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StillDreaming

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StillDreaming

We had an appointment with the counsellor booked for last night but it was cancelled because she's sick. DP thinks it's not worth going again now. Seems he really has given up.

 

Any who. Enough from me! Hope you're having a good week. Do school holidays start for you tomorrow? How did Shae's appointment go? And the parent/teacher chat?

Edited by StillDreaming

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White-Lily

I'm so sorry to hear about your relationship but you have to do what will make you happy. It is better that Will grows up with two happy parents who live apart. It is a shame that your DP might move away and Will won't get to see him as often but that is your DPs choice. If he is possibly going to move away is it a possibility for you to stay in the house you are in? Even just temporarily?

Do you think you might go back to the counsellor by yourself? Might be good for you to continue to have someone to talk to as you go through this. I sending you a virtual hug, just in case you need one!

 

Good week here! It's felt really short though! One more week of school for us before holidays. Can't wait to chill out and not have to go to school... Hehe Shae wants to go to the museum and the movies so hopefully we can tick those off the list over the break.

Parent/teacher was good though I feel like we hear the same thing at every interview, even year! She fits in well, she is social and friendly, tests middle to high for most things, struggles with new concepts sometimes but picks it up with repetition over the course of the year. She is pretty cruisey and they never seem worried about her. So that was good. We got to ask some more about the dynamics of the split class and how it all works so that was good too.

 

Shae's appointment went alright. She had some trouble doing her lung function test so the results weren't great for that but she has only done it right once before as she is still on the young side for the test. Dr wants her to go for a CT scanty get a baseline report for her lungs so they can see if there is any damage/scarring already and to be able to monitor how they cope over the rest of her life (not sure I have explained very well, but that's the gist of it).

You probably need a bit more backstory for this to make sense... She has an enzyme deficiency that protects the liver and the lungs - asthma is one of the symptoms from this. When she was born she has a lot of trouble with her liver, it took a long time for it to start working properly (was working the way it should by the time she was 6mths and hasn't given her any more trouble since). When she was 8mths she started having lung problems, Drs thought it was run of the mill colds, etc but she could turn a sniffle into full blown pneumonia in 3 days and we spent a lot of time in hospital on oxygen. By the time she was 3/3.5yrs she was bigger and more able to cope with colds and now it manifests as a chronic cough which last months and makes her tired and then asthma as well.

It sounds worse than it really is. She sees a specialist at the children's hospital every 3mths for lung function testing and medication monitoring and as long as we keep her healthy and she doesn't do anything to compromise her lung (no smoking!!) she should be ok. If she is stupid when she is older she will be looking at early onset of emphysema (40s) but hopefully not.

 

Kicker is its genetic, so the other girls have the possibility of having this also.

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~bluebird~

Sorry to hear that counselling hasn't helped Still dreaming, though perhaps it helped your partner realise the reality of his feeling and perhaps that is better than waiting until thing get worse. It sounds like you are both still civil at the moment which is obviously better for Will.

 

We had a nice Easter, spent some time with my family. DH doesn't have much family, his dad was going to visit this week but had to cancel (he lives interstate).

 

Eleanor is sleeping well, 8-12 hours a night which is fantastic, though I'm scared of 4mth regression, after sleeping through every night for a month DS2 started getting worse at 3 mths and I had great trouble with sleep until he was 2.5. DS1 was never a great sleeper, not terrible either. So don't ask me about sleep, I think babies just do what the want and often it doesn't matter what we do.

 

Horrible to hear what Shae has to go through, DS2 has asthma at the moment, he squeaks and is miserable and grumpy, but will often refuse his puffer.

 

White Lily how did you DH's appt go to discuss the snip, I'm trying to convince my DH, in the meantime I've had Implanon inserted, and now paranoid that it will do some sort of long term harm to Eleanor (even though it's supposed to be safe).

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White-Lily

Hoping no one regresses at 4mths with their sleeping... I don't want to think about it! Mine both regressed at some stage but not sure if it was 4ths or later?? Neve was a right PITA with her sleeping when she was older and younger actually... And now, come to think of it haha kid still needs a nap but it ruins the night if she has one and then if she doesn't it ruins the day...

