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Research in idiopathic toe walking

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#1 cyliebug

Posted 05 June 2012 - 11:34 PM

This post has admin approval:

Are you the parent of a child over 5 years of age and who has been diagnosed with idiopathic toe walking?

Are you an adult who toe walked as a child or still does?

We are interesting in hearing if idiopathic toe walking has or currently impacts on quality of life. Idiopathic toe walking is diagnosed when there are no medical conditions causing the toe walking. It can be present in children and adults.

There are a number of ways you can take part in this online survey.

- If you are the parent of a child who is over 5 who has been diagnosed with idiopathic toe  
        walking, we would like to invite you to participate.
- If your child is over 8, they are welcome to complete the survey themselves, they will be ask
        specific age appropriate questions only
- If you are an adult who toe walked as a child or still does, we also invite you to participate.

This survey will take between 10-20 minutes and you can find more information here:


For more information please email: cylie.williams@monash.edu
Ethics Approval: CF112/0815 – 2012000359

#2 cyliebug

Posted 17 July 2012 - 10:45 PM


#3 smudgiekiss

Posted 17 July 2012 - 11:39 PM

Hello Cyliebug.  I had to google this to find out what it was and I've just sat here for the past hour reading all sorts of links to it.

To make a long story short I believe my nephew and his father (my BIL) all have this.  I will be talking to my SIL tomorrow telling her to look into this.  I've never heard of this.

My nephew is 13 and is a toe walker.  He has social problems at school.  He hates wearing clothes that have buttons but cannot explain why.   He has some other bizzare traits that we have never been able to work out.

Good luck with your study.  Thank you for hopefully shedding some light on something I know nothing about.

#4 cyliebug

Posted 18 July 2012 - 10:23 PM

Many thanks to you both.
smudgiekiss - thank you, I would really appreciate you passing it on to your family members. Toe walking often runs in the family and I would appreciate hearing about that from both the adults and your nephew.

Rawr - many toe walker's are very clever cookies! Would love it if your son would also complete it, the questions are quite similar but phrased appropriately for children aged over 8. I would love to hear your son's take on it.

#5 cyliebug

Posted 31 August 2012 - 03:14 PM

Bump, this survey is open until December, please feel free to complete/distribute.

#6 cyliebug

Posted 09 January 2013 - 02:06 PM

Bump, this research has extended approval until Dec' 13.

#7 cyliebug

Posted 24 December 2013 - 01:45 PM

Last bump before this survey is closed on the 31st of Dec. Thank you for your responses.

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