Jump to content
Callie_Kitty

On going medical nightmare!

Recommended Posts

Callie_Kitty

Share this post


Link to post
Share on other sites
Soontobegran

A CT scan is not an accurate way to assess spinal issues, nerve entrapment etc.

I would be requesting an MRI but first you need to see a neurologist.

I am surprised you were recommended a chiro before seeing someone more suited to diagnosing back problems.

You sound as though you have sciatica which can be really debilitating but please get an appropriate referral.

Lots of luck.

  • Like 12

Share this post


Link to post
Share on other sites
TheGreenSheep

Exactly what STBG said above ^^^^^^^

 

Referral to a neurologist or neurosurgeon and an MRI to diagnose the pain.

 

It sounds like you have been on a wild goose chase and whilst they have all done their jobs and ruled out any causes from their known specialties, the GP hasn't really assessed your pain and managed it effectively.

 

All the best OP, please let us know how you get on.

Share this post


Link to post
Share on other sites
purplekitty

What STBG said but more investigations are needed.

 

I'd go to a different GP as well to see if they can improve the analgesia and treatment in the short term so you can function better.

Your GP having sent you to a chiro does not fill me with confidence.

  • Like 6

Share this post


Link to post
Share on other sites
turbulent

Check sacroiliac joints? I have ankylosising spondylitis it started off as low back pain, leg pains and in buttocks. Only way to confirm is to check sacroiliac joints, a plain X-ray is enough.

 

With blood tests showing something going on I would not be happy with the Drs lack of follow up

Edited by turbulent

Share this post


Link to post
Share on other sites
Callie_Kitty

Hi guys thanks for the posts! The rheumo requested a MRI of my lumbar spine through the hospital, it's "non urgent" and is over 2 months away :( I tried to get back to the GP, but they're fully booked till the 17th May. And told me to try a ring on the day appointment which I'll try tomorrow.

I know there can we long waits to see a neurologist but I really think whatever it is is nerve pain. Never had any trouble like this in the past. And the fact that just sitting down or laying down is seeming to press on a nerve and cause me the pain. During the day when ive been moving around for several hours the pain goes unless I move a certain way or sit down for more than 20mins, then I get the pain again in the hip/buttock.

Share this post


Link to post
Share on other sites
Mumma3

Ask for a gyne referral to look at adenomyosis. Many of your symptoms are indicative of this and many GPs are not well informed about it.

Also, did you mean 38 week and 5 days? I’m assuming a typo as your OP says bubs was born at 28+5

Edited by Mumma3
  • Like 6

Share this post


Link to post
Share on other sites
Lees75

I would try a women's physio. Like others, I am a little surprised you were sent to a Chiro without a definitive diagnosis, as that is quite risky.

Share this post


Link to post
Share on other sites
Callie_Kitty
Edited by Callie_Kitty
  • Like 1

Share this post


Link to post
Share on other sites
Callie_Kitty

I would try a women's physio. Like others, I am a little surprised you were sent to a Chiro without a definitive diagnosis, as that is quite risky.

 

Yes I agree :/ I think she was under the impression I was just experiencing muscular issues (no idea what a chiro could do for that). I'm 5ft, bub was born at 3kgs and packed the chub on after birth in the 90th percentile for height/weight until 12 months old when it slowed ,still a big boy tho (daddy is 6ft 3inch, so it's to be expected). The first few visits to the GP was her just saying its muscular, try stretching, light impact exercise etc. It was several visits later she decided on scans, bloods etc.

While pregnant I never had any issues with my back until he dropped down low from around 30 weeks onwards and it was more pelvic pain from him being low & on my bowel and bladder.

 

Also feel when I did the scan they scanned too high up in doing the lumbar spine & they should have looked down lower in the sacroiliac joints/tail bone area :/

Edited by Callie_Kitty

Share this post


Link to post
Share on other sites
Rozzie2018

It sounds a bit like fermoacetabular impingement (FAI). My symptoms were intense shooting pain from my right hip down my leg and lots of pain when sitting and lying in bed. I had a hip arthroscopy to correct it and lots of physio. A good physio should be able to rule it out and you could do so too, check Google. If that is the case you need to see an orthopaedic surgeon.

Share this post


Link to post
Share on other sites
Callie_Kitty

I've got an appointment today with the GP, going to run the idea of sciatica past her and ask for some referrals to investigate down lower spine. I'll update after GP appointment, fingers crossed because I'm in so muvh pain today :(

  • Like 2

Share this post


Link to post
Share on other sites
turbulent

Good luck Callie, I hope you get some support and the referrals you need.