100% agree that babies just do whatever they want with regards to sleep.

 

Sorry to hear your DS has asthma too, it sucks. Does he have a preventer? Shae is on singular(montelukast) which helps keep the day to day stuff under control. She hasn't had a proper asthma attack for 6 months which has been so good! Hope your DS can get his under control soon and feels better. The coughing make Shae tired and miserable but she is good with her puffer now which is a relief.

 

DHs appt with the urologist was good he said (I didn't go). He said he was in and out pretty quickly. Just had a chat about family (number of kids, etc) then how the procedure is done, time off after and all the other details. He is all booked in to get it done on 17th May :) DH is so sure he wants this done, he planned to get it done as soon as Quinn was born... he is very certain there will be no more babies and I'm sure he thinks he will get laid more lol

I haven't had the implanon, I had the Mirena after Shae was born (had it in for about 18mths, was also BFing) and that was fine for Shae. I think the hormones they release are quite minimal if that's what worry you?

 

Quinn had an u/s and appt for her hips today. We got some great news! She has one normal hip and the other is still slightly immature but has shown great improvement Still in the harness for another 6 weeks full time but then hopefully she will just go down to overnights only. Super suprised! We have been able to feel and hear clicking the last week or so but apparently that's normal for DDH especially for kids with such poorly formed sockets in the first place. Still have to see the Head Dr in 2 weeks but it's looking really good at this stage

 

And just to end on a depressing note, pretty sure AF is back, bah! Should be grateful it stayed away this long, was back by 8w with Shae and 12w with Neve despite exclusive BFing.

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White-Lily

Lost my post... Boooo

 

ETA and now it's there... Silly iPad being glitchy

Edited by White-Lily

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White-Lily

Hope everyone is going ok...

 

We are good here. Same old same old. School holidays now so everything just happens a bit slower now :)

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~bluebird~

Excellent news for Quinn White-Lily! Hope she is out of the harness soon.

 

DS's asthma is not that bad, he doesn't need a preventer. He was fine over summer, but I think he'll start getting colds more often now, which triggers him.

 

Eleanor has discovered her thumb and now sucks the life out of it at every opportunity.

 

Apart from that, all is well. DS is back at school, yesterday he was fairly negative about it but today was much better - so hopefully we will have a better term.

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White-Lily

That's good that his asthma isn't too bad. Winter is terrible for us, slight change in the weather at any stage of the year can set her off but winter is worse. but the older she gets the better she handles the cold. I just had her at the hospital for a CT scan this week to see if she has any scarring on her lungs, fingers crossed she doesn't! Won't know until we go back to see her specialist.

 

Quinn sucks her thumb too! Love the fact that she self settles with her thumb but we can't take thumbs away later on... Not sure how that's going to go!

Did your older kids suck their thumbs too?

 

Hopefully this term is better for your DS

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~bluebird~

My eldest sucked his thumb too. We have only just got him out of the habit at the end of last year. We used stop n grow nail polish, it worked really well straight away (although the first time we used it coincided with him getting gastro, I thought the vomiting was caused by the polish until DS2 got sick the next day. -not sure if this strengthened his response.)

 

Poor Shae, that sounds awful. Hope the scans come back with good news.

 

Still Dreaming, are you out there? Are you doing ok?

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White-Lily

I'm pretty sure mum used some nail polish type stuff on my brother to get him to stop sucking his thumb and to get my sister and I to stop biting our nails. Didn't realise it was still around but that's good that it is :)

 

Quinn had a hip checkup with the specialist/surgeon yesterday. He wants to keep her braced full time for another 2.5months!! Then depending on how her scan looks then he might reduce to nights and naps then but maybe not...

So then we went to get Quinn's harness adjusted and the OT decided that the Pavlik won't fit her for another 2.5mths and she is big enough for a different harness (not necessarily old enough though). So now we have a Rhino Cruiser and she hates it, all she has done for her waking hours is sob, whimper and then scream uncontrollably :( I managed to keep her in it for about 4 hours today before it became too much for us both and I took it off and put the Pavlik back on.

