Jump to content

What is the worst/strangest advice you have been given (SNs section)


  • Please log in to reply
40 replies to this topic

#1 bluecardigans

Posted 06 April 2012 - 08:50 PM

We had to take DS to a medical centre one long weekend so not his usual GP. We told her he had ASD and a look of horror came over her face. She told us to remove all of the mirrors from our home and cover all of the floors with pillows.  unsure.gif

When in Fiji a local told us to sleep DS outdoors under the moonlight and by morning he would be cured.  laughing2.gif

#2 sad small umbrella

Posted 06 April 2012 - 08:55 PM

To join a church, any church, despite being atheist so that I got the support from them.  Apparently they would help me with everything you could imagine.  Rightyoh then.

#3 ememem

Posted 06 April 2012 - 08:55 PM

lol! they're new, never heard those before.

When DS was first diagnosed (6 years ago) the things I heard most:

*He'll grow out of it
*Get a second opinion
*bullsh*t there is nothing wrong with him, he's just *insert ignorant excuse here*
and my all time favourite...
*he doesn't look retarded.

what a society we live in. I am very thankful that awareness and basic knowledge has increasd since then!

#4 bluecardigans

Posted 06 April 2012 - 09:26 PM

QUOTE (Fancy and Epic @ 06/04/2012, 08:55 PM) <{POST_SNAPBACK}>
To join a church, any church, despite being atheist so that I got the support from them.  Apparently they would help me with everything you could imagine.  Rightyoh then.

I had this one too! What are they going to do? Can I drop DS off at mass every Sunday while I do the groceries?

#5 baddmammajamma

Posted 06 April 2012 - 09:33 PM

QUOTE (Display anemone @ 06/04/2012, 09:26 PM) <{POST_SNAPBACK}>
I had this one too! What are they going to do? Can I drop DS off at mass every Sunday while I do the groceries?

biggrin.gif

I'm shopping around for a faith that is known for very looooooong services! wink.gif

Let's see, we could "cure" J by:

* Love bombing

* Renting a horse and riding in Mongolia

* Just "giving it time" (because "all kids are challenging when they are young...")

* Praying



#6 Sunny Day

Posted 06 April 2012 - 09:39 PM

To buy Jenny McCarthy's book as she 'cured' her son of autism original.gif
This advice seemed to peak whenever she appeared on Oprah.

-------

#7 *-*

Posted 06 April 2012 - 11:55 PM

QUOTE (Fancy and Epic @ 06/04/2012, 08:55 PM) <{POST_SNAPBACK}>
To join a church, any church, despite being atheist so that I got the support from them.  Apparently they would help me with everything you could imagine.  Rightyoh then.


Oh, my sides ache. We are yet to receive a (long suspected) diagnosis.  But to the point above, we have only had 2 of our children baptised.  DD1 (Suspect Aspergers) and DS1 (died in infancy) - the other two we did not (and healthwise they fine and dandy thus far..).  What does that say about religion?

#8 Jareluma

Posted 07 April 2012 - 12:18 AM

By a dr we usually don't see, I was told to give DS 5 more iron because this particular dr had a patient who had severe autism, and after she took iron she was cured  huh.gif  The same dr told me to expose ds to more children, at the time he was in kinder 3 days a week, early intervention social skills group, swimming lessons and play group, I don't know how much more time we could have spent exposing him to more kids lol

DS 9, I was told he couldn't possibly have autism, he's too good looking huh.gif Believe me, he doesn't look soo good mid meltdown  rolleyes.gif

In mil's opinion, a good belting will fix them up, and a teachers aide who has been banned from even looking at ds said to my face that I need to discipline him more, she was the autism expert apparently, she's read all of the books, so she would know whats best  laugh.gif

#9 FeralMinx

Posted 07 April 2012 - 01:58 AM

*Its called discipline, you should try it.  

I can relate to lots of the ones in this thread.  Except to sleep under the moonlight and they will be cured.



