Jump to content

recurent miscarriage specialist


  • Please log in to reply
20 replies to this topic

#1 lionguo

Posted 27 March 2012 - 09:38 PM

Hi all.

My wife had miscariage yesterday. This is the fourth time in a row. She is now in a big pain, especially emotionally. Our hearts are broken. We do not have children and we almost loss our hope.

We decide to see recurent miscarriage specialist. We know some organizations/clinics, like Sydney IVF, IVF australia and Genea. However, there are so many specialists/Drs to choose from that we do not know whom to see.

Could anyone recommend proved quality/leading specialist whose specilaity is recurrent miscarriage prevention? PM please.



#2 Spring Chickadee

Posted 27 March 2012 - 09:45 PM

I am so sorry for your losses, I hope your are able to find out what's going on and have it treated.

What city are you in, Sydney?

Edited by Spring Chickadee 2, 27 March 2012 - 09:46 PM.


#3 NotBitzerMaloney

Posted 27 March 2012 - 09:45 PM

Where are you located?

#4 lionguo

Posted 27 March 2012 - 09:53 PM

We are based in Sydney

#5 Libster

Posted 27 March 2012 - 09:57 PM

I am so sorry for your losses sad.gif I don't have any recommendations however I can suggest that while you are waiting to see a specialist, perhaps you can talk to your GP and ask for a blood test which tests for Factor V Leiden gene mutation? People with this gene mutation can have recurrent miscarriages due to the fact that their blood clots more easily. There is another condition called Hughes Syndrome (or sticky blood) which can cause problems too.
I am hoping you get some answers soon. All the best.

#6 NotBitzerMaloney

Posted 27 March 2012 - 10:04 PM

I have sent you a PM.

Have you had any testing done previously? Sorry to be overly direct at such a sad time, but does the opportunity still exist to undertake testing on the latest miscarriage e.g. is your wife is booked in for a D&C?

#7 lionguo

Posted 27 March 2012 - 10:09 PM

QUOTE (Libster @ 27/03/2012, 09:57 PM) <{POST_SNAPBACK}>
I am so sorry for your losses sad.gif I don't have any recommendations however I can suggest that while you are waiting to see a specialist, perhaps you can talk to your GP and ask for a blood test which tests for Factor V Leiden gene mutation? People with this gene mutation can have recurrent miscarriages due to the fact that their blood clots more easily. There is another condition called Hughes Syndrome (or sticky blood) which can cause problems too.
I am hoping you get some answers soon. All the best.


Thanks a lot for your information and comforting!

#8 lionguo

Posted 27 March 2012 - 10:10 PM

QUOTE (NotBitzerMaloney @ 27/03/2012, 10:04 PM) <{POST_SNAPBACK}>
I have sent you a PM.

Have you had any testing done previously? Sorry to be overly direct at such a sad time, but does the opportunity still exist to undertake testing on the latest miscarriage e.g. is your wife is booked in for a D&C?


Yes, she booked D/C next week. What testing can be performed on the latest miscarriage?

#9 Feral_RosieC

Posted 27 March 2012 - 10:15 PM

Hi Lionguo,

Im sorry for your losses.  I have experience with the Recurrent Miscarriage Clinic at Genea (formerly SIVF).  I endured 4 miscarriages before i had some genetic testing.  My GP referred me  to the genetics team at Royal Prince Alfred Hospital and preliminary testing  did identify a genetic issue with me.

I then endured another 5 miscarriages before going through the Genea (formerly SIVF) program which excluded any other contributing factors with my husband and myself before we started on IVF with PGD (genetic testing).

From memory, the waiting time for the genetics clinic at RPA was about 6 weeks.  It involved me speaking with the head of Genetics team (who was also the head of obstetrics) and then having blood tests.    That is when we discovered my issue.  My Fertility specialist put me through the miscarriage management clinic to check that my genetic issue was the only cause and was not combined with other factors.    Please feel free to send me a message if you would like any further information.  The Genea testing is very comprehensive and there is a lot involved, but well worth it in my opinion.

As my issue was identified after blood tests, RPA didn't do any further testing so I can't compare the full range of services (if there are anymore) with the GENEA program.

  I would also recommend the specialist(s) I saw, I can't identify them by name on the forum but am happy to tell you MY experience with them if you wish. Please feel free to send me a message if you would like any further information.

I wish you and your wife well.



#10 tibs

Posted 27 March 2012 - 10:24 PM

.

Edited by tibs, 28 March 2012 - 09:37 PM.


#11 lionguo

Posted 28 March 2012 - 09:26 PM

QUOTE (rosiec @ 27/03/2012, 10:15 PM) <{POST_SNAPBACK}>
Hi Lionguo,

Im sorry for your losses.  I have experience with the Recurrent Miscarriage Clinic at Genea (formerly SIVF).  I endured 4 miscarriages before i had some genetic testing.  My GP referred me  to the genetics team at Royal Prince Alfred Hospital and preliminary testing  did identify a genetic issue with me.