She also doesn't fit in her car seat or pram, I have to take it completely off to change her nappy so I feel like she is spending so much time out of the harness which will make it less effective and the rhino doesn't have any upper body strapping so when she wears it she has no control of her chest and head, she is like a floppy newborn and she is not a fan of that either! I think we are going to take this harness change very slowly, few hours a day for as long as it takes. It have been very hard for the both of us but we will get there in the end I guess.

 

Still dreaming, hope you are doing ok

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White-Lily

Hope everyone is doing well and are enjoying the long weekend :)

 

Quinn is doing much better with her new harness. She spent all day today in the Rhino which was awesome! DH and I made a few minor modifications to the foam around her legs which has given her some more bend in her knees (OT did the same thing to Neves Rhino so we know it's OK to do!). She also had a good day sleep in it today :) no crying after every sleep cycle!! Yay!! Still had to feed her to sleep but she will sort that bit out by herself with a bit more time I hope.

 

Will have a play with car seat tomorrow and then if I have to I can go back to the hospital and have them pad a seat out early next week. Until then I am just taking her out of her harness for car trips and reducing her brace free time to suit. So that's working out alright for the time being. So all up today I think she spent only and extra 30-40mins out of her brace which is pretty good I think considering it comes off for nappy changes which can't be avoided!

 

So we are getting there. Have to do something about the extra Velcro on the back of the harness, it is ripping my arm to shreds when I hold her and when I turn her around it catches on my clothes :( wreaked my favourite top today

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StillDreaming

Hi! Sorry I have been MIA....

 

That's great that there's been some good improvement with Quinn's hips! I think the rhino harness is like the one my friends little girl had. The velcro ruined a couple of my tops too...! Great to hear she's already getting used to wearing it. She sounds like such a cruisey little girl.

 

I hope the term is continuing to be more positive for your DS bluebird!

 

Hope you're both having a great long weekend. Will try not to have such a big gap between posts again....

Edited by StillDreaming

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White-Lily

Hello!

 

That's great to hear that you and your DP are working through things. And that Will is doing well :)

 

Nothin much happening here. Shae is back at school, Neve is missing her desperately! Quinn is all settled in her rhino.

 

Quinn has needles tomorrow :(

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StillDreaming

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White-Lily

Happy Mother's Day to all for yesterday! Hope everyone had a fab day! Mine was nice, just visited the mums - lunch with the ILs and arvo tea with my parents. Kids and DH spoilt me which was nice :)

 

Quinn finally got her needles today and she was good with them. Couldn't get them done last week as she was sick with bronchiolitis again. She is much better now, chest is clear but she still has the awful cough (can hang around for weeks)

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White-Lily

Hope everyone is doing well.

 

Quinn is still coughing a lot and it still sounds so yucky, I'm thinking she migh need to visit the dr again if it doesn't start to sound better soon.

 

Also she has a tooth!! OMG!! She has been super dribbly and chewing on her hands a lot but we just thought that was just a new thing she was doing, didn't think she might have been teething! Haha the other girls didn't get teeth until 7/8months so I really had no idea...

Edited by White-Lily

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StillDreaming

Hope you've had a good week! Sorry again for being so absent on here. I hardly have time anymore now that ds needs constant entertaining and his sleeps are short. I really hope I get a 2 hour nap out of him more often now!

Edited by StillDreaming

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White-Lily

We have the second tooth!! It cut about a week after the first one did and she didn't seem fussed by it at all. I would like to say the dribbling has stopped but it hasn't! Haha

 

No solids for us yet. Quinn is only just 5 months so we will wait a bit longer. Shae was started at 6ish months but wasn't fussed until 7.5mths and Neve was about 6mths too. The CHN said to hold off for as long as we can at this stage as Quinn is huge and clearly doesn't need hem at this point but also because she can't support her head or neck and can't sit up. At the moment she isn't interested at all, she isn't watching us eat or looking at food with any interest. I feel like she is ages away from solids ATM!

