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Any drs/nurses - Updated 30/4th/13 RIP mum xx
516 replies to this topic
Posted 18 April 2012 - 03:17 PM
What a wonderful update!
Thank you for sharing this amazing journey!
Posted 18 April 2012 - 03:26 PM
That is so wonderful to hear! I really hope she has a better time of it from here on in and has a great time celebrating her birthday, wedding anniversary and your nieces wedding
Posted 18 April 2012 - 03:32 PM
HM i have just read this whole thread and i am sooooo happy for you, and your whole family that your mum has turned a corner, ,please keep us updated, as its even a good journal for you to go back and read. xx
Posted 18 April 2012 - 03:47 PM
HM this is wondeful news, i am so happy for you and your family, enjoy your time together.
Posted 18 April 2012 - 03:54 PM
I couldn't read this and not thank you for sharing. Your emotional honestly and openness has been a gift and, from how you have written about your parents, I can see where you learnt it.
I wish you, your mum, and your family many future days of love.
Posted 18 April 2012 - 03:58 PM
Fantastic news. You have a very special family.
Wishing many more happy memories to you and your beautiful family.
Posted 18 April 2012 - 04:51 PM
This is really incredible news! I'm so pleased that the horrible treatment at the hospital subsided with time and you were able to have this precious time together as a family. I'm even more pleased to read your update that your mum is doing so much better than expected!
I too want to thank you for the privilege of sharing your journey here, these are the threads that show the real heart of EB Keep us posted at your leisure, and enjoy this precious time
Posted 18 April 2012 - 08:48 PM
Wonderful news HM. Enjoy life, it sounds wonderful right now
Posted 18 April 2012 - 08:55 PM
What heartwarming news HM
You sound like one amazing family x
Posted 18 April 2012 - 09:00 PM
That is just fantastic news, you have been in my thoughts. Enjoy this extra time you have been given with your mum...
Posted 18 April 2012 - 09:19 PM
Be with your family and enjoy every moment.
Take care and I'll keep your mum and your family in my thoughts.
Posted 19 April 2012 - 02:57 AM
What awesome news!! So is a glass display unit on the cards for mothers day for her?
I understand not updating this thread but make sure you write these memories down and the new memories down.
Take care and I hope your mum keeps surprising you all!
Posted 19 April 2012 - 03:26 AM
So is a glass display unit on the cards for mothers day for her?hmmmm good thinking!
Posted 19 April 2012 - 07:43 AM
I think the glass display unit for mothers day is a great idea.
Posted 21 April 2012 - 03:18 PM
WOW! What a road you have travelled this past two weeks! So glad that your Mum is much more comfortable and that there is genuine reason to hope. What a relief that the hospital staff have pulled their heads in too. All the very best for you, your Mum and your Dad. (Also hope your sister works out what the heck is going on with her health).
Posted 26 April 2012 - 12:00 AM
Insult to injury - just got security called on me for not asking 'how high' when they told me to jump. Assholes.
Mum is doing better and has been moved to a 2 bed ward and dad got kicked out 2 nights ago. So in the fray we decided dad would be there 8.30am till 1pm, sis there from 3 till 5.30, and me from 5.30 till 9 to tuck her in bed.
First day (yesterday) fine.
Today was going fine. quatre to nine I take mum to the loo and help her with her teeth etc. get her back to the bed. Just putting her legs in to the bed and the night nurse (just on) walks in.
Mum says hello, as do i. I say 'oh its strange, mum had hydromorph an hour ago but she still has pain and her breathing is still laboured.'
Nurse looks at me really seriously and says 'um visiting hours are over, you have to go'..
I was taken aback, but I said 'yea ok im just getting mum in to bed (still had mums legs in my hands)'.
she goes 'um no, I will do that, its time you left'...
I was quite shocked and just said 'no, I will leave when I have tucked mum in'...
she goes 'fine I will get security' and leaves the room
I was holding back the tears, because I knew it upset mum and I didn't want our last moments to be negative. I put her pillow behind her head and was putting one under her arm when the NUM walks in.
She asks whats going on I said 'im just tucking my mum in and leaving. the nurse who left the room a minute ago was so rude!'
She says 'thats because visiting hours are over and you have to leave'
Im like 'ok, first i've heard, we've been caring for mum the whole time she has been in, and as I said to that nurse I am just finishing up and then leaving'
she says 'WHEN are you leaving??'
I said 'what part of what I said don't you understand?'
She says 'who says I don't understand?'
