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TTC or Pregnant Hyperemesis Gravidarum Sufferers and Survivors ~ #30


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#1 ~A2~

Posted 22 March 2012 - 08:32 AM

Hi all

New thread time

Previous thread

Regards

Ali


#2 QueenElsa

Posted 23 March 2012 - 09:21 PM

Gold!!!!!!

Yay for me. It's quiet here though.

A busy week with Sage - paeds check, she's gone from 25th to 95th percentile, I wonder if HG kept her small?  After my OB check I had to go back into hospital today for a minor procedure but all is good now.

And 6 week unsettledness has arrived, no more 6 hour sleeps!

Good luck everyone.

#3 Camizebra

Posted 02 April 2012 - 02:12 PM

Hello all, I am a 15 weeks pg HG sufferer and have been furiously reading your previous posts/threads.  I am both super sorry to hear all of your terrible suffering and also relieved to know that I am not alone.  I also love hearing the new bub stories where you are happy and have survived!  Oh my goodness, those are the best stories.  I am so worried that these feelings will carry over when bub is finally here...or that I am somehow stressing the wee one out with all my depression and anxiety.

I have never known such a black hole of desperation as with having HG.  It's relentless.  I started on Stemetil and then just in the past week or so transitioned to Ondansetron/Zofran, which has been a lifesaver.  I do 8mg Ond and then 5gm Stem at about 6pm and 12am (or when I wake to pee).  I noticed that a lot of you girls mention success with Ond so I am hoping that it really works for me.  My worst times of the day are dinner time for some reason and the only food I can prepare is to pour cereal or chop a piece of fruit.  It has been months of a vicious cycle of vomitting, unrelenting nausea and gagging.  I can only stomach raw veggies for dinner and then wake starving/sick in the night.  I feel like if only I could stomach some big meals I would feel so much calmer.  I've noticed on the Ond that the serious fatigue I was getting on Stem has subsided, which is so nice, not to feel like a weird zombie all day.  When I'm on Stem at night it comes back, but doesn't matter as it's night time.  What I am so grateful for is that Ond allows me to finally drink water.  I couldn't stomach drinking any at all before.

I have been to hospital on an IV several times, which was both awful and amazing - like a cool breeze through the body after being so dehydrated.  I'm hoping on the Ond these visits will stop.

All of my life has gone to seed.  No gym, walking, I don't see friends because my stomach is too tempermental and I'm exhausted.  It's been a pretty sad old life.  What is weird is that I have had time off work, but when I'm home and can't sleep it's like torture and I'd rather be anywhere else.  I don't clean anymore or cook.  It takes all the effort in the world just to wash my hair.  This coming from a crazy obsessive and anal person.  I think that's half my mental battle, knowing all the things I should/could/would be doing to have a happy and fulfilling life, but can't.

I have had the WORST thoughts about this poor baby, including regret and the wish that I would miscarry.  Typing that brings tears to my eyes, but in moments of depression what can I say?  My DH has been an absolute saint, I can't believe how much, trying to buoy me on my darkest days.  I am so grateful words can't even express.  I have no family help at all (very long story) so relying on him so completely has been a humbling experience.

OMG!  So sorry that I have just unfurlled this thousand word rant out into the world!  I guess I have had a lot of this stuff bottled up inside and once I got started, well, I couldn't stop.

Thank you so much for listening to my dark little story.  I really hope the Ond works and I can start getting back to myself again.  Or better yet the HG passes as I move through this pg.

I hope that everyone is going well and that I can one day offer support back to those in need of an ear to listen...  xxox

#4 MrsNorthman

Posted 02 April 2012 - 03:50 PM

hey there original.gif

First, many of us have had those thoughts, you're not alone.  I wished for miscarriages every day with my 4 HG pregnancies sad.gif  You are not of sound mind! Dehydration and the sickness affect brain function which in turn affects mood stability, rationality...its awful sad.gif

Glad zofran is workng - do you get it cheap from chemist warerhouse? The other you may want to try thaat many of us found helped is Restavit. Would give me 10hours of peace through the night.