How is Will going with the solids now? Is he enjoying them a bit more? What has he tasted so far? Won't take long and he will be keen on anything he can get his hands on!

 

Both my big girls wee tummy sleepers as soon they learnt how to roll over. Took them a few days to work out how to move off the sides of the cot and then they were great again. Has Will worked out how to move around to a comfy spot? How are his day sleeps going? Managing to get some good long sleeps?

Quinn is mostly just having 45-60min naps during he day with a few hours thrown in every few days. We have spent too much time out of the house over the last week so I'm looking forward to trying to get a bit of a routine back in place and spend some more time at home.

 

Quinn is talking lots and making squealing noises, especially when talking to her sisters. Other than the noises, she doesn't do much. She is still in the Rhino so spends almost all of her time on her back. No rolling, not even close. When her harness comes off for a nappy change she lifts her legs up and tries to grab at her legs and ankles - she can't reach her feet yet.

She goes back to the CHN in about 2 weeks and I fully expect a referral for physio, I will actually be surprised if we don't get one. She doesn't even try to lift her head for tummy time, she just lays her head down and carries on talking and kicking her legs until she gets annoyed and wants to be turned over.

 

That is so great to hear that you and you DP are getting along much better and you enjoy his company. Hope things keep getting better :)

 

 

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StillDreaming

Dp

Edited by StillDreaming

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~bluebird~

No teeth here, not rolling either. But she can hold her head well, and sit with limited support.

 

Wasn't sure if she was ready for food but rice cereal was on special and my 3yo wanted to feed her so gave it a go, she really enjoyed it. She's not interested in using here hands (my boys both started eating when they started swiping my food at 5 mths.) but after 2 days of rice cereal, sitting her at the dinner table she started opening her mouth waiting for food, so I think she is ready in her own way.

 

Shes started waking at night again too. She got a cold and had some bad nights and ever since then is waking at least once, I think she needs it though, she seems so hungry lately.

 

She also has discovered the grabbing feet game, and love having her nappy off so she can do it. Shes started kicking blankets off at night though so will have to start using a sleeping bag.

 

Gotta go - shes just woken up.

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White-Lily

Hi ladies!!

 

It's funny you should both mention the babies are night waking/feeding again, Quinn too. Not too sure why though, sort of came out of nowhere but she seems hungry again too so when she wakes at night I have been feeding her too. She slept all night last night but that was the first night in probably 2 weeks that she has done it.

She is starting to get more distracted during the day when she feed so maybe it's that, not taking as much during the day coz she is too busy looking around??

 

Quinn has started to lift her legs up and can grab at her thighs when she is out of her harness and she loves it! I can't wait til she can do it more. I love it when they find thier feet :) amazes me that they work out how to get them in their mouths

 

Still just the two teeth for Quinn and I can't see anything else coming. I think the big girls got their next teeth about a month after the first 2. Neve cross cut hers which looked hilarious (little fangs, vampire style) but was not very much fun! Hope Quinn just gets hers in the normal order haha

 

We can do tummy time in her brace but she doesn't like it very much so I try and do it for a few minutes when she comes out for a nappy change and then when she has her free time before bed. She is getting better, last night I propped her on her tummy with a cushion under her chest and she held her head up for about 5 mins with no issue just watching Shae. Normally she just lays her head down after about a minute.

 

Neve swiped at food, she actually took things from my hand just before 6 months and shoved them in her mouth! Quinn is still not really looking, she is sitting on my lap for dinner and watching people but not really the eating. DH put some casserole sauce in her mouth tonight and she didn't seem to mind that. When we start food properly we will do baby led weaning :) I'm too slack to purée

 

Hope the weekend goes well with the family event Still Dreaming.

We have ballet, birthday parties and DH and I are going on a lunch date (Quinn will be with us but the big girls will be elsewhere). Then it's meant to rain Sunday so DH has grand plans to play ps4 all day... Should be able to get a few jobs around the house as the big girls like to watch and he just plays Lego and car racing so it's actually alright for the kids to see!

