[baddmammajamma]

Hi Fellow EB Mums:

I have shared this information below in various forms on EB, but I am targeting this particularly board in an effort to raise general awareness of the early warning signs/potential red flags for autism. As some of you know, my now 7-year-old daughter has an ASD (autism spectrum disorder) that was detected when she was relatively young. As a result, she was able to take advantage of some really great early intervention.

When I first started worrying that something was slightly "off" about my daughter's development, autism never even entered into my mind. I mistakenly believed that because she made eye contact, enjoyed playing with me, and smiled -- not to mention that she was a girl! -- there was no way that we had to be worried about autism.

What I didn't realize at the time is that ASD comes in so many different shades. It's called a spectrum because the blend of symptoms, and the degree to which they affect a person, can vary dramatically. What people with ASD share are (varying degrees of): (1) difficulties in social interaction, (2) difficulties with communication, (3) restricted/repetitive interests and behaviors. Very often, they show some sensory sensitivities as well.

Looking back, we actually had plenty of early warning signs with our daughter when she was a baby and toddler. At the same time I had these niggling concerns, I was surrounded by friends, family & even some medical professionals assuring me that she was just "quirky," "gifted," and "developing at her own speed." Nobody encouraged me to explore my concerns further, and to be honest, I didn't WANT to learn that something was wrong, so I stayed away from any resources that might have pointed me in the right direction. Thankfully, I had two very ballsy and informed friends who batted me over the head and encouraged me to seek the guidance of a specialist.

For any of you who have niggling concerns about your own child, but need a gentle nudge to act upon them, I hope that this message will encourage you to take action. If you click on the link in my signature, you will see why I am so passionate about this cause.

RED FLAGS FOR ASD

Young children (baby/toddler stage)

Social

The child:

* doesn't consistently respond to her name
* doesn't smile at caregivers
* doesn't use gestures independently -- for example, she doesn't wave bye-bye without being told to, or without copying someone else who is waving
* doesn't show interest in other children
* doesn't enjoy or engage in games such as peek-a-boo or patty cake.


Communication

The child:

* doesn't use gestures to get needs met -- for example, she doesn't raise her arms when she wants to be picked up or reach out to something that she wants
* doesn't use eye contact to get someone's attention or communicate -- for example, she doesn't look at a parent and then look at a snack to indicate she wants the snack
* doesn't point to show people things, to share an experience or to request or indicate that she wants something -- for example, when she's being read to, she doesn't point to pictures in books and look back to show the reader
* doesn't engage in pretend play -- for example, she doesn't feed her baby doll
* doesn't sound like she's having a conversation with you when she babbles
* doesn't understand simple one-step instructions - for example, "Give the block to me" or "Show me the dog."


Behavior

The child:

* has an intense interest in certain objects and becomes ‘stuck’ on particular toys or objects
* focuses narrowly on objects and activities such as turning the wheels of a toy car or lining up objects
* is easily upset by change and must follow routines – for example, sleeping, feeding or leaving the house must be done in the same way every time
* repeats body movements or has unusual body movements such as back-arching, hand-flapping and walking on toes.

Sensory
The child:
* is extremely sensitive to sensory experiences -- for example, she is easily upset by certain sounds, or will only eat foods with a certain texture
*seeks sensory stimulation -- for example, she likes deep pressure, seeks vibrating objects like the washing machine, or flutters fingers to the side of her eyes to watch the light flicker.

To learn more about very early warning signs and the importance of early intervention, check out this terrific site:

http://www.firstsigns.org/

Signs of possible ASD in Preschoolers:
With some children, the red flags might not become entirely obvious until they reach preschool (or even school age), when suddenly the developmental gap between them and their peers becomes more pronounced. Some of the more common characteristics of ASD in preschoolers include (note: list is simply representative, not exhaustive. Also, a child with ASD may not display all of the signs on this list. Mine sure didn't!):

* Unusual responses to other people. A child may show no desire to be cuddled, have a strong preference for familiar people and may appear to treat people as objects rather than a source of comfort.

