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Symphis pubis disfunction ~ # 20
25 replies to this topic
Posted 10 April 2012 - 02:32 PM
I have never posted in a forum before, but a friend directed me here and I am so glad I have found you! I am 31 weeks and have been in agony from the front of my pelvis when walking, sitting, lying down (oh my the lying down... ) for about a month now. I went to my GP who said "it's probably the position of the baby, take paracetamol and have a warm bath". I spoke to my midwife who said "oh yes, very normal, here try some tubigrip" and sent me away. In the interim I had a fall where I nearly did the splits (OUCH!!) and went to a different GP who wanted to simply sign me off. By that time I had done some Googling and asked to be referred to a physio. Sadly I can't find a specialist near me (Sydney's Northern Beaches) and ended up at a general sports physio. He gave me some exercises designed to help strengthen my pelvic floor and got me a support belt but told me that there was little he could do to make it better.
I have tried the support belt twice so far and both times it has kicked off severe lower back and lower abdomen cramping that lasted on and off for a couple of days so I am a little scared of it now! Didn't really find that it helped that much for the few hours it was on either. Sigh...
I am going to see my midwife again this week and will discuss it further. I am just surprised that no one seems to either know much about it, or take it seriously! So it is heartening, yet also sad, to find so many people on here that understand the pain. Everyone's first reponse is "oh yes, bad back eh? That's normal I had that too." Um no. I feel like I have been hit between the legs with an iron bar, am frequently unable to lift my feet off the floor because of the pain and walk holding onto things. I am also starting to get very sleep deprived because I can't move in bed without my pelvis clicking, cracking and feeling like it is being pulled apart at the front every time I move. Work is starting to get difficult because I have an hour commute, get stuck in front of a computer or on the phone for hours on end and then cannot stand up.
So far I have tried sitting on a gym ball, icing the area, using heat packs, sleeping with a pillow between my knees, sleeping propped up on the sofa, physio, walking, not walking, baths, crutches but so far nothing seems to be helping...what else is there???
I am going to make sure I speak to the midwife about birthing positions, and have read that all fours, on the side and in water are good ideas. I have no other indications of needing a c-section, and from the responses of my medical advisors so far they are unlikely to take my pain seriously enough to suggest that anyway. Is there anything I have missed that could help? Or does anyone know of a good person (physio/chiro/osteo) to go to on the Northern Beaches, or even in the CBD that could offer some more help or at least admit that there is something going on?!!! I am getting so sick of people telling me that it is a "normal" part of pregnancy. Well it might be normal, but that doesn't mean it doesn't REALLY HURT!
I hope all of you are feeling ok today and are, like me, pleased to read all of the good news stories of the ladies on the previous thread who have had their babies and recovered well afterwards! Lets hope more of us have lovely things like that to post in the future!
Posted 13 April 2012 - 03:18 PM
Hi, you poor thing, it sounds terrible! I have SPD too, but you definitely seem to be having it much worse than me! The only thing that seems to be working for me right now is complete rest, so if you can take time off I would say do it. I'll be feeling better then will go out to the shops or something and aggravate it again, so resting as much as possible is the main thing working for me right now.
You're right about the medical advice, there doesn't seem to be much that can be done, just heat packs on the back and ice packs on the pelvis, that's what i've been told. This physio has been recommended to me: Julia Schwarz, Suite 4 54-60 Briggs St, Camperdown, NSW, 2050 (02) 95162612. She's right beside the RPA hospital, not sure if that's any help. Hope you feel better soon!
Posted 23 April 2012 - 03:50 PM
I feel your pain I really do! My first pregnancy I was on crutches - the pain was unbearable!
I had never even heard of anything like it or felt anything like it! I was undiagnosed. The pain started at around 22 weeks (I should mention I was pregnant with my twin daughters). It started on one side and ppl and drs thought it was sciatica. But it got much worse. My midwife (40 years plus experience) said she had never seen anything like it! Yikes!
I ended up walking with crutches to take the pain off my hips. No-one (tried Physio, ultrasounds - to see if there was something wrong, saw an Orthopedic Surgeon who suggested cortisone injections - I refused as I didn't know how that would affect the babies).
I found that every time my daughters heads were pressing on my hips that's when the pain would be at it's worst. And twin A was always head down....!
