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> Postpartum Thyroiditis, Anyone had it?

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sg290780
post 19/03/2012, 11:30 AM
Post #11
*   Posts: 85   Joined: 9-January 12   From: Ringwood  
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This happened to me,
But my story is quite different...

Was diagnosed Hyper after the birth of DD7, and had all the symptoms mentioned. Went on medication didtn really work, this went on and on got diagnosed with Graves disease. Then I got pregnant with DD5, then pregnancy hormones take over... So I felt the healthiest I have ever felt (like first pregnancy- loved it!!)

After birth of second daughter, crashed terribly ended up in hospital couldnt breastfeed. My specialist did all she could to get my levels back to normal over the next 2.5 years. But I never stayed stable. she kept wanting me to ahve surgery but I didnt want it.

Then I finally had the surgery - she gave me no choice. A total thyroidectomy. The surgeon said it was one of the most diseased thyroids she had seen - LOL. I was told that now with thyroxine my levels would stable and I would be one continuous dose for the rest of my life.

My levels stayed ok for about 3 years with only minor med changes and I felt well and happy. then I went hypo... the thyroxine had stopped being absorbed by me. so they changed my dose, and put me on Vitamin D, which is really good for autoimmune diseases and can help thyroid problems getting worse.

Now I am pregnant with Bub 3 and have to be monitored closely and Thyroxine increased. Also I have to be at a major hospital as there is risks to bub aswell after birth. They are quite rare though.

All the best for you! PM me if you want to know anything else original.gif
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Fossy
post 19/03/2012, 11:35 AM
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Wow sg - what a journey!! Thanks for sharing. The doc thought I might have had Graves, but the blood test was negative. Hope all goes well with your pregnancy and delivery!
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ally-rose
post 29/03/2012, 03:08 PM
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I have had post partum thyroiditis after both my pregnancies. Both times I didn't pick up on the hyper symptoms, only hypo symptoms. I was on thyroxine for about 10 months both times, then the dose was cut in half for 6 weeks, then no thyroxine once it was established that my thyroid is working properly again.

I have a strong family history of hashimotos thyroiditis and apparently if you get post partum thyroiditis you are more likely to develop this later on. So, I need to have my thyroid checked annually.
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simple
post 01/04/2012, 07:08 AM
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OP - glad to hear things might be looking up now you are able to take the thyroxine!

Sg- that's is so very similar to my story! I developed thyroid problems after the birth of Dd2 - but there was no missing the hyper symptoms cos it was awful. I had tachycardia, extremely high blood pressure, shakes, insane anxiety and pretty astounding weight loss. I was diagnosed with Graves but didn't respond to the meds properly and had a complicated presentation in that I also had hashimotos (somehow I developed both autoimmune diseases which meant getting things stable was a challenge). I elected to have a total thyroidectomy. I have been stable on thyroxine since, except one period when I got slack about waiting at least half an hr before eating breakfast after taking my tabs. I went hypo and assume it was due to calcium interference.
Although I had my thyroid removed my body has continued to make more and more graves antibodies. During my next pregnancy I did have extra monitoring and frequent scans because of this. Ironically, the thyroxine was really simple to manage during the pregnancy (I did need more as it progressed) but the hypoparathyroidism I was left with after my thyroid surgery was problematic. It was extremely difficult in the last trimester to get my calcium levels correct. But we did it with daily blood tests, daily dose changes and massive amounts of rocaltrol and caltrate. I spoke to my endo almost daily over the last 6 weeks!! Pleased to say a perfect baby emerged and I went back to my pre-pregnancy doses almost straight away.

Best of luck, all!
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