Share this post


Link to post
Share on other sites
Mrs Claus

Ask for a gyne referral to look at adenomyosis. Many of your symptoms are indicative of this and many GPs are not well informed about it.

Also, did you mean 38 week and 5 days? I’m assuming a typo as your OP says bubs was born at 28+5

 

This was going to be my suggestion too. Hope you have some luck today

Share this post


Link to post
Share on other sites
Callie_Kitty

Share this post


Link to post
Share on other sites
purplekitty

When did you have the last MRI?

 

Neuropathic pain is difficult to treat with standard analgesia such as NSAIDS.

I would ring the rheumatologists toes if there is a cancellation because of the pain.

The symptoms you describe require investigation and treatment.

You can't function.

Share this post


Link to post
Share on other sites
Lees75

I think you will find that a good physio will be much better at diagnosing this type of problem than a GP. You don't need a referral to see a physio, so I would just book in with one that comes well recommended in your area. You can do this while you wait to get in to the specialist.

  • Like 10

Share this post


Link to post
Share on other sites
SplashingRainbows

Agree. Physio will be relatively cheap too compared to specialists. Will not hurt to seek an opinion.

Share this post


Link to post
Share on other sites
EmmDasher

Has anyone looked at your sacroiliac joint and the muscles surrounding that? I would have thought so because it’s a pretty common pregnancy related complaint. A physio would be ideal for that job. If your body is all loosey-goosey after childbirth and then you’re sitting a lot breastfeeding a big baby (which can be a bit awkward and taxing on the body), maybe something is not quite right in that area.

Share this post


Link to post
Share on other sites
limakilo

In the mean time, could you see someone like a physio that specialises in post birth care, or an Osteo?

I am waiting on hip surgery for something totally different, and see an osteopath every fortnight for massage, dry needling, cupping etc and it helps better than the heavy pain meds I am on.

My physio is also great, I get ultrasound with her.

Share this post


Link to post
Share on other sites
Callie_Kitty

Has anyone looked at your sacroiliac joint and the muscles surrounding that? I would have thought so because it’s a pretty common pregnancy related complaint. A physio would be ideal for that job. If your body is all loosey-goosey after childbirth and then you’re sitting a lot breastfeeding a big baby (which can be a bit awkward and taxing on the body), maybe something is not quite right in that area.

 

The rheumo requested a mri and apparently (according to the Dr) that's going to be checking my SJ joints. I've thought about physio but during pregnancy I found them not every good and they didn't do anything for me during my visits (maybe it was just a bad clinic?). But that experience turned me off. Financially we aren't in a good place right now. We had savings to last to the 18th month mark and those have gone sooner than expected with all the medical appointments and medications.

I'm without work and sadly cannot work :( we aren't eligible for parenting payment apparently, so I don't think physio is on the table sadly. :(

Share this post


Link to post
Share on other sites
little lion

I am sorry you are in pain still.

 

I may be barking up the wrong tree but perhaps further pain relief hasn’t been suggested by the GP due to breastfeeding and this is likely to be the case with some meds a rheumatologist might want to give you. Do you intend to continue breastfeeding for a while yet? It is a pity the doc didn’t talk with you more about options and left you hanging.

 

If you can find funds for physio I would look for someone who focuses on that area of the body or maybe a pregnancy/women’s health physio?

Share this post


Link to post
Share on other sites
Grassyrat

I think you need to have a nuclear medicine bone scan to rule out a micro fracture of the coccyx from having a big Bub. It's possible that a tiny fracture can be missed on CT and MRI and seen on the bone scan.

 

I've seen this go untreated and it's extremely painful with the symptoms you describe. If this is what you have and conservative treatment doesn't work, removal of the coccyx is normally performed with really good outcomes.

 

Also, they will be able to see if you have any areas of active facet joint arthritis that may benefit from steroid injections. Disappointing that the neuro hasn't gone down this path, as most patients that present to us get given both and MRI and bone scan referral as the scans both show different abnormalities.

  • Like 1

Share this post


Link to post
Share on other sites
PocketIcikleflakes

I'm another amazed that the gp didn't send you to a physio first. I'd save what you can, even if it takes a while, and go to a physio, try and find one recommended by a friend, or with good online reviews.

  • Like 1

Share this post


Link to post
Share on other sites
overlytired

A good physio is more interested in seeing a positive outcome thank having you come back for a prolonged period of time.

 

Can you afford an initial consult where you're upfront about your situation? They could then prepare an exercise plan for you to do on your own, and a few follow-up appointments to check for progress?

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

Announcements

×
×
  • Create New...