Food wise, have you tried different soups?  I found I could eat a chicken one successfully.  I just would try anything that sounded even half good in my head.  I even ate a chikko roll twice - salt was good wink.gif

I hope it eases for you soon Camizebra original.gif

#5 tinkster23

Posted 04 April 2012 - 06:01 PM

camizebra I think we've all been there, at some point.

It sucks, big time. Its the worst thing I've ever been through.  

I'm just now at 16 weeks coming out of that haze, starting to have days where I'm only sick a couple of times and don't actually feel sick all the time and good god its amazing to not feel sick!

ondacetron wasn't a magic bullet for me, but getting a decent nights sleep (usually thanks to a dose of phenergan) makes a huge difference (waking up to spew was new to this pregnnacy, never did that with the other 2).

I also ate anything that seemed like a good idea, I'd quite often decide on three different things in the course of walking through the supermarket and then have to pick one when I got home.

It will pass. thats the only thing that got me through (that, and that I NEVER have to do this again).

Edited by tinkster23, 04 April 2012 - 06:03 PM.


#6 QueenElsa

Posted 05 April 2012 - 02:09 PM

Hi girls,
How are you all? Sorry to hear you are suffering camizebra. I felt the same way about this baby, wishing for miscarriage. How awful!!  Now I am totally in love with her and she is a joy, a calm relaxed baby. It will pass. There is nothing to like about pregnancy with HG, just get as much treatment as you can, and count down the days. It will pass.

For the evenings you could try a second zofran (I would have it about 5pm so I could eat dinner) or restavit / phenergan (about 8pm for me as it made me sooo drowsy). Acupuncture also helped for me (and I am not the type to do alternative medicine but it really helped).

I found going to work each day helpful just to take my mind off the illness, but if I vomited a lot would come home early. There is no one right way to do it. Talking about the baby or other babies was the only thing that made me happy, focussing on the end point.

Good luck, you will survive.

Glad things are getting better for you Tinkster.

#7 QueenElsa

Posted 05 April 2012 - 02:13 PM

Forgot to tell you how Sage is going - she's thriving!! 5.7kg already, which is 97th percentile. She's growing out of 000 clothes and wakes only oncemostnights (but 3 times last night - yawn).  She is chubby and beautiful like DD1, and calm and happy. I feel so wonderful now that it's just sleep deprivation I am dealing with, and can eat what I like. Everone tells me how good i look now, I think because weight gain is minimal, my skin and hair are still glowing, and I'm not green with nausea. And I'm smiling!!!

#8 tinkster23

Posted 05 April 2012 - 11:27 PM

New low. For only the second time in three hyeperemesis pregnancies I didn't make the toilet. Spewed all over the toilet wall, floor.  Spewed hard enought to wet myself, my eyes watering, coughing up blood, broken capillaries all over my face.


Yay.

Best part, I got to clean it all up as well. sad.gif.

Remind me again why this is worth it.



#9 Camizebra

Posted 06 April 2012 - 01:42 PM

Oh girls, thanks for all your replies.  Even though I am sad that others have had to go through this, I am happy that I am not alone.  I have been feeling more human on the Ondansetron thank goodness.  I still vomit some mornings and gag a fair bit, but the nausea is becoming more manageable.  Now, it's time to try build up my energy and motivation and get life back to some order.  I really hope this lasts and I don't build up a tolerance to the Ond.

mrsnorthman  Thanks for the Chem Warehouse tip.  I currently only have scripts for 4 tablets and it costs me about $35 and I get most of it back from private health.  I will definitely have to check it out, as well as this Restavit.  I will definitely ask my ob.  Thanks also for the soup tip.  I've got to try everything at least once.  It's so funny how one day something is okay and then the next it's like poison.  Damn hg...we've probably never been so challenged when it comes to something we all take for granted like 3 square meals a day.

