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Paddlepop

New update end of page 6 - It's a fungal infection. Now I have it too.

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Paddlepop

Does anyone have an good dermatologist in Brisbane that they could recommend to me please? PM only and please don't post their names in this thread, as per EB rules. Somewhere in the Indooroopilly/Toowong area or CBD preferably.

 

My DH has some sort of skin condition that his current dermatologist hasn't been able to diagnose or treat effectively. We're getting frustrated. It's physically painful and looks really unsightly but isn't contagious. We want to get it treated and cleared up.

 

Thanks.

Edited by Paddlepop
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PrincessPeach

Would Stafford or carina be to far to travel?

 

I don't know the name, but I know my mum sees someone at south east dermatology.

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possumbaby

Mine is at Bulimba so not the location you are after but I like that he also maintains a research role at PA hospital.I'll try to pm you the name.

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little lion

I keep bumping into you on here, possumbaby! We might be neighbours. :)

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.Jerry.

DD sees a dermatologist at Greenslopes, so not near your area.

 

Not sure if he is super good or anything, as we don't go often, but he did diagnose DD's weird rare form of psoriasis. And he got excited when he diagnosed it as it is so rare and especially rare in a child!

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Paddlepop

Would Stafford or carina be to far to travel?

 

I don't know the name, but I know my mum sees someone at south east dermatology.

 

Not ideal but not too far. If they're good we're willing to travel the 20 or so minutes to those suburbs. If you know the name of the dermatologist could you please PM it to me? Thanks!

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Paddlepop

Jerry: I'll happily take the name please. The fact he could diagnose a weird form of skin illness is a big positive. DH's doesn't seem to fit anything in particular and the dermatologist he's been seeing has NFI despite a few biopsies and swabs, and numerous prescriptions for all sorts of serious steroid creams. I'm thinking of switching DD to a dev. paed. in Greenslopes anyway because her current one is unfortunately retiring early next year. Just means that we have to get onto the M1 to get there.

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possumbaby

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ghost_cat

Not very familiar with PM sorry - does this work? If so,let me know as I can speak highly about my dermatologist,

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Paddlepop

ghost_cat: If you hover over my name there will be an option "send message". Alternatively click on my name and again a send message option will appear. I'll PM you to make it easier, and you can respond to it. Thanks.

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Paddlepop

Two different dermatologists booked. One is next week. Fingers crossed he can work out what the heck is going on with DH's skin and fix it. The other derm. is booked for 3 weeks time. We're going to keep going to as many as necessary until someone can correctly diagnose and treat DH.

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Paddlepop

An update. We abandoned dermatologist no.1. He had about 6 months to diagnose and treat DH, and he didn't. Dermatologist no.2 who we saw 2 weeks ago was a pretentious prat, to put it mildly. He dismissed DH's skin problem as psychological, not physical. He saw the ASD and ADHD diagnoses on his referral, and jumped to that conclusion. w*n*er.

 

Dermatologist no.3 today diagnosed DH. Finally. He immediately started him on UVB light therapy 3 times per week, prescribed the strongest possible topical steroid ointment, and when DH goes back in 6 weeks for a check up he might start him on methotrexate depending on how the other treatments have gone.

 

Such a relief to finally have a dermatologist who took DH seriously, and knew what he was doing.

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PrincessPeach

Good news!

 

light therapy has done wonders for my mum as well, she started 4 weeks ago - I've forgotten to ask the name of who she saw sorry!

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2bundles

Grrr. Was one of the first 2 at Indro?

 

Hope you get some answers soon.

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Paddlepop

Good news!

 

light therapy has done wonders for my mum as well, she started 4 weeks ago - I've forgotten to ask the name of who she saw sorry!

 

That's great that her skin is improving. DH had his first treatment this morning straight after the consultation. It's bulk billed to Medicare so it doesn't cost us anything, which is a relief.

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Paddlepop

Grrr. Was one of the first 2 at Indro?

 

Hope you get some answers soon.

 

No. Derm. no.1 was at Toowong, and derm. no.2 was at Wickham Terrace. Derm. no.3 is at Taringa.

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hoohoobump

Thanks for the update!

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PrincessPeach

 

 

That's great that her skin is improving. DH had his first treatment this morning straight after the consultation. It's bulk billed to Medicare so it doesn't cost us anything, which is a relief.

 

Yep, it's great - I hope your DH gets relief soon as well.

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Bearington

Paddlepop I'm so glad to hear your husband is finally getting some actual help. I'd love to hear his symptoms if you'd like to share? via pm maybe? My Husband has had a strange facial thing that flares up randomly ever since he contracted hand, foot and mouth from our toddler two years ago. Could just be a coincidence with timing, we really don't know. He's managing it with a few different things but was never given any diagnosis and never really got a lot of information from the 2 dermatologists he saw.

We're in Bulimba too Possumbaby - would you mind sending me the local derm you see here?

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Paddlepop

Another update. DH's skin still hasn't cleared up. He couldn't continue the UVB light therapy. The immunosuppression was making him too ill. He's been using various creams and ointments and while some lesions have cleared there are more taking their place. The cleared lesions have left behind bad scarring. He's getting enormous pain from them and the strongest pain relief a GP could recommend was ibuprofen. Every shower is an exercise in pain. He dreads showering now.

 

He was googling last night to see what on earth might be wrong with his skin and we're now suspecting some type of atypical mycobacterium infection. He probably got it from soil or unchlorinated water, and it would have opportunistically used small cuts or grazes on his skin to infect him. Human to human infection is incredibly rare and requires immunosuppression for it to occur. DD and I both have no sign of infection despite frequent skin to skin contact with him. She's constantly snuggling up to him.

 

We were at the GP today for DD's flu vaccine and DH happened to mention it to see if he should book an appointment to come back if the GP could swab/biopsy for mycobacterium. The GP paused and looked at his skin, and confirmed that it might indeed be mycobacterium. He's had a patient with a mycobacterium skin infection recently who has been successfully treated by an infectious disease specialist (it can be classified as a tropical disease) and weeks of multiple IV antibiotics.

 

GP is finding out if he can swab for it or not, and will have the practice nurse call DH. It would take 6 weeks or something crazy like that for it to grow in a pathology lab so it would be a long wait for results. If the GP can do it DH will go and have him swab it. Regardless I will call the infectious disease specialist's office tomorrow and book DH in. I suspect it will be a long wait.

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PrincessPeach

Wow, that is a very interesting development.

 

Although at least your GP has heard of it, which is a good thing.

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22Fruitmincepies

Mycobacterium infections are difficult to treat. The well known infections are tuberculosis and leprosy. Going to an infectious diseases specialist is definitely the way to go if it is that. Good luck in getting it cleared!

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Paddlepop

22FMP: They're the respiratory infections from various mycobacterium infections. One the most common skin infections is known as fish handler's disease caused by M. marinum. It's definitely not TB or leprosy. These links detail some of the other types of mycobacterium infections:

https://www.dermnetnz.org/topics/atypical-mycobacterial-infection/

 

https://www2.health.vic.gov.au/public-health/infectious-diseases/disease-information-advice/mycobacterial-infections

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purplekitty

I hope you don't wait too long for a specialist appt.

Get your GP to apply some pressure,something needs to happen.

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Paddlepop

PK: DH has had whatever it is for 2 or 3 years now. 5 GPs and 3 dermatologists. Multiple swabs and biopsies. Lots of antibiotics. It's so frustrating. I'm going to get him to chase up appointments tomorrow.

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