* The child tends not to look directly at other people in a social way. This is sometimes referred to as a lack of eye contact.

* There may be constant crying or there may be an unusual absence of crying.

* The child often has marked repetitive movements, such as hand-shaking or flapping, prolonged rocking or spinning of objects.

* Many children develop an obsessive interest in certain toys or objects while ignoring other things.

* The child may have extreme resistance to change in routines and/or their environment.

* The child may appear to avoid social situations, preferring to be alone.

* There is limited development of play activities, particularly imaginative play.

* The child may have sleeping problems.

* Food problems. The child can be resistant to solid foods or may not accept a variety of foods in their diet.

* There may be an absence of speech, or unusual speech patterns such as repeating words and phrases (echolalia), failure to use 'I', 'me', and 'you', or reversal of these pronouns.

* There are often difficulties with toilet training.

* The child generally does not point to or share observations or experiences with others.

*The child may be extremely distressed by certain noises and/or busy public places such as shopping centers.

WHAT TO DO IF YOU HAVE CONCERNS
If you have concerns that your child might have ASD, the next step should be getting professional guidance. You can also ask your MCNH or GP to do a relatively simple "developmental screen" to see if there are any potential issues. If your child attends daycare or preschool/kinder, it can be valuable to ask carers/teachers what they have observed about your child as well.

Note: While talking to your GP can be a good place to start, please be aware that as generalist practitioners, not all GPs are up-to-speed on ASD. All the more reason for you to arm yourself with good information!

In younger children, the diagnosis process almost always involves a specialist medical doctor (paed, developmental paed, or psychiatrist) or a panel approach that includes one. Your GP can refer you to one of these professionals.

There are some terrific resources to help guide parents. Two particularly valuable ones in Australia are:

http://raisingchildren.net.au/children_wit...sm_landing.html

http://www.autismawareness.com.au/ (includes state-by-state directory of professionals who are well versed in ASD)

Additionally, the mums who are active on the Special Needs/Disabilities board are very supportive and happy to share recommendations of great "ASD-savvy" professionals (via PM, because we aren't allowed to make explicit recommendations on the board), provide information, or answer questions. Your child doesn't have to have a diagnosis of anything for you to voice your concerns or ask questions.

(I am in Sydney and am always happy to pass along my suggestions of ASD professionals in this area).

Thank you for taking the time to read this message!

BMJ

This post has been edited by baddmammajamma: 07/01/2013, 11:30 AM

[ivelsfancy]

Hi baddmammajamma,

I don't belong in this section yet, But I just want to say thank you so much for posting this information it is so hard to decipher information sometimes and having some one with experience point you in the right direction really helps. I had some concerns about my daughter a while ago and it now seems that those concerns were probably reaction to food intolerance's. however I am going to print this out in case her concerning behavior returns. I really appreciate your encouragement to go with your instincts.....sometime that is so discounted so its nice to have it affirmed .

Thanks again! hope your DD continues to thrive!

[stefnie34]

* Take action. It is a misnomer that you need an official diagnosis to start early intervention. For instance, if your child is struggling with speech, you don't need an official diagnosis of ASD to go to a speech therapist for help.

My dd was finally diagnosed with PDD-NOS (an Austism Spectrum Disorder) last week, but she has been receiving Early Intervention for almost 3 years now. Our first concerns were before she was 18 months old. It scares me to think where she'd be today if we had decided to wait for a diagnosis before taking action.

I'm also happy to help, PM me any time if you have questions

[ziggy72]

This is a fantastic post. It is so useful that I think all should read it. I know many of these signs myself, but the refresher was so helpful, as we forget what kids are menat to be up to at what age.

So often I read posts about concerns parents have and well meaning parents reply to reassure the OP that all will work out in the end, all kids develop at different rates etc. As much as this may be true, the reality is, that is not always true.