The good news is that once I had them pain was all gone! I was stressed that I would be dealing with the c-section pain as well as the hip pain but all turned out well.
I'm now pregnant for the second time (just 1 baby this time) and hope that there will be no pain this time round!
Good luck OP! It's worth it in the end.............
Posted 11 July 2012 - 10:22 AM
Hi Im 29.5 weeks pregnant with bubba 2, had no problems with ds but was diagnosed at 23 weeks this time with spd. I have a support belt which helps sometimes but other wise I need pain relief to be able to even get out of bed! I was hoping someone might be able to help me with a question as I don't see my ob for another month. I'm a bit worried that the belt might restrict bub being able to drop down into my pelvis when its time for her to do so. I'm guessing the belt is probably to low but I cant get it out of my head for some reason. She definitely hates me wearing it, if Ive had it off she will start kicking as soon as I put it on! Also what has help you ladies get comfortable when you sleep? If I put a pillow between my legs it hurts more, I currently have to sleep with my belt on as well or I end up in so much pain after an hour or so. If anyone has any advice on what helps I'd really appreciate hearing it, I'm still currently working as we are self employed & having trouble finding someone to replace me so giving up work as planned just isn't an option right now & the doctors that keep telling me to just don't seem to understand the impact it would have if I was to leave now.
Posted 30 July 2012 - 11:39 PM
OP, I share your frustration about the lack of information and understanding about SPD from a great majority of medical professionals. I don't think that the majority of people understand just how excruciatingly painful it can be. I was lucky to find a physio whose wife (also a physio) suffered with severe SPD when pregnant so my symptoms were taken very seriously and I was treated to manage my pain as best as possible. My sports physio's wife also suffered from SPD, so when I was referred to him from my physio I was again taken seriously.
Have you tried cold / heat packs (I lived with a heat pack between my legs from 16 weeks with DD and 13 weeks with DS!)? Depending on how severe your symptoms are, it might help to have your back taped by a physio. Mine was taped once a week and I hung out for Taping Day . A SIJ belt and belly belt combination might also help, as will mobility aids such as crutches or a walking stick.
I hope your SPD disappears after the birth of your baby and you are not one of the 7% of women for whom SPD does not go away. If you are in the unlucky 7% (like me), then set yourself up with a good specialist team. As well as my physio and my sports physio I have a remedial massage therapist, a chiro, a podiatrist and a psychologist.
This is a horrible condition.
ETA @impatientmummy, the cushion/pillow between the legs was excruciating for me, too. The only way I could sleep was on my back.
Edited by sephora26, 30 July 2012 - 11:43 PM.
Posted 24 August 2012 - 11:02 PM
I just purchased a pair of pregnancy shorts from recoveryshorts.com. They are $202 with postage. I was 17 weeks when OB noticed the warning signs; lower back pain, hip pain and a tender (very very very) pubic bone. She was very concerned as it is REALLY early to develop these symptoms. She suggested the shorts and after two weeks of uming and ahing over the price, I bit the bullet. I still get sciatic pain, but the ache in my hips has lessened. They are very thick and go down to my knees, so not sure how I'll go in summer. Good luck ladies.
Edited by Mousky, 24 August 2012 - 11:03 PM.
Posted 25 September 2012 - 06:53 PM
Hi, I'm newly pregnant (4wks) but interested in reading this post. I'm very scared of spd and I know its onset is imminent as I am hypermobile which means I already have loose joints and get hip pain walking and can feel it worsening at this very early stage even with the slightest rise in relaxin levels. I plan on telling my close friend who is a womens health physio about my pregnancy earlier than I would want to, to try and get some exercises and tips to get on top of it early. Definitely scared of what the future holds for my poor pelvis!
Posted 10 January 2013 - 04:44 PM
I am another new one here.
I have just gotten home after spending the night in hospital. My pelvis has slipped and I was referred here by one of the ladies in my DIG.
I am 22 +3 weeks pregnant.
I have had painful hips (crunching and popping as i walk and move) recently and on tuesday all of a sudden i was in agony. Finally went to the ER yesterday after no sleep on tuesday night and they admitted me.
I have been referred to the physio at the hospital (who has already seen me twice in 2 days) who has got me to come in bi-weekly until she feels i am ok.
also i have an appointment with the orthopeadic surgeons on monday to see if there is anything else we can do, and also determine if i need to get an xray, they think i might have fractured my pelvis during the last 2 days, due to the amount of pain i am in.
