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What is the worst/strangest advice you have been given (SNs section)


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#1 bluecardigans

Posted 06 April 2012 - 08:50 PM

We had to take DS to a medical centre one long weekend so not his usual GP. We told her he had ASD and a look of horror came over her face. She told us to remove all of the mirrors from our home and cover all of the floors with pillows.  unsure.gif

When in Fiji a local told us to sleep DS outdoors under the moonlight and by morning he would be cured.  laughing2.gif

#2 Feral Nicety

Posted 06 April 2012 - 08:55 PM

To join a church, any church, despite being atheist so that I got the support from them.  Apparently they would help me with everything you could imagine.  Rightyoh then.

#3 ememem

Posted 06 April 2012 - 08:55 PM

lol! they're new, never heard those before.

When DS was first diagnosed (6 years ago) the things I heard most:

*He'll grow out of it
*Get a second opinion
*bullsh*t there is nothing wrong with him, he's just *insert ignorant excuse here*
and my all time favourite...
*he doesn't look retarded.

what a society we live in. I am very thankful that awareness and basic knowledge has increasd since then!

#4 bluecardigans

Posted 06 April 2012 - 09:26 PM

QUOTE (Fancy and Epic @ 06/04/2012, 08:55 PM) <{POST_SNAPBACK}>
To join a church, any church, despite being atheist so that I got the support from them.  Apparently they would help me with everything you could imagine.  Rightyoh then.

I had this one too! What are they going to do? Can I drop DS off at mass every Sunday while I do the groceries?

#5 baddmammajamma

Posted 06 April 2012 - 09:33 PM

QUOTE (Display anemone @ 06/04/2012, 09:26 PM) <{POST_SNAPBACK}>
I had this one too! What are they going to do? Can I drop DS off at mass every Sunday while I do the groceries?

biggrin.gif

I'm shopping around for a faith that is known for very looooooong services! wink.gif

Let's see, we could "cure" J by:

* Love bombing

* Renting a horse and riding in Mongolia

* Just "giving it time" (because "all kids are challenging when they are young...")

* Praying



#6 Sunny Day

Posted 06 April 2012 - 09:39 PM

To buy Jenny McCarthy's book as she 'cured' her son of autism original.gif
This advice seemed to peak whenever she appeared on Oprah.

-------

#7 *-*

Posted 06 April 2012 - 11:55 PM

QUOTE (Fancy and Epic @ 06/04/2012, 08:55 PM) <{POST_SNAPBACK}>
To join a church, any church, despite being atheist so that I got the support from them.  Apparently they would help me with everything you could imagine.  Rightyoh then.


Oh, my sides ache. We are yet to receive a (long suspected) diagnosis.  But to the point above, we have only had 2 of our children baptised.  DD1 (Suspect Aspergers) and DS1 (died in infancy) - the other two we did not (and healthwise they fine and dandy thus far..).  What does that say about religion?

#8 Jareluma

Posted 07 April 2012 - 12:18 AM

By a dr we usually don't see, I was told to give DS 5 more iron because this particular dr had a patient who had severe autism, and after she took iron she was cured  huh.gif  The same dr told me to expose ds to more children, at the time he was in kinder 3 days a week, early intervention social skills group, swimming lessons and play group, I don't know how much more time we could have spent exposing him to more kids lol

DS 9, I was told he couldn't possibly have autism, he's too good looking huh.gif Believe me, he doesn't look soo good mid meltdown  rolleyes.gif

In mil's opinion, a good belting will fix them up, and a teachers aide who has been banned from even looking at ds said to my face that I need to discipline him more, she was the autism expert apparently, she's read all of the books, so she would know whats best  laugh.gif

#9 FeralMinx

Posted 07 April 2012 - 01:58 AM

*Its called discipline, you should try it.  

I can relate to lots of the ones in this thread.  Except to sleep under the moonlight and they will be cured.



#10 Cat©

Posted 07 April 2012 - 02:40 AM

I was also told to join a church! lol

I was told also that religion would save them and this was punishment for not believing  rolleyes.gif

I was also told that all he needed was a good hiding

Oh and my father said that all I needed to do was cut the apron stings and let them "toughen up"  Oh dear

#11 Guest_~Karla~_*

Posted 07 April 2012 - 05:39 AM

MIL has come out with some beauties over the years. When we first told her we were getting the twins assessed for autism, she told us not to sorry because both their eyes looked straight ahead and they were starting to get interested in books. WTF?

The other one I loved was about their allergies. I'm sure most of you probably remember how extreme their allergies are/were but MIL kept telling me I just needed to feed them broth. She would send me all these random broth recipes from all over the world. She couldn't seem to grasp the concept that if they couldn't eat the ingredients, they wouldn't be able to drink the broth. rolleyes.gif

#12 bubba boo

Posted 07 April 2012 - 06:50 AM

When at a church with ds1 haing a meltdown as they wouldn't let us use an empty room to help keep him calm, we were told he needed a good smack.

