  Because as you say, the pain is exacerbated at dance.

Pain is a warning that something's wrong, in my view anyway.

Mum had a sudden pain like you say near her hip, a cortisone injection plus physio & she's relatively pain free. 

I say relatively 'cause she's old & she occasionally gets niggles. 

But at 14yo yeah, nah be that mum...

 

 

 

EFS:

Edited by annodam

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immismum

Just to add, the psoas muscles are really deep muscles in the human body and the are the only muscles that actually join the legs to the torso. 
They attach on either side of the lower spine so when they go wrong they are really painful. Also because they are always in opposition to each other (push me pull you situation) they can’t rest if they get injured or sore. Not like not being able to rest a leg Using one leg doesn’t affect the other one if you are in plaster. 

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Serapod
2 hours ago, *bucket* said:

When I had exploratory abdominal surgery, they took my appendix out. It was the problem, but he said beforehand that he would take it out regardless, to avoid it becoming a problem in the future. That was a while ago, so maybe thinking has changed, but if they'd done that, at least the possibility of it being involved for your DD would have been ruled out for all time. I join the chorus of 'yes' keep investigating this. Would definitely consult a physio at least, and see what they say. They can usually order x-rays too, if required.

As above with PP, I had grumbling appendix and whilst they were hesitant to operate, they did. And they did decide to remove the appendix as it was slightly inflamed, and the thought that eventually it would progress so they removed it whilst they were in there. 

 

This was in 2014.

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Dianalynch

If there is any chance of hip dysplasia a referral from a gp for an ultra sound might be in order radiologist may be able to advise, or a referral direct to an orthopaedic surgeon. GP will know. I think hip dysplasia can occur in adults, may be missed in childhood. it could be worth checking there’s enough hip socket for the joint if that makes sense. While the pain sounds different, everything is worth checking. 
 

all the best, I hope your dd gets some relief soon poor thing, no way are you that parent,  not even close. 
 

 

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