[mummytoboyandgir...]

if you have IBS the irriable bowel syndrome how common is it that your child would have it to?

that you know that they have issues to gluten and wheat and can go to the toliet up to 5 times a day

[Eeyolet]

I can only tell you our experience. My Mum has it and so far 3/4 of her daughters do. There is still a possibility of the 4th getting it too as she is only 20 and I didn't get it until 21/22.

[SplashingRainbow...]

Have you and your kids been tested for coeliac disease (gastroscopy by a gastroenterologist not just a blood
Test)? Coeliac is hereditary. You need to be eating a significant amount of gluten for the tests to be accurate.

If it were my chil I would be asking for a referral to a peadiatric gastroenterologist.

You can find information about testing and symptoms at
http://www.coeliac.org.au/

[mummytoboyandgir...]

so they could have it then he is booked in to the childrens hospital to get the colonoscopy done and the gastroscopy waiting to hear when

another question can you be a member of the Coeliac group to get advice? what you can and cannot eat where have you found your support from? sorry throught l will ask

how often do you see your gasto specalist? sorry it was another question

This post has been edited by mummytoboyandgirl: 13/04/2012, 09:03 AM

[SplashingRainbow...]

When a coeliac diagnosis is confirmed you can join the coeliac society, the web page is in my last post. Your specialist will write you a letter for them.

My GP then did a health care plan and referred me to a dietician. This meant the dietician fees were largely covered by Medicare. Between the coeliac society and dietician I got the hang of things pretty quickly.

It's really important your kids are eating lots of gluten - the recommended amount for adults is the equivalent of 6 slices of bread daily (ie 6 serves - so that might be two bread slices, bowl of weetbix, pasta at dinner, muesli bar with oats and one more serve). Not sure on the recommendation for kids - I'd ring the Coeliac Society and explain you're going through the testing and see if they can help.

I saw my Gastro once for an initial appt, once more pre the gastroscopy (I think), in recovery after the gastroscopy, then once about a week or two after the gastroscopy to discuss the results. Was pretty simple really - although I was a private patient, and an adult. Some of the other members might add more info about the process their kids went through as it might be slightly different.