Jump to content
.Jerry.

Mesenteric Adeninitis - another update...

Recommended Posts

smilinggirl

I wonder if this is what my 8yo ds has? He gets bouts of abdominal pain and her curls up on the floor in the foetal position. He actually had one today. He doesn't have pain every day though. Do others find it comes and goes?

 

You can also query with the hospital abdominal migraines. Not very common but my 8 year old has had them for years. She has now progressed to proper head migraines which is so sad to see in a young child.

Share this post


Link to post
Share on other sites
born.a.girl

DS after his believe panadol had no affect on him. It took years before we could even get him to take it again as "it does nothing".

 

 

I remember your time with your son - it sounded so awful.

Share this post


Link to post
Share on other sites
FeralZombieMum

My son had it on and off over a few years. He missed about 5 weeks of school at one stage.

 

He was also constipated, which made it worse - can't remember what the doctor prescribed for that.

 

We used buscopan a few times, which seemed to help.

 

I also gave him a magnesium and calcium supplement about an hour before he went to bed, did this for 2 of his attacks, and his pain stopped about a week later.

 

Lying down (at night) it was much worse.

Share this post


Link to post
Share on other sites
.Jerry.

Update July.

We have seen a Gastroenterologist now.

He says the Mesenteric Adeninitis finding is common and many people would have enlarged lymph nodes if scanned thoroughly.  He said it was an incidental finding, but not one that explains the pain DD is still in.

Doing tests for a variety of conditions including Coeliac, IBS.  Wide range of blood tests and sample tests.

Will consider an MRI if needed.

Said could be "functional abdominal pain" which I guess means they believe DD but don't have an answer.

However he was very intrigued by my suggestion of adhesions.  DD had hernia surgery as a baby and the pain is localised to that area.  I also consider that could be adhesions from endometriosis, as DD has had heavy periods.  

Gastro is going to talk to the surgeon that did the hernia surgery to see if it is possible adhesions could have developed from the neonatal surgery.

Gastro also asked us to try BUscopan to see if it relieved pain at all, though it just made DD nauseous.  

Was most interesting to hear him dismiss the Mesenteric Adenines as a cause of chronic pain.

  • Like 3

Share this post


Link to post
Share on other sites
Paddlepop

Sounds promising that he's happy to keep looking for the actual cause of her pain.

OT, but he didn't happen to be an American at the Mater by any chance? DH saw one there a few months ago and he was a breath of fresh air compared to other specialists.  

  • Like 1

Share this post


Link to post
Share on other sites
Tinky Winky Woo

My child has had 'flare' ups over the past 4 years.  During the 1st flare up it lasted for over a year, now it comes and goes.  Drinking a lot of water, low acidic foods are best.  Flare ups tend to occur with treat foods like slushies, high coloured foods, high artificial flavoured foods.

  • Like 1

Share this post


Link to post
Share on other sites
PrincessPeach

That sounds quite promising, glad to hear they are taking it seriously - it’s no fun watching your kid in pain.

  • Like 1

Share this post


Link to post
Share on other sites
.Jerry.

More progress...

Saw surgeon last week.  He then said he'd review all her scans and tests over last few years.

He rang today and said will do a  laparoscopy to have a look around for cause of pain.  Said one scan definitely showed an enlarged appendix (where we started years ago).  Said will likely take out appendix no matter what and have a look around.  Said Gastroenterologist will also ring me because he will likely want to go and do a look from his end ;) as well.  I imagine that means perhaps a colonoscopy / endoscopy as well.  Surgeon said while she is under, may as well do a thorough look around.

So some progress!

DD has had a couple of very bad times of pain in last few weeks - curled up on bed, nothing much relieves it. :(  Be glad to know what is going on.

  • Like 1

Share this post


Link to post
Share on other sites
.Jerry.
On 7/7/2020 at 8:54 PM, Paddlepop said:

Sounds promising that he's happy to keep looking for the actual cause of her pain.

OT, but he didn't happen to be an American at the Mater by any chance? DH saw one there a few months ago and he was a breath of fresh air compared to other specialists.  

Wasn't at Mater, but a far, far northside Gastro (Paed one).

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

Announcements

×
×
  • Create New...