Jump to content

Possible cows' milk protein intolerance in one-year-old
How do I go about getting a diagnosis?


  • Please log in to reply
5 replies to this topic

#1 runnybabbit

Posted 25 April 2012 - 08:01 PM

Hi everyone. First time posting here. I've read through some threads and done a lot of Google research, but was hoping to get some advice from EB as well.

The short story is that I suspect my one-year-old might have cows' milk protein intolerance, with only (relatively) mild GI symptoms.

He has been BFed from birth and never had formula or cows' milk as a drink until last week. Introduction of cows' milk coincided with what appeared to be abdominal pain (back arching, fussiness) and frequent night wakings and difficulty settling -- compared to two night wakings usually, with him settling back to sleep after a quick BF.

After three nights of that, we stopped the cows' milk completely, and he went back to two night wakings and settling really easily. Yesterday I gave him 80 ml EBM with 20 ml cows' milk, and it was another horrific night.

I've always used dairy in our family cooking, always have had lots of dairy myself, and my son has had small amounts of yoghurt and cheese in his diet since he started on solids.

So am I right in thinking that he might have a dose-dependent cows' milk protein intolerance that only becomes really manifest when he has milk as a drink? He has always been a "bad" sleeper, and was on Losec for reflux until a few months ago -- could it be that the smaller amounts of dairy has been affecting him for months and he was just deemed a difficult baby?

I think I will be bringing him to a GP next week, but from what I've gathered here, many GPs aren't too savvy and don't really know about lactose intolerance vs cows' milk protein allergy vs cows' milk protein intolerance. What do I need to know?

If it IS cows' milk protein intolerance, given that it is not IgE-mediated, what are our chances of getting a diagnosis, with regard to testing and actual positives?

If I continue feeding him dairy but just avoid cows' milk as a drink, do I risk sensitising him further to CMP and worsening whatever condition he might have?

Sorry for the barrage of questions. Thank you all in advance for sharing your experiences and advice.

#2 GEH 77

Posted 25 April 2012 - 08:10 PM

It sounds like he does, you will need to do a challenge as intolerance can't be tested like allergies via a skin prick. You basically need to take him off it completely (including all cooked goods using it) for 2 -3 weeks, keep a diary of behaviors, skin rashes etc, put him on it including drinking it for the same amount of time & do the same. You may find he can tolerate cheese & cooked goods as the protein is broken down in the processing.

Good luck!

#3 SplashingRainbows

Posted 25 April 2012 - 08:12 PM

We a now 17 month old who we (and gp) suspect has a cows milk protein intolerance.

We discovered it when removal of dairy from his diet requested by GP for a different reason led to dramatically improved sleeping. thinking it might be a coincidence we reintroduced dairy but sleep got worse so we removed it again and had good results within a week.

Went back to GP who agreed it was likely to be an intolerance.

We haven't done any further testing. I'm not sure what that would be, or what benefit it would bring? We are still bf, I'm dairy free and quite enjoying it, and he seems to enjoy soy formula when he is in the care of others.

Would be interested to hear what others have to say about the testing process.

I allow DS to eat bread but we use Nuttlex instead of butter/marg, and there is no milk or cheese allowed. I can't think of any other products he has apart from bread that contains dairy. This seems to be working for us so we will stick with it for now.

#4 brindle

Posted 25 April 2012 - 08:27 PM

Yes. I would remove ALL dairy from his diet. If he has had reflux, etc from early on, these may have been symptoms.

You need to do this for at least 2 (preferably 3) weeks. Then 'challenge' by giving him dairy. You will see pretty quick. It is hard work, but on a positive note it is easier when they are still babies.

I personally wouldn't replace dairy with SOY. There are cross-overs in intolerances for cows milk and soy.

Challenge them all individually.

My son had problems with cows milk, but tolerated Goats milk.

BTW: there is no dairy in bread.

