Tell me about it please!
, Apr 18 2012 12:45 PM
6 replies to this topic
Posted 18 April 2012 - 12:45 PM
Just wondering if anyone can tell me more about experiences with Encopresis, the symptoms, the diagnosis, the treatment and the cause if it was found.
History (TMI) - DS (4) has had sloppy poos (or diarrhea) for as long as I remember. When he was little I asked the MCHN several times if the sloppiness was normal and was always told yes. First time Mum so I believed it. So I'm not sure when it changed to be completely abnormal.
He is constantly hungry, has always had a big pot belly, does large poos at least once a day sometimes more, usually quite explosive sometimes with a bit of blood when he is finally finished, and he has never appeared to be constipated all his life.
For nearly 18months the doctors have been trying to figure out what is going on, we cut out dairy, had blood tests (slightly low iron) had a gastroscopy, sigmoidoscopy and several poo tests. He is not lactose intolerant nor coeliac. Some inflammation was found in the lower bowel.
The poo test thru the naturopath showed bacteria and parasites and he suggested putting DS on a diet of no carbs to starve it. However maybe I am wrong but I decided that was not a good idea for a growing body. We did continue with dairy free and went completly gluten free again with meals as plain as possible.
Prior to the gastroscopy/sigmoidoscopy he had been gluten free but put him back on wheat in preparation for the biopsies and we had 3 days of semi formed poos. Then back to the way it was until several months later- january when things started to improve slightly, good days and bad days, I got very strict again with the plain diet in Feb and things were going OK not brilliant but alot better than it had been until about 3-4 weeks ago. The normal kinder teacher was away and DS ate a cupcake red icing then 2 days later a red icypole. No idea wheter the red colour is a factor but anyway things have not been good since, regardless of the same plain diet. Unfortunately it does not appear to have any consistent results.
Went back to the doc last week I asked again about xrays/ultrasounds, he agreed to the xray and it did show his bowel is distended and appears to be backed up. He explained that the diarrhea is just what squeezes past the constipated portion. I asked if it was encopresis and he said yes.
So He is now on 1 sachet per day of movicol day 5 today. Apparantly the night we went to the doc before starting the movicol there was "a big long thing in the toilet" (DH's description) but since then no change so far. DS has spent the last probably 30 mins in the toilet (wiping twice only for him to need to go back and do more) the first time large next time medium then small amount with blood. He is going back to the toilet as I type
Anyway I guess it confuses me a bit as it doesn't seem to be what the "traditional" symptoms are, he has large amounts when he goes and generally he knows when he needs to go it just comes in such a rush that he does occasionally have an accident but not often. His worst used to be occasional faecal incontinece at night during his sleep but thankfully that hasn't happened for awhile.
So this has turned into a bit of an essay so if you have managed to keep reading thankyou and please share your own knowledge about encopresis.
How did you get the diagnosis, what were the symptoms, what treatment was used and how long did it take to settle down, what was the cause if found? Or any other info you might have.
Posted 19 April 2012 - 11:08 AM
My DS had watery poos for as long as I could remember. I thought it may have been something he was eating causing him to have diarrhea. Took him to the doctor when he was 18 mths and they said something about "toddler diarrhea" or something and that it was normal and not to give him juice. 12 months later when he was about 2.5 he had just gotten over gastro but was constantly feeling sick and throwing up and no apetite so took him to the doctor. That is when they picked up he was very constipated. He had an xray which showed he was backed up and the doctor sent us to the hospital. The paed at the hospital wasn't convinced it was so bad so were sent home with movicol. He had that for awhile until we took him off it.
Basically with him he needs water, water, water. I offer water all day long and that seems to work. If he doesn't poo once a day he can get constipated very quickly so these are things we look out for. Otherwise I am sorry I haven't dealt with it like you. Is your son perhaps holding it in? I was told the child doesn't realise they really need to go. The movicol helps everything come out easily and keeps things soft till the area goes back to normal size and they feel normal urges again.
Posted 19 April 2012 - 11:12 AM
Just wanted to add I have seen a few ladies on here with lots of great advice and experience with this so hopefully one of them will see this post OP and will reply for you.
Posted 21 April 2012 - 09:44 AM
We waited about 2 months last year to see a paediatrician who brushed us off with the toddler diarrhea diagnosis, I was not happy.
I too struggle to keep him drinking lots of water - how much should a 4 yo drink?
As for holding it in, I don't think so as before TT he usually had several sloppy nappies a day and has never "appeared" to be constipated but obviously something has been going on in there!
Day 8 of the movicol today and no change as yet
Posted 13 May 2012 - 11:48 PM
Firstly, I am SO sorry you've been struggling with this for so long.
