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recurent miscarriage specialist


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#1 lionguo

Posted 27 March 2012 - 09:38 PM

Hi all.

My wife had miscariage yesterday. This is the fourth time in a row. She is now in a big pain, especially emotionally. Our hearts are broken. We do not have children and we almost loss our hope.

We decide to see recurent miscarriage specialist. We know some organizations/clinics, like Sydney IVF, IVF australia and Genea. However, there are so many specialists/Drs to choose from that we do not know whom to see.

Could anyone recommend proved quality/leading specialist whose specilaity is recurrent miscarriage prevention? PM please.



#2 Spring Chickadee

Posted 27 March 2012 - 09:45 PM

I am so sorry for your losses, I hope your are able to find out what's going on and have it treated.

What city are you in, Sydney?

Edited by Spring Chickadee 2, 27 March 2012 - 09:46 PM.


#3 NotBitzerMaloney

Posted 27 March 2012 - 09:45 PM

Where are you located?

#4 lionguo

Posted 27 March 2012 - 09:53 PM

We are based in Sydney

#5 Libster

Posted 27 March 2012 - 09:57 PM

I am so sorry for your losses sad.gif I don't have any recommendations however I can suggest that while you are waiting to see a specialist, perhaps you can talk to your GP and ask for a blood test which tests for Factor V Leiden gene mutation? People with this gene mutation can have recurrent miscarriages due to the fact that their blood clots more easily. There is another condition called Hughes Syndrome (or sticky blood) which can cause problems too.
I am hoping you get some answers soon. All the best.

#6 NotBitzerMaloney

Posted 27 March 2012 - 10:04 PM

I have sent you a PM.

Have you had any testing done previously? Sorry to be overly direct at such a sad time, but does the opportunity still exist to undertake testing on the latest miscarriage e.g. is your wife is booked in for a D&C?

#7 lionguo

Posted 27 March 2012 - 10:09 PM

QUOTE (Libster @ 27/03/2012, 09:57 PM) <{POST_SNAPBACK}>
I am so sorry for your losses sad.gif I don't have any recommendations however I can suggest that while you are waiting to see a specialist, perhaps you can talk to your GP and ask for a blood test which tests for Factor V Leiden gene mutation? People with this gene mutation can have recurrent miscarriages due to the fact that their blood clots more easily. There is another condition called Hughes Syndrome (or sticky blood) which can cause problems too.
I am hoping you get some answers soon. All the best.


Thanks a lot for your information and comforting!

#8 lionguo

Posted 27 March 2012 - 10:10 PM

QUOTE (NotBitzerMaloney @ 27/03/2012, 10:04 PM) <{POST_SNAPBACK}>
I have sent you a PM.

Have you had any testing done previously? Sorry to be overly direct at such a sad time, but does the opportunity still exist to undertake testing on the latest miscarriage e.g. is your wife is booked in for a D&C?


Yes, she booked D/C next week. What testing can be performed on the latest miscarriage?

#9 rosiec

Posted 27 March 2012 - 10:15 PM

Hi Lionguo,

Im sorry for your losses.  I have experience with the Recurrent Miscarriage Clinic at Genea (formerly SIVF).  I endured 4 miscarriages before i had some genetic testing.  My GP referred me  to the genetics team at Royal Prince Alfred Hospital and preliminary testing  did identify a genetic issue with me.

I then endured another 5 miscarriages before going through the Genea (formerly SIVF) program which excluded any other contributing factors with my husband and myself before we started on IVF with PGD (genetic testing).

From memory, the waiting time for the genetics clinic at RPA was about 6 weeks.  It involved me speaking with the head of Genetics team (who was also the head of obstetrics) and then having blood tests.    That is when we discovered my issue.  My Fertility specialist put me through the miscarriage management clinic to check that my genetic issue was the only cause and was not combined with other factors.    Please feel free to send me a message if you would like any further information.  The Genea testing is very comprehensive and there is a lot involved, but well worth it in my opinion.

As my issue was identified after blood tests, RPA didn't do any further testing so I can't compare the full range of services (if there are anymore) with the GENEA program.

  I would also recommend the specialist(s) I saw, I can't identify them by name on the forum but am happy to tell you MY experience with them if you wish. Please feel free to send me a message if you would like any further information.