#10 Cat©

Posted 07 April 2012 - 02:40 AM

I was also told to join a church! lol

I was told also that religion would save them and this was punishment for not believing  rolleyes.gif

I was also told that all he needed was a good hiding

Oh and my father said that all I needed to do was cut the apron stings and let them "toughen up"  Oh dear

#11 Guest_~Karla~_*

Posted 07 April 2012 - 05:39 AM

MIL has come out with some beauties over the years. When we first told her we were getting the twins assessed for autism, she told us not to sorry because both their eyes looked straight ahead and they were starting to get interested in books. WTF?

The other one I loved was about their allergies. I'm sure most of you probably remember how extreme their allergies are/were but MIL kept telling me I just needed to feed them broth. She would send me all these random broth recipes from all over the world. She couldn't seem to grasp the concept that if they couldn't eat the ingredients, they wouldn't be able to drink the broth. rolleyes.gif

#12 bubba boo

Posted 07 April 2012 - 06:50 AM

When at a church with ds1 haing a meltdown as they wouldn't let us use an empty room to help keep him calm, we were told he needed a good smack.

#13 Etcetera

Posted 07 April 2012 - 07:01 AM

By the school counselor . She told me to put up a picture of a light switch and get DS to 'switch it off' before bed and that would make him go to sleep. She wasn't too happy when I laughed and said it wouldn't work.
I no longer tell anyone about his sleep.

My mum said I should be doing exercises like 'the rain in Spain' with DS. Not sure what she thought speech therapy was about, but if I had known all i had to do was watch My Fair Lady it would've saved a lot of time!

#14 i-love-my-son

Posted 07 April 2012 - 08:58 AM

edited

Edited by i-love-my-son, 10 April 2012 - 12:43 PM.


#15 UpsyDaisy

Posted 07 April 2012 - 09:24 AM

Most of the main ones have been mentioned already.

I have one stand-out. I was visiting a GP I occassionally see, but not his normal GP. On a few occassions in the past the GP had always asked me, "Who diagnosed him and when". It was a repeated question, and most times when I wasn't there for him. On one occassion he started with the usual, "Who diagnosed him and at what age", to which I repeated the same answer as always. This time he said, "He doesn't look like he has Autism. To me a child with autism would be under my examination table, on the floor, in the corner, rocking". ohmy.gif

Let's just say I do not see this particular GP for DS.

Edited by UpsyDaisy, 07 April 2012 - 09:25 AM.


#16 itsaboysworld

Posted 07 April 2012 - 09:29 AM

Im just sick of hearing "get him to obsessed with something else, something more age appropriate/academic/socially acceptable"


uhuh.

#17 LambChop

Posted 07 April 2012 - 10:07 AM

Lol at all of these.

QUOTE
My mum said I should be doing exercises like 'the rain in Spain' with DS. Not sure what she thought speech therapy was about, but if I had known all i had to do was watch My Fair Lady it would've saved a lot of time!
  Giggle, MIL said something like this too, that maybe a voice coach like on My Fair Lady would be helpful...  I let her know that we'd be continuing with speech therapy  wacko.gif

I get "don't worry you can hardly tell" a lot... yeah right, noticeably poor speech and 3 years behind academically...

Luckily as they get older you get better at not taking this sort of crap on.

#18 JJ

Posted 07 April 2012 - 11:01 AM

"Just socialise more and you'll be fine." (advice given to me)  wacko.gif

#19 Cat©

Posted 07 April 2012 - 11:56 AM

Oh just recalled another priceless piece.

An old school friends mum, told me not long after diagnosis "Oh autism, don't worry at least they grow out of that"  huh.gif

#20 whatnamenow

Posted 07 April 2012 - 12:11 PM

When we first moved here and were shopping for a new GP i had one tell me that my daughters physical impairment would be fixed by sending her to a catholic school...  Even though we ended up at the same practice seeing a different doctor everyone at that place learnt exactly what i thought of that advice.  Later speaking to other mums learnt he basically says the same thing to every SN mum..

