[undecided2011]

we got the x-ray results of her tummy back today

Findings were:
Moderate to severe faecal loading is present throughout the entire colon with rectum distended with faecal matter. Gas is seen in non-distended loops of small bowel - appearances do not suggest obstruction.

So we have to use Movical for the next next 3 days starting Friday to see if that will clear whats there. Then we will have another x-ray to make sure its all gone.

I asked the X-ray Clinic to fax a copy to the Paed we had been referred to when DD had the X-ray. Seeing thought the appointment was for August i figured this would be easier than me having to remember to bring a copy with me then. . .anyway the receptionist called me today and said they got her X-ray results and would be moving her appointment forward to the 14th of May!!!! WOOHOO!!!! so we only have to wait another 3 weeks and she'll get seen and we can hopefully get some more answers.

Thanks for everything you guys

[mumtoactivetoddl...]

Can I also suggest not a standard speechie but a specialist speechie in eating issues. If you are in Sydney I am happy to pm you the recognised expert in this field. She is in Burwood but I know people that travel from Hornsby and also Woolongong to get to her. A specialist in eating issues can help work out what is the issue with not eating and help you to correct it. We have found using a specialist speechie made such a difference.

[mela]

Clifford Hallam does the chocolate pediasure in Australia, the phone number I had was 1300 658 936 but I haven't used it for 3 years now so check the link also. Depending on your state, if you get a dietician to write up an order for the pediasure it may be subsidized. From memory we were getting it for around half the price you mentioned, we lived in NSW (on the border) but went through a Victorian hospital. I think Vic is better for this, we live in Vic now and DS's Nutrison is all covered by HENS (Home enteral nutrition), oral feeds are also subsidized by that I am pretty sure. A hospital dietician should know exactly what to do to get the ball rolling with that.

We don't use the pediasure anymore, not that he ever drank very much of it but DS is tube fed now. He also has Aspergers, very limited diet and is very, very skinny. He too had terrible constipation before his tube.

Hope you find something that helps.

[dogged]

I really hope that you find something that helps, too, OP. Your poor little one - how distressing for you all.

It's probably much too early for you to be thinking about this but just for future reference, I'm reading an interesting book ATM called "Just Take a Bite - Easy Effective Answers for Food Aversions and Eating Challenges" Authors are Ernsperger and Stegen-Harrison. Foreword by Temple Grandin. It is targeted towards children who are so-called resistant eaters - so not "picky" but further along the scale than that - and in particular children with ASDs and/or intellectual impairment.

It does take an approach looking at oral/motor delays, and sensory integration/processing disruption, and the effect on eating. It also makes it clear that resistant eaters WILL starve themselves, unlike the popular theory would have it.

It's practical, with exercises and suggestions. It is also what I would call "mainstream", so no horse-riding in Mongolia or similar.

But I'm only 1/3 of the way through and haven't actually tested any of it yet! nonetheless it wasn't that expensive and easy to get on Book Depository, so when you are ready to look at strategies to broaden the diet, it might be worth a look.

Great news about the appointment being brought forward though!

[undecided2011]

dogged: Thanks so much i will be looking for that book now for sure!!!

It also makes it clear that resistant eaters WILL starve themselves, unlike the popular theory would have it.

YES YES YES!!!! I have been telling the Dietitians that but do you think they would listen to me?!
I might give resistant eaters a Google and see what i can find out

Clifford Hallam does the chocolate pediasure in Australia, the phone number I had was 1300 658 936

I will give that number a call and check out the website (though its not loading at the moment)

Can I also suggest not a standard speechie but a specialist speechie in eating issues

I asked my GP about this, he didn't think there was any in this area (we are QLD) but i will talk to the paed when we have the appointment and see what he knows.

Thanks guys

[undecided2011]

dogged: I Googled more information on 'Resistant eaters' and its my DD6 to a Tee!!
I even printed out the information and gave it to my DH to read and he agrees is DD6 down to the last sentence!!!! I am going to be certianly getting the book you mentioned from the Library tomorrow.
Thank you so much, i believe with 100% certainty this is what DD6 has!

[dogged]

Glad to be of some help, OP. Even if it isn't as simple as that, at least the book might give you some ideas and strategies that will assist. It has things like games and activities to start to break down the fear of new foods (that's way before actually eating them).

I'd try Book Depository though; I doubt your local library would have it.

[Sinister Bonnet]

There is NO WAY on god's green earth that 3 days of movicol is going to shift a severe faecal loading. I think you need to be prepared to be giving a serious amount of it for several days if not a couple of weeks.

Good luck with it all!

[undecided2011]

There is NO WAY on god's green earth that 3 days of movicol is going to shift a severe faecal loading. I think you need to be prepared to be giving a serious amount of it for several days if not a couple of weeks.

OMG Your not serious are you?! The GP was happy that the 3 days would fix the problem (but would re X-ray to make sure) Its a huge fight to get her to have the 4 Packets a day (made up in 500mls of water), she crys and gags drinking it I was half tempered today to let her off drinking 100mls of it cause she was almost sick (but i didn't)

So what should i do? Today was the last day i was meant to give it to her, she said she had 1 big poo yesterday and 3 big ones today (none the day she first started the Movicol)
I guess back to the GP for advise?

[Sinister Bonnet]

Let's hope your GP is right and I was just all doom and gloom. Getting them to drink it is a nightmare so I'd rather be wrong. I hope the Xray shows you good news.