I wish you and your wife well.



#10 tibs

Posted 27 March 2012 - 10:24 PM

.

Edited by tibs, 28 March 2012 - 09:37 PM.


#11 lionguo

Posted 28 March 2012 - 09:26 PM

QUOTE (rosiec @ 27/03/2012, 10:15 PM) <{POST_SNAPBACK}>
Hi Lionguo,

Im sorry for your losses.  I have experience with the Recurrent Miscarriage Clinic at Genea (formerly SIVF).  I endured 4 miscarriages before i had some genetic testing.  My GP referred me  to the genetics team at Royal Prince Alfred Hospital and preliminary testing  did identify a genetic issue with me.

I then endured another 5 miscarriages before going through the Genea (formerly SIVF) program which excluded any other contributing factors with my husband and myself before we started on IVF with PGD (genetic testing).

From memory, the waiting time for the genetics clinic at RPA was about 6 weeks.  It involved me speaking with the head of Genetics team (who was also the head of obstetrics) and then having blood tests.    That is when we discovered my issue.  My Fertility specialist put me through the miscarriage management clinic to check that my genetic issue was the only cause and was not combined with other factors.    Please feel free to send me a message if you would like any further information.  The Genea testing is very comprehensive and there is a lot involved, but well worth it in my opinion.

As my issue was identified after blood tests, RPA didn't do any further testing so I can't compare the full range of services (if there are anymore) with the GENEA program.

  I would also recommend the specialist(s) I saw, I can't identify them by name on the forum but am happy to tell you MY experience with them if you wish. Please feel free to send me a message if you would like any further information.

I wish you and your wife well.


  Many thanks for your kind information.

  My husband and I are deeply depressed and our hearts both are broken now. Your kind information really gave us some hope. Hence, we just wonder to know more.

  My email is : congy515@hotmail.com

  Could you please send me an email? so that we can connect more.

  Thanks again.



#12 kittycat01

Posted 28 March 2012 - 09:42 PM

Hi Op,

I am so sorry for your loss. I lost one last year myself. They suspect my under active thyroid was a factor in it. I'm on meds to regulate now.

Also some people with recurrent miscarriages have trouble with low progesterone levels and require pessaries to keep them up.

Worth checking for these too.

The products removed in the d&c can be analysed to check for genetic abnormalities. Just request it when going for the procedure when you are signing all the paperwork. Repeat it to each person you talk to so there is no confusion.

I'm also another to recommend the clotting factor tests on your wife's blood. I have a friend who had similar history to you and finally had a successful pregnancy once on the anti-clotting meds.

Kitty

#13 Beth E

Posted 28 March 2012 - 10:12 PM

I have PM'd you...

#14 zjb2

Posted 29 March 2012 - 05:22 PM

I have PM'd you as well.

#15 Natttmumm

Posted 29 March 2012 - 05:30 PM

So sorry to hear. If you call ivf aust in the city and ask to see the specialist in miscarriages you will get the right one. He is fantastic and after suffering 2 losses we went there and had many tests done. We found the reason and now have 2 kids. I hope this helps.



#16 lionguo

Posted 29 March 2012 - 06:28 PM

QUOTE (Natttmumm @ 29/03/2012, 05:30 PM) <{POST_SNAPBACK}>
So sorry to hear. If you call ivf aust in the city and ask to see the specialist in miscarriages you will get the right one. He is fantastic and after suffering 2 losses we went there and had many tests done. We found the reason and now have 2 kids. I hope this helps.


many thanks for your kind reply. DO you mind PM me the specialist's name?

Regards

#17 lionguo

Posted 29 March 2012 - 06:59 PM

Thank you all for your kind caring, wishes and information, which gives us hope and faith!

Although it is a tough journy, we WILL proceed.




Many thanks and Regards

#18 Beth E

Posted 30 March 2012 - 07:30 PM

Hi Lionguo

You sent me a PM but I am unable to see it on the screen.  The forum admin/help advised that you should do the following, if you want me to read it.

Go to "My Controls" (under their username on the left of the screen)

Under the Menu (second column on the left) look for the Options subheading and click on Board Settings.

