Jump to content

recurent miscarriage specialist


  • Please log in to reply
20 replies to this topic

#1 lionguo

Posted 27 March 2012 - 09:38 PM

Hi all.

My wife had miscariage yesterday. This is the fourth time in a row. She is now in a big pain, especially emotionally. Our hearts are broken. We do not have children and we almost loss our hope.

We decide to see recurent miscarriage specialist. We know some organizations/clinics, like Sydney IVF, IVF australia and Genea. However, there are so many specialists/Drs to choose from that we do not know whom to see.

Could anyone recommend proved quality/leading specialist whose specilaity is recurrent miscarriage prevention? PM please.



#2 Spring Chickadee

Posted 27 March 2012 - 09:45 PM

I am so sorry for your losses, I hope your are able to find out what's going on and have it treated.

What city are you in, Sydney?

Edited by Spring Chickadee 2, 27 March 2012 - 09:46 PM.


#3 NotBitzerMaloney

Posted 27 March 2012 - 09:45 PM

Where are you located?

#4 lionguo

Posted 27 March 2012 - 09:53 PM

We are based in Sydney

#5 Libster

Posted 27 March 2012 - 09:57 PM

I am so sorry for your losses sad.gif I don't have any recommendations however I can suggest that while you are waiting to see a specialist, perhaps you can talk to your GP and ask for a blood test which tests for Factor V Leiden gene mutation? People with this gene mutation can have recurrent miscarriages due to the fact that their blood clots more easily. There is another condition called Hughes Syndrome (or sticky blood) which can cause problems too.
I am hoping you get some answers soon. All the best.

#6 NotBitzerMaloney

Posted 27 March 2012 - 10:04 PM

I have sent you a PM.

Have you had any testing done previously? Sorry to be overly direct at such a sad time, but does the opportunity still exist to undertake testing on the latest miscarriage e.g. is your wife is booked in for a D&C?

#7 lionguo

Posted 27 March 2012 - 10:09 PM

QUOTE (Libster @ 27/03/2012, 09:57 PM) <{POST_SNAPBACK}>
I am so sorry for your losses sad.gif I don't have any recommendations however I can suggest that while you are waiting to see a specialist, perhaps you can talk to your GP and ask for a blood test which tests for Factor V Leiden gene mutation? People with this gene mutation can have recurrent miscarriages due to the fact that their blood clots more easily. There is another condition called Hughes Syndrome (or sticky blood) which can cause problems too.
I am hoping you get some answers soon. All the best.


Thanks a lot for your information and comforting!

#8 lionguo

Posted 27 March 2012 - 10:10 PM

QUOTE (NotBitzerMaloney @ 27/03/2012, 10:04 PM) <{POST_SNAPBACK}>
I have sent you a PM.

Have you had any testing done previously? Sorry to be overly direct at such a sad time, but does the opportunity still exist to undertake testing on the latest miscarriage e.g. is your wife is booked in for a D&C?


Yes, she booked D/C next week. What testing can be performed on the latest miscarriage?

#9 Feral_RosieC

Posted 27 March 2012 - 10:15 PM

Hi Lionguo,

Im sorry for your losses.  I have experience with the Recurrent Miscarriage Clinic at Genea (formerly SIVF).  I endured 4 miscarriages before i had some genetic testing.  My GP referred me  to the genetics team at Royal Prince Alfred Hospital and preliminary testing  did identify a genetic issue with me.

I then endured another 5 miscarriages before going through the Genea (formerly SIVF) program which excluded any other contributing factors with my husband and myself before we started on IVF with PGD (genetic testing).

From memory, the waiting time for the genetics clinic at RPA was about 6 weeks.  It involved me speaking with the head of Genetics team (who was also the head of obstetrics) and then having blood tests.    That is when we discovered my issue.  My Fertility specialist put me through the miscarriage management clinic to check that my genetic issue was the only cause and was not combined with other factors.    Please feel free to send me a message if you would like any further information.  The Genea testing is very comprehensive and there is a lot involved, but well worth it in my opinion.

As my issue was identified after blood tests, RPA didn't do any further testing so I can't compare the full range of services (if there are anymore) with the GENEA program.

  I would also recommend the specialist(s) I saw, I can't identify them by name on the forum but am happy to tell you MY experience with them if you wish. Please feel free to send me a message if you would like any further information.

I wish you and your wife well.



#10 tibs

Posted 27 March 2012 - 10:24 PM

.

Edited by tibs, 28 March 2012 - 09:37 PM.