Had a paed tell us she didnt agree with the EDS diagnosis but since ellie was diagnosed by one of the top geneticists in the country 'i suppose i'll have to keep treating her like she has it '....

#21 TeachmeMum

Posted 07 April 2012 - 12:47 PM

I've been told to give my boy growth hormones because he doesnt look like he has a disability  rolleyes.gif

I also get asked repeatedly who diagnosed him and when. I actually dont even have a piece of paper that says he has been diagnosed on this date. Just letters saying such and such a doctor diagnosed him in 2005.

Edited by Sapere Aude!, 07 April 2012 - 12:48 PM.


#22 ellie1326

Posted 07 April 2012 - 12:49 PM

Wow we cop some crap!
Anyways I got "Ah don't worry it's ok that she has ASD, so did Einstein . " like WTF had Einstein got to do with DD? And this was told to me by psychiatrist.

#23 rebekah-mum

Posted 07 April 2012 - 08:32 PM

I have been given lots of the wrong advice over the years but I got asked by centrelink a couple of years ago if my daughter who has cerbral palsy was cured to see if i still needed carers allowance.I told them when they find a cure please let me know

#24 Emby

Posted 07 April 2012 - 08:50 PM

QUOTE (Cat© @ 07/04/2012, 02:40 AM) <{POST_SNAPBACK}>
I was also told to join a church! lol

I was told also that religion would save them and this was punishment for not believing  rolleyes.gif


Well, that would explain why my two IRL friends with kids on the spectrum I both met at Bible Study.

Oh, wait, no it doesn't...

#25 sad small umbrella

Posted 07 April 2012 - 09:28 PM

QUOTE (rebekah-mum @ 07/04/2012, 08:32 PM) <{POST_SNAPBACK}>
I have been given lots of the wrong advice over the years but I got asked by centrelink a couple of years ago if my daughter who has cerbral palsy was cured to see if i still needed carers allowance.I told them when they find a cure please let me know



Yeah those centrelink reviews are amazing.  I think they have now stopped asking parents of kids with Down Syndrome if they have recovered though.




2 user(s) are reading this topic

0 members, 2 guests, 0 anonymous users

 

Win Coles Little Explorer nappies for your toddler

Introducing the new Coles Little Explorer Nappies! You can confidently rely on Coles Little Explorer nappies at each stage of your child's growth, so take the Big Nappy Change and try new Coles Little Explorer nappies for yourself!

Robbie Williams live tweets wife's labour

And the award for most patient woman in labour goes to ... Robbie Williams' wife, Ayda Field.

Vaccine ignorance is deadly and contagious

In the absence of credible, strong political leadership, paranoia about disease can go viral.

Parenting differently based on birth order

All children have unique personalities, but keeping birth order in mind could help when parenting.

How to get rid of the mum guilt

Motherhood and guilt seem to go hand in hand, but there are ways to focus

Paid parental leave scheme grinds to a halt

The future of Prime Minister Tony Abbott's paid parental leave scheme appears to be up in the air, despite the fact it is due to begin in less than nine months.

The devastation of foetal alcohol spectrum disorders

No one's sure how many Australians are affected by foetal alcohol spectrum disorders, but the consequences for those who are can be devastating.

The pros and cons of finding out the sex of your unborn baby

It’s often one of the biggest choices parents make during the course of their pregnancy; to find out, or not to find out, the sex of their baby before it’s born.

Toddler's awesome dress up month

Two-year-old Willow and her photographer mum, Gina Lee, made October "Dress Up Willow Month". She posted photos of Willow's costumes on her Instagram account, and her creative takes on popular culture are simply adorable.

Childhood around the world

It can be easy to assume our ideas around childhood are universal, but they are particular to where we live, as these practices show.

Best picks for baby and toddler shoes

Here's a great selection of footwear from pre-walker to walker ensuring comfort and style for growing feet.