I said 'what the hell is going on here? Im tucking my mum in and leaving'
She said 'no need to be like that, your mum is already IN bed so why are you still here?'
I cant believe what she just said! I try to think of something useful to say, as it was just so pointless rude and argumentative.. I say 'I am getting pretty angry at whats happening! If you wanna have a debate with me, can you wait a minute and I will come out there so it doesn't upset my mum?'
She said 'so you are angry? OK'... walks out and calls security!
The whole time I still had mums hand in mine and putting the pillow under her arm!
I tried to stay calm for mums sake. I got her two bed side tables and made sure she could reach the buzzer, phone, water, etc... which makes her feel secure. Kissed her on the head and left saying Its OK to her as she looked so worried!
Walking out I saw the security guards who I see every day as I am there every day. I asked if they just got called to the ward, they say yea. I said Dont worry it was for me because I was tucking my mum in to bed!
I just wanted to bawl my eyes out Absolutely uncalled for and spiteful. Can't believe it
Posted 26 April 2012 - 02:06 AM
God HM, what a crazy journey this has been
There's just no words for how the hospital has treated your mum and you and your family. Just so wrong.
Freo - can't stand that hospital. Had chest pains recently (have a heart condition) and when told I was going to an ER said bugger off instead because I was not going there. Unfortunately not much better treatment at a private hospital ER with a crazy doctor who was convinced, with all my heart problems, I must have arthritis in the neck causing chest pain lol - even though I said my neck is fine, she had $230 worth of x-rays ordered to prove it wasn't and of course she was wrong. So what I'm saying is I guess there are bad ones all over the place. Have found a bad share in cardios also. But to treat you with such disrespect when you are just caring for your mother? I really think you need to put in a complaint about those latest ones.
Your an awesome daughter and your Mum sounds like a gorgeous lady
Hoping she keeps turning that corner and improving even more
Posted 26 April 2012 - 02:19 AM
Thanks BB and risa
But to treat you with such disrespect when you are just caring for your mother? I really think you need to put in a complaint about those latest ones.
thats basically how I am feeling. Actually I am feeling royally sorry for myself (seperately to mums dodgy treatment) about the treatment at the hospital over the past 3 weeks or so. It must sound like a total victim mentality but seriously there have been a number of doozy terrible things, against myself AND my mum. I am so upset
Edited by HillmanMinx, 26 April 2012 - 02:20 AM.
Posted 26 April 2012 - 05:12 AM
Hillmanminx, I've been lurking here but not commented until today.
I wanted to urge you to write a letter to the public relations part of the hospital involved (is it freo?) and tell them what has gone on. Its just not cool. I can't believe a nurse would call security when you were tucking your mum into bed
I'm a nurse and that just makes me ashamed, its a horrible way to treat someone. Please write the letter, let the hospital, the managers and everyone else know that its just not on.
I'm glad you're mum is doing better tho.
Posted 26 April 2012 - 09:40 AM
No not freo. I'll be writing to them and CC'ing the minister for health and freaking anyone else I can think of now. That was the last straw
Edited by HillmanMinx, 26 April 2012 - 09:40 AM.
Posted 26 April 2012 - 10:33 AM
Wow, sounds like they handled this all soooo badly. I'm so sorry you are going through this.
The only thing I can think of is that they aren't aware of just how much you are doing for your mother. I can understand them needing you to leave - once you are in a shared room situation they need to enforce the rules for everyone. Someone needs to take over what you are doing to help care for your mother, if they don't want you there.
But the way they went about it was disgraceful
Posted 26 April 2012 - 10:48 AM
HM I am another who has lurked mostly - I did post early in the piece.
I was away for a couple of weeks and I was so happy to come back and read that miraculously your mother was getting better - I was so happy for all of you!
My mother passed away almost a year ago and got some of the most God awful treatment from doctors and nurses. She had a 10cm cancer tumor growing into her stomach, lungs, diaphragm etc that somehow no test could find - despite her unutterable pain.
She was told it was all in her head - the doctors and nurses were indifferent, rude and difficult etc etc so I do know some of what you are feeling. Miraculously they finally found what was up and then for the three days before she died they all turned really lovely. Anyway that's my baggage.
Hearing this from you now makes me so ANGRY and sad for you and your mum. What on earth is wrong with these people???? Anything I can write up or research for you (contacting media about your plight), I am willing to do for you so that you can concentrate on your mum.
I am so upset that I am here crying at my computer. It is so wrong! Can I do anything to help?
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