#11 lionguo

Posted 28 March 2012 - 09:26 PM

QUOTE (rosiec @ 27/03/2012, 10:15 PM) <{POST_SNAPBACK}>
Hi Lionguo,

Im sorry for your losses.  I have experience with the Recurrent Miscarriage Clinic at Genea (formerly SIVF).  I endured 4 miscarriages before i had some genetic testing.  My GP referred me  to the genetics team at Royal Prince Alfred Hospital and preliminary testing  did identify a genetic issue with me.

I then endured another 5 miscarriages before going through the Genea (formerly SIVF) program which excluded any other contributing factors with my husband and myself before we started on IVF with PGD (genetic testing).

From memory, the waiting time for the genetics clinic at RPA was about 6 weeks.  It involved me speaking with the head of Genetics team (who was also the head of obstetrics) and then having blood tests.    That is when we discovered my issue.  My Fertility specialist put me through the miscarriage management clinic to check that my genetic issue was the only cause and was not combined with other factors.    Please feel free to send me a message if you would like any further information.  The Genea testing is very comprehensive and there is a lot involved, but well worth it in my opinion.

As my issue was identified after blood tests, RPA didn't do any further testing so I can't compare the full range of services (if there are anymore) with the GENEA program.

  I would also recommend the specialist(s) I saw, I can't identify them by name on the forum but am happy to tell you MY experience with them if you wish. Please feel free to send me a message if you would like any further information.

I wish you and your wife well.


  Many thanks for your kind information.

  My husband and I are deeply depressed and our hearts both are broken now. Your kind information really gave us some hope. Hence, we just wonder to know more.

  My email is : congy515@hotmail.com

  Could you please send me an email? so that we can connect more.

  Thanks again.



#12 kittycat01

Posted 28 March 2012 - 09:42 PM

Hi Op,

I am so sorry for your loss. I lost one last year myself. They suspect my under active thyroid was a factor in it. I'm on meds to regulate now.

Also some people with recurrent miscarriages have trouble with low progesterone levels and require pessaries to keep them up.

Worth checking for these too.

The products removed in the d&c can be analysed to check for genetic abnormalities. Just request it when going for the procedure when you are signing all the paperwork. Repeat it to each person you talk to so there is no confusion.

I'm also another to recommend the clotting factor tests on your wife's blood. I have a friend who had similar history to you and finally had a successful pregnancy once on the anti-clotting meds.

Kitty

#13 Beth E

Posted 28 March 2012 - 10:12 PM

I have PM'd you...

#14 zjb2

Posted 29 March 2012 - 05:22 PM

I have PM'd you as well.

#15 Natttmumm

Posted 29 March 2012 - 05:30 PM

So sorry to hear. If you call ivf aust in the city and ask to see the specialist in miscarriages you will get the right one. He is fantastic and after suffering 2 losses we went there and had many tests done. We found the reason and now have 2 kids. I hope this helps.



#16 lionguo

Posted 29 March 2012 - 06:28 PM

QUOTE (Natttmumm @ 29/03/2012, 05:30 PM) <{POST_SNAPBACK}>
So sorry to hear. If you call ivf aust in the city and ask to see the specialist in miscarriages you will get the right one. He is fantastic and after suffering 2 losses we went there and had many tests done. We found the reason and now have 2 kids. I hope this helps.


many thanks for your kind reply. DO you mind PM me the specialist's name?

Regards

#17 lionguo

Posted 29 March 2012 - 06:59 PM

Thank you all for your kind caring, wishes and information, which gives us hope and faith!

Although it is a tough journy, we WILL proceed.




Many thanks and Regards

#18 Beth E

Posted 30 March 2012 - 07:30 PM

Hi Lionguo

You sent me a PM but I am unable to see it on the screen.  The forum admin/help advised that you should do the following, if you want me to read it.

Go to "My Controls" (under their username on the left of the screen)

Under the Menu (second column on the left) look for the Options subheading and click on Board Settings.

In the Control Panel, look for this bit ...

"Type of text editor to use when posting"

If it is set to Rich Text Editor, change it to Standard Editor (or vice versa).

After that, you will need to re-send your PM and then I should then be able see it.

No worries if you don't want to do this.

Hope all well.





#19 lionguo

Posted 01 April 2012 - 10:07 PM

QUOTE (Beth E @ 30/03/2012, 07:30 PM) <{POST_SNAPBACK}>
Hi Lionguo

You sent me a PM but I am unable to see it on the screen.  The forum admin/help advised that you should do the following, if you want me to read it.

