Jump to content

What is the worst/strangest advice you have been given (SNs section)


  • Please log in to reply
40 replies to this topic

#1 bluecardigans

Posted 06 April 2012 - 08:50 PM

We had to take DS to a medical centre one long weekend so not his usual GP. We told her he had ASD and a look of horror came over her face. She told us to remove all of the mirrors from our home and cover all of the floors with pillows.  unsure.gif

When in Fiji a local told us to sleep DS outdoors under the moonlight and by morning he would be cured.  laughing2.gif

#2 Acidulous Osprey

Posted 06 April 2012 - 08:55 PM

To join a church, any church, despite being atheist so that I got the support from them.  Apparently they would help me with everything you could imagine.  Rightyoh then.

#3 ememem

Posted 06 April 2012 - 08:55 PM

lol! they're new, never heard those before.

When DS was first diagnosed (6 years ago) the things I heard most:

*He'll grow out of it
*Get a second opinion
*bullsh*t there is nothing wrong with him, he's just *insert ignorant excuse here*
and my all time favourite...
*he doesn't look retarded.

what a society we live in. I am very thankful that awareness and basic knowledge has increasd since then!

#4 bluecardigans

Posted 06 April 2012 - 09:26 PM

QUOTE (Fancy and Epic @ 06/04/2012, 08:55 PM) <{POST_SNAPBACK}>
To join a church, any church, despite being atheist so that I got the support from them.  Apparently they would help me with everything you could imagine.  Rightyoh then.

I had this one too! What are they going to do? Can I drop DS off at mass every Sunday while I do the groceries?

#5 baddmammajamma

Posted 06 April 2012 - 09:33 PM

QUOTE (Display anemone @ 06/04/2012, 09:26 PM) <{POST_SNAPBACK}>
I had this one too! What are they going to do? Can I drop DS off at mass every Sunday while I do the groceries?

biggrin.gif

I'm shopping around for a faith that is known for very looooooong services! wink.gif

Let's see, we could "cure" J by:

* Love bombing

* Renting a horse and riding in Mongolia

* Just "giving it time" (because "all kids are challenging when they are young...")

* Praying



#6 Sunny Day

Posted 06 April 2012 - 09:39 PM

To buy Jenny McCarthy's book as she 'cured' her son of autism original.gif
This advice seemed to peak whenever she appeared on Oprah.

-------

#7 *-*

Posted 06 April 2012 - 11:55 PM

QUOTE (Fancy and Epic @ 06/04/2012, 08:55 PM) <{POST_SNAPBACK}>
To join a church, any church, despite being atheist so that I got the support from them.  Apparently they would help me with everything you could imagine.  Rightyoh then.


Oh, my sides ache. We are yet to receive a (long suspected) diagnosis.  But to the point above, we have only had 2 of our children baptised.  DD1 (Suspect Aspergers) and DS1 (died in infancy) - the other two we did not (and healthwise they fine and dandy thus far..).  What does that say about religion?

#8 Jareluma

Posted 07 April 2012 - 12:18 AM

By a dr we usually don't see, I was told to give DS 5 more iron because this particular dr had a patient who had severe autism, and after she took iron she was cured  huh.gif  The same dr told me to expose ds to more children, at the time he was in kinder 3 days a week, early intervention social skills group, swimming lessons and play group, I don't know how much more time we could have spent exposing him to more kids lol

DS 9, I was told he couldn't possibly have autism, he's too good looking huh.gif Believe me, he doesn't look soo good mid meltdown  rolleyes.gif

In mil's opinion, a good belting will fix them up, and a teachers aide who has been banned from even looking at ds said to my face that I need to discipline him more, she was the autism expert apparently, she's read all of the books, so she would know whats best  laugh.gif

#9 FeralMinx

Posted 07 April 2012 - 01:58 AM

*Its called discipline, you should try it.  

I can relate to lots of the ones in this thread.  Except to sleep under the moonlight and they will be cured.



#10 Cat©

Posted 07 April 2012 - 02:40 AM

I was also told to join a church! lol

I was told also that religion would save them and this was punishment for not believing  rolleyes.gif

I was also told that all he needed was a good hiding

Oh and my father said that all I needed to do was cut the apron stings and let them "toughen up"  Oh dear

#11 Guest_~Karla~_*

Posted 07 April 2012 - 05:39 AM

MIL has come out with some beauties over the years. When we first told her we were getting the twins assessed for autism, she told us not to sorry because both their eyes looked straight ahead and they were starting to get interested in books. WTF?

The other one I loved was about their allergies. I'm sure most of you probably remember how extreme their allergies are/were but MIL kept telling me I just needed to feed them broth. She would send me all these random broth recipes from all over the world. She couldn't seem to grasp the concept that if they couldn't eat the ingredients, they wouldn't be able to drink the broth. rolleyes.gif

#12 bubba boo

Posted 07 April 2012 - 06:50 AM

When at a church with ds1 haing a meltdown as they wouldn't let us use an empty room to help keep him calm, we were told he needed a good smack.