I lost my wife and daughters to Ebola - then it came for my son

Sunday, September 21, is a day I will never forget.

The 'yucky' illness that took over my life

I have a chronic illness nobody likes to discuss. It involves toilet talk, and probably caused my miscarriage. But it needs to be talked about.

Prenatal testing: the facts

Prenatal testing is done to check if a baby has certain medical conditions before birth. Here is some important information about what the tests are for and the risks involved.

5 things to do with your baby?s old clothes

Did you think your only option for your baby?s old clothes was to pack them away or give them to the Salvos? Think again.

Why it's possible to not realise you're pregnant until the baby arrives

After hearing about 'surprise babies' born to mums who didn't know they were pregnant, it's common to ask "how did she not realise?" But experts say it's entirely possible for it to happen.

'My miracle is finally here'

How has the world continued on its pace when mine has been altered so drastically?

Dairy can help older women fall pregnant: study

Ice cream may be the ultimate comfort food, but a study suggests it could also help older women to have children.

Megan Gale goes topless for 'sexiest people' cover

Six months after a heavily pregnant Megan Gale posed nude for Marie Claire, the glowing new mum has gone topless for the cover of another magazine.

A new perspective on life from living with two diseases

A mother shares her personal story about the difficulty of living with two conditions, one of which stops her from being able to see her daughter's face.

Warning about Children's Panadol dosage

The Therapeutic Goods Administration has issued a safety advisory warning parents about confusion when using the dosing syringe supplied with Children's Panadol.

Download now: Essential Kids Activity Finder app

Got bored kids? Quickly find the best activities for kids wherever you are in Australia with the Essential Kids app.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Take 'The Coles Big Nappy Change' Challenge

You could become part of our Test Drive team and win one of 200 packs of Coles Little Explorer Nappies as part of our 5-day challenge.

Win 1 of 5 Canon Powershot D30 cameras

Capture life more easily with the Canon Powershot D30. Shockproof, waterproof and dustproof, you can take it almost anywhere and shoot beautiful images, time after time. Enter now!

16 parenting truths you won't find in the baby books

I am five years into this parenting gig and I’ve learnt that sleepless nights and changing dirty nappies are child’s play.

Best and worst potty party cakes

It's nice to celebrate a child making the shift from nappies to 'big kid' undies, but do we really need a semi-realistic used toilet cake to do it? Here are some of the best and worst cakes parents have used at 'potty parties' around the world.

7 tips for a financially festive Christmas

Plan ahead - and do it now - to ensure festive season expenses don't break the bank.

'Go the F*** to Sleep' author's new book for frustrated parents

A sequel is coming soon to the 2011 hit book 'Go the F*** to Sleep' - and this time, it's about mealtimes.

Great birthday party buys from Etsy

Handmade crafts to decorate and personalise your child's next birthday - from banners to cake decorations, we've got gorgeous party finds from Etsy.

Join us in The BIG nappy change

Introducing the new Coles Little Explorer Nappies! You can confidently rely on Coles Little Explorer nappies at each stage of your child's growth, so take the Big Nappy Change and try new Coles Little Explorer nappies for yourself!

Creative storage ideas for the kids' rooms

Creative and practical storage ideas for the kids' toys and books can also add some stylish decor to your home. Visit babyology.com.au for more stylish modern finds for hip kids & parents.

Weird trend

'Why we called our daughter Wyatt'

Ashton Kutcher has spoken about how he and Mila Kunis chose their daughter's name - and why they've set up her social media accounts.

To the mum in the doctor's waiting room

Maybe the mum I saw in that waiting room, seemingly disconnected from her baby, doesn’t have the support she needs.

10 space-saving nursery ideas

Starting a family doesn't always mean moving into a bigger house - not yet, anyway.

 

What's in a name?

Baby Names

Looking for a classic name, or an unusual name? Our Baby Name Finder is for you, search or browse to refine your shortlist.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.