Good luck



#5 brindle

Posted 25 April 2012 - 08:31 PM

I should add that my son is now 5yrs and from about 3yrs he was able to tolerate more and more cows milk products. We started with natural yoghurt.

He still mainly drinks goats or rice milk - but eats cows yoghurt, cheese, etc... and is Ok with the occasional drink of cows milk.



#6 mumto3princesses

Posted 25 April 2012 - 08:43 PM

Hi, I'm not sure anyone would test him at 1yr old but there would be a long wait for an appointment so they might test by the time you see someone.

We didn't get DD2 tested officially until she was nearly 4yrs old. We did have advice though from our Dr. I was told that most babies will grow out of it by around 12mths and of the remaining children most will grow out of it by around 4yrs.

When my twins were babies I was told they both had colic and reflux (they threw up big fountains of milk) and I was pretty much told oh well, thats life they are fine. Both weren't the best sleepers but DD2 was the worst. Neither had GI symtoms except possibly a bit constipated at times. Both also had excema and weird spots/rashes. It wasn't until in desperation I took them both to my old GP that I used to go years before they were born. (I moved) They were about 3-4 months old by then. He told me he felt they both had cow milk protein intolerance.

So, we did an elimination diet removing all dairy. I was told I had to remove everything. This included all food even margarine and biscuits. We saw signs of them being much better after only 24hours. Then by a few days later we were sure. A few months later he wanted us to do a trial which we did and they both had the same reactions as before.

DD3 grew out of it at 13mths but DD2 didn't. As she grew older we realised she would get a very sore tummy and throw up plus the spots/rashes if she had anything with dairy. Eventually she was able to handle things with milk cooked in them. Not creamy pasta dishes etc though but things like biscuits and cake with small amounts cooked in them.

DD2 was almost 4yrs when we had her tested and the allergist did a patch test thing on her back (after confirming via a skin prick test that it wasn't an allergy). It had to stay on for a certain amount of time and then we had to go back after it had been off for a certain amount of time. The control one was mean't to come up in a bump/hive like spot and the other one wouldn't have done anything if she wasn't cow milk protein intolerant. The other one was huge.

It's very unlikely that DD2 will grow out of it now at 8.5yrs old. We were told to trial things over time starting with things that have less protein in them and see how we go. Apparently it builds up in their system and in some cases it's a matter of finding out through trial and error how much their limit is. DD2 for example can have anything with milk cooked in it like cake or biscuits and will have no obvious physical reaction to a margarine in her sandwiches but after a few days she will break out on spots/rashes so we went back to nuttlex. She can't have yoghurt without feeling sick and throwing up. But could have a small amount of cheese one day as long as she doesn't have anymore for at least 2 or 3 days.




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

WIN an exclusive performance from Sam Moran!

To celebrate the release of children?s musical series Play Along with Sam, out now on DVD, we?re giving one lucky parent the chance to have Sam perform at their child?s pre-school or day care!

Toddler freed after getting trapped in escalator

A shopping centre escalator needed to be pulled apart to free a toddler's trapped hand.

Why I'm kind of excited about my daughter's nits

Is it weird to say that I am secretly thrilled to find that my daughter Edie has nits?

Baby born at 10:11 on 12-13-14

Well, it's actually 13-12-14 to us over here. But still, Clare Elizabeth Keane's consecutive numerical birth time is pretty special.

On holding tightly and loving fiercely

We can't live in fear. This post is about Christmas and how at this time we should be celebrating life and grateful for what we have: our loved ones who we cherish fiercely.

Babies, relatives and coping with Christmas day

Everyone will love your baby but your baby may not be so happy to be passed around a lot of new people - nor may you want to feed with an audience.

Why I won't be posting pictures of my baby on Facebook

There are pros and cons to this policy.

The myths and truths of gender swaying

Here are a few popular methods hopeful parents-to-be use to try to get a baby of their preferred gender – and what an expert says about whether they really work.

