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AF has gone weird, what could it be?


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#1 Excentrique

Posted 08 April 2012 - 02:27 PM

I will get to a doctor, but it will be a while before I can. I'm just freaking out and would like some ideas as to what this could be!

My AF has been getting progressively heavier and more painful over the past several months. Not drastically, just slowly. My last AF seemed a few days early (wasn't keeping track), and the most painful and heavy I have had yet. Two weeks later and I'm crampy and have brown spotting for two days now. Also over the past few months I have started spotting for a day or two before AF begins which is also new. What could it be?

Not on contraception, not pregnant.Please help, or I'm going to freak out until I can get in to my doc!

#2 Lausii

Posted 08 April 2012 - 02:43 PM

I'm not sure but will keep an eye on this topic as mine has been doing this as well.  I am kind of putting it down to my age, I'm 37. I keep track of them on my iphone app and they are as regular as ever, just the last 4-5 months quite heavy and painful. Then this one that just finished was a breeze.

#3 Cat©

Posted 08 April 2012 - 02:48 PM

Age?

I have been similar, but geting AF cramping pretty much all month, then AF shows early or this month not at all so far.

I'm wondering if Endo is the cause of mine, as I had this mentioned when I was young, and in my case, perhaps gets worse with age.....maybe a possibility for you?

#4 Excentrique

Posted 08 April 2012 - 02:49 PM

I'm only 25!

#5 Excentrique

Posted 12 April 2012 - 01:19 PM

UPDATE for those with similar issues or interested: I now have continuous pain in one side. I ended up in ED on tuesday night, they think its an ovarian cyst, sent me home with instructions to come back if the pain gets worse.

I'm still in pain so I went to the doctor today, and have been referred urgently to the gyny for tomorrow. Tired of feeling so crappy!

#6 giggleandhoot

Posted 12 April 2012 - 01:32 PM

Yeah i  had that last year. Mine slowly burst - OMG was soooo painful. I had another bout last month so i think it's back again. I get sore on one side constantly then every 2 months with AF agony. I just had scans to make sure it went also it had fluid which they had to make sure isn't cancer ( we had family history of ovarian cancer)  I feel for you - i have never had anything so painful! and seems like i'm back with it again  sad.gif

#7 Jenflea

Posted 12 April 2012 - 01:46 PM

Polyps or fibroids? I had 2 uterine polyps but it wasn't painful, just bleeding for 3 or so months almost constantly.

#8 Excentrique

Posted 12 April 2012 - 01:47 PM

Hi Giggleandhoot, have they recommended the pill to you? They told me I would be best off on it as its supposed to prevent cysts from forming. And basically they reckon my AF is only going to get worse and worse until I'm spotting half the month if I don't take it. sad.gif I feel sorry for you, I've heard that when they burst its agony. The doctor at the ED reckoned that mine wont, I don't know how he knows that though! Hopefully he is right.

#9 Jenflea

Posted 12 April 2012 - 02:34 PM

Have you had an internal ultrasound to see the ovaries?

#10 Excentrique

Posted 12 April 2012 - 05:30 PM

Not yet, having an ultrasound tomorrow.

#11 Chasing*Rainbows

Posted 12 April 2012 - 05:40 PM

I had a similar thing happen with my cycle, turned out I had a cyst on my ovary that was causing it. I've since had an ultrasound which showed endometriosis of the uterine lining and the pain apparently is bleeding in the muscle walls. Worth an ultrasound to check what's happening.

#12 giggleandhoot

Posted 13 April 2012 - 08:24 AM

yep did the pill -worst thing ever!!! didn't help for me and made me put on weight - one of the reasons i was at the dr as i couldn't loose weight as well. It is suppose to work, but if you read the fine print - it increases cysts! so i lasted a month and a half and i went crazy on it lol - not good for me!


#13 CharliMarley

Posted 13 April 2012 - 03:26 PM

Fibroids will cause heavy bleeding, so you need checking out with an ultrasound. oomg.gif

#14 Excentrique

Posted 13 April 2012 - 05:11 PM

Ultrasound came back clear. The gyny thinks I have endometreosis. I am going to try the pill and if that doesn't help I will have to have keyhole surgery.

#15 giggleandhoot

Posted 14 April 2012 - 05:22 PM

Oh i hope the pill works for you! it did kind of work for me in that i had severe pain and from always 5 days to really only one day..but 5 days worth of pain and it evened AF out a little but still falling asleep/almost passing out a few days before AF arrived..it was supposed to help with iron or something but didn't really do that - but it did my head in and i got depression and all weird on it lol, was so happy to get off it. I'm off for a second opinion if mine doesn't get better - had the worst advice/medication from this one  sad.gif  Hope you don't need surgery. So they can't see that on an ultrasound?? wonder if i should ask a  new dr next time?

#16 HillmanMinx

Posted 21 April 2012 - 09:28 PM

QUOTE
The gyny thinks I have endometreosis.
I was thinking this.  I remember my cycle changing like you describe.  And the pain you describe.  Best thing I did (after 10 years of suffering, a few trials of drugs and surgeries)  was

1) get an laperoscopy and get any obvious endo lasered.
2) simultaneously get my uterus scraped.
3) get a mirena device inserted during the above procedures
4) get a script for voltaren 50mg (just a higher dose than over the counter) and take 100 mg as first dose on the first day of any period pain, and 50 mg every (whatever the box says) hours until it was completely gone (usually within a few days).

What I have described above is a cut-to-the-chase management plan for pain and inflammation caused by endometriosis.  It keeps it at bay.  The uterine scrape was critical because it meant the level of endometrial lining and subsequent power over my body was substantially reduced.  Less endometrial tissue hanging around = less powerful inflammatory (and bleeding) process when my bodies hormones triggered the monthly cue...

And putting the mirena device in to a clean uterus minimised breakthrough bleeding and allowed the hormone in it to take over from my own wayward hormones.

The anti inflammatories were only needed regularly (ie monthly) for a few months after the procedure, and tapered off as my body adjusted to the mirena device.  Now I don't even have any in the house!

I was terrified of the mirena because I had had the depo provera shot years earlier (only once) and it made me incredibly sick, made my period insanely heavy, and made me pass a giant uterine cyst that I thought was a small (half a maternity pad size) baby...complete with contractions, dialation of my cervix and PAIN (my only vaginal 'birth' lol)!

The reason I think I had such an adverse reaction to the depo shot is probably because I had endometriosis.  As the same hormone in the Depo shot is in Mirina - I was scared sh*tless and it was a last resort treatment.

My excellent GYN said that the level of hormone released by the mirena is miniscule compared to the depo shot.  He also said as it is released in-situ, it works where it is most needed.  It still travels round the body, but it is able to be highly effective because its in the uterus.

I 100% believe I would have had a bad outcome had I not had the uterus scrape at the time of insertion.  And the laperoscopy to laser the little bits of visible endo (basically removing as much of the endometrial tissue as possible, then adding the mirena hormone to prevent the remaining bits from being flared up each month.

Anyway.  Long post.  But I have had a painful gyn life, and this is my gold standard experience and gave me my life back. x

Edited by HillmanMinx, 21 April 2012 - 09:33 PM.





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