[lilymurray]

New thread time ladies

Link to previous thread

[Bubble07]

Mrs Peel - 18 week scan was good, heart looked good and there were no other issues at that stage. They will not reduce my risk though and are keeping me at the specialist unit and I will have another scan at 28 weeks (just under three weeks now) to make sure my placenta is still doing the right thing. I am hoping that they will reduce my risk otherwise I will be limited as to where I can birth. Thanks for asking after me.

[Ms Peel]

Hi Bubble 07,

All the best for the scan next week. I hope your risk can be reduced, so you can birth where you wish.

Emma.

[~A2~]

Just bumping this thread up to see how you are each going and if you are still chatting here.

Regards

Ali

[Peevish]

Hi - this group is really quiet and I'm wondering if there is anyone else out there who has elected no further invasive testing and is currently waiting for their baby to arrive.

I have 9 ish weeks to go and elected no further invasive testing after getting a 1:115 result for T13 and T18. I've had 2 morphology scans which don't show anything unusual but now I'm well over 1/2 way I am starting to think about the what ifs.

I have been in the other high risk results group but everyone there seems to opt for amnio or cvs. I feel like I have the only dr who hasn't recommended further testing.

[greenthumbs]

Hi Beetbix!

Just found this group.

Our bub was given a 1:146 chance of down syndrome. We declined the amnio as we knew we would keep bubs no matter what.

My NF was normal, but my bloods came back with low pappa. I was told this over the phone by someone at the ultrasound clinic, but as I was busy trying to take in the info I neglected to ask what other factors can cause this. He did say there were other reasons for it, but didn't say what.

I have since had two appointments with a midwife and she couldn't answer this so as my pregnancy is now deemed 'high risk' I have to be under direct care of an obstetrician (I'm in public system). I have the first appt with this ob next week and can't wait to bombard her with questions!

I have found it very hard to deal with, mainly because every time I have a medical appt they have to go on about the high risk and that we 'declined amnio' it's the first thing written on my yellow card. I am enjoying this pregnancy so long as I keep away from the medical profession, otherwise I have left each appt in tears and worried about further testing and so on. I wish I had never had the test, I just assumed it was what everyone did. Now I am researching everything and before agreeing to anything, finding out what outcomes are possible and where they may lead. We are booked for a cardio scan at 24 wks despite the anomoly scan all coming up perfect. So I will discuss this as well with ob next week and decide if we really need to have scan.

I'm not worried about our little one having ds, I am more concerned with whether or not this will mean invasive testing, staff pushing for different outcomes to what I want (natural birth, b/feeding etc).

All I feel right now is regret for having the test in the first place and defensiveness/protectiveness of my bub, body and labour.

Gosh, what a babble! But as mentioned, only just found group and has been nice to get it all out.

Cheers

[Peevish]

Hi Greenthumbs - I'm sorry you fit this group . . . . .but, happy that I have someone to chat to in this group.

I hope if you decide on a cardio scan it goes well. I am happy to have all the recommended scans as we want to know what is happening.
I have had 2 morphology scans which show nothing untoward, these have put my mind a little more at rest.

Did your medical advisors push you for an amnio? I guess we are lucky in that my obs is on board with our decision and didn't, in our case, recommend an amnio. But, one of the factors for us was that we don't get pg easily (ICSI baby) and given my age we weren't willing to risk miscarriage and then possibly take ages to get pg again.

Apparently I had weird blood results which gave me the high risk for T13 and T18 and yet low risk for DS.

I have it stuck on my card that I am high risk for T13 and T18 but since I only see my obs I'm not getting any comments about it. I have my pre-admission appointment in a few weeks so I will tell you if I get any weird vibe from the midwife then!

[greenthumbs]

Hi Beetbix

It is great to chat with someone who understands!

I have my first appt with the ob on Tuesday so am looking forward to asking millions of questions. I am happy to have the cardio scan at this point as I'm sure everything will be fine and it will hopefully make the doctors lay off.

My GP I only told over the phone about the high risk and she just said my attitude was great about it. The midwife didn't hound about the amnio, just made absolutely sure I was sure. She had a student with her during the appt so had to explain it all to her as well, why some people choose to have an amnio and why some don't etc. Made me feel like I had to justify why we decided not to as it seems that most people do these days. At each appt so far it is brought up, whether it's the midwife, the sonographer or the admin staff.

It will be interesting to speak with the ob and see what her deal is. I've been told she is very particular (not sure what this could entail) so I'm just hoping at this point I can at least explain how awful these visits are making me feel and how I feel like no-one is remembering that I am growing a baby, not a 'high risk'. Also to find out what the 'high risk' status means for our care and labour etc.

I agree that the morphology scans made us feel better too, just getting that confirmation that all looks normal was nice.

Let me know how your appt with midwife goes!

greenthumbs

[greenthumbs]

Hi Beetbix

I had my appt with ob on Tuesday. Unfortunately she wasn't in so I saw a registrar (?) instead. She was lovely.

We went over the scans and they are all normal. I asked what other things can cause a low papp-a blood result. She said that it can indicate the bubs will be small, therefore as bubs with down syndrome are often smaller in weight, this can be an indication so they just keep closer eye on bubs growth with extra scans and also they do a cardiac scan to make sure all is growing normally.

Seeing as my bump is all growing normally I asked if the cardiac scan comes back normal, could I be down graded to normal risk. But unfortunately once that tag is there, that's it.

But provided there are no heart issues, there is not really any reason (provided no other issues crop up) for the delivery to be anything other than normal.

I'm feeling a lot less anxious after that appointment. I'm just looking on it as a plus that I get extra scans to see bubs

Hope all is going well with you - not long now is it? Are you getting nervous / excited?

[Peevish]

Hi Greenthumbs - just to let you know I had a healthy baby boy last week! He is on the scrawny side and apparently my placenta didn't look that good when it came out but he is healthy which is the main thing and a huge relief.

I wish you all the best for your pg and hope that you will keep me updated on your news. I will keep lurking this thread for news.