[Forum Moderator]

New thread time. Old thread is here.

Emma

[Pumkin76]

GOLD!!!!!!


All going well here, thomas has settled in well, and growing eating sleeping etc, still has his moments though

hope everyone is well.

[Mumtokids]

SILVER!!!!!

I have an appointment next week with my gastroenterologist to get my biopsy results back from my colonoscopy and to also be put onto maintenance meds now I have used the Colifoam for a bit. The colifoam seems to have done its job though as this flare seems to be under control now thank goodness.

[dawnb]

I'll take BRONZE


I have made an appt to see Gastro can't get in til 7th of June, typical! I just have this upper abdo pain that is driving me nuts probably send me for more tests grrrr.

[sillysam]

Thanks dawnb for your feedback, how long where u in hospital for and how long did it take u to recover?

Thanks

[midstudentcatie]

*facepalm* yay for hospitals!

Got a frantic phone call from my Gastro last week saying I had an Hb level of 78, had dropped from 115 6 weeks earlier. Wanted an immediate transfusion and colonoscopy to see how severe the ulcerations were - hold the phone, I'm completely asymptomatic! No abdo pain, no runs, no bleeding, no tiredness, no weight loss or loss of appetite - any of those things and I would have been straight on the phone, not trying to ignore it for 6 weeks! Reluctantly booked the transfusion thinking he'd want 2 units, only to find out he wanted 4...4! I'm not sick at all, not even tired! No way known do I need 4 units when someone much sicker could use it! Argued the fact a bit - also there was no way in hell I was staying in hospital overnight when I spent 5 weeks there late last year! - and got it down to 3 units as a day procedure, refused the colonoscopy completely.

So I rock up to hospy at 10.30 this morning ready for my 3 units, get all comfy in my room...and wait...and wait...and wait some more. Finally had a jelco put in at 1pm, Dr rewrote orders at 1.15pm (hospy 'misplaced' the ones he wrote out last week to avoid the wait!). Thought the ball was rolling and I'd be out at about 9pm. Boy was I wrong! Blood didn't go up until 4 pm, jelco blew out well and truly at end of second unit, third unit finally went up half an hour after that...so I'm now finishing at 1.30am! They're not at all happy about discharging me at that time but stiff bikkies - it was meant to be a day procedure, I hadn't organised to have Friday off of work - and I work as a nanny, so not like i can ring and say I can't work with only a few hour's notice! Not overly impressed, will be going to a different hospy next time methinks!

On the upside, Remicade is working well, fingers crossed it keeps doing so!

[dawnb]

Sam, i was in for 10 days and it was at least 6 weeks before i felt good, what with all the healing etc because they do the incision from the belly button down i had a problem with where the bottom incision met the scar from my first surgery which was across the pelvis (they thought i had appendicitus so started the incision on the side but saw that it was bowel and had to go straight across if that makes sense) you have to remember it's major abdominal surgery so it takes a few weeks for the healing and the muscles to adjust.

Catie, that sounds pretty typical for a hospital, i hate going in there i always end up being there longer than they tell me grrrrr, glad the remi is working though.

[dawnb]

EB name : KJT
Real name : Lisa
Location : Wollongong, NSW
diagnosis and how long: Crohns 2002
Kids : T-8, J-6, K-3, B-20mths, C-7mths

EB name : dawnb
Real name : Dawn
Location : Cranbourne VIC
diagnosis and how long : Crohns 17 years
Kids : 4 boys 1 girl, 19, 13, 10, 6 and 3.5

EB name : 22Sharna22
Real name : Sharna
Location : Caulfield, VIC
Diagnosis and how long: 2007 (symptoms for 5+ yrs)
Kids : 2 girls aged 1 and 4, expecting 3rd 08/08.


EB name : Kat78
Real name : Kathryn
Location : Blue Mountains NSW
diagnosis and how long: Diagnosed in 2000 CD and Possible UC
Kids : Jade 2.5yo and Carmen 4 months

EB name : Pumpkin 76
Real name : Helen
Location : Ferntree Gully, VIC
diagnosis and how long: 2005, (undiagnosed for 6 yrs)
Kids : 2, Jackson and Mitchell.

EB name : harrison~at~last
Real name : Kelly
Location : Adelaide, SA
Diagnosis and how long: Crohn's, diagnosed officially in 2003
Kids : 1 daughter, Jessie May

EB name : Prini
Real name : Rebecca
Location : Brisbane
diagnosis and how long: Crohns 1999
Kids : DD 8 DS 6 DS 4


EB name : hopeful81
Location : South East Qld
Diagnosis and how long: Ulcerative Colitis, diagnosed 2002
Kids : DD (2008)

EB name : mybabymonsters
Real name : Kaz
Location : Como Western Australia
diagnosis and how long: Diagnosed with Crohns in 2005 (officially) but have had symptoms for many years prior.
Kids : Lachlan (2000), Daniel (2002) and Ronan (2008)

EB name : Nicole76
Real name : Nicole
Location : Adelaide, SA
diagnosis and how long: UC 2010
Kids : 2 boys aged 8 and 2

EB name : nicdor
Real name : Nic
Location : Canberra, ACT
diagnosis and how long: UC 15 years (1995)
Kids : 2 DD 2.5 and 4.5



This post has been edited by dawnb: 17/08/2010, 10:10 AM

[Mumtokids]

Can I please be added to the list?

EB name : Nicole76
Real name : Nicole
Location : Adelaide, SA
diagnosis and how long: UC 2010
Kids : 2 boys aged 8 and 2

[dawnb]

done Nicole