I have a very active 2 year old at home so alot of my "do not do" list involves things for my son.
Posted 13 January 2013 - 04:20 PM
Wow, never knew there was an SPD support group here.
Is it ok if I include my sciatica (well, technically sacro-iliac joint related pain). I have both sciatica AND SPD.
I have had the sciatica since 20 weeks and the SPD since about 28 weeks. Currently 30+3.
Its pretty bad. I have been to the physio and I have a support belt plus those SRC shorts. They help but not much. The physio said she can't do anything more for me.
The pain is so bad that at its worst I get no sleep, panadeine doesn't touch the pain and I end up wishing for a c/s then and there! I have constant sciatic pain and the SPD is mostly movement related (like if I open my legs too much). It's difficult and painful to walk around (and sit for too long too) and I dread stairs and sleeping. Sleeping is when it is worst. I hobble around like an old lady! When it's really bad I find myself wishing for crutches or a wheelchair. Yep, I'm in a bit of a sulk.
Anyway I'm dreading another 10 weeks of this and am hoping some of you understand what I'm going through, it looks like some of you (unfortunately!) do.
As a side, I have quite a few mobile joints too but not enough to be officially diagnosed as hyper mobile or anything.
Mum of: that sounds positively horrible!
Posted 13 January 2013 - 05:07 PM
cyaira, I definatly understand what your going through, although i have another 17 weeks before i am due
I am already looking at a c-section as i have been told my pelvis might shift during labour and i wanted a natural birth again....
is this your first baby?
Posted 13 January 2013 - 05:15 PM
17 weeks!! Oh no *hugs* that truly sucks. I hope you have a good care team.
What does it mean if your pelvis shifts during labour? I was kinda hoping my mobile joints would make the process easier, but maybe that's just wishful thinking for something good out of all this!
Yeah it's my first baby... Its nearly enough to put me off having another and I heard it gets worse each time.
Posted 13 January 2013 - 05:21 PM
Luckily for me I have the Randwick womens hospital looking after me, and so far they have been amazing
Pelvis shift during labour for me means that during my labour my pelvis could move, effectively blocking the babies path out :-(
I didnt have this with my son, and just because you have it this time doesnt mean you will have it next time, just means your more likely to :-(
Posted 13 January 2013 - 05:35 PM
Just found this thread from "we are discussing" I had PSD from about 30 weeks. I was with the RHW in randwick to and got to see the physio for free from about 34 weks . They were good but are limited in what they can do that late in pregnancy. Luckily the pain went away as soon as the baby was born - So hang in there ladies, on the down side my GP told me it would be worse next time
My question is probably a bit shallow. I am not sure if it is directly related to the PSD but my hips have widened significantly and are now at least 2 clothing sizes larger than pre pregnancy - I have gone back to my prepregnancy weight its just the hips. My baby is now 7 weeks old - a friend gave me a belt that is suposed to help, but I think it is too late now.
Anyone else have this problem?
Posted 13 January 2013 - 05:45 PM
Chief Pancake: I am still pregnant, but my hips have increased in size by at least 10cm and I haven't really put on much weight so I expect I'll have the same problem. I would think that 7 weeks postpartum definitely not too late to start using the belt though - why don't you try and see how it goes? Can't hurt, can it?
Posted 13 January 2013 - 05:57 PM
Okay so my DS is now 3 and I just read something about a percentage of women having ongoing issues and I really think it's time I admitted I'm still in a lot of pain and how to I go about getting help? I had SPD and sciatica and needed a carer to help with things from about 34 weeks onwards - couldn't walk much at all from about 30ish I think. I did see Julia Schwatz but didn't really find it that helpful. Did the hot/cold thing, pillow thing and support belts and such.
Anyhow I had a horrible on my back labour and pushing with legs apart and people pushing my head down to my chest while I had an epi (that ended up giving me a spinal headache and weird back zaps for days at injection site) which is the worst thing to do and couldn't walk much after birth for weeks.
Now I still have pain almost every day if I think about it. Not severe all the time but enough that I can't sit on a bench seat for example with out standing up and not being able to walk properly. Feels like my lower back is frozen, can't stand to have it touched, it gets worse around periods with full on similar symptoms like pregnancy. I limp at times and if my son jumps on me and puts pressure on my hips, especially my right one I'm in agony. At it's worst I swear something feels like it's "broken' the pain is that bad.