Be up front about the red flags, or early warning signs, may not be what people want to hear, when they are worried, but if it helps someone to go and talk about their concerns with professional, then I think it is worth mentioning.

[MitchNme]

Thanks for sharing OP. My DS is 2yrs 7months, and I have always known there was something that wasnt quite right with him. Everyone would always try to reassure me that he was fine, and he would do things in his own time, but I think mothers instincts are very powerful, and we do know our children better then anyone else. He has been having therapy for the last 6 months while we are slowly moving up the EI waitlist, and although all his therapists and carers believed he was on the Autism Spectrum, my Paed wanted to give him a chance and see if everything would suddenly click for him. It didnt, and we finally recieved a diagnosis last week, so although it was hard to hear it officially, I was already prepared for it. Now we can start more intensive therapy with some extra funding, and hopefully give him the best start before he hits school age.

I whole heartedly agree with baddmammajamma, and trust your instincts and get your child checked out if you think there may be issues. As a school teacher, I see children with ASD start school, and it is not till then that they are first diagnosed, because some parents dont recognise the signs, and others choose to ignore them. It is so much harder for them when they havent had that early help.

[seahorse67]

bub4me: "I whole heartedly agree with baddmammajamma, and trust your instincts and get your child checked out if you think there may be issues. As a school teacher, I see children with ASD start school, and it is not till then that they are first diagnosed, because some parents dont recognise the signs, and others choose to ignore them. It is so much harder for them when they havent had that early help."

Ditto.

[baddmammajamma]

bub4me: I hope we will see you over on the ASD: Below School Age thread (for parents of kids with confirmed or suspected ASD). I'm glad that you have some answers about your son. To be honest, I found the "What if" stage to be far worse than the post-diagnosis stage!

Thank you to those who have written kind things. I felt so alone and overwhelmed when we went through DD's diagnosis that I want to do everything possible to get information out there & let other worried parents know that they are not alone.

[AnZ]

Hi I'm not sure where to post this and because I've come across this post I'm going to do it here and hopefully someone will have some good advice because most people I talk to blow me off etc

My DS3 is a twin and so it's really hard not to compare him to his two brothers especially his twin brother however he has some behavioural problems, weird things he does and a particular smell that's sweetly sickening sometimes...

I'm not sure what to do as my paed said he just has a bad temper (12months old check up)and sometime it might be just a temper tantrum however he is so hard to calm down over the simplest things, he takes everything from his brother, he seems very cheeky and mischevious but he also can be loving at times although he does frown alot too and he just doesn't understand like my other two children have, he also won't touch certain things and is strange about certain noises. He is a great little kid it's just that he's really different and now my Mother and partner are agreeing with me and we're worried because if he does have autism or something like that we want to do what we can for him while he's young. We don't want to be waiting years and then find out. We've booked in again to see our paed but can't get in until Feb 11, which isn't that far away so I'll wait but I'm worried about being fobbed off again this time. Anyway just wondering if anyone has a similar story or advice that they'd like to share.

One other thing...He doesn't talk much yet although he is only just over 2 but when he does he chooses the harder words or what I think are harder...

And I'm just reading back over the first post on here, which has a lot of advice so duh...sorry

Cheers K

This post has been edited by AnZ: 26/11/2010, 10:59 AM

[emily~and~girls]

Totally off topic but I thought I would just mention that my dad often suffered from excess ketones and as a child I remember knowing he was sick by a sickly sweet smell on his breath and in his body odour.... It dis actially affect his behavior too . Thought I'd just mention it as a note to the post above ..... Feel free to pm me if you want

[baddmammajamma]

Today is my day dedicated to re-visiting and updating the pinned ASD threads, hence the sudden surge in related threads reappearing. Bear with me!

This post has been edited by baddmammajamma: 23/12/2011, 02:14 PM