Go to "My Controls" (under their username on the left of the screen)

Under the Menu (second column on the left) look for the Options subheading and click on Board Settings.

In the Control Panel, look for this bit ...

"Type of text editor to use when posting"

If it is set to Rich Text Editor, change it to Standard Editor (or vice versa).

After that, you will need to re-send your PM and then I should then be able see it.

No worries if you don't want to do this.

Hope all well.


I have followed your instruction to change the configuration. After that, I re-sent you a message. Please advise if you got it or not. My email is atmgyh@yahoo.com. Please feel free to send me messages through my email if the PM does not work out. I really would like to talk to you. Is it possible to send me email, leaving me your contact methods? Many thanks!


#20 Natttmumm

Posted 06 May 2012 - 12:31 PM

Sorry tried to pm you but I can't for some reason. Any tips on how to do this, I compose a new message but I get error message saying its only three characters my message which is not right!!! So confusing

#21 Spock

Posted 27 May 2012 - 08:50 AM

Hello, I am truly sorry for the pain and loss you are suffering. I myself have now lost 10, the most recent bring twins. I am seeing an amazing specialist at IVF a who is vey proactive about getting all the latest testing done to identify the issue/s. don't be alarmed. Y my sad journey as mine is a rare case. My first 3 losses were with another fs who wouldn't change anything about my IVF cycles and he just did the standard bts you do following m/c. These all came back normal for me and my dh. We then found our current fs who did more extensive testing. He found I have extremely low amh, that is, I'm about to go into menopause even though I'm only 36. This doesn't mean all my eggs are bad but it does mean low egg numbers and unfortunately for me vey poor egg quality. The fs had me try all the latest treatments to improve egg quality with which he has had success with Luther patients but just not for me. He also diagnosed me with elevated nk cells which means my body rejects the embryo instead of protecting it. Many fs's in Aus don't understand reproductive immunology so are reluctant to consider this. My fs happens to be the Australian expert on nk cells, he even designed the test for it so other fs's use his test. The treatments for reproductive immunological issues are vey experimental but this is all we have. We also tried pgd testing but no success for us but I know of others who have had success with this. We have recently moved on to using donor eggs to at least remove the problem of my poor egg quality. This was not an easy decision but if we want a family this is the path we have chosen to pursue. I forgot to mention that after my most recent loss we did more digging, saw an endocrinologist and found out I have insulin resistance as well, this is the precursor to diabetes. This significantly increases your risk of m/c. Funnily enough this wasn't picked up in any of the standard m/c bts all the clinics do. I had to do a special 3 hour glucose fasting bt (for which my endocrinologist is famous for as he specializes in this are and designed the test). I am now on metformin which should reduce my m/c risk in addition to other health benefits. I don't u d'├ętat and why but some fs's are reluctant to use metformin even though no side effects (age old diabetes treatment). Many fs's just don't have enough knowledge of other health issues that can complicate getting pregnant and staying pregnant. I have also see the one and only reproductive immunologist in the whole of Aus. His treatments are based on the Beer clinic protocols from USA and are to be overlayed on your standard fs treatments. He carries out further bts that u can't even get done in Aus, the blood is couriered to USA. If you would like details if my fs, endocrinologist, reproductive immunologist, just pm me. I have learnt a lot on this journey and wished I had more knowledge at the start as might have saved us much heart ache. Please remember that I don't exhibit anything unusual in any of my stanard bts, it's only when digging deeper issues have been found. For the first 3 losses we thought we had unexplained infertility. Any fs who tells you this is being lazy, they should dig deeper and find out as much as they can to help you. I hope this helps you and you find some answers. My sympathies again.




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

Wondersuit heaven: Bonds & Disney launch exclusive collection

Bonds and Disney fans with babies to buy for will be celebrating this news. Bonds and Disney have just released collaboration Wondersuits.

Town welcomes first baby in 28 years

Since the 1980s, the Italian town of Ostana had not seen the birth of a single baby.

Great-great-grandma delivers great grandchild in her own home

''I've delivered calves, lambs, dogs and cats, but nothing like this.'' This 'Super Gran' calmly peeled the amniotic sac over her great-grandson's head before discovering the umbilical cord was wrapped around his neck ... twice.

How to start teaching your kids road safety

It's something that can be taught as early as possible and reinforced as they get older and more mobile - even from toddlerhood.

Just announced: Bugaboo Cameleon³ Classic+ Collection update

Meet the brand new understated chic model from Bugaboo.

The emotional moment a mum hears her late son's heartbeat

It's been two and a half years since Heather Clark's seven-month-old son Lukas passed away.