I then endured another 5 miscarriages before going through the Genea (formerly SIVF) program which excluded any other contributing factors with my husband and myself before we started on IVF with PGD (genetic testing).

From memory, the waiting time for the genetics clinic at RPA was about 6 weeks.  It involved me speaking with the head of Genetics team (who was also the head of obstetrics) and then having blood tests.    That is when we discovered my issue.  My Fertility specialist put me through the miscarriage management clinic to check that my genetic issue was the only cause and was not combined with other factors.    Please feel free to send me a message if you would like any further information.  The Genea testing is very comprehensive and there is a lot involved, but well worth it in my opinion.

As my issue was identified after blood tests, RPA didn't do any further testing so I can't compare the full range of services (if there are anymore) with the GENEA program.

  I would also recommend the specialist(s) I saw, I can't identify them by name on the forum but am happy to tell you MY experience with them if you wish. Please feel free to send me a message if you would like any further information.

I wish you and your wife well.


  Many thanks for your kind information.

  My husband and I are deeply depressed and our hearts both are broken now. Your kind information really gave us some hope. Hence, we just wonder to know more.

  My email is : congy515@hotmail.com

  Could you please send me an email? so that we can connect more.

  Thanks again.



#12 kittycat01

Posted 28 March 2012 - 09:42 PM

Hi Op,

I am so sorry for your loss. I lost one last year myself. They suspect my under active thyroid was a factor in it. I'm on meds to regulate now.

Also some people with recurrent miscarriages have trouble with low progesterone levels and require pessaries to keep them up.

Worth checking for these too.

The products removed in the d&c can be analysed to check for genetic abnormalities. Just request it when going for the procedure when you are signing all the paperwork. Repeat it to each person you talk to so there is no confusion.

I'm also another to recommend the clotting factor tests on your wife's blood. I have a friend who had similar history to you and finally had a successful pregnancy once on the anti-clotting meds.

Kitty

#13 Beth E

Posted 28 March 2012 - 10:12 PM

I have PM'd you...

#14 zjb2

Posted 29 March 2012 - 05:22 PM

I have PM'd you as well.

#15 Natttmumm

Posted 29 March 2012 - 05:30 PM

So sorry to hear. If you call ivf aust in the city and ask to see the specialist in miscarriages you will get the right one. He is fantastic and after suffering 2 losses we went there and had many tests done. We found the reason and now have 2 kids. I hope this helps.



#16 lionguo

Posted 29 March 2012 - 06:28 PM

QUOTE (Natttmumm @ 29/03/2012, 05:30 PM) <{POST_SNAPBACK}>
So sorry to hear. If you call ivf aust in the city and ask to see the specialist in miscarriages you will get the right one. He is fantastic and after suffering 2 losses we went there and had many tests done. We found the reason and now have 2 kids. I hope this helps.


many thanks for your kind reply. DO you mind PM me the specialist's name?

Regards

#17 lionguo

Posted 29 March 2012 - 06:59 PM

Thank you all for your kind caring, wishes and information, which gives us hope and faith!

Although it is a tough journy, we WILL proceed.




Many thanks and Regards

#18 Beth E

Posted 30 March 2012 - 07:30 PM

Hi Lionguo

You sent me a PM but I am unable to see it on the screen.  The forum admin/help advised that you should do the following, if you want me to read it.

Go to "My Controls" (under their username on the left of the screen)

Under the Menu (second column on the left) look for the Options subheading and click on Board Settings.

In the Control Panel, look for this bit ...

"Type of text editor to use when posting"

If it is set to Rich Text Editor, change it to Standard Editor (or vice versa).

After that, you will need to re-send your PM and then I should then be able see it.

No worries if you don't want to do this.

Hope all well.





#19 lionguo

Posted 01 April 2012 - 10:07 PM

QUOTE (Beth E @ 30/03/2012, 07:30 PM) <{POST_SNAPBACK}>
Hi Lionguo

You sent me a PM but I am unable to see it on the screen.  The forum admin/help advised that you should do the following, if you want me to read it.

Go to "My Controls" (under their username on the left of the screen)

Under the Menu (second column on the left) look for the Options subheading and click on Board Settings.

In the Control Panel, look for this bit ...

"Type of text editor to use when posting"

If it is set to Rich Text Editor, change it to Standard Editor (or vice versa).

After that, you will need to re-send your PM and then I should then be able see it.

No worries if you don't want to do this.

Hope all well.