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White-Lily

Had Quinn's hip check up today X-ray, it didn't go exactly the way I hoped...

Her hips are okish, not where they should be but considering they were in a pretty bad way to start with they are getting there. Her angles are just outside of normal, with her left being the worst of them. We continue bracing for at least 16hrs a day. Dr said there is probably not much point in continuing with full time bracing as the improvement between f/t and p/t bracing will probably be the same and it's time Quinn should start moving about and doing normal baby things so it's up to us if we keep going full time or reduce to part time. DH wants to reduce but I'm a bit torn. I think I will reduce but maybe just do 6hrs brace free and see how she goes.

 

CHN has referred her for physio as she favours her left, possibly has torticollis and has poor muscle strength in her chest and head/neck.

 

Feeling a bit disappointed with our appointment and everything else. Over 5 months full time bracing hasn't fixed her hips and has just given us a bunch of other issues to deal with. Surgery mentioned again for possibly when she is 2-3yrs old :(

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StillDreaming

I completely understand your disappointment.... Quinn has been so patient by the sounds of it and you and your DH sound super patient too. I'm sure any extra time she has out of the brace will be enjoyed.

 

When is the next appointment? If the brace isn't going to fix it, will she be able to stop wearing it altogether in the near future until it's reassessed when she is 2 or 3?

Edited by StillDreaming

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White-Lily

So we have reduced the brace time down to 18hrs per day. At least this way Quinn is still getting the bulk time in the harness but can still learn to move about and roll. She can slide a little but still no rolling yet, she gets onto her side though and she can almost get her toes into her mouth.

We keep this up for 3 months and then have another appt and X-ray to see how things are going. I think she will have to keep wearing the harness until her hips have been perfect for a certain amount of time or they decide it's not working at all and she needs surgery, I think they will try bracing for as long as she will tolerate it for as long as they can. Surgeon said operation would be between 2yrs old and 3yrs old if it was needed.

 

Still on the waitlist for physio, referral is accepted with a 1-3 month wait. I'm going to give it a few more weeks and then maybe look at going private. She probably only needs a few sessions. She is getting better with her control but she still hates tummy time and can't hold her head up when on her tummy. We practise a lot but she just hates it so much it's quite distressing for her.

 

Had her weighed last week, 10.3kg now! It's no surprise she has so much trouble with her big heavy head! Lol

 

How is Will? Is he less congested? That's awesome that he is sitting! It's like everything takes on a new angle for them and they love it! I had Quinn sitting on my lap in front of the mirror the other day and she had a wow of a time.

 

How are solids going? We have sort of started. We are doing baby led weaning and it's going okish. She gets pretty annoyed when she can't feed herself but is dropping things all the time ad gets so angry! It's a bit funny but she goes from happily gnawing on something to full on hysterical tantie in seconds.

she isn't much of a poo'er so I'm trying to be careful with how much food I actually give her between poos! She struggled to get the last one out, I don't want constipation issues. We had that with Neve and it was no fun at all. She used to scream in pain for hours while she geared up to have a poo. Eventually got her onto laxatives but she needed the for ages to help.

 

Quinn has regressed with her sleeping too. She is really hit and miss at the moment, not really too sure what started it off. Her cough is much better than it has been and I don't think she is teething (but who knows). Sometimes she will wake during the night and sometimes she won't. Can't predict it at all! If she wakes a few times a night it's never the same time as the night before so I don't think it's out of habit. I just feed her... Opps! Haha

 

How is everything else going?

We are pretty good. Shae is having some trouble with her asthma but we have the specialist next week. Will get her liver results back then and dr will probably tweak her meds again so hopefully that will be sorted out soon.

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StillDreaming

Oh gosh. Poor Quinn will be the most patient little girl ever if she could potentially be in the brace for another year or so. Great that you're able to give her more time out of the brace - sounds like she will have mastered everything in the right time frame at the rate she's going!

How's your week been? Any news from the physio yet? That's such a long wait! I'm hopeless at waiting.

Edited by StillDreaming

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