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> Support Group For Hi Risk NT Results #37

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anon1317
post 11/10/2011, 02:49 PM
Post #21
*   Posts: 27   Joined: 29-June 11     
New Member
Hi aprilbaby2012,
I am really sorry you find yourself in here. I only joined last week too:( Are you going to have any further testing or have the dr's said what they want you to do from here? It is such a stressful time and I really understand what you mean about the tears. If you need to chat, I am here.
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AprilBaby2012
post 11/10/2011, 03:26 PM
Post #22
*   Posts: 26   Joined: 24-August 11   From: Hills District, NSW  
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Hi anon1317,

Thank you for such a fast reply. Im waiting for my OB to call me to discuss the results (and tell me what my next move should be).

Unfortunately, my DH is currently deployed in Afghanistan and I dont know when I'll get to talk to him next. Makes things a bit tricky.

How are you coping? Im trying to find the balance between staying positive and preparing myself for any difficult decisions that I may have to make. Wouldnt wish this on anyone.
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anon1317
post 11/10/2011, 03:43 PM
Post #23
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No worries, helps to have people to talk to original.gif

I am sorry to hear your DH is deployed at the moment, it must be extra tough on you not having him there bbighug.gif

Im not really coping to be honest. We have suffered re-current miscarriage, although very lucky to have one child. This was and still will be my last pregnancy. I had genetic counselling last week and DH and I decided to go for the amnio, we would rather know what is going on and make an informed decision if we need to. I keep having nightmares about everything, it is constantly on my mind and I feel like the couple of people irl that do know, dont know what to say or dont want to talk to me about it. It seems all to hard for them. I know they probably dont want to bring it up and upset me, but not talking about it and pushing it under the carpet is making it worse for me. I am seeing a psychologist from the end of the week to try and deal with everything, so hoping she can help with everything.

Big hugs and I hope you can talk to your DH soon
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sarkazm76
post 12/10/2011, 09:40 PM
Post #24
****   Posts: 1,598   Joined: 28-June 10     
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Hang in there ladies - this period of waiting really is the worst. What I most of all hated was everyone saying "oh it will be fine" like it was nothing. "There won't be anything wrong".

Always made me feel worse. I'd much rather be asked how I'm feeling and sympathised with then having everyone carry on with blind optimism completely not backed up by ANYTHING other than their own inability to deal with it.

Anyway... that's why groups like this help so much.

Anon - I think counselling is a brilliant idea. I wish I had seen my therapist at the time I went through this (I didn't start seeing him again until the end of the pregnancy) because I really did have trouble re-connecting to the pregnancy. After having to contemplate that you might lose them it's really hard to relax/ let it go and concentrate on looking forward to bubs arrival.

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~Sh3ekY M0nKeY T...
post 12/10/2011, 10:31 PM
Post #25
*****   Posts: 6,645   Joined: 30-October 04   From: NSW, Australia  
EB Virus! Catch my disease
Hi girls I was a 1:27 risk and now have a perfect healthy 6 month Old baby girl, I'll post more tomorrow.
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RosieTea
post 13/10/2011, 10:10 AM
Post #26
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April baby 2012- what was your nt scan ? I had good scan my blood threw everything out high hcg (from my research - usually shows a healthy placenta and female gender) Will let you know in 19 weeks if that is true original.gif

Your papp-a is lower than the norm but that doesn't mean anything really, did you use IVF to concieve as that can throw out bloods as well.

I had my amino 2 weeks ago, I got my FISH results within 24 hours and my full results of all clear 13 days after the procedure.

Wishing you all the best
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anon1317
post 13/10/2011, 05:35 PM
Post #27
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I had my amnio today. I was so stressed about it I couldnt get to sleep last night, feel asleep at about 12ish and woke you 2 hours later, so I am very tired today but glad the actual procedure is over.
The amnio wasnt as bad as I had imagined it to be. The sonographer said everything is measuring to exactly where it should be and everything physically looks "normal". We opted to get the FISH results and I am hoping to get them tomorrow. We were first appointment for the day at 830am, so really hoping to hear tomorrow. Will update once I get the results original.gif Best of luck to everyone awaiting results
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lachies_mum
post 13/10/2011, 08:30 PM
Post #28
*   Posts: 11   Joined: 13-October 11     
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Hi Everyone,

Have been finding alot of comfort in reading everyones stories.

Today has not been a good day - got my results back from my 12 weeks test and I too am high risk for trisomy 21.
It would seem that all my results were within normal range except for my papp a result which was low at 0.37 (my results say normal range is 0.5 - 2.5 MoM). The odds of tisomy 21 are 1:261. The midwife looked at me as though i was an idiot when I had my little break-down in her office today saying that alot of women get worse results only to continue on to have perfectly healthy babies. This should make me feel better but it doesnt. My trisomy 18 and 13 results are all very low risk.

I have been doing a little research since getting home from the hospital today and have read that a low papp a level can mean a number of things, one of which being the risk of hypertension. My pregnancy with my first and only other child did end with pre-eclampsia, which makes me wonder if my result could somehow be related to this? I guess I will have a little more direction after speaking with a genetic councilor tomorrow morning.

Thank you so much to everyone for sharing your stories. It has definately helped calm my nerves a little








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AprilBaby2012
post 13/10/2011, 08:42 PM
Post #29
*   Posts: 26   Joined: 24-August 11   From: Hills District, NSW  
New Member
Hi again,

Ive had a few days for everything to sink in and Im doing a bit better (Im now showering and getting out of bed before 1pm tthumbs.gif ).

Turning my phone off was the best decision I could have made, I got so sick of people (who only had the best intentions) asking me the same questions repeatedly and telling me everything was going to be ok. Sarkazm I completely agree with you, if one more person tells me 'oh, it will be fine' Im going to throw something.

RosieTea my NT measurement was only 1.8, it is the thing that gives me hope.

Ive still got 3 weeks until my amnio sad.gif I probably sound like the worst person, but I dont want anything to do with the baby until then. Ive hidden all my aps on my phone and dont look at my ultrasound pics anymore. Im more excited about my friends pregnancies than my own.

Thinking of you all
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lachies_mum
post 13/10/2011, 08:49 PM
Post #30
*   Posts: 11   Joined: 13-October 11     
New Member
QUOTE (AprilBaby2012 @ 13/10/2011, 09:42 PM) *
Hi again,

Ive had a few days for everything to sink in and Im doing a bit better (Im now showering and getting out of bed before 1pm tthumbs.gif ).

Turning my phone off was the best decision I could have made, I got so sick of people (who only had the best intentions) asking me the same questions repeatedly and telling me everything was going to be ok. Sarkazm I completely agree with you, if one more person tells me 'oh, it will be fine' Im going to throw something.

RosieTea my NT measurement was only 1.8, it is the thing that gives me hope.

Ive still got 3 weeks until my amnio sad.gif I probably sound like the worst person, but I dont want anything to do with the baby until then. Ive hidden all my aps on my phone and dont look at my ultrasound pics anymore. Im more excited about my friends pregnancies than my own.

Thinking of you all


Aprilbaby2012 you are not the worst person by any means. This is just how you've chosen to cope and get through and theres nothing wrong with that at all.

I know how you feel. After getting my results today the midwife went on to give me a million booklets on birthing information, maternity ward at my hospital info etc and all the while i kept thinking "will i even need any of this now?".

I hope that everything turns out for the best for you =)
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