Jump to content
Ghost Girl

Psoriasis- alternative treatment - help

Recommended Posts

Ghost Girl

So I do preface this by saying I've seen GPs and specialist for about 15 years now, so getting treatment but just wondering if anyone has had any luck with getting psoriasis under control that's not steroid creams or light treatment.

I've had psoriasis on and off for close to 20 years now  covering  sometimes 20% of my skin.  I've seen GPs and specialist and all anyone seems to be able to offer is creams that really don't work. I feel like a big inflamed ball of itchy. I discovered the other day it's now moved to the bottom of my feet and with all the lockdown stress it's just getting worse. None of the medical people I see can talk about cause a, it just seems to be treatment. I'm just so exhausted from being itchy all the time.

So just wondering if anyone has had success with other alternatives, diets salt baths, I'm pretty much willing to give anything a go at present to stop the itchy. 

Share this post


Link to post
Share on other sites
22Fruitmincepies

It is an autoimmune disease, and can be treated with immune suppressing drugs such as methotrexate (which I take for another autoimmune disease). It is a more extreme treatment but it sounds like you might need it. 

  • Like 2

Share this post


Link to post
Share on other sites
mumpteen

I feel for you - I also have patches of psoriasis and while the steroids start off great, they soon lose their  effectiveness.

I don't really have any good solutions for you, my best treatment is to soften the skin by wetting it, gently rub the skin flakes off with a towel and apply dermaveen (almost useless but better than nothing) or coconut oil (surprisingly effective on areas that don't have hair). Will be following the thread to see what solutions people have to offer, it's really horrible stuff :(

Share this post


Link to post
Share on other sites
Ghost Girl

Thanks 22Fruitmincepies. I had thought about asking for medication, it was mentioned by a specialist many years ago but hasn't ever been offered again. With it now hitting the bottom of my feet maybe I'll ask again.

Coconut oil is a new one mumbag. I can give that a try. I've found the steroids as useful atvrhe q.v. cream, so gave up some time ago on them. A lot of money and no better result. Although it did help my eyelids the other day.

I'm ready to try just about anything at present.

  • Like 1

Share this post


Link to post
Share on other sites
marple

My son had terrible psoriasis as a child and a dermatologist gave us a script to take to a compounding chemist ( obv no idea what is was sorry). Treatment was the cream from the chemist then olive oil. Worked a treat but was only in his hair and on his forehead  so may not help

Other son has something similar ( can't remember actual diagnosis) - he is in his 20's and a VERY expensive doctor  he went to in desperation a few months ago, told him to use anti-dandruff shampoo. Not just on his head , everywhere, so use it as his soap in the shower. His face looked heaps better last I saw him. HTH

  • Like 1

Share this post


Link to post
Share on other sites
Lost_In_Australia

You ask for alternative treatment , so watch this video  https://nutritionfacts.org/video/aloe-vera-for-psoriasis/. In a clinical trial , aloe vera performed better than steroids:

{ By the end of the month-long study, the aloe vera cream had cured 83% of the patients, compared to the placebo cure rate of less than 10%, “resulting in significant clearance of the psoriatic plaque” skin lesions.

All right, but that’s compared to an inactive placebo. How about compared to steroids? Aloe was found to be “more effective…in reducing the clinical symptoms.”  . }

It is quite cheap and there are no health risk, so maybe it is worth a try. 

Also from the same site, a recommendation to reduce salt intake.

https://nutritionfacts.org/video/sodium-and-autoimmune-disease-rubbing-salt-in-the-wound/

Again, an easy thing to do. 

  • Like 1

Share this post


Link to post
Share on other sites
Mrs Twit
Posted (edited)

Edited my post because my brain is asleep and it's actually a form of rosacea that he has. We thought it was psoriasis for so long which is why I got mixed up. As it's still an autoimmune disease I will leave the last bit of my post re diet. 

We are going to look at diet. I also have an autoimmune disease - Ulcerative Colitis and with changes to my diet, my last colonoscopy showed no trace of the disease at all. I don't know if it can be helped with diet or where to start, but it is our next plan of attack. 

The Clever Guts Diet by Dr Michael Mosely is a good read if you are interested in how diet affects the mind and body, autoimmune diseases etc.

