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amberlee

What looks like allergies, but isn’t allergies?!?!

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amberlee

My daughter has just turned 12.  Her allergy symptoms have been getting increasingly worse the last few months- constant itchy/sneezing/runny nose, itchy-red swollen eyes, even with red welts under them, and of course  extremely tired and irritable as a result. She hasn’t been pleasant to live with.
 

The frustrating thing is she has not been getting relief from ANY of the antihistamines we have tried- tablets, nasal sprays, nasal preventers, eye drops. Fess and saline sinus flushing. Nothing has helped or given more then a slight temporary - perhaps an hour or so- relief.

We have sent the cat away and that did give her some immediate relief. But she’s still not great.

We went to a Drs today and she had her skin testing (we hadn’t taken any meds the past week).  Nothing showed up as a positive. Not even the control test came up as a positive!!!??? The Dr looked in her nose and said it was swollen from allergies.

The Dr gave her a different tablet, eyedrops and nose spray to try, and advised to come back in a month if not helping and she’d refer to a Specialist.   We took the new drugs after the appointment and she’s still a snotty, itchy, swollen mess tonight.
 

Anyone got any advice/tips or suggestions??? We’re all getting frustrated by it, but especially her because it’s impacting her school and enjoyment of life. Thank you

 

 

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tinselfoil hat

No idea sorry @amberlee . Did the doctor have any explanation why the control test didn’t work? That seems very odd!

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22Fruitmincepies

Is it constant or intermittent? If it’s constant, have a look into dust mite allergy. DD has this and changing her room to make it as low allergen as we can, plus nasonex spray, and she’s like a whole new kid. DH uses Dymista which is prescription only but very effective, not sure it’s ok for kids. 

A blood test might be successful where the skin prick testing wasn’t. But truthfully I wouldn’t get skin prick testing done by a GP. I’d push for a referral to an allergy specialist now, as the wait for an appointment can be long (so better to get on a list now). Seeing one has been amazing for my DH (DD was already seeing one for food allergies). 

It sounds like it’s really impacting her life so a specialist is warranted. Good luck! 

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spr_maiden

Dust mite allergies and/or  vasomotor rhinitis. Or food intolerance?!

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amberlee

We definitely have tried to control dustmites, because I know that's an issue with myself (new bedding and pillows, sheets, blankets) Lots of cleaning and vacuuming. And she has been taking Nasonex for several months but it hasn't really helped at all. 😬

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amberlee

Food intolerances got investigated towards the end of last year (she has Coeliac disease, and was having ongoing issues with reflux/vomiting and anaemia, so her Gastroenterologist checked them out)

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amberlee

Vasomotor rhinitis sounds interesting... I'll definitely check that out, thank you!

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TheGreenSheep

I didn’t find Nasonex that good for allergies for me, if anything I had rhinitis from using it, and it dried out my nose big time. I moved to Avamys which is on prescription, not cheap, but works for me and my allergies.

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Behind Hazel Eyes
7 minutes ago, amberlee said:

Food intolerances got investigated towards the end of last year (she has Coeliac disease, and was having ongoing issues with reflux/vomiting and anaemia, so her Gastroenterologist checked them out)

Did she do an elimination diet like the RPAH (Royal Prince Alfred Hospital) one? Intolerances can be very hard to diagnose. I personally found the dietician I accessed through our public hospital more useful re intolerances then my gastrointestinal was. 

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spr_maiden
32 minutes ago, amberlee said:

Vasomotor rhinitis sounds interesting... I'll definitely check that out, thank you!

You're welcome. Even things like going from heat/warm day into air conditioning can set it off.

But,  I think the hives would not be from that. If she's getting hives,  that sounds more like an actual allergy. A GP recently told me skin prick testing is considered less reliable these days.  I don't know how true that is,  but perhaps time to skip the GP and see an allergy clinic?

I feel for your DD.  Mystery reactions and constant symptoms are miserable and so disruptive and uncomfortable. 

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Dianalynch

On my last visit with my allergist, she made sure I was aware of potential of developing allergies from soaps, body wash, moisturisers, with food based products in them - I only use products like QV 
 

any chance she’s reacting to something in a product she’s using? 
 

also the skin prick test is not considered completely reliable as a pp said - it comes back as negative for me, yet I’m anaphylactic to a food that’s been scratch tested 

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amberlee

Yes, I just did a quick google on the vasomotor rhinitis- and hers definitely does sound more like an allergy with the itching, hives and eye involvement.  Yeah, I think it’s time to skip the GP

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amberlee
35 minutes ago, ShatteredMadre3 said:

Did she do an elimination diet like the RPAH (Royal Prince Alfred Hospital) one? Intolerances can be very hard to diagnose. I personally found the dietician I accessed through our public hospital more useful re intolerances then my gastrointestinal was. 

