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Encopresis?
Tell me about it please!


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#1 JJ98

Posted 18 April 2012 - 12:45 PM

Hi,

Just wondering if anyone can tell me more about experiences with Encopresis, the symptoms, the diagnosis, the treatment and the cause if it was found.

History (TMI) - DS (4) has had sloppy poos (or diarrhea) for as long as I remember.  When he was little I asked the MCHN several times if the sloppiness was normal and was always told yes. First time Mum so I believed it.  So I'm not sure when it changed to be completely abnormal.

He is constantly hungry, has always had a big pot belly, does large poos at least once a day sometimes more, usually quite explosive sometimes with a bit of blood when he is finally finished, and he has never appeared to be constipated all his life.

For nearly 18months the doctors have been trying to figure out what is going on, we cut out dairy, had blood tests (slightly low iron) had a gastroscopy, sigmoidoscopy and several poo tests. He is not lactose intolerant nor coeliac. Some inflammation was found in the lower bowel.

The poo test thru the naturopath showed bacteria and parasites and he suggested putting DS on a diet of no carbs to starve it. However maybe I am wrong but I decided that was not a good idea for a growing body.  We did continue with dairy free and went completly gluten free again with meals as plain as possible.

Prior to the gastroscopy/sigmoidoscopy he had been gluten free but put him back on wheat in preparation for the biopsies and we had 3 days of semi formed poos.  Then back to the way it was until several months later- january when things started to improve slightly, good days and bad days, I got very strict again with the plain diet in Feb and things were going OK not brilliant but alot better than it had been until about 3-4 weeks ago. The normal kinder teacher was away and DS ate a cupcake red icing then 2 days later a red icypole.  No idea wheter the red colour is a factor but anyway things have not been good since, regardless of the same plain diet.  Unfortunately it does not appear to have any consistent results.

Went back to the doc last week I asked again about xrays/ultrasounds, he agreed to the xray and it did show his bowel is distended and appears to be backed up. He explained that the diarrhea is just what squeezes past the constipated portion. I asked if it was encopresis and he said yes.

So He is now on 1 sachet per day of movicol day 5 today. Apparantly the night we went to the doc before starting the movicol there was "a big long thing in the toilet" (DH's description) but since then no change so far.  DS has spent the last probably 30 mins in the toilet (wiping twice only for him to need to go back and do more) the first time large next time medium then small amount with blood. He is going back to the toilet as I type  sad.gif

Anyway I guess it confuses me a bit as it doesn't seem to be what the "traditional" symptoms are, he has large amounts when he goes and generally he knows when he needs to go it just comes in such a rush that he does occasionally have an accident but not often.  His worst used to be occasional faecal incontinece at night during his sleep but thankfully that hasn't happened for awhile.

So this has turned into a bit of an essay so if you have managed to keep reading thankyou and please share your own knowledge about encopresis.

How did you get the diagnosis, what were the symptoms, what treatment was used and how long did it take to settle down, what was the cause if found? Or any other info you might have.

TIA

JJ

#2 I*Love*Christmas

Posted 19 April 2012 - 11:08 AM

My DS had watery poos for as long as I could remember. I thought it may have been something he was eating causing him to have diarrhea. Took him to the doctor when he was 18 mths and they said something about "toddler diarrhea" or something and that it was normal and not to give him juice.  12 months later when he was about 2.5 he had just gotten over gastro but was constantly feeling sick and throwing up and no apetite so took him to the doctor. That is when they picked up he was very constipated. He had an xray which showed he was backed up and the doctor sent us to the hospital. The paed at the hospital wasn't convinced it was so bad so were sent home with movicol. He had that for awhile until we took him off it.

Basically with him he needs water, water, water. I offer water all day long and that seems to work. If he doesn't poo once a day he can get constipated very quickly so these are things we look out for. Otherwise I am sorry I haven't dealt with it like you. Is your son perhaps holding it in? I was told the child doesn't realise they really need to go. The movicol helps everything come out easily and keeps things soft till the area goes back to normal size and they feel normal urges again.

