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> Faecal Loading, due to refusal to eat

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undecided2011
post 25/04/2012, 06:12 PM
Post #11
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QUOTE What tetra drinks have you tried?

We tried the peadsure Tetra drinks in Chocolate, Vanilla and strawberry.
She would only drink the chocolate.
We got them on a prescription thing in NSW by the dietitian we had there. She faxed it through to a place in Sydney and we paid about $50-$60 for a carton of 24 then they got delivered in about 24-48 hours by Courier (usually 24hours). They are like little poppers and i think they have a picture of a monkey on them.

You can buy a 900g tin in Vanilla from the chemist, which i have done, but she wouldn't drink it, I even tried adding chocolate icecream topping into it to make it chocolate (she still wouldn't have it)

I saw a few chemists in the area, and the most resent one said they can get the Vanilla Tetra packs (12 drinks) in for about $40 from their distributor (they were about $3.75 each or something) but she said they didn't stock AT ALL the other floavours and asked if i had EVER seen them in QLD (which i haven't)

The Dietitian said she could literally LIVE off the peadsure drinks, so if she didn't eat for 24 hours, as much as that wouldn't have been an ideal situation, it wouldn't have been a major concern either

CFMummy - are the nutrini drinks similar to what the peadsure drinks sound like?

QUOTE Do look at your child's zinc levels.
I will for sure!!
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CFMummy
post 25/04/2012, 06:18 PM
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There are the "adult" ones for age 3 and up http://www.nutricia.com.au/clinical/ecn/fortisip.aspx
but this is what my DD is on http://www.nutricia.com.au/clinical/ecn/fo...multifibre.aspx
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undecided2011
post 25/04/2012, 06:22 PM
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Can i get them from a chemist? What is the cost like? I've not ever seen them before. They sound like the paedsure drinks she use to have.
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CFMummy
post 25/04/2012, 06:43 PM
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We get it from our hospitals chemist and sorry I dont know the price we get it for free I know you can buy them online as I was looking them up one day.
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undecided2011
post 25/04/2012, 07:07 PM
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Okay thanks, i'll talk with the GP tomorrow about it see if our hospital can supply them for us
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Emby
post 25/04/2012, 09:03 PM
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I found pediasure chocolate online, if this is any help

http://www.nextag.com/pediasure-chocolate/stores-html

The powder seems to only be available in Spain - but they do do international shipping

http://www.farmacialanucia.es/pediasure-ch...tml?language=en
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undecided2011
post 25/04/2012, 09:08 PM
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BUGGER!! I looked at they dont post here it says 'The Abbott Nutrition Store can ship to virtually any address in the United States. We currently do not ship overseas (with the exception of U.S. territories) or to PO Boxes'

Thanks anyway!! biggrin.gif
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belindarama
post 25/04/2012, 09:21 PM
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I have a fussy eater who is on the improve. He is 5 and only weighs 15 kilos. His 2 year old brother is almost as tall and heavy as he is. He has some real issues around food, displaying some of the behaviors you have described but not as severely.

Our problems are not as bad as yours so I have no suggestions other than to say the specialist children's clinic I take DS2 to has a feeding clinic. There is one paed who specialises in nothing but eating problems. Have you tried to find a specialised paed in feeding issues?

We are in Sydney so not that helpful to you. They might be able to tell you who else does something similar closer to you though. I can PM you the details if you are interested.

It is very stressful when they won't eat and the small amount they eat is very limited.
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ZombieMum
post 25/04/2012, 09:34 PM
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Quick call Whine-1-1 & dispatch the Whambulance immediately
QUOTE (undecided2011 @ 25/04/2012, 04:04 PM) *
I asked my DS7's Paed a while ago about this (DD6 doesn't have the same father as DS7) and i think its something we might be looking into. sad.gif I had a friend say to me a few times that DD6 and DS7 are very alike so either i refuse to see it, or my friend is seeing things blush.gif

Your friend will be seeing your kids in a different environment than you do, and maybe she does see things, or maybe she doesn't.

Some kids with ASD have limited diets - they can have sensory issues with food, like texture and smell and may need to stick to a routine with their meals.

When you go back to the GP, ask for iron levels to be checked - low iron can affect appetite. Also ask for the Coeliac screening blood test - as you might as well get it tested for whilst a needle is going in.

My oldest has Aspergers, and was restricted in her diet. She's not officially Coeliac, but within a couple of weeks of being gluten free, her appetite changed dramatically. (She had a positive Coeliac antibody test).

My youngest DD has the official Coeliac diagnosis. She was also restricted with her diet - because food made her sick! She has only improved slightly with her food choices since she has been gluten free, but just before her diagnosis, she was hardly eating anything, she was wasting away.

I suspect she has issue with fructose as well, just haven't got around to testing it with removing and re-introducing it into her diet.
Other food intolerances might also cause problems - and a good dietician can help you with this. Your DD's body might know what isn't good for her - so maybe that's why she's refusing to have things like fruit!

I have a friend whose DD had blood in her poos, and her Doctor had her trial an elimination diet, and things seemed to improve.

I give my kids Hospital Strength Sustagen with the fibre - chocolate flavoured. It's only available in the chemist, the supermarket ones aren't as high in protein.

Some of these drinks might taste yucky if drunk from a cup, but if you use a straw, it might help - as a lot will bypass the taste buds on the tongue - I picked that hint up a few years ago when I was trialling a meal replacement weight loss shake. biggrin.gif

This post has been edited by ZombieMum: 25/04/2012, 09:36 PM
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Emby
post 25/04/2012, 11:07 PM
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QUOTE (undecided2011 @ 25/04/2012, 09:08 PM) *
Thanks anyway!! biggrin.gif




blush.gif
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