Edited by Mrs Twit
  • Like 1

Share this post


Link to post
Share on other sites
22Fruitmincepies

Do you have any allergies? If you do I’d be careful about using a food based oil like coconut on your skin, as there is the hypothesis that it increases the risk of becoming allergic to that food if used on damaged skin. DD had bad eczema, we tried coconut oil on it (didn’t help) and she has since (years later) developed an allergy to coconut (that was a fun trip to ED). It’s not necessarily causative, but dealing with a coconut allergy is not fun. As it’s not a common allergen it’s not highlighted on the list of ingredients, and I’m finding it in odd foods. 

Share this post


Link to post
Share on other sites
mumpteen
1 hour ago, 22Fruitmincepies said:

Do you have any allergies? If you do I’d be careful about using a food based oil like coconut on your skin, as there is the hypothesis that it increases the risk of becoming allergic to that food if used on damaged skin. DD had bad eczema, we tried coconut oil on it (didn’t help) and she has since (years later) developed an allergy to coconut (that was a fun trip to ED). It’s not necessarily causative, but dealing with a coconut allergy is not fun. As it’s not a common allergen it’s not highlighted on the list of ingredients, and I’m finding it in odd foods. 

Wow, good to know, I didn't even realise you could be allergic to coconut.

Share this post


Link to post
Share on other sites
22Fruitmincepies
1 hour ago, mumbag said:

Wow, good to know, I didn't even realise you could be allergic to coconut.

It’s really unusual. 

Share this post


Link to post
Share on other sites
wanting3

I had really bad eczema as a child and went to an allergy clinic to test what I was sensitive to. I was sensitive to a lot of things, but thankfully have desensitised to most of them. Really weirdly, I was still flaring up when we had removed the allergens, but this was in response to stress. I could have clear skin, but have a stressful situation confront me, and I would start to get hot and then start scratching.  

I also found during pregnancy I had zero flare ups for both my eczema and asthma, even when I was in a situation that would normally set me off.

I will get a flare up every now and again, this is mainly if there is something in a takeaway food I am unaware of, but I then take prednisone to get it back under control. I will only take the prednisone while I have symptoms.

HTH

 

Share this post


Link to post
Share on other sites
EsmeLennox

it’s an autoimmune Disease, so no one really knows the cause.

Has anyone ever discussed biological treatments with you? You need to see a dermatologist, and then be referred to a dermatology clinic at a major hospital. My DH has been treated with biologics for many years... they are coming out with new ones all the time. The one he’s using now is an injection every 3 months and he has not got a single patch of psoriasis on him... where as at its worst it wa on more than 60% of his body.

You do have to jump a few hoops to get onto these treatments. Basically three other treatments have to fail... so for my DH that was light therapy, methotrexate and cyclosporine. All of which worked to some degree but as soon as the treatment was finished, it would come back with a vengeance, usually worse than it had been before.

  • Like 2

Share this post


Link to post
Share on other sites
Grrrumbles

I am sensitive to aloe Vera and DS to oats so make sure you patch test anything new - behind the ear was the location recommended to us.

Would something like Dermasilk help with your feet. You can wear them as socks or under them. They make them for every part of the body.

We used the range for severe ezcema but it really help with protecting from scratching.

Share this post


Link to post
Share on other sites
xx1stxx

I have also had psoriasis for 20 years or more.  I am currently on 10mg per week dose of MTX, which makes the itching bearable.  I barely have to use creams any more, but it is still there, just doesn't itch as bad as it used to prior to going on the methotrexate. 

About 6 years ago i had a dose of gladular fever which flared up my psoriasis especially on the soles of my feet for the first time ever.  OMG it was totally unbearable, it was painful, it was itchy, it was driving me mental.  I was pulling of my socks and shoes at work under my desk to scratch hard with any metal object i could lay my hands on.   My GP prescribed some cream (cant remember what it was called but it was in a huge tube unlike the usual tiny tubes prescribed).  I was told to slather on a thick layer, followed by thick layer of sorbolene cream, as this helps the cream underneath absorb into the skin, then to cover my feet in glad wrap and put on socks.  It was tricky to walk, a bit slippery but i got used to it after a while.   Anyway, within a couple of weeks it completely dissapeared to never return.

  • Like 1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×
×
  • Create New...