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Kay-M

Mild Hip Dysplasia

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Kay-M

Hi everyone, I have a 10 week old girl who has been diagnosed with mild hip dysplasia... the orthopaedic surgeon and physio have said that it is borderline and from the get go said that she would unlikely need any brace / splint and the affected hip would heal itself. She has had a follow up scan which shows improvement but still borderline hip dysplasia. The results show “coverage” as being 57% up from 52% and with no movement on stress or any other issues. The coverage should be around 65% I am told. We have now been given splints to wear at night time only. We put them on our girl last night and it was absolute torture for both her and myself and husband. I had a complete me total breakdown! She is normally a great sleeper but would wake up screaming every half hour and couldn’t poop properly or want to eat (exclusively breastfed). I am so nervous to try again tonight and I’m wondering if anyone has had a similar diagnosis and scan results for their babies and also had splints at night, and if so, for how long? I should note that the physio and surgeon both said the hip could fix itself over time, but it could take a while and it’s a risk to not put the splints on as we don’t want to hinder her development. Thank you in advance :)

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lucky 2

Oh dear it sounds horrible!

I haven't had personal experience with the splint but if it was me, I'd be calling the physio asap and asking for help.

Just in case there is a way to make her more comfortable. ?

She has to be able to bf!

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appledumpling

I wonder if you “practice” during the day, putting it on when she is not tired, placing her somewhere like a bean bag, or boomerang pillow, supervised and when she is awake, of-course.  This might help both of you get used to it, might be helpful. At least it is some time in the brace and you may be able to extend it. But yes, a talk to the physio for ideas and to check if this is okay.

ABA website has some info on hip brace and breastfeeding https://www.breastfeeding.asn.au/bf-info/hip-dysplasia

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tassiekiwi

DD had hip dysplasia but she had a harness thing (Pavlik Harness) on full time for a couple of months.  The Dr said that that would be less stressful than only having it on at night. She was a couple of months old when it was put on and adjusted to it quickly. Would it be worth looking into having something on full time?

 

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~Kay~

We also did the pavlik harness full time. It was 8 years ago but I still remember the first night. It was awful. She adjusted quickly though.

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RPM

We also had the pavlik harness.   We had it put on from day 2 so not too much adjustment for our daughter.  There was more adjustment for us as she couldn't be wrapped like our first daughter.

I would talk to the physio to see if there are any other options, even if they might be slower.

Also try not to stress too much as you really are borderline - we were told my daughter was "cured" and no further treatment was needed once coverage reached over 50%.  We started below 20%.

 

 

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Soontobegran
Posted (edited)

 

Most cases of mild hip dysplasia do just sort itself out as the baby matures and the sockets form at their own pace.  These days with babies lying on their backs this tends to happen more quickly than when we used to swaddle and lie them on their sides as the natural way the baby lies is with the hips extended. In the days of cloth nappies we would send babies home in double cloth nappies if the dysplasia was mild as this helped to keep the hip extended and the ball in the socket which helps it to form.

If your orthopaedic surgeon and physio were  quite happy that she'd not need a brace who did prescribe the splints for her, particularly as she'd already shown improvement at 10 weeks of age?

 

 

 

Edited by Soontobegran
efc

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purpleblaze

Not sure this helps but my niece who's 1 has had a brace nearly full time since she was 6 months old.  She's so used to it that it doesn't bother her.  I wonder if having it on more frequently would help?  My niece's case was more extreme hence the lenth of time in the brace.

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~Kay~

Was last night any better for you both @Kay-M?

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Kay-M

Last night was the same :( We ended up taking the splint off at 1am (she had it on from 7pm)... the physio and surgeon said it’s better she has it because the muscles are tight on the affected side which are delaying the hip from developing (they said while its improved, it still has quite a bit to go). To be honest, I feel like she doesn’t need it and it was just prescribed as a precaution just in case but I’m too afraid to not listen. I called the physio today and made another appointment on Tuesday so he can see the progress. I’m hoping he will say that there is significant improvement and we don’t need them anymore 😭 Full time would definitely be better so she would be used to it, but I want to keep her free during the day for activities etc. Maybe that’s selfish of me :( I’ll see how we go and maybe that’s what I’ll have to do..

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Soontobegran

Kay-M when you say a splint, what type is it ?

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Kay-M

It’s a Denis Browne bar, with the metal at the back, looks so uncomfortable :(

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Hummingbird82

My daughter also had a DBB but she was about 4 months when it went on. It took a few days to adjust but she got used to it very quickly. I agree with pp's that maybe only having it on at night will be harder to adjust to? 