I have followed your instruction to change the configuration. After that, I re-sent you a message. Please advise if you got it or not. My email is atmgyh@yahoo.com. Please feel free to send me messages through my email if the PM does not work out. I really would like to talk to you. Is it possible to send me email, leaving me your contact methods? Many thanks!


#20 Natttmumm

Posted 06 May 2012 - 12:31 PM

Sorry tried to pm you but I can't for some reason. Any tips on how to do this, I compose a new message but I get error message saying its only three characters my message which is not right!!! So confusing

#21 Spock

Posted 27 May 2012 - 08:50 AM

Hello, I am truly sorry for the pain and loss you are suffering. I myself have now lost 10, the most recent bring twins. I am seeing an amazing specialist at IVF a who is vey proactive about getting all the latest testing done to identify the issue/s. don't be alarmed. Y my sad journey as mine is a rare case. My first 3 losses were with another fs who wouldn't change anything about my IVF cycles and he just did the standard bts you do following m/c. These all came back normal for me and my dh. We then found our current fs who did more extensive testing. He found I have extremely low amh, that is, I'm about to go into menopause even though I'm only 36. This doesn't mean all my eggs are bad but it does mean low egg numbers and unfortunately for me vey poor egg quality. The fs had me try all the latest treatments to improve egg quality with which he has had success with Luther patients but just not for me. He also diagnosed me with elevated nk cells which means my body rejects the embryo instead of protecting it. Many fs's in Aus don't understand reproductive immunology so are reluctant to consider this. My fs happens to be the Australian expert on nk cells, he even designed the test for it so other fs's use his test. The treatments for reproductive immunological issues are vey experimental but this is all we have. We also tried pgd testing but no success for us but I know of others who have had success with this. We have recently moved on to using donor eggs to at least remove the problem of my poor egg quality. This was not an easy decision but if we want a family this is the path we have chosen to pursue. I forgot to mention that after my most recent loss we did more digging, saw an endocrinologist and found out I have insulin resistance as well, this is the precursor to diabetes. This significantly increases your risk of m/c. Funnily enough this wasn't picked up in any of the standard m/c bts all the clinics do. I had to do a special 3 hour glucose fasting bt (for which my endocrinologist is famous for as he specializes in this are and designed the test). I am now on metformin which should reduce my m/c risk in addition to other health benefits. I don't u d'├ętat and why but some fs's are reluctant to use metformin even though no side effects (age old diabetes treatment). Many fs's just don't have enough knowledge of other health issues that can complicate getting pregnant and staying pregnant. I have also see the one and only reproductive immunologist in the whole of Aus. His treatments are based on the Beer clinic protocols from USA and are to be overlayed on your standard fs treatments. He carries out further bts that u can't even get done in Aus, the blood is couriered to USA. If you would like details if my fs, endocrinologist, reproductive immunologist, just pm me. I have learnt a lot on this journey and wished I had more knowledge at the start as might have saved us much heart ache. Please remember that I don't exhibit anything unusual in any of my stanard bts, it's only when digging deeper issues have been found. For the first 3 losses we thought we had unexplained infertility. Any fs who tells you this is being lazy, they should dig deeper and find out as much as they can to help you. I hope this helps you and you find some answers. My sympathies again.




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

Abbott's childcare changes will 'reduce access and add complexity'

The government's childcare assistance package threatens to confuse and intimidate many parents, experts say.

Be careful what you wish for

Remember that chubby little baby who rocked on all fours? Remember how you wished he would start to crawl? Then remember how you felt once he did?

William Tyrrell's parents plead for information as anniversary looms

As the one-year anniversary of William Tyrrell's disappearance draws near, the missing four-year-old's parents have again pleaded with the public for information that could help bring their son home.

Family sleepovers: a tribute to my 1970s childhood

My memories of those nights in my childhood are all about fun: sleepover excitement, staying up late, watching movies we probably weren't supposed to watch ... freedom.

43 minutes of terror: family's agonising wait for ambulance for toddler

It was terrifying. As the minutes ticked by little Cooper Harrison's parents felt more and more frantic.

What not to say to a new mum

Some phrases just pop out before you really think about them, but there are some things you should try to not say to a new mum.

Mummydesking: the new hotdesking

It is a paradise that only working parents of small children can understand: a place to sit for three hours without any interruptions while someone looks after the kids.

Charlize Theron adopts baby girl

A few months after splitting from Sean Penn, the actress Charlize Theron has adopted a baby girl.

Facebook CEO Mark Zuckerberg shares painful truth behind wife's pregnancy

Facebook chief executive Mark Zuckerberg has shared a brutally honest truth about pregnancy in the hope it will help others through dark periods.  

Sugary drinks blamed for removal of toddlers' rotten teeth

Children as young as 18 months are having multiple rotten teeth pulled out as parents feed toddlers soft drinks through sipper bottles, and chocolate biscuits and Milo as bedtime treats.

