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rocknmum

5 yo diagnosed with Tongue Tie

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rocknmum

Hi,

 

I guess I'm looking for some personal experiences with this.

 

At DD#2's last dentist appointment the dentist noted that she has a tongue tie, and that they would watch it. But her next appointment isn't for 12 months so I'm thinking (a lot) about getting a second opinion from our GP.

 

As background, she breast fed for just over a year with no significant issues. Her speech is almost perfect. Since the dentist mentioned it, and we're listening for it, there are occasional times when she doesn't speak 100% clearly, but you wouldn't notice unless you were really looking for it. There was no speech delay.

 

She can't touch her top lip with her tongue, and the tip is definitely heart shaped.

 

After much googling the options seem to be do nothing or have surgery.

 

Does anyone have any experience with this?

 

TIA

 

Cath

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DylJayBen's Mum

Hi rocknmum,

 

my DS3 (now 2) was found to be tongue tied 3 days after he was born, the doc told us that it wouldn't cause us any problems but when we had been home from hospital for a few days with terrible trouble breastfeeding I tried him on bottles, I had bought the wide neck ones and he was still have heaps of trouble, I actually tried putting a little bit of boiled water in it and could see what was happening with his attachment, he really couldn't attach to the bottle as his tongue wouldn't cup around the teat properly and he was tiring himself trying to suck so hard to squeeze anything out. We then got some of the old fashioned skinnier bottles and he could manage that. I took him to a peadiatric surgeon who told me that he won't be able to lick his top lip nor an ice cream and he would most likely have speech problems as it was soooo bad. We decieded to have the surgery done on him but had to wait until he was 6 months old. It wasn't a too bad he recovered quickly and now is fine, can poke his tongue out (they said he wouldn't be able to do that either if we didn't get the op done).

 

Given that your DD doesn't seem to have any problems with speech and what not, it may be ok. If it was me I would still get it checked and see what the doc recommends. It's not a bad operation, things in the mouth heal quickly but it is still an operation all the same. They burn/cauterize (SP?) the bit that is holding the tongue down, my DS still and always will have a dot on the end of his tongue where it was originally attached but other than that you wouldn't know that he was ever tounge tied.

Sorry if that info hasn't helped being such an age difference but thought I would let you know my experience with it.

 

Good luck, it's always hard to make the operation descision when it comes to your kidlets

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rocknmum

Thanks DylJayBen's Mum. It's good to hear about positive experiences, especially with the surgery.

She seems to have adapted quite well and she can lick an icecream. I guess I'm just worried that if I take no action now it may have implications for her in the future.

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Ruby05

My DD had her tounge tie snipped when she was a week old. It took literally 1 minute for the specialist doctor to snip the tie. The procedure would be different for a 5yr old though. It made so much difference to her feeding. She now has a long tounge and can stick it out far.

My DH also has a tounge tie which for some reason wasn't snipped until he was a teenager. His tounge didn't grow and he can't stick it out past his lips. He wishes it was snipped when he was a kid although it doesn't really impact his day to day life.

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snuffy

Hi there,

 

Earlier this year our 7.5yr old DS was at the dentist who told us he had tongue tie that could cause decay issues on the inside of his lower front teeth. We were a bit surprised as we had never been told of tongue tie earlier, and he also has never had any speech issues at all, never had feeding problems as a baby, etc. Anyway, we went to the specialist appointment and for the dental reasons then proceeded with the tongue tie correction a couple of months later. It was a very simple procedure, we were at the hospital for a half day - he was able to eat icecream immediately after waking from the GA, and then had a normal dinner that night. :)

Edited by snuffy

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Jenflea

Hmm... my 2yr old is being looked at for speech delays(my parents thinks she's got a problem, I don't). And I commented to the GP that she can't touch her tongue to her top lip but I thought it was just because she couldn't co-ordinate her muscle control yet, but maybe she DOES have a tiny bit of a tongue tie. The GP wasn't too worried as we've had no problems with breastfeeding over the last 2 years.

But maybe I should get it checked out more closely.

Certainly something to think about, even if it doesn't help you OP.

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*Tess*

I have a tongue tie. My kids love me sticking my tongue out. They think it's hilarious that it just looks like a third lip. I can't get it out any further. It does not affect me in any way. I form some of my letters differently but you can only tell if studying my tongue as I talk, you can't actually hear any difference.

If its not affecting her at all, I can see no reason to change it.

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rocknmum

Wow Snuffy, that's a very quick recovery. Did your DS see an ENT specialist?

*Tess*, thanks for sharing your first hand experience. The thought of surgery under a GA is really putting me off investigating this further, but I want to do the right thing by her. Besides feeding and speech issues, tooth decay seems to be the other major concern (from Dr Google). But the dentist didn't seem that worried.

I have an appointment with the dentist this month, so I might raise it with her first. I'm assuming a dentist would have more experience in this than a GP....

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snuffy

Hi again,

 

Actually our paediatric dentist said he could do it, 'just a quick snip' in the chair, but we decided against that option ! I then went to the GP for a referral and was referred to a paediatric surgeon who was the one to do the procedure - if you're in WA I can pass on his details !

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ubermum

I had surgery by an ENT surgeon at 5 for mine. I had a slight lisp, and had my adenoids removed at the same time. Went home same day, no pain, no eating issues, haven't stopped gabbing on since.