No, she did a few eliminations and RAST testing of about 6 foods.

 

1 minute ago, Dianalynch said:

On my last visit with my allergist, she made sure I was aware of potential of developing allergies from soaps, body wash, moisturisers, with food based products in them - I only use products like QV 
 

any chance she’s reacting to something in a product she’s using? 
 

also the skin prick test is not considered completely reliable as a pp said - it comes back as negative for me, yet I’m anaphylactic to a food that’s been scratch tested 

I haven’t fully investigated the possibility of products. I’ve always used sensitive detergents and washes for her because I react to perfumes... But I’ll  check out this option too, thanks

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TND

Did she take antihistamines in the 48 hours prior to testing?  If she did it will throw up false negatives, especially seeing the control didn’t come up.  

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Crap Napper

Mast cell activation disorder? Mastocytosis?

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amberlee
34 minutes ago, TND said:

Did she take antihistamines in the 48 hours prior to testing?  If she did it will throw up false negatives, especially seeing the control didn’t come up.  

No, we made sure she had no meds for 7 days beforehand as we were aware that this could happen

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amberlee
29 minutes ago, Crap Napper said:

Mast cell activation disorder? Mastocytosis?

Wow- interesting!  Our family has a strong history of autoimmune disease. I was wondering if it could be something along those lines.

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Crazyazy

That sounds awful for your poor Dd, did the doctor do a blood test to test for grass or dust mite allergies?  My DD went through a very bad allergy patch last year after the 3rd GP visit as the nose sprays and antihistamines weren’t working and we’re making her nose bleed they finally did the blood test and she came back as no dust mites allergy but highly allergic to grass.  In the end we got rid of all the sprays and antihistamines and just used a saline spray.   The next tip we got which sounded crazy was to put Vaseline in each nostril every night and it took about 3 weeks and no more allergic reaction.  It gave the inflamed lining and sinuses time to recover.  I’m still doing the Vaseline with her 6 months later. 

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mandelbrot

The Vaseline is also supposed to trap any pollen before it gets deep into the sinuses and causes havoc there.

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purpleduck
Posted (edited)
On 29/06/2020 at 8:58 PM, amberlee said:

No, we made sure she had no meds for 7 days beforehand as we were aware that this could happen

I remember when my allergy kid had their most recent skin prick test the nurse said something about why the control sometimes doesn't work but can't remember what it was. I don't think it was the usual anti-histamine thing, let me see if I can figure it out.

 

ETA - in this link on page 37 - Appendix B - https://www.allergy.org.au/images/stories/pospapers/ASCIA_SPT_Manual_March_2016.pdf

 

Edited by purpleduck
edit

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mandelbrot
On 08/07/2020 at 3:50 PM, purpleduck said:

I remember when my allergy kid had their most recent skin prick test the nurse said something about why the control sometimes doesn't work but can't remember what it was. I don't think it was the usual anti-histamine thing, let me see if I can figure it out.

 

ETA - in this link on page 37 - Appendix B - https://www.allergy.org.au/images/stories/pospapers/ASCIA_SPT_Manual_March_2016.pdf

 

There are other, non-antihistamine medications that can result in false negatives on the skin prick test. I had a huge number of tests done based on horrible allergies, and they all came back low positive despite previous tests making my whole arm link up in one giant hive. The allergy specialist thankfully sent me off for blood tests that all came back positive. In my case it was endep, but I know there are others.

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spr_maiden

OP, just noticing RPAH elimination diet hasn't been done - has your DD's gastro or specialist ever mentioned investigating food chemical sensitivities? When looking into my own allergy/ stomach reactions,  the Dr mentioned as a starting point for which elimination diet to try - gut symptoms,  try FODMAPs elimination and sinus/allergy like symptoms,  try RPAH. Maybe look up salycilate sensitivity,  amine sensitivity and see what you think.  And, before relying on Google too much or fb groups (because it can be an overwhelming rabbit hole full of anxiety ridden people who have struggled for so long without answers) maybe see if there's info out there from the clinic,  if it still exists. 

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musicalmumma

It could very well still be the cat. Simply sending the cat away won't get rid of allergy symptoms if she's allergic to cats. Cat hair gets everywhere, deep into carpet.. 

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