Tinkster23 Oh no, I am so sorry to hear it.  Hg is literally the worst.  So unforgiving and relentless.  I'm really sorry that medication doesn't really seem to work for you.  I don't know how you've done it two previous times but you have and you made it, somehow.  I wish I knew the answers...

doctorseuss  Oh wow, I just love hearing your happy baby Sage stories.  So comforting that she is a happy and thriving, relaxed baby.  Joy x 10,000,000.

#10 bettymm

Posted 06 April 2012 - 07:09 PM

Hi everyone,

been ages since i had a look here!!

Doctor seuss
  ..so glad to hear how well baby Sage is doing original.gif  My little Noelle is also a very calm happy easy baby, chubby too!  she sleeps quite well at night, she goes down about 8pm and then wakes at 4.30am for a feed then back down til 6 am ish , feed, then in the bed with me snacking while i keep sleeping til 8am.  Only cat naps int he day, but she stays pretty happy tho.

Tinkster.
. Its awful when you miss the toilet sad.gif  i remember doing that last pregnancy...  i disticntly remember my 2 yr old was watching Roary the Racing Car and i had the most sudden urge to spew ever!  got up to race to the loo and ended up spewing all over the carpet of the lounge room, bedroom .  then had to clean it up.  Poor DD was trying to help me.  Awful yucky times.  hugs to you.  It will pass!!!

Camizebra.. bbighug.gif

We all know how you feel.  Its a constant mental battle as well as a physical one with HG.  your life basically just comes to a hault for those months and you start to think "why did i do this???"  i remember just looking in the mirror at this grey face looking back at me, gaunt, unwashed /brushed hair thinking..will i ever be "glowing"? .  Its normal to feel that way.  Dont worry about the feelings transferring to the baby, once you meet him/her you will melt.  

Keep up with the fluids and whatever you can stomach as best you can.  Little bites of whatever you feel like.


Hope it eases soon

Edited by bettymm, 06 April 2012 - 07:10 PM.


#11 Starrydawn

Posted 06 April 2012 - 07:38 PM

CamiZebra i am sorry to hear you have HG. All the feelings you have are normal. I desperately wanted it to end anyway it could. You wont build up a tolerance to the Zofran it's not an addictive drug. But hopefully it keeps you functional on some level.

Tinkster hope you get some better days soon. You poor thing.

Bettymm and drseuss so glad but envious of your good night sleepers. Estella hates sleeping nights and wakes frequently still.

Estella is 10 months old now. Hard to believe. She crawls, stands and has teeth.


#12 QueenElsa

Posted 06 April 2012 - 08:27 PM

Oh Tinkster how horrible!!!  If it's any consolation, I have also not made it to the toilet several times with DD1, and then had to clean it up. And incontinence while vomiting was pretty common towards the end of each pregnancy...My pelvic floor is now perfect again...yay. I think it's very hard to contract the right muscles while vomiting with a big baby bump.

So pleased to hear about Noelle and Estella.  It is so worth it.

#13 BentoBaby

Posted 06 April 2012 - 08:37 PM

Hi Girls,
I hope you don't mind me popping in here. I was never diagnosed with HG but did spend the first 20 weeks of my pregnancy vomiting up to 8 times a day and spending the rest of the time extremely nauseous and feeling generally rubbish. Before 20 weeks I could eat very little and had lost weight by then (not too much of a concern as I was a bit overweight to start). I lived on fruit and juice. I was on both maxalon and zofran up until 20 weeks and my nausea continued for most of my pregnancy. I don't know what the official diagnosis of HG is but some of your stories sound very very familiar to what I went through.