 

You will need to remind your dd when/if she has kids about tongue tie. I have passed mine on to all of my children, in varying degrees of severity. It is much easier to be rectified as a baby, even if not posing any feeding issues, than later as a child who needs an anaesthetic due to it being a more complex procedure. The frenulum of a baby is very thin and not vascularised, so a quick snip will fix it. A child's has thickened and developed blood vessels, so more often surgery is required.

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Emby
I have a tongue tie. My kids love me sticking my tongue out. They think it's hilarious that it just looks like a third lip. I can't get it out any further. It does not affect me in any way. I form some of my letters differently but you can only tell if studying my tongue as I talk, you can't actually hear any difference.

If its not affecting her at all, I can see no reason to change it.

 

Yeah, me too. I only really realised when I started having kids also with tongue ties. I mean, I was aware that there were ppl with longer tongues than me, but I thought they were the freaks! :D

 

The only issue it is for me is I have a very severe gag reflex, which is probably related to there being a big chunk of my mouth cavity where I can't get my tongue to, so if food gets up there there's no way to dislodge it short of a finger down the throat.

 

I got DS's snipped as an infant but I never bothered with DD2 since she was over 2 before we realised. Hasn't been a problem for her, that I know of. Her teeth are fine.

 

I can touch my tongue to my top lip though (just!). Assuming that the "rules" are that you have to keep your lips relaxed and only move your tongue? 'Cos otherwise I can't see how you could ever not be able to do that (bring your lip down behind your teeth! Easy! :tongue:

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rocknmum

Thanks everyone for your replies. I knew I could count on EB. :)

 

Emby, I have a mild tongue tie, and strong gag reflex too. So I know where she got it from.

 

So far there are no issues with DD's teeth, which I assume is why the dentist decided to watch it rather than do anything.

 

Madame Catty, it's good to hear that your DS is fine without the surgery. I think I will discuss it with the dentist and maybe consider a referral to a speech therapist, just to be sure.

 

Ubermum, thanks for sharing your experience. I'm feeling a lot better after hearing about people making such quick recoveries from the surgery.

 

Thanks again Snuffy, I'm in Adelaide.

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3ofakind

My 5 year old DS was diagnosed with a tongue tie while he was undergoing therapy for a severe speech delay. Once we were told he had the tie, hindsight kicked in and we wondered why we had never noticed it before. He has breast-fed until 14-15 month, but had always been a fussy feeder, couldn't elevate his tongue (hence the speech issues), and he had never "licked" an ice-cream, more like shoved it in his face. In his case, we felt there was enough reason to have it released as it was affecting his speech, and as previous posters have mentioned, the oral hygiene issues. He always had been a messy eater, and that was because he couldn't stick his tongue out to clean up, and also was always picking food out of his teeth with his fingers, as he didn't have the movement in his tongue to loosen food stuck in his teeth.

We opted to have his tie released via laser by an oral sugeon (one who is very experienced in older tongue ties), it was a simple procedure and we bypassed a general anesthetic (required if released by surgery), as it only requires a local. My DS was happily licking an ice block 5 minutes after the procedure.... soft foods and a bit of panadol for the next 24 hours, and he was fine the next day.

His speech delay is greatly improved and he has more movement in his tongue although, as with any muscle, it has taken him time to actually learn how to use the added movement.

In your case, if is not causing any issues with speech, and as long as you are vigilant in her oral hygiene, its probably not worth doing anything at this stage.

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~ky~

I'm 42 with a complete tongue tie and unless someone is cheeky to me and I try to poke it out at them, then you wouldn't know it!

 

I can't poke mine out past my teeth, cannot lick ice creams without pain and every now and again, I stumble over my words. Nothing debilitating in reality. I also have a very sensitive gag reflex.

 

Three of my children have been tongue tied. One was diagnosed at 18 months. I had no idea there was anything wrong as he looked just like me hence the fact I was diagnosed the same day. His was left and every now and again he goes through a patch where he bites his tongue a lot which is when it has split a little naturally. He is 9yo now and his tongue is long and quite free just having been left to split naturally.

 

DD2 was diagnosed at birth but her heart condition was more important and she passed away at 9 days old.

 

DD3 was diagnosed with a complex and complete tongue tie. She has hers snipped by a paediatric surgeon at 4 weeks old. She is only 8 months now so I can't tell you much more than the fact that she went fom struggling to feed from a bottle to being able to breastfeed.

Edited by ~ky~

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Paddlepop

I have a 2.5yr old DD with suspected tongue tie. I currently have a thread in the 24-36 months forum and a PP mentioned this thread to me. I was wondering if who has had tongue tie corrected in a child could recommend a doctor/surgeon in Brisbane for having this done. Obviously, please PM me the recommendations. I will be seeing our GP next week to get a referral to a specialist and am interested in who people have found to be a good surgeon.

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~ky~
tongue tie that could cause decay issues on the inside of his lower front teeth.

 

This is a surprise to me - I have yet to have any decay or a single filling in my mouth and I have a complete tongue tie!

 

I had an ENT surgeon look at it a few years ago and he said that at my age it is a reasonably big procedure as mine is very thick and vascular and I would be in considerable pain afterward. There is also no guarantee that it will not rejoin over time. I chose to leave it.

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