In the Control Panel, look for this bit ...

"Type of text editor to use when posting"

If it is set to Rich Text Editor, change it to Standard Editor (or vice versa).

After that, you will need to re-send your PM and then I should then be able see it.

No worries if you don't want to do this.

Hope all well.





#19 lionguo

Posted 01 April 2012 - 10:07 PM

QUOTE (Beth E @ 30/03/2012, 07:30 PM) <{POST_SNAPBACK}>
Hi Lionguo

You sent me a PM but I am unable to see it on the screen.  The forum admin/help advised that you should do the following, if you want me to read it.

Go to "My Controls" (under their username on the left of the screen)

Under the Menu (second column on the left) look for the Options subheading and click on Board Settings.

In the Control Panel, look for this bit ...

"Type of text editor to use when posting"

If it is set to Rich Text Editor, change it to Standard Editor (or vice versa).

After that, you will need to re-send your PM and then I should then be able see it.

No worries if you don't want to do this.

Hope all well.


I have followed your instruction to change the configuration. After that, I re-sent you a message. Please advise if you got it or not. My email is atmgyh@yahoo.com. Please feel free to send me messages through my email if the PM does not work out. I really would like to talk to you. Is it possible to send me email, leaving me your contact methods? Many thanks!


#20 Natttmumm

Posted 06 May 2012 - 12:31 PM

Sorry tried to pm you but I can't for some reason. Any tips on how to do this, I compose a new message but I get error message saying its only three characters my message which is not right!!! So confusing

#21 Spock

Posted 27 May 2012 - 08:50 AM

Hello, I am truly sorry for the pain and loss you are suffering. I myself have now lost 10, the most recent bring twins. I am seeing an amazing specialist at IVF a who is vey proactive about getting all the latest testing done to identify the issue/s. don't be alarmed. Y my sad journey as mine is a rare case. My first 3 losses were with another fs who wouldn't change anything about my IVF cycles and he just did the standard bts you do following m/c. These all came back normal for me and my dh. We then found our current fs who did more extensive testing. He found I have extremely low amh, that is, I'm about to go into menopause even though I'm only 36. This doesn't mean all my eggs are bad but it does mean low egg numbers and unfortunately for me vey poor egg quality. The fs had me try all the latest treatments to improve egg quality with which he has had success with Luther patients but just not for me. He also diagnosed me with elevated nk cells which means my body rejects the embryo instead of protecting it. Many fs's in Aus don't understand reproductive immunology so are reluctant to consider this. My fs happens to be the Australian expert on nk cells, he even designed the test for it so other fs's use his test. The treatments for reproductive immunological issues are vey experimental but this is all we have. We also tried pgd testing but no success for us but I know of others who have had success with this. We have recently moved on to using donor eggs to at least remove the problem of my poor egg quality. This was not an easy decision but if we want a family this is the path we have chosen to pursue. I forgot to mention that after my most recent loss we did more digging, saw an endocrinologist and found out I have insulin resistance as well, this is the precursor to diabetes. This significantly increases your risk of m/c. Funnily enough this wasn't picked up in any of the standard m/c bts all the clinics do. I had to do a special 3 hour glucose fasting bt (for which my endocrinologist is famous for as he specializes in this are and designed the test). I am now on metformin which should reduce my m/c risk in addition to other health benefits. I don't u d'├ętat and why but some fs's are reluctant to use metformin even though no side effects (age old diabetes treatment). Many fs's just don't have enough knowledge of other health issues that can complicate getting pregnant and staying pregnant. I have also see the one and only reproductive immunologist in the whole of Aus. His treatments are based on the Beer clinic protocols from USA and are to be overlayed on your standard fs treatments. He carries out further bts that u can't even get done in Aus, the blood is couriered to USA. If you would like details if my fs, endocrinologist, reproductive immunologist, just pm me. I have learnt a lot on this journey and wished I had more knowledge at the start as might have saved us much heart ache. Please remember that I don't exhibit anything unusual in any of my stanard bts, it's only when digging deeper issues have been found. For the first 3 losses we thought we had unexplained infertility. Any fs who tells you this is being lazy, they should dig deeper and find out as much as they can to help you. I hope this helps you and you find some answers. My sympathies again.




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