I was also told that ergo carriers put the baby's legs in the correct position to help with HD and to avoid a baby Bjorn. Also not to put her in jolly jumpers, activity tables with seats and walkers. 

Good luck

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Kay-M

What was the reason for avoid Baby Bjorn? That’s what I have been using to try and help.

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22Fruitmincepies

The baby bjorn doesn’t have the legs in the correct angle (like the legs are in the brace), the legs kind of dangle downwards In the bjorn. Try ergo, manduca, Tula (what I used), kokadi etc, and get some good advice on setting up the carrier properly (find your local baby wearing group). 

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Demera

Hang on a sec... there are various models of Baby Bjorn. Best to check which type  OP has  before making her worried.  

Mine certainly does not allow dangly legs and it is the Baby Bjorn One model. 

I gather the older style have the wrong leg position.  

What type do you have,  Kay-M? 

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22Fruitmincepies
4 hours ago, Demera said:

Hang on a sec... there are various models of Baby Bjorn. Best to check which type  OP has  before making her worried.  

Mine certainly does not allow dangly legs and it is the Baby Bjorn One model. 

I gather the older style have the wrong leg position.  

What type do you have,  Kay-M? 

You are correct. I see so many of the old ones around that I assumed. 

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Kay-M

Thanks everyone for your replies. The night time wearing of the splints became too hard so we caved in and have put them on full time for three weeks. It’s been horrible, she’s had them on for nine days so far and is still not used to them :( She keeps trying to kick her legs and break free but can’t, then gets frustrated and cries. Almost half way though, I feel lucky that it’s only three weeks and I really feel for the poor mums and babies out there who have to have them for a lot longer. I hope that the scan we have soon shows improvement and we can forget this whole ordeal! 

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pollie79

Hi everyone,

my 15 week old was diagnosed with borderline mild hip dysplasia so we have been referred to a specialist to decide if he requires brace.  Has anyone had this with their LO before?   What was the length of tome expected for baby to wear brace (if they had to)

Thank you 

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Kay-M

Hi there! How borderline is it? Our daughters was considered borderline (technically a “pass”) at 52% femoral coverage at a 6 week scan which then improved to 57% at about 10 weeks old. Our specialist told us that while this was still considered a pass, to be on the safe side we should put our daughter in splints for 6 week at night time only or 3 weeks full time. We agreed to play it safe and put her in splints for 3 weeks full time which went by quickly. She is now 6.5 months and her hips are completely normal and we don’t need to attend any more appointments :) The first few nights were hard but she got used to it. 

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pollie79

I haven’t actually seen the report , I’ll request it.  Thank you for sharing your  information, it’s a great help.  So happy to hear your little one is doing so well! 

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limakilo

As an adult that should have had this but didn't, persevere if you can. You are doing so well in advocating for her future health.

I just had hip surgery that I wouldn't have needed if I'd had a brace as a baby, and it affected my knee stability too.

 

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Chaotic Pogo

Congratulations on finding out now and not later when it could be a big issue!!

All 3 of mine had hip displaysia, only 2 needed a brace.  
I was extremely stressed with the first child and so worried. 
In the end it was ‘nothing’.  DS had it 3 months full time and I think another 6 weeks nites . It went on when he was about 8 weeks old. They said he may have needed surgery age 1 if we had missed it (which all the professionals did).  

DD had 6 weeks FT and maybe 6 PT.  The ortho ummed and ahhd and I said I wanted to be certain and deal with it as quickly and early as possible, not mess around and change our minds in a few months when we’d have to do it for much longer  and they might want to crawl  

When they came out of the brace I really missed the handle (bar) to hang onto for nappy changes!

The younger they start the better and the faster it will go.  No.3 was just barely technically not at right point and we were told they won’t treat it unless it somehow got much worse which won’t happen (and didn’t)  

This is the info sheet from the place that makes the braces. For DS we had to get a second bigger one halfway along but not for DD. 
https://www.orthokids.com.au/static/uploads/files/orthokids-patient-information-sheet-denis-browne-hip-abduction-brace-dbb-wfjmhlv.pdf


Quote

Your baby may be upset at first and it is not uncommon to have a couple of sleepless nights, but this should reduce within 3-4 days. We believe the grumpiness is related to the restriction of movement and the inability to rest in a ‘comfortable’ position. If your baby is still upset constantly after 3-4 days, please contact our office.
Review Appoint

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