#13 Etcetera

Posted 07 April 2012 - 07:01 AM

By the school counselor . She told me to put up a picture of a light switch and get DS to 'switch it off' before bed and that would make him go to sleep. She wasn't too happy when I laughed and said it wouldn't work.
I no longer tell anyone about his sleep.

My mum said I should be doing exercises like 'the rain in Spain' with DS. Not sure what she thought speech therapy was about, but if I had known all i had to do was watch My Fair Lady it would've saved a lot of time!

#14 i-love-my-son

Posted 07 April 2012 - 08:58 AM

edited

Edited by i-love-my-son, 10 April 2012 - 12:43 PM.


#15 UpsyDaisy

Posted 07 April 2012 - 09:24 AM

Most of the main ones have been mentioned already.

I have one stand-out. I was visiting a GP I occassionally see, but not his normal GP. On a few occassions in the past the GP had always asked me, "Who diagnosed him and when". It was a repeated question, and most times when I wasn't there for him. On one occassion he started with the usual, "Who diagnosed him and at what age", to which I repeated the same answer as always. This time he said, "He doesn't look like he has Autism. To me a child with autism would be under my examination table, on the floor, in the corner, rocking". ohmy.gif

Let's just say I do not see this particular GP for DS.

Edited by UpsyDaisy, 07 April 2012 - 09:25 AM.


#16 itsaboysworld

Posted 07 April 2012 - 09:29 AM

Im just sick of hearing "get him to obsessed with something else, something more age appropriate/academic/socially acceptable"


uhuh.

#17 LambChop

Posted 07 April 2012 - 10:07 AM

Lol at all of these.

QUOTE
My mum said I should be doing exercises like 'the rain in Spain' with DS. Not sure what she thought speech therapy was about, but if I had known all i had to do was watch My Fair Lady it would've saved a lot of time!
  Giggle, MIL said something like this too, that maybe a voice coach like on My Fair Lady would be helpful...  I let her know that we'd be continuing with speech therapy  wacko.gif

I get "don't worry you can hardly tell" a lot... yeah right, noticeably poor speech and 3 years behind academically...

Luckily as they get older you get better at not taking this sort of crap on.

#18 JJ

Posted 07 April 2012 - 11:01 AM

"Just socialise more and you'll be fine." (advice given to me)  wacko.gif

#19 Cat©

Posted 07 April 2012 - 11:56 AM

Oh just recalled another priceless piece.

An old school friends mum, told me not long after diagnosis "Oh autism, don't worry at least they grow out of that"  huh.gif

#20 whatnamenow

Posted 07 April 2012 - 12:11 PM

When we first moved here and were shopping for a new GP i had one tell me that my daughters physical impairment would be fixed by sending her to a catholic school...  Even though we ended up at the same practice seeing a different doctor everyone at that place learnt exactly what i thought of that advice.  Later speaking to other mums learnt he basically says the same thing to every SN mum..

Had a paed tell us she didnt agree with the EDS diagnosis but since ellie was diagnosed by one of the top geneticists in the country 'i suppose i'll have to keep treating her like she has it '....

#21 TeachmeMum

Posted 07 April 2012 - 12:47 PM

I've been told to give my boy growth hormones because he doesnt look like he has a disability  rolleyes.gif

I also get asked repeatedly who diagnosed him and when. I actually dont even have a piece of paper that says he has been diagnosed on this date. Just letters saying such and such a doctor diagnosed him in 2005.

Edited by Sapere Aude!, 07 April 2012 - 12:48 PM.


#22 ellie1326

Posted 07 April 2012 - 12:49 PM

Wow we cop some crap!
Anyways I got "Ah don't worry it's ok that she has ASD, so did Einstein . " like WTF had Einstein got to do with DD? And this was told to me by psychiatrist.

#23 rebekah-mum

Posted 07 April 2012 - 08:32 PM

I have been given lots of the wrong advice over the years but I got asked by centrelink a couple of years ago if my daughter who has cerbral palsy was cured to see if i still needed carers allowance.I told them when they find a cure please let me know

#24 Emby

Posted 07 April 2012 - 08:50 PM

QUOTE (Cat© @ 07/04/2012, 02:40 AM) <{POST_SNAPBACK}>
I was also told to join a church! lol

I was told also that religion would save them and this was punishment for not believing  rolleyes.gif


Well, that would explain why my two IRL friends with kids on the spectrum I both met at Bible Study.

Oh, wait, no it doesn't...

#25 Acidulous Osprey

Posted 07 April 2012 - 09:28 PM

QUOTE (rebekah-mum @ 07/04/2012, 08:32 PM) <{POST_SNAPBACK}>
I have been given lots of the wrong advice over the years but I got asked by centrelink a couple of years ago if my daughter who has cerbral palsy was cured to see if i still needed carers allowance.I told them when they find a cure please let me know



Yeah those centrelink reviews are amazing.  I think they have now stopped asking parents of kids with Down Syndrome if they have recovered though.




2 user(s) are reading this topic

0 members, 2 guests, 0 anonymous users

 

Wondersuit heaven: Bonds & Disney launch exclusive collection

Bonds and Disney fans with babies to buy for will be celebrating this news. Bonds and Disney have just released collaboration Wondersuits.

