[lovingmygirls132...]

I was Dx in August 09, had a double mastectomy with expanders for reconstuction. In October I had TAH+BSO, and now a a mean menapousal b#$h.

My body unfortunatelly rejected the expanders, so in feb I went again, and this time they did the full on mastectomy....everything gone.

No nodes seemed to be involved, and having had mastectomy, I don't need radio therapy......all I have to do is relax and enjoy life, which is a bit hard, as I got infection in both of the wounds. One we manged to keep closed, but the other one just opened up about5-6 cm in diameter. So atm I am carrying a sucker up puss machene (VAC dressing) anf hoprfully the infection will stay at bay and it will close up nicely.

[Shaynavyre]

Hello Survivors, Sufferers and parents of little battlers!!!!

Putting my hand up for the role call:

At 21, in 2004 after my very first pap-smear (too shy and scared of anyone looking down there before - how laughable, I can no longer count the doctors and med students now!) I was diagnosed with cervical cancer. (Handed a fax, with only three words I recognised - carcinoma and urgent biopsy. Still to this day I wonder if that was the worst, or the best way, to be told).

Punch Biopsy and colposcopy confirmed it (although "urgent" was a two week public hospital system wait!). HPV DNA test has always been negative. I'm just a rare freak that had a cancer I shouldn't have been able to develop for another 10 years!

Due to my age, and my childless state, and the fact the lesion looked manageable, Diathermy was the proposed treatment. Performed under local only, with a doctor saying I couldnt feel a thing while I was crying out in pain.

They didn't get it all, back for another treatment in 8 weeks.

Under local and a sedative this time, Diathermy #2. At home that night, got up to make myself a cup of tea, and thought the local had been too strong - a rush of warm liquid - I thought I had wet my pants! But it was blood. I was haemorrhaging.

Into emergency, a "pack" placed in - they said they'd check on it in 24 hours. In the 20 minutes of filling out the admissions paperwork on the ward, I had bled through the pack and was making a lovely pool of blood on the bed. Was certain I was going to die that night. Transfusion and two weeks in hospital....

....Only to find they didnt get it all.

Back to the drawing board - Was told that Chemo and Radio would give me the all clear in the shortest amount of time with the minimum amount of risk (considering my "very vascular" cervix.) Radio to me was about as devestating as a radical hysterectomy.

Chemo and Surgery was my other option. I didn't have a great track record with surgery thus far, but I do desperately want to be a mum.

Onto the Chemo Limo.... I was lucky in terms of side effects - hair loss was not too extensive (although it's still very thin).

It was probably more unpleasant for those around me than it was for me...I still remember the very betrayed look in my nephew's face (2 at the time) when he came to visit me at my worst.... his face read "No, you're not allowed to be sick, you're meant to be there for me always."

My journey ended with a cone biopsy (Used to treat as well as diagnose CC) and another haemorrhage. This time they kept me packed from the start.

I was feeling weak, and BP was ultra low following the surgery. They let me out after a week. Two days later, I had excriciating cramps, and the need to push.....and out came the clots of blood the pack had forced to pool in my uterus instead of flowing out. golf ball first, then tennis ball. Back to hospital :-) IV antibiotics for 10 days.

Treatment concluded in 06.

Every Punch B, HPV DNA + Colposcopy has been clear ever since!

In December 2008, I graduated to annual pap smears! After this one, I get to go and be "normal" every 2 years!


Still TTC #1, with a few heartbreaks along the way. I was expecting problems later on in prgnancy with my incompetent remains of a cervix - ready for stitches and bedrest, but I wasnt ready for things to go wrong early on...but, feeling very hopeful and positive - it's Christmas after all!

[PinkSurvivor]

Can I join?

I was diagnosed with triple negative breast cancer in September 2010.

I had a lumpectomy and sentinal node biopsy in September 2010, nodes all clear. I then had a axillary clearance as precaution and had 1/16 nodes. I started chemotherapy and halfway through found another lump. I then had to have a mastectomy and start chemo all over again. I finished chemo mid June 2011 and then did 30 sessions of radiation. I finished treatment August 23rd 2011

Now I just hope I can stay cancer free!!! Fingers crossed!!!

If you want any more info just PM me

[lezah]

@PinkSurvivor

That is the most beautiful sig I've ever seen - and as an almost original EB'er, I've seen a few.

Uh, I don't think I've ever done an EB roll call, since I've been here forever in some shape or form (ok - I did a few years under a pseudonym as a moderator, hence the inordinately low post count). When my son was diagnosed with autism in 2004, I slipped away quietly.

In 2005, I had a 7cm keratocystic odontogenic tumour removed from my sinus cavity, which while sounds scary, was benign, but resulted in 18 months of surgeries, battling 'super-bugs' picked up in operating theatres and neuralgia in my face.

22 days after my doctors announced that I was healthy, my husband was diagnosed with advanced multiple myeloma. After 9 cycles of chemo, 2 stem cell transplants and a disastrous experience with Thalidomide, Wayne stabilised at a serum M count between 11 and 15.

4 days ago, his count shot up to 22.

We're back into active disease.

[Dani]

Oh gutted for you L. Just gutted.


D....longtime stalker of your posts. LOL

[*Chyloe*]

DH was diagnosed (after surgery on 27/8/07) with ACC (adrenocortical carcinoma) - very rare cancer of the adrenal gland. First surgery in 2007 removed 12-13 cm tumour. Second surgery on 7/9/2010 removed secondary tumour, plus spleen and tail of pancreas which tumour had impinged on. Third surgery on 29/2/12 - tumour found to now be inoperable as too close to aorta and too dangerous to attempt safe removal. Radiation treatments appear to be working. Secondaries on liver - main tumour and secondaries now smaller. Cancer sucks!