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> prostate cancer *Updated 1/6*

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creepersgonnacre...
post 29/07/2011, 06:15 PM
Post #51
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Yes I changed my name again!
Oh Jules I am so very sorry sad.gif I guess it is good that it is not aggressive. I hope the bone scans are all clear and they can cure him sad.gif hands.gif

Sigh nothing new with my step dad J. He is doing the wait and see approach with the blood tests. There is the 50/50 chance it will reoccur but even with radiation which will damage all the organs that has a 25% chance of coming back so he is holding off that option for as long as possible. The radiologist seems to favour the wait and see whereas his surgeon was hoping to get him on some clinical trial as he fits the aggressive yada which he says is a random trial anyway. He doesn't want to lose all his bowel and bladder function which is what the radiation will do.
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jules363
post 08/08/2011, 08:25 PM
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I adore someone with Down syndrome
We got the news on Friday that the cancer has not spread, so that was the greatest news ever, obviously.

We also saw the oncologist on Friday, and he recommended surgery, as did the surgeon we saw. They both said that Gaz will live a good, long life, if he takes it out, whereas with radiation, he runs too much of a risk of it coming back, and then they can't operate. We were hoping against hope that he would be suitable for brachytherapy, and the oncologist said that before he met Gaz, when he was reading the notes about him that morning, he was hoping so too, but having examined Gaz, the cancer was too widespread, over the whole prostate, so brachytherapy would not cover the whole area.

We see the surgeon next month to go on the waiting list for surgery. He said that once Gaz is on the list, it will be 2 - 3 months until the surgery. As the cancer is considered low grade, and slow growing, they seem to think there is no great urgency.
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creepersgonnacre...
post 12/08/2011, 10:29 AM
Post #53
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Yes I changed my name again!
glad to hear it is low grade that is the best way to have it means it will be gone and he has a very high cuire rate.
My step dad still has a fair bit of pain and occasional incontinence. His is an aggressive form so I think he is just biding time in avoiding radiation which will affect all the structures.

Best of luck Jules for your DH and I am so glad they caught it early and that is low grade x
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Infinite*Hope
post 20/08/2011, 10:47 PM
Post #54
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I haven't been in for a while, so I am a bit late, but I am sorry that Gaz got the diagnosis Jules. Great news that it hasn't spread though, that is a huge thing. I wish him well for his surgery and his treatment and hope that everything turns out well for you all.

Lisa
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wiggles
post 20/08/2011, 11:19 PM
Post #55
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This isn't a section I pop into often (saw it in the recent posts).

I hope it all goes well for your loved ones. Wishing them all the best.

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jules363
post 20/09/2011, 11:30 PM
Post #56
*****   Posts: 5,279   Joined: 13-August 01   From: Melbourne, Victoria, Australia  
I adore someone with Down syndrome
We had an appointment at the hospital today to let them know of the decision to have the surgery, as opposed to radiation. Even though they don't think Gaz's cancer is dangerous at the moment (non-aggressive, but very widespread over the prostate), they still put him category 2A, so his operation will be within 6 weeks at the most. We are kind of taken aback, as initially they said they would put category 2, which would be around 3 months after going on the waiting list. Relieved in a way, that we won't have too much time to think about it, as Gaz is quite daunted by it, the thinking is driving him mad, and I think this has been going on too long already.

Any news from anyone else?

This post has been edited by jules363: 20/09/2011, 11:30 PM
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creepersgonnacre...
post 23/09/2011, 07:17 PM
Post #57
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Yes I changed my name again!
Jules best of luck for his op xxx Step dad goes back in oct or november he is doing ok still has some pain from the op but his had spread more so more tissue out.
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jules363
post 15/02/2012, 02:50 PM
Post #58
*****   Posts: 5,279   Joined: 13-August 01   From: Melbourne, Victoria, Australia  
I adore someone with Down syndrome
Gaz had his surgery on December 8th. Today, we had the pathology follow up, and his tumour had clear margins, and his PSA level was not detectable. The best possible news we could have hoped for...the surgeons expect him to remain prostate cancer free for the rest of his life.

Any news from anyone else?
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creepersgonnacre...
post 20/02/2012, 12:00 PM
Post #59
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Yes I changed my name again!
Oh great news Jules original.gif
My step dad starts radiation in about 6 weeks time-his PSA had risen this check and it was time to do it. Cure rate is 70%. So fingers crossed it will be all gone.
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