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Coeliac/Gluten Free/Wheat Free chat


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#126 Bell07

Posted 18 January 2014 - 02:19 PM

Spa gonk, I started to notice a difference at 3 weeks and felt great at 6 weeks.

Would love a good savory muffin recipe too!

#127 Star276

Posted 18 January 2014 - 09:57 PM

We just had a lovely holiday interstate, however I had to cook every day.  I phoned the restaurant that was on the resort prior to booking and the person I spoke to made me feel very confident as she "got" GF eating and her daughter was coeliac.  Different story when we arrived though, I questioned the Manager and he was quite lax... eg chips are cooked in the same deep fryer as everything else.  I figured if he thought that was GF then other foods may not be also.  When will we ever be able to holiday and eat out - this is the hardest thing about a 6 yr old with CD.

Edited by Star276, 18 January 2014 - 09:58 PM.


#128 Spa Gonk

Posted 20 January 2014 - 08:57 PM

I hear you on that star276.  I find the gluten free stuff we come across when out and about are more tailored towards adults.  Often stuff with feta cheese or asparagus in them!  And I have to remember when ordering plain meat out to tell them not to add pepper and salt on it as it seems to happen automatically.

We are trying lactose free milk at the moment and limiting lactose, so will see how we go.  She has also had a uti recently and 6 months ago when all the testing started happening, so not sure if that problem also impacts on her sore tummies.  So frustrating to think the coeliacs diagnosis and gluten free eating would sort everything out and it hasn't.

I have a recipe for scrolls that I intend in cooking this week, so will share if it is a success!

#129 lizabeth

Posted 02 February 2014 - 12:27 PM

I have posted this in the general section but perhaps I can reach more with Coeliac disease in this thread.
I am wondering if anyone out there has received a negative blood test result for coeliac disease, but gone on to be diagnosed via biopsy.  My daughter has coeliac disease and genetic testing indicates that I have a double positive genetic load for coeliac - ie highest possible genetic risk. I also have chronically low iron. I have been blood tested for coeliac disease and my coeliac screening blood results are negative. My GP (who has Coeliac herself and therefore has a special interest in it) has referred me to a gastroenterologist to consider going ahead with small intestine bowel biopsy despite the negative blood results, in case they are falsely negative and I do actually have Coeliac. I don't have any other symptoms at all, but my daughter had hardly anything either (just bloated tummy and pale skin).

Has anyone been down this path before? Would appreciate any insights!

#130 Bell07

Posted 02 February 2014 - 12:35 PM

Lizabeth, are you eating gluten? If not, the blood test and biopsy may come back negative despite you actually having coeliac disease.

If you are eating gluten, the blood test is fairly accurate but not 100 per cent, and some of the blood tests are better than others. (ttg is more accurate than EMA, for example). Make sure they also asked for your IgA levels, as if they are too low then you can get a false negative blood test also.

#131 Little Bean

Posted 04 February 2014 - 03:57 PM

Hi everyone,
I haven't posted here before, I actually came in looking for advice on the closest gluten-free bread to ordinary white bread, because I want to start my 2.5yo DD on a gluten-free trial. Having now read some of your posts, I'm thinking maybe that is not the way to go and instead was hoping I could share her story/symptoms and ask if anyone thinks they could be related to gluten intolerance before I try to seek an official diagnosis.

So basically, DD slept through the night wonderfully well from a very early age. We thought we were so lucky because we had such a good little sleeper! We'd put her to bed at 8pm and not hear from her again until 6.30am...this all changed suddenly and dramatically when DD was about 5.5months old (and tried her first solids, baby cereal). It was almost an overnight change, like literally she slept badly one night, waking multiple times, and seems to have done so ever since. When she was approx. 8 months old she would wake up every hour or so and need to be settled back to sleep. We put her cot right beside our bed and removed the rail so we could be close to her because the constant waking was a nightmare. We carried on with this arrangement until finally at 18 months DD moved into her own room but she has continued to be a night-waker. Not every hour anymore, but every few hours still. It's always taken ages to get her to sleep, and she sleeps lightly and not very restfully, in my opinion. She would stay up very late every night if we let her, and at bed time often seems unable to drift off to sleep, very restless. Through the day she often seems tired and cranky and, for example, was yawning at 8am this morning, shortly after getting out of bed!

The very first thing I connected her poor sleeping to was the starting of solids but I was told by a health nurse at the baby clinic that it was highly unlikely, just a coincidence and she was probably going through a growth milestone. I've also spoken to my GP about my suspicions and she has brushed me off. The thing is, my DD doesn't appear to be sick in the tummy and eats a lot of bread and pasta, and people are quick to say she couldn't possibly be intolerant to gluten if she's not getting sick. But from what I've read, it doesn't seem that being sick in the tummy is always a symptom. I will list some symptoms below and please tell me if you think any of these fits the bill.

Poor sleep (as above)
Appears tired and cranky even after rest
Very picky eater but will happily eat gluten-heavy foods such as bread, pasta
Very low percentiles for height and weight (5th and 3rd) but high percentile for head (97th!).
Clingy and whingey, wanting to be picked up a lot
Her poos still seem very "food-y" as in undigested and you can often tell if she's eaten certain foods just from looking at them (sorry for TMI)

I can't think of anything else off the top of my head. Thank you if you have got to the end of this very long post. Any and all feedback appreciated. :)




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