I just had a question for those who went ahead with a second (or third or forth etc) baby. When did you decided to TTC again, how big an age gap did you have and how did you manage? Was the pregnancy the same (or worse!) rather than better? I am expecting to be as sick or worse again and just thinking ahead. My son is 15 months at the moment and I work 1 day out of the home and then run a business from home (but it is very very flexible). My son is not very good at entertaining himself and isn't a TV fan so I'm just thinking through a plan of attack for next time. Last time I ended up taking extended periods off work as I just couldn't function. Not exactly an option with my current lack of sick leave arrangements in my role as SAHM Tounge1.gif

Thanks so much for reading this far!

#14 BentoBaby

Posted 06 April 2012 - 08:44 PM

QUOTE (tinkster23 @ 05/04/2012, 11:27 PM) <{POST_SNAPBACK}>
New low. For only the second time in three hyeperemesis pregnancies I didn't make the toilet. Spewed all over the toilet wall, floor.  Spewed hard enought to wet myself, my eyes watering, coughing up blood, broken capillaries all over my face.


Yay.

Best part, I got to clean it all up as well. sad.gif.

Remind me again why this is worth it.


Oh tinkster I really really really feel for you. This happened to me twice during my pregnancy. I ended up sitting in the shower balling my eyes out. Oh hun, I just want to give you a huge hug xx

#15 BentoBaby

Posted 06 April 2012 - 08:49 PM

Re the Zofran, not sure how much Chemist warehouse is but I used to get 10 wafers (4mg) for $40 from the pharmacy at the hospital which was a lot cheaper than I'd seen other places original.gif

#16 QueenElsa

Posted 06 April 2012 - 08:56 PM

Hi mtilly,
Definitely sounds like HG!  Each pregnancy was slightly less vomiting but mentally harder... Not sure why, maybe because i always wanted a child but going again was not essential, maybe because I knew it wouldn't end until delivery by DD3 but first two times I always thought it must be about to end.

Anyway I pretty much convinced myself and DH that it would be better, I'd take more drugs, maybe have a boy.... But each time I was wrong.  I didn't take zofran with DD1, only took it from 14 weeks once a day with DD2, took it from 7 weeks up to 3 times a day with DD3.

DD2 is 20 months younger than DD1, but DD1 was a lovely calm baby and areliable sleeper day and night so we coped. DD3 is 3 years younger than DD2, but the girls go to childcare 3-4 days a week (and I worked shift work) so if I was too sick to work I would be home alone. They have watched more ABC2 than I am comfortable with but I did my best I could with the illness I had.

And in the end it is worth it. (well 3 times, never again)  There is a lovely lady with 5 kids and terrible HG, hopefully she'll come in and tell you how she can do it.

#17 BentoBaby

Posted 06 April 2012 - 09:05 PM

Thanks doctorsauss. I have a son, is HG normally worse with girls? Ahhh... hoping for a boy again then!!

My son is a good day sleeper but still wakes once at night for a feed. He was a really really difficult young baby (severe reflux, dreadful sleeper etc). He's still medicated for reflux but it is fairly well manages now.

We were thinking maybe 2.5 years between babies, close enough I could still nap during the pregnancy when he naps but not so close that he's totally dependent on me (ie he could feed himself etc). It's such a hard decision because I remember feeling like I would NEVER EVER go again and even after he was born I felt the same but in reality we'd really love 3 kids.

#18 Starrydawn

Posted 07 April 2012 - 12:40 PM

Mtilly my sister had a boy and had HG and I had a girl and had HG. What they have found is if your sister had HG you are 17 times more likely to have it. If your mum had it 3 times more likely. Usually subsquent pregnancies are worse but some people can have a HG free pregnancy for a second one and then have it return for a third pregnancy.

I wont be finding out as I am only having the one.

#19 MrsNorthman

Posted 07 April 2012 - 12:51 PM

mtilly. you had hg, i'm willing to bet its in your medical notes somewhere.

I've had hg 4 times.

2 year age gap between 1 and 2. i needed help for dd1, couldn't do it by myself.
'
dd2's hg was worse than dd1's and lasted 4 weeks longer.

preg 3 the hg was horrific. the pregnancy did not continue.

dd3 the hg was the "best" out of all though it lasted the longest by 4 weeks.  i coped looking after dd1 and 2 though there was a couple of weeks where the were thrown packets of cheezels and dh had to come home early for those 2 weeks so they could get dinner.

