QUOTE (popsicle :) @ 24/11/2011, 03:33 PM)
Is anyone else stented? If not why not? I am finding that my procedures don't seem to be the norm and I am wondering why as it seem to have worked for me.
I am not stented as I am fighting with my neuro/eye doc. I was diagnosed about 3.5years ago at the Mater hospital in brisbane after seeing a private eye doctor who sent me there as I could not afford the tests he wanted me to have (cat scan, mri, lumbar puncture). Originally my normal optometrist sent me to the private eye (lol) as I was having double vision badly and my eye was turning in slightly (so not as bad as yours), prior to that I had been struggling with vicious migraines for a couple of years (so probably the pressure building). The mater was good, they kept me in, drugged me up (which did not work) and gave me a lumbar puncture which measured the pressure so high that it was higher then what they can actually measure. they sent me home after this with an appt to see the opthamologist (?? think thats how you spell it) as he had the most dealings with IH. He was an a*se. Treated me like utter sh*t. I left every appt with him crying, and tho I have had vision changes still over the years (I had near on perfect vision and now it sucks but nothing major apparently) they didnt consider the IH to be rearing its head, except I was at my doctors all the time complaining of migraine or in there vomiting and extreme pain and my DH having had to leave work to come get me and the kids and my GP would sedate me basically, and Id be out for 24hours which usually helped although I did not like being out like that so I fought it as much as possible or I would have been there for that much more often.
The Mater Eye doc reffered me to a neurosurgen at the Princess Alexandra Hospital saying they didnt have one at the mater for a shunt to drain the excess fluid into my bladder or tummy and I would then basically pee it out (I later found out the mater does he was just getting rid of me, as now his clinic doesnt exist tho only to me cos I was demanding something be done to get my life back as it was costing me a fortune and I nearly lost my kids cos I was barely able to look after myself let alone them.) However when I got to the PA hos, they did not have any record of me and none of my charts from the mater. They didnt believe me. My GP sent a refferal to the neuro/opthamologists at the PA to see if they could help cos they were the better docs with more knowledge and they were the ppl who literally said "you dont have anything wrong with you, you are just a drug addict" (as my doc put me on mscontin to help deal with the majority of the pain as the headache never left, just varied in intensity. MSCONTIN is what saved my kids and my life as I was sucidal cos my life consisted of pain and the inability to do anything for myself let alone my kids. after saying many other things in a horrible nasty way I left their clinic and burst into tears as I had be so hopeful that I was finally going to see someone to help me.
I dont like being a huge amount of painkillers. I know I am physically addicted as I get withdrawl symtoms like pain etc when I forget a tablet but not until hours after Iforgot it. If I ever became emotionally addicted My DH would drag me to the GP and demand they do something about it as it is the one thing I have made him promise to do that and to look after the kids if I ever do somthing stupid (which I wont now). So I am stuck waiting til Jan 2012 to see the b**ch again at the PA and I cant wait to tell her that I am pregnant here is my records from the mater, go eff yourself.
I made a decison to not let the IH control me and my familys lives any longer. I did a lot of research and we decided to have another baby and just let the medical mob deal with it after the fact as they would never agree to TTC. The first month we tried we fell pregnant which is amazing, as I have ENDO and PCOS and I have a high miscarriage history but I am now 6weeks and 3days and hopeful.
Popsicle I believe you had a worse case then mine, and from all my research this is half the problem, that there is not enough medical study and research to tell us why there are so many variations to everyones personal story. Also I believe you were lucky to have gotten ppl who were interested and researching it so they knew what they could do to save you all these sorts of problems. I wish you the best of luck. And I hope to god someone will help me oneday.