Perth hospital mistakes cancerous tumour for "behavioural issues"

When Naomi Holly, a mother of three, noticed her eight-month-old daughter Nora, was having difficulty crawling and standing up as normal, she knew there was something wrong.

Piano playing dad soothes son to sleep in moments

There's nothing more frustrating, or distressing to a parent than a sick child who can't  - or won't got to sleep. 

Lucky escape for mum and bub after snake found in couch

Perth mother Laurie Rushton Dyble was sitting on a recliner chair in her home holding her six-month-old son when her husband suddenly told her to get up and leave the room.

When your partner misses the birth

While no one wants their partner to miss their baby’s birth, it can happen. Here’s what to do if you find yourself in that situation.

Motherhood challenge: smug or just a bit of fun?

The #motherhoodchallenge sounds harmless, doesn't it? Some women disagree.

Who's the mum? Family photo goes viral

Last year, it was "The Dress". This year, it is a family photo that is breaking the internet.

5 easy meditation practices for beginners

So who's with me? You know meditating is one of the best things you can possibly do for yourself.

Woman to go on trial for being a bad housewife

An Italian woman could face up to six years in jail after her husband accused her of not doing enough cooking and cleaning at home.

Is the latest advice on women and drinking over the top?

While most expectant mums know to stop drinking when they’re pregnant, experts now warn women should stop drinking earlier than that. Is this necessary?

How household chores can double as a workout

If there's less than a slim chance you'll find time to get out for a jog or to hit the gym today, take heart in knowing that household chores contribute to the calorie equation.

I have no idea what I'm doing - and that's okay

Why don't we talk about the fact that when everything goes right, we may still feel completely lost, and certain that we have failed?

Dad warns of hair tourniquet danger after baby almost loses toe

A shocked father has shared his family's experience in a bid to warn other parents about the dangers of hair becoming entangled around a baby's toe.

Town welcomes first baby in 28 years

Since the 1980s, the Italian town of Ostana had not seen the birth of a single baby.

How to start teaching your kids road safety

It's something that can be taught as early as possible and reinforced as they get older and more mobile - even from toddlerhood.

Just announced: Bugaboo Cameleon³ Classic+ Collection update

Meet the brand new understated chic model from Bugaboo.

The emotional moment a mum hears her late son's heartbeat

It's been two and a half years since Heather Clark's seven-month-old son Lukas passed away.

Nine reasons why you have 'brain fog'

One minute your productivity is skyrocketing and the next you're sitting there trying to focus – just like that you draw blank, your brain, mush.

I had a caesarean and it was beautiful

Guess what? Despite not pushing him out, I cried, and my heart skipped, and I felt the rush of love and pride when I saw him for the first time.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Penny Wong

'The most hurtful argument in the marriage equality debate'

Labor frontbencher Penny Wong is used to to hearing arguments against same-sex marriage. But for Australia's most prominent gay politician, one hurts more than others.

Does exercise have to be fun to work?

Some things in life are inherently served with a big scoop of fun: balloons, bubbles, cupcakes to name but a few, but exercise?

Hair dye gives woman second-degree burns

She wanted a fresh colour for 2016, but instead she got chemical burns.

Kelly Slater saves mum and toddler from 'freak wave'

A Perth family has thanked US surfing "legend" Kelly Slater after the star saved a mother and a young toddler from "a freak wave" in Hawaii.

Apple recalls millions of power adapters

Tech giant instigates massive international recall of power point adapters due to risk of electric shock.

Toddler's adorable alphabet goes viral

It's impossible not to share this little boy's excitement  about the alphabet.

Tot's nighttime waking saves family's life

Like all tired parents, Monique and Kyle Ruppel were looking forward to the day their 15-month-old daughter Celia would start sleeping through the night. 

Australian mum gives birth to quintuplets

An Australian mum who has shared the ups and downs of carrying quintuplets has welcomed her five babies into the world.

Dad of four girls faints at gender reveal for fifth baby

It was all too much excitement for this dad.

The simple way you can help your baby's language development

The way parents respond to their child's babbling can shape how their infants communicate.

Zika virus is 'spreading explosively': WHO

The World Health Organization announced that it will convene an emergency meeting about Zika.

National database recommended for child protection cases

Baby Ebony was repeatedly failed by the agencies tasked with her protection before her horrific death at the hands of her father, South Australia's deputy coroner says.

Hospitals put babies at risk by ignoring policy on elective caesareans

Thirty-eight weeks or 39? Non-medical factors are pushing women to have elective caesareans earlier than official guidelines - and hospitals are playing along.

Police help deliver baby on busy roadside

Two police officers delivered more than a traffic fine by the side of a busy Melbourne road yesterday.

1D's Louis Tomlinson shares first photo of baby

One Direction's Louis Tomlinson has posted the first picture of his baby boy, Freddie, on social media.

 

FREE TICKET

See Hi-5 LIVE in Melbourne!

Get your ticket to The Essential Baby & Toddler Show - register online now!

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.