Nine reasons why you have 'brain fog'

One minute your productivity is skyrocketing and the next you're sitting there trying to focus – just like that you draw blank, your brain, mush.

I had a caesarean and it was beautiful

Guess what? Despite not pushing him out, I cried, and my heart skipped, and I felt the rush of love and pride when I saw him for the first time.

Microcephaly still a mysterious condition around the world

For parents, having a child with microcephaly can mean a life of uncertainty.

7 baby firsts you won't see on milestone charts

Here are a few 'other' baby firsts you may not have been expecting, but you'll want to be ready for.

Why it's important to vaccinate on time

My son was born on the 1 July 2014. It's a fabulous birthday, don't you think? Not only does the first of July ring in a new financial year, but it also means we've hit the year's half way mark.

Naturopath treatment allegedly left baby "days from death"

A naturopath whose treatment of a baby boy allegedly led to the infant being severely ill has pleaded not guilty to charges against her. 

Andy Murray's emotional speech to pregnant wife after Australian Open

A teary-eyed Andy Murray promised pregnant wife Kim he'd be on the next plane home after his turbulent two weeks at the Australian Open came to an end.

This toddler and his duck BFF will melt your heart

A small boy in the US has struck up a quacking good friendship with an unlikely companion ... his pet duck. 

Great news for coffee drinkers - caffeine is good for your heart

Researchers have found that, contrary to prior belief, caffeine does not cause health-threatening heart palpitations.

I always wanted children - but I've found other ways to be maternal

I've always been one of the most maternal women I know.

When only one parent wants to know the gender

For some couples you either both want to know the gender of your unborn baby, or you don't. For others, it's not that simple.

'No jab no play' could hurt disadvantaged children, experts fear

Tough new "no jab no play" laws could hurt children who have not been immunised due to family dysfunction, poverty, or poor access to medical support, experts warn.

Zika virus: Airlines offer refunds to pregnant women

Airlines and cruise companies across the world are offering refunds or travel credits to pregnant women who are scheduled to visit countries struck by the devastating Zika virus.

#meditateonthis: Mums fight back against PND ignorance

Not all women will require medication, but many will. And there isn't and shouldn't be any shame in that.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Penny Wong

'The most hurtful argument in the marriage equality debate'

Labor frontbencher Penny Wong is used to to hearing arguments against same-sex marriage. But for Australia's most prominent gay politician, one hurts more than others.

Does exercise have to be fun to work?

Some things in life are inherently served with a big scoop of fun: balloons, bubbles, cupcakes to name but a few, but exercise?

Hair dye gives woman second-degree burns

She wanted a fresh colour for 2016, but instead she got chemical burns.

Kelly Slater saves mum and toddler from 'freak wave'

A Perth family has thanked US surfing "legend" Kelly Slater after the star saved a mother and a young toddler from "a freak wave" in Hawaii.

Apple recalls millions of power adapters

Tech giant instigates massive international recall of power point adapters due to risk of electric shock.

Toddler's adorable alphabet goes viral

It's impossible not to share this little boy's excitement  about the alphabet.

Tot's nighttime waking saves family's life

Like all tired parents, Monique and Kyle Ruppel were looking forward to the day their 15-month-old daughter Celia would start sleeping through the night. 

Australian mum gives birth to quintuplets

An Australian mum who has shared the ups and downs of carrying quintuplets has welcomed her five babies into the world.

Dad of four girls faints at gender reveal for fifth baby

It was all too much excitement for this dad.

The simple way you can help your baby's language development

The way parents respond to their child's babbling can shape how their infants communicate.

Zika virus is 'spreading explosively': WHO

The World Health Organization announced that it will convene an emergency meeting about Zika.

National database recommended for child protection cases

Baby Ebony was repeatedly failed by the agencies tasked with her protection before her horrific death at the hands of her father, South Australia's deputy coroner says.

Hospitals put babies at risk by ignoring policy on elective caesareans

Thirty-eight weeks or 39? Non-medical factors are pushing women to have elective caesareans earlier than official guidelines - and hospitals are playing along.

Police help deliver baby on busy roadside

Two police officers delivered more than a traffic fine by the side of a busy Melbourne road yesterday.

1D's Louis Tomlinson shares first photo of baby

One Direction's Louis Tomlinson has posted the first picture of his baby boy, Freddie, on social media.

 

FREE TICKET

Free first aid demonstrations daily

Get your free ticket to the Essential Baby & Toddler Show and save $20 - register online now!

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.