10 easy DIY Christmas decoration ideas

It's officially time to get into the Christmas spirit. Why not branch out when you put up your tree this year and add a personal touch with a few DIY decorations? We've found the perfect easy-to-make ways to put more festive fever into your home.

The dangerous new trend of glucose challenge test refusal

A dangerous trend is seeing more mothers-to-be declining a relatively simple and painless test to check for gestational diabetes.

Office of Fair Trading reveals naughty toys ahead of Christmas

The Office of Fair Trading has pulled seven toys from shelves ahead of Christmas after they fail safety tests.

Video: Baby boy's trouble with twins

These twin girls will no doubt have fun fooling people in years to come, but nobody will be as confused as baby Landon.

Long-term reversible male contraceptive on its way

Men could soon have access to an injectable long-term contraceptive which works in a similar way to a vasectomy but promises to be easily reversed.

'I tried to kill my baby': one mum's story

After bathing and dressing her three-month-old son, Amanda had a rare moment alone with her baby.

Attack of the 'mummy brain'

I feel that almost every day, someone in my life - be they a friend, family member or complete stranger - feels the need to excuse my behaviour as I have other things on my mind.

Mum of baby who fell ill after drinking raw milk speaks out

A Melbourne mother has described how her son turned grey when he became seriously ill after drinking raw milk.

Australian divorce rate lowest since 1976

Modern newlyweds are now well into their 30s and marriage still offers something powerful a new book argues.

The aftermath of a traumatic birth experience

In Australia, 30 per cent of women find their birth experience traumatic, with 6 per cent going on to develop post traumatic stress disorder (PTSD).

Young mum burns 'from inside-out'

A young mum is in intensive care after she took a friend's antibiotic and wound up with an ailment that is burning her body 'from the inside-out'.

The disagreement that can break a relationship

If he doesn't change his mind, all I can hope is that I will. It would be a waste to spend the rest of my marriage mourning a baby that never was.

Download now: Essential Kids Activity Finder app

Got bored kids? Quickly find the best activities for kids wherever you are in Australia with the Essential Kids app.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Co-sleeping or no-sleeping? Mum videos worst nap ever

One mother's futile attempt to sleep in caught on camera in a hilarious - and very cute - video.

Why children misbehave during the festive season

While we all like to imagine the holiday season as being a fun, loving and bonding experience; often our reality is quiet different.

I was fat-shamed by my doctor

The fear of being weighed is the most significant factor in women cancelling medical appointments - and now weight-shaming has happened to me.

End of an era: no more childcare

As we reach the end of 2014, we're closing the book on many things for another year, most notably childcare. Our last child has attended childcare for the very last time.

WIN an exclusive performance from Sam Moran!

To celebrate the release of children?s musical series Play Along with Sam, out now on DVD, we?re giving one lucky parent the chance to have Sam perform at their child?s pre-school or day care!

The 7-year itch is more like the 10-year itch: study

Contrary to popular belief, making it past the seven-year mark doesn't mean your marriage will be smooth sailing from there on.

Should children be forced to sit on Santa's lap?

We teach kids it’s okay to say no if they don’t feel safe, so why do some parents force their children to climb in to Santa's lap?

Stop telling us that parenting gets harder

I’m sure that parenting will get harder. But life isn’t exactly smooth sailing for many of us right now, either.

Baby born weighing almost 14 pounds

Yes, the bouncing baby girl was born by caesarean section. And mum says no more kids.

The dummy debate

I'm the first to admit that when I used to see tiny babies with dummies in their mouths, I thought "Hmm, lazy parenting." And now I apologise.

'I thought I was an only child'

Imagine meeting your double at a school sports event, or regularly being mistaken for someone you haven't met. Separated twins Margaret and Joy tell their story.

Carers admit to force-feeding children

As Sydney grieves the loss of Sydney siege victims Katrina Dawson and Tori Johnson, reports have suggested that both died as heroes.

 

How many weeks til Christmas?

On your To-Do list

Get the "Santa" shopping done without the kids in tow.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.