Isabelle (Izzy) Amber Ng was born on April 27, 2012. At just a few weeks old, she was diagnosed with biliary atresia, a rare liver disorder. One year ago today, she lost her short fight for her life. Her parents look back on that time.
A year ago today, our lives were changed forever when our dearest Isabelle (Izzy) gained her angel wings and departed this world of ours.
Izzy's presence is so sorely missed by us all, and the last year has certainly been our toughest yet.
We knew there is no way to turn back the clock, and we will never have Izzy back, so we have just had to cope without her.
It's been a struggle at times, as we just miss her so much. But we are thankful that we have a year of wonderful memories of her, memories that will remain with us forever.
Our families have coped with her absence in our different little ways. We've kept her Facebook page going with photos, videos and stories of Isabelle; we've also released balloons and some of Izzy's paper cranes during special anniversary days.
The moment we lost Izzy, we made the decision to move from Wellington to Auckland. There, we would be closer to our memories of Isabelle, as she had spent most of her life there.
Earlier this year we put the plans in motion, and we are pleased that we managed to complete the move up just last week, just in time to be in Auckland for the anniverasry of Izzy's passing.
Over the past year, we've also contributed to some of the organisations that helped us while Izzy was being treated. Just last week we participated in Ronald McDonald Houses's NZ Family Week, sharing our story of how RMH helped bring our family closer together during our stay in Auckland. It's our way of helping preserve Izzy's legacy - something we know Izzy would be proud of.
We have been contacted by other families who are going through a similar journey with their own children, and we have helped them in their causes. We have done what we can to help raise awareness of childhood liver illness, and the importance of organ donation.
We have heard of many people who decided to become organ donors after learning how amazing it had been when Izzy received a donor liver. We remain very thankful for the donor of Izzy's liver, and thank his or her family for gifting Izzy the most precious gift of all: the gift of life. We think about that special person and their family often, and remain truly thankful for their selfless act of kindness.
There can never be enough organ donors in this world, so please do consider being an organ donor. After all, we don't need our organs after we have passed on, so they might as well be given to someone who needs them more than us. Let your family know about your wishes, too.
We miss our Little Dragon Girl so much - her beauty, her smiles, her pat-patting of her chest and thumping of her feet, her lip-smacking kisses, her sheer presence. All of it are sorely missed by us all.
We do, however, take comfort in knowing that Izzy is in the best place possible, and that she is free from all pain and suffering. Izzy can finally stretch her wings and fly free.
Continue to stretch your wings and fly high, baby, and please look out for the other little battlers out there.
- Stuff Nation/Fairfax NZ