#13 Etcetera

Posted 07 April 2012 - 07:01 AM

By the school counselor . She told me to put up a picture of a light switch and get DS to 'switch it off' before bed and that would make him go to sleep. She wasn't too happy when I laughed and said it wouldn't work.
I no longer tell anyone about his sleep.

My mum said I should be doing exercises like 'the rain in Spain' with DS. Not sure what she thought speech therapy was about, but if I had known all i had to do was watch My Fair Lady it would've saved a lot of time!

#14 i-love-my-son

Posted 07 April 2012 - 08:58 AM

edited

Edited by i-love-my-son, 10 April 2012 - 12:43 PM.


#15 UpsyDaisy

Posted 07 April 2012 - 09:24 AM

Most of the main ones have been mentioned already.

I have one stand-out. I was visiting a GP I occassionally see, but not his normal GP. On a few occassions in the past the GP had always asked me, "Who diagnosed him and when". It was a repeated question, and most times when I wasn't there for him. On one occassion he started with the usual, "Who diagnosed him and at what age", to which I repeated the same answer as always. This time he said, "He doesn't look like he has Autism. To me a child with autism would be under my examination table, on the floor, in the corner, rocking". ohmy.gif

Let's just say I do not see this particular GP for DS.

Edited by UpsyDaisy, 07 April 2012 - 09:25 AM.


#16 itsaboysworld

Posted 07 April 2012 - 09:29 AM

Im just sick of hearing "get him to obsessed with something else, something more age appropriate/academic/socially acceptable"


uhuh.

#17 LambChop

Posted 07 April 2012 - 10:07 AM

Lol at all of these.

QUOTE
My mum said I should be doing exercises like 'the rain in Spain' with DS. Not sure what she thought speech therapy was about, but if I had known all i had to do was watch My Fair Lady it would've saved a lot of time!
  Giggle, MIL said something like this too, that maybe a voice coach like on My Fair Lady would be helpful...  I let her know that we'd be continuing with speech therapy  wacko.gif

I get "don't worry you can hardly tell" a lot... yeah right, noticeably poor speech and 3 years behind academically...

Luckily as they get older you get better at not taking this sort of crap on.

#18 JJ

Posted 07 April 2012 - 11:01 AM

"Just socialise more and you'll be fine." (advice given to me)  wacko.gif

#19 Cat©

Posted 07 April 2012 - 11:56 AM

Oh just recalled another priceless piece.

An old school friends mum, told me not long after diagnosis "Oh autism, don't worry at least they grow out of that"  huh.gif

#20 whatnamenow

Posted 07 April 2012 - 12:11 PM

When we first moved here and were shopping for a new GP i had one tell me that my daughters physical impairment would be fixed by sending her to a catholic school...  Even though we ended up at the same practice seeing a different doctor everyone at that place learnt exactly what i thought of that advice.  Later speaking to other mums learnt he basically says the same thing to every SN mum..

Had a paed tell us she didnt agree with the EDS diagnosis but since ellie was diagnosed by one of the top geneticists in the country 'i suppose i'll have to keep treating her like she has it '....

#21 MrsIncognito

Posted 07 April 2012 - 12:47 PM

I've been told to give my boy growth hormones because he doesnt look like he has a disability  rolleyes.gif

I also get asked repeatedly who diagnosed him and when. I actually dont even have a piece of paper that says he has been diagnosed on this date. Just letters saying such and such a doctor diagnosed him in 2005.

Edited by Sapere Aude!, 07 April 2012 - 12:48 PM.


#22 ellie1326

Posted 07 April 2012 - 12:49 PM

Wow we cop some crap!
Anyways I got "Ah don't worry it's ok that she has ASD, so did Einstein . " like WTF had Einstein got to do with DD? And this was told to me by psychiatrist.

#23 rebekah-mum

Posted 07 April 2012 - 08:32 PM

I have been given lots of the wrong advice over the years but I got asked by centrelink a couple of years ago if my daughter who has cerbral palsy was cured to see if i still needed carers allowance.I told them when they find a cure please let me know

#24 Emby

Posted 07 April 2012 - 08:50 PM

QUOTE (Cat© @ 07/04/2012, 02:40 AM) <{POST_SNAPBACK}>
I was also told to join a church! lol

I was told also that religion would save them and this was punishment for not believing  rolleyes.gif


Well, that would explain why my two IRL friends with kids on the spectrum I both met at Bible Study.

Oh, wait, no it doesn't...

#25 Feral Nicety

Posted 07 April 2012 - 09:28 PM

QUOTE (rebekah-mum @ 07/04/2012, 08:32 PM) <{POST_SNAPBACK}>
I have been given lots of the wrong advice over the years but I got asked by centrelink a couple of years ago if my daughter who has cerbral palsy was cured to see if i still needed carers allowance.I told them when they find a cure please let me know



Yeah those centrelink reviews are amazing.  I think they have now stopped asking parents of kids with Down Syndrome if they have recovered though.




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