To answer your question Encopresis is just the medical terminology meaning faecal incontinence.
My son has Encopresis. He's 7 yo, has Autism and toilet trained late at 5 years of age. His is more constipation and accidents from holding on. He is on laxatives at the moment but the issue is still there. His pead. has us going right back to when he was toilet trained and starting all over again.
Here's some more information:http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002537/
Hopefully the movical has worked, or your closer to answers.
Edited by UpsyDaisy, 13 May 2012 - 11:49 PM.
Posted 25 May 2012 - 10:03 AM
Hi another mother of a 6 year old girl with this problem. I feel for you all.
It is so frustrating, but now I am more concerned as its affecting her socially at school. the problem is turning into something more.
She has always wet her pants at school, then last year she started having pooey pants in the day. I didnt understand why, but then we got a diagnosis of constipation, and it made sense. She was treated for it and it improved.
Like a PP, someone- I suspect a teacher last year- had said to her dont drink water or you will just need to go to the toilet all day. .. So I am struggling with her to drink more in the day. She has been home sick this week, which was also a chance to rehydrate her and give her poor self esteem a break from school.
We are into week 3 of using parachoc everyday. And I am obsessed with observing her poos. Im also very aware that I dont want to make her feel belittled for having accidents. I tell her its not her fault, and the light up of her face just told me that she carries alot of worry about it.
So, sorry, getting a little caught up in it,
but we are parachocing her as per directions, our GP and Paed have both approved of this, and I know we have to improve veg intake and fluid intake in particular.
I have more success with her drinking cordial, so I fill her drink bottle for school with watered down cordial or apple juice. I would rather her drink a full bottle of that, than no water at all.
I have also found that I need to keep her other care givers in the loop about it. They need education and advice to about managing her when things happen at school or when shes with my parents. Thankfully, they seem to be coping ok.
I have tried reward charts, regular toileting intervals, giving her responsibility of changing her clothes, stickers, chocolate eggs to have after poos.... you name it I have tried it. I havent found anything that lasts in favour. So I just keep the fuss to a minimum about it, ask her if she needs the toilet or a change (she lies about it often) and remind her that i want to help her, and that im not angry at her for soiling.
Original poster, you sound like you have been through a whole ordeal about it all. I hope your DS is on the improve? I really feel for you, you are trying so hard like everyone else here to help your child.
Sometimes I feel like I cant do it anymore, im way out of ideas about it all, and i get sick of people bringing it up too and asking me for answers when i dont know. I guess some things will take time to heal and improve.
Posted 04 June 2012 - 08:34 PM
OP, we had this when DD was little. For her, it was gluten. She had the distended stomach and many other symptoms.
She was never scoped but removing all gluten from her diet made all the difference. It took a while and we also removed dairy for a time.
She now eats dairy quite fine but doesn't go near the gluten.
1 user(s) are reading this topic
0 members, 1 guests, 0 anonymous users
Two-year-old Quincy finished his potty training last week, and as part of his reward he was able to meet his idols.
I will never deny the fact that grief has a place when you give birth to a child who brings a set of circumstances very different to what you imagined. Because for nine months, I thought I knew my Georgie.
There was nothing Erica and Carlos wanted more than a baby.
The actor said there was "no other person" he was thinking about when he chose the name.
More than half of women who live with abusive partners experience violence during pregnancy.
A new mother was told she must flee Port Vila hospital with her baby as Cyclone Pam bore down.
There were a few signs I'm never going back to the land of maternity jeans, breast pumps and bassinets.
Australian actress Marta Dusseldorp has revealed she was forced to withdraw from a Sydney Theatre Company production because a director did not approve of her breast feeding.
Looking for a name that's a little bit different for a girl? Turn to names that have been traditionally used for males, as these celebs (or their parents) did.
Greg Hughes is "an absolute shell of a man" as he and his wife Catherine struggle to come to terms with the loss of their newborn son Riley to whooping cough.
Introverts are often misunderstood as shy, and sometimes even rude. A timid child can be difficult to build rapport with, but it's important we nurture their sensitive natures.
Sheryl Sandberg's advice
Forget foreplay. The new and improved route to intercourse is "choreplay" - it's good for your spouse, good for your house, and comes with the imprimatur of feminist du jour Sheryl Sandberg.
The first time your child learns a new skill at playtime is very exciting - for both you and your baby! Play is important to your child's development for a variety of reasons - here are some simple ideas for you to try at home.
For me, being the best mother I can be means being a mum alone, at least for now. Thinking of my friends with inadequate partners, I wonder why more people don’t choose single motherhood.
Weird poses, surprise photobombs, bizarre editing: these are the wedding photos that should have never seen the light of day.