Mum accidentally fake tans baby

Many of us have fallen foul of a bad fake tan or two, but this little guy's started a bit earlier than most.

Does this three-month-old say 'I love you'?

YouTube user Ted Moskalenko was filmed by his wife, Michelle, as his baby son, Ben, engaged in some baby chat.

Kids break out of daycare centre, cross busy highway

Two children broke out of an early childhood centre and wandered across a four-lane road.

Why I'm glad to be an indulgent granny

The phone calls started a couple of weeks ago. At about 5.30 each evening - if I am lucky - I will be greeted by a sweet, excited voice declaring: "'Allo Annie".

Newborn found in toilet at German airport

A newborn baby found abandoned and extremely ill in a bathroom in the Munich airport is doing well.

Is this the worst relationship advice ever published?

You sometimes have to wonder whether relationship/sex advice from magazines is designed to help or humiliate.

How you talk to your baby now can impact social skills later

People used to think that social skills were something kids were born with, not taught.

Three truths about C-section mums

Lately I've been thinking about the caesarean stories and the brave women who birth their children with strength and beauty.

Scientists predict when you should start a family

Scientists have calculated at exactly what age you need to start trying to get pregnant to have the best chance of realising your dream. 

Differently abled child

When 'protecting' a child is really a cover for judgement

Why are people so concerned for this happy child and his mother?

Get your FREE Baby & Toddler Show ticket!

Get your free ticket to the Sydney Essential Baby & Toddler Show for September 25-27 - register online now.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

When toddlers have strange obsessions

When it comes to two-year-olds and birthday cakes there are a few requests that are usually at the top of the list. But a cake featuring a local personal injury lawyer?

When Mama Bear strikes

When we become mums, our instinct to protect our children and keep them safe from harm is so strong we're often likened to a Mama Bear protecting her cubs.  

Immunity boosters for kids

There are no guaranteed ways to avoid the dreaded winter illnesses completely, but there are ways we can boost our children's immunity.

Yes, you can get pregnant before your period returns post-baby

After giving birth, the last thing you want to think about is contraception. But you can get pregnant before your period comes back.

Mum shares portrait of her proudly breastfeeding three-year-old

Jade Beall usually chooses to breastfeed her son, now 3, in private. This week, however, she shared portraits of her breastfeeding her preschooler.

Dealing with a toddler's morning tantrums

Your schedule is not important to your two-year-old, and you cannot convince her otherwise. So what can you do?

My baby's first seizure

It was 1am on a cold winter's night when I woke suddenly to the screams of my 12-month-old son. Our lives were about to change forever.

MP breastfeeds baby during parliamentary session

An Argentinian mum and politician has caused a stir on social media after being filmed breastfeeding her baby.

Heartbreaking moment mum kisses her one-week-old goodbye

At 11.07am on April 2 this year, Sarah Marriott welcomed baby Sebastian into the world.

The best age to get married (according to the latest study)

Not too young, and not too old. That's reportedly the best age to get married. Not everyone agrees.

Fellow diner rewards mum after toddler's tantrum

Parents of toddlers everywhere know the feeling. After working up the courage to take your child out for lunch or dinner in public you are rewarded with a mid-meal meltdown. 

IVF gender selection being considered for Australian parents

Couples using IVF may be able to choose the gender of their babies and women could be financially compensated for donating their eggs.

The amazing Tee Pee bed and kid-friendly Frankie Bunk bed

These kids' beds definitely fit the brief of providing personality and personal space for little people who are moving up in the world.

The funny things kids say when you're pregnant

Since becoming noticeably pregnant, my son has taken more of an interest in the sibling he'll soon have.

The real problem with having one child

In this age of political correctness, it seems the one subject still subject to discrimination is that of the Only Child.

The fire hazard in more than 70,000 Australian homes

So far, 206 Samsung washing machines have caught fire and some have exploded. But many remain in people's homes.

How having a baby can bring on OCD

We all know that having a baby can turn your life upside down - and it can also bring a raft of new anxieties and worries.

IKEA begins massive safety campaign after two toddler deaths

Two children were killed when pieces from their Malm furniture line tipped over.

Which beauty treatments are safe in pregnancy?

Is it safe to use fake tan, hair dye and nail varnish during pregnancy?

A dad's guide to hyperemesis

I am in no way qualified to advise women on how to cope with hyperemesis, but I've learnt some lessons that might be worth sharing with other partners.

The five ways I know my 'baby' is no longer a baby

The truth is, I can no longer deny that my walking, babbling, somewhat-independent little miss is no longer a bona fide 'baby'.

 

FREE TICKET

See Pinky McKay live in Sydney

Get your free ticket to The Essential Baby & Toddler Show and save $20 - register online now!

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.