I'm worried a GP will just say it's weight related - I'm 95kilos and have been since 16, and even pregnant didn't put on much so I've been constantly the same size.
Where should I go for help?
Posted 13 January 2013 - 07:22 PM
Tecopa, better to see your doctor than not to see your doctor, although they may say its weight related there may be underlying issues....
Cheif pancake maker, i have no idea how much my hips have increased insize, i suppose tomorrow when see the orthopedic surgeon and probably get an xray, they will tell me how big the gap in my pelvis is.... I am sure the belt will give some help, if not head back to your GP and find out if there are other options for you.
Posted 13 January 2013 - 07:39 PM
I just wanted to drop in and say I hope things get better for you all soon. I had SPD from about 24 weeks and the pain was soooo bad. I was having physio twice a week for a while, but it didn't really help, and I felt like I needed a wheelchair a lot of the time (if sitting wasn't so painful).
Make sure that your OBGyn knows you have this and you discuss what positions are best (if you plan to have a natural labour). If you don't have an understanding ObGyn, talk to the nurses at your hospital when you go in.
I told my ObGyn but he didn't listen and wrenched my knees apart. I swear it hurt more than the contractions at that stage If I go for another baby again, I will be crystal clear on this point, that's for sure...
All the best,
Posted 28 January 2013 - 02:58 PM
I sympathise with everyone suffering with this painful illness!
I'm 25-weeks with DS2 and have had SPD symptoms for about 6-weeks (I didn't have it with DS1), but was formally diagnosed 2-weeks ago. I'm having a CS on the 1st of May, and the clicking in my pelvis/pubic bone area has started, along with serious immobility (probably only upright for 2hrs a day at the moment, always icing, Panadol, fish oil, belly belt, etc). I'm really scared about how bad this is going to get and if it will/won't go away after DS2 is born.
I'm located in Brisbane North-West and I'm looking for a good physio/chiro for any help/treatment. Any suggestions? Please feel free to message me details.
Edited by Jenganoosh, 28 January 2013 - 10:35 PM.
Posted 28 January 2013 - 05:38 PM
Hey all i have only just found this thread, I have spd and unfortunately i had it with my last 2 pregnancies as well, it has started alot earlier this time, but am trying to manage it as best i can im getting a belt soon, just waiting to get into pysio and see what other exercises they can do any suggestions for time being,
I sit down to get dressed try not to carry to much heavy stuff try not to do too much but very hard with 3 active boys
Posted 28 January 2013 - 08:00 PM
Hi everyone, I'm starting an Australian PGP support network. It's online. If u are interested in joining please pm me. I have had it for 3 months post birth this time and spent half of that on bed rest I think there is a need for women like us to connect as this has been very isolating... I hope none of you have to go through what I have been through. Third birth and the rest were fine!
Posted 28 January 2013 - 09:18 PM
Edited by EffiesMum172, 08 February 2013 - 01:57 PM.
Posted 28 January 2013 - 11:08 PM
I'm only 2 weeks so I'm hoping my twinges are psychosomatic! However I never really fully recovered, so they quite possibly aren't
The emotional effects in previous pregnancies have been almost as bad or worse as the physical - the fear that the pain will never go away and I'll be disabled for life and have to never return to the hobbies I love
Anyway. Good luck to us all.
Posted 05 March 2013 - 03:41 PM
I suffered from Pubis Symhysis pain in my pregnancy and was told it was "minor" and "would resolve itself". After more than 2 years of crippling pain and enormous disability I had the joint bolted back together with pins and a plate. That was 21 years ago and I continue to suffer chronic pain.
If you have this condition - please take it very seriously. The expert in this field is a Physiotherapist, Barbara Hungerford, who completed a Phd in Pregnancy Related Pelvic Dysfunction. Her practice is in Haberfield - however she has now trained many phsyios, nurses and doctors. It is worth going to her for an initial assessment though.
The pubis symphysis is the largest weight bearing joint in the body - if it is permanently injured it will cause life long pain and disability. However, with the right treatment and advice, you can recover full function! I never want to see anyone else go through what I went through. Please take care!
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