The mother of a four-week-old Perth baby who died after contracting whooping cough says her family has been left devastated by the loss of her "gorgeous, sweet" son.
To celebrate the April 1 release of Holly's Magic Wand on DVD and Digital, we are giving away five DVD packs featuring the newest installment of Ben & Holly's Little Kingdom Holly's Magic Wand and many more hours of family entertainment! Enter Now!
Little Peyton Williams thought she was getting a baby sister named Charlee. But the two-year-old has had to settle for a doll dressed in pink after her baby "sister" turned out to be a boy.
We all know that having a strong immune system is the best way to stay healthy – but what can we do to help it along?
A Melbourne mum who died after the home birth of her baby pleaded with her husband to call an ambulance because she felt she was going to die, the Victorian Coroners Court has heard.
Q: My two-month-old baby doesn't like me. He's perfectly content with my wife, but when I try to hold him, he gets upset and cries. I've backed off a little, thinking that he just needs a little time to get used to me, but that doesn't seem to be working. I'm starting to think I'm just not a very good dad. Is it too late for me to build a relationship with my baby?
Wouldn’t it be great to get some nice feedback every now and then? After all, everyone likes to hear positive praise, particularly when it comes to parenting.
The Essential Baby & Toddler Show is back this April! Save $8 off the door price for a limited time only!
If you're looking to revive an older name, or don’t want anything near the top 1000 list, check out these rare monikers for your unique baby.
It’s great to see a generation of dads who are more actively involved with caring, nurturing and loving their kids.
When there’s no question that milk banks are important, why don’t we have more of them in Australia?
Television personality Carrie Bickmore has given birth to her second child.
Sign up to receive 30 amazing tips and ideas for play with baby during the month of April and submit a picture or tip on our social wall for a chance to win an amazing Fisher-Price prize pack.
A Norwegian man is facing jail after putting abortion pills in his ex-girlfriend's smoothie, causing her to have a miscarriage.
Jordy Jackson was born without eyes. He has anophthalmia, which affects one in every 100,000 babies born.
With Easter fast approaching, Cadbury are giving away 5 Cadbury Easter Hampers. Enter Now!
Model Sarah Stage has defended her pregnancy body after critics claimed her slim figure at eight-and-a-half months pregnant wasn't "normal".
To celebrate the April 1 release of Holly's Magic Wand on DVD and Digital, Essential Baby and Entertainment One are giving away five bumper DVD packs featuring the newest installment of Ben & Holly's Little Kingdom Holly's Magic Wand and many more hours of family entertainment! Enter Now!
I love to take pictures of my children. In some of the pictures, my younger son is nursing.
There are things I wish I didn't know. I wish I didn't know that companies make tiny braces, small enough to hold necks no bigger than a wrist.
When a couple discovers they're expecting multiples, the dad can sometimes be almost forgotten in all the excitement and preparation. But one group offers a space just for dads of twins and higher-order multiples.
A brave mum of two has shared details of the harrowing attacks she suffered at the hands of her partner in a bid to help other victims of domestic violence.
Early last year I turned 35, and having just found out I was pregnant, I opted to have the new test for Down syndrome.
If your family is more into Star Wars, gaming and the periodic table than most, you might want to check out these geek-chic baby items.
According to the Chinese zodiac, babies born in the year of the sheep are creative and enjoy spending quiet time with their own thoughts.
Pregnant women will for the first time have access to locally analysed, accurate, non-invasive pre-natal genetic testing when the first Australian clinic to offer the services opens its doors next week.
Not a day under 65 and a lifetime of struggle! That's the look of these newborns, who look adorably older than their real age. Social networking site Reddit recently featured user submissions of adorable grandbabies, here are our favourites.
An entire family was kicked off a Cathay Pacific flight when a misbehaving toddler refused to put his seatbelt on.
A baby stolen from her mother's arms shortly after birth has been found through an astonishing coincidence.
Announcing that you're expecting can be a time to express your creativity, sense of humour and imagination. Check out how other parents and parents-to-be have broken the news to friends and family.
Are you one of those that know the whole IKEA catalogue by heart? Love their stuff but want to personalise it? Here's some inspiration to help you realise the potential of IKEA furniture and fittings.
A French court may have ruled out Nutella as a baby name, but that doesn't have to stop you from taking inspiration from the supermarket (or bottle shop). See what parents in the US have chosen for their delicious little ones.
Check out this range of products designed to help make your breastfeeding journey more enjoyable, manageable and convenient.
Sign up now!
Receive a daily email from Essential Baby during April with great play tips and ideas, then submit your baby at play photos to our Playwall, Instagram or Twitter for your chance to win.