#3 I*Love*Christmas

Posted 19 April 2012 - 11:12 AM

Just wanted to add I have seen a few ladies on here with lots of great advice and experience with this so hopefully one of them will see this post OP and will reply for you.

#4 JJ98

Posted 21 April 2012 - 09:44 AM

Thanks HART85,

We waited about 2 months last year to see a paediatrician who brushed us off with the toddler diarrhea diagnosis, I was not happy.

I too struggle to keep him drinking lots of water - how much should a 4 yo drink?

As for holding it in, I don't think so as before TT he usually had several sloppy nappies a day and has never "appeared" to be constipated but obviously something has been going on in there!

Day 8 of the movicol today and no change as yet  sad.gif

JJ

#5 UpsyDaisy

Posted 13 May 2012 - 11:48 PM

Firstly, I am SO sorry you've been struggling with this for so long.

To answer your question Encopresis is just the medical terminology meaning faecal incontinence.

My son has Encopresis. He's 7 yo, has Autism and toilet trained late at 5 years of age. His is more constipation and accidents from holding on. He is on laxatives at the moment but the issue is still there. His pead. has us going right back to when he was toilet trained and starting all over again.

Here's some more information:

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002537/

Hopefully the movical has worked, or your closer to answers.

Edited by UpsyDaisy, 13 May 2012 - 11:49 PM.


#6 New Sparkles

Posted 25 May 2012 - 10:03 AM

Hi another mother of a 6 year old girl with this problem. I feel for you all.

It is so frustrating, but now I am more concerned as its affecting her socially at school. the problem is turning into something more.

She has always wet her pants at school, then last year she started having pooey pants in the day. I didnt understand why, but then we got a diagnosis of constipation, and it made sense. She was treated for it and it improved.

Like a PP, someone- I suspect a teacher last year- had said to her dont drink water or you will just need to go to the toilet all day. .. So I am struggling with her to drink more in the day. She has been home sick this week, which was also a chance to rehydrate her and give her poor self esteem a break from school.

We are into week 3 of using parachoc everyday. And I am obsessed with observing her poos. Im also very aware that I dont want to make her feel belittled for having accidents. I tell her its not her fault, and the light up of her face just told me that she carries alot of worry about it.

So, sorry, getting a little caught up in it,

but we are parachocing her as per directions, our GP and Paed have both approved of this, and I know we have to improve veg intake and fluid intake in particular.

I have more success with her drinking cordial, so I fill her drink bottle for school with watered down cordial or apple juice. I would rather her drink a full bottle of that, than no water at all.

I have also found that I need to keep her other care givers in the loop about it. They need education and advice to about managing her when things happen at school or when shes with my parents. Thankfully, they seem to be coping ok.

I have tried reward charts, regular toileting intervals, giving her responsibility of changing her clothes, stickers, chocolate eggs to have after poos.... you name it I have tried it. I havent found anything that lasts in favour. So I just keep the fuss to a minimum about it, ask her if she needs the toilet or a change (she lies about it often) and remind her that i want to help her, and that im not angry at her for soiling.

Original poster, you sound like you have been through a whole ordeal about it all.  I hope your DS is on the improve? I really feel for you, you are trying so hard like everyone else here to help your child.
Sometimes I feel like I cant do it anymore, im way out of ideas about it all, and i get sick of people bringing it up too and asking me for answers when i dont know. I guess some things will take time to heal and improve.  





#7 hiccamups

Posted 04 June 2012 - 08:34 PM

OP, we had this when DD was little.  For her, it was gluten.  She had the distended stomach and many other symptoms.

She was never scoped but removing all gluten from her diet made all the difference.  It took a while and we also removed dairy for a time.

She now eats dairy quite fine but doesn't go near the gluten.






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