#20 BentoBaby

Posted 07 April 2012 - 09:24 PM

Thanks girls, it sounds like I won't know until I'm there! I think I'll be back here when the time comes original.gif

#21 Feral_Pooks

Posted 07 April 2012 - 10:32 PM

Camizebrav I'm sorry you're going through that, all I can say is that I had all of those dark feelings too and sometimes I got myself through the tough times by telling myself that next Monday I'd get an abortion if I needed to, then Monday would come and I'd tell myself I'd test it out for another week. All I can suggest is availing yourself to every possible kind of support that you can, and making sure that you ask for help from medical people and those in your life who you love, and keeping your eyes on the prize. Also I found distractions really helped, so whatever works for you... something to take your mind off it even if just for 20 minutes. You'll find the ladies here amazingly supportive. I don't think I would have gotten through it so well without EB.

tinkster23 I'm so sorry. I remember those days well. They pass but they do last an eternity. I hope you're getting through the worst of it all now. It's just so unfair that you have to go through this and if I could take it away from you I would. You'll get there one day at a time.



#22 J-A

Posted 13 April 2012 - 06:07 PM

Hi all,

Sorry i haven't been on for ages but just wanted to quickly update you all. Piper Grace was born via c-section this morning weighing 7 pounds 4 ounces and 48 cm long. I have to say extremely happy if a little suprised we have a little girl to add to our family. On phone so will update properly once home.

Thinking of you all, sorry to those still on the hg journey.

j-a

#23 mountainmum

Posted 15 April 2012 - 09:38 AM

Hi ladies! Been ages since I was on last. Thought I'd swing by a give you all some hugs.

I know how tough it is. You're all doing great.

J-A, WAHOOO!!! That's soooo fantastic. Congratulations to be through HG hell and have you're gorgeous bub!

Everyone else still on the HG rollercoaster -- many hugs, thoughts, parayers.

xxx



#24 Guest_HopeFaithLove_*

Posted 17 April 2012 - 01:11 PM

*

Edited by HopeFaithLove, 22 April 2012 - 03:39 PM.


#25 hollysmama

Posted 17 April 2012 - 01:27 PM

Hi all, I haven't been in for a few months. I feel I didn't really belong seeing as how I was feeling half normal during my second trimester.

I'm so sorry some of you are still suffering so badly. I have been fairly lucky in the fact that I can get through the days feeling almost normal, my only lagging symptom is heaving in the mornings.  Most mornings I struggle to keep my breakfast down and all I can do is lie down until it passes. I'm usually feeling pretty good by about 9-10am.  I'm very much looking forward to getting this kid out. Only 6 weeks to go!!  Hopefully a bit sooner.  It's so frustrating when people ask how you are going and they just don't understand how miserable this feeling is.  I feel so sorry for those of you are sick all day for 9 months. I remember in the beginning how depressed I was feeling because I knew what to expect. And going though those first 3-4 months felt like torture.  I was in such a dark place, I regretted my decision to fall pregnant again, and if there was an abortion pill sitting in front of me, I would have taken it.  But I feel so good that I have gotten through it, and so glad that I didn't do anything I would have regretted.  I can't wait to meet my little boy, to see his face and hold him for the first time.

Anyway, sorry for rambling. Congratulations to all of you who have had your babies.  And I'm so glad you are all able to move on with your lives and enjoy your family.  I can't wait to feel like me again, and do things with my daughter.  

hopefaithlove I'm so sorry for what you have suffered. I wish I had some advice on how to mentally prepare yourself for another pregnancy, but I don't I'm sorry. I think this is the sole reason we will not go back again. 2 times is enough, I couldn't possibly go through another pregnancy and come out the other end mentally/emotionally unscathed.  I hope someone here has some good advice for you.






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