Jump to content

Fibromyalgia & Chronic Fatigue during pregnancy and beyond
FM, CFS and all similar sharing experiences and coping tactics


  • Please log in to reply
8 replies to this topic

#1 red2012

Posted 23 February 2012 - 05:16 AM

Hi all,

Wondering if there is anyone out there who is going through pregnancy and motherhood with Fibromyalgia, Chronic Fatigue or similar? How are you doing and how are you coping?

Hoping we can share experiences and coping tips with each other!

Myself, I am 25 and pregnant with my first child. I was diagonosed with FM when I was 14 after about 1 year.

Hoping there are other out there willing to share.

Red original.gif

#2 ~MakkaPakka~

Posted 23 February 2012 - 02:21 PM

Hi original.gif

I was diagnosed with CFS in 1999/2000, It was a direct results from an acute case of EBV (glandular fever)  I was left with a lot of complications and only healed to a point.  

I was in a crash for about 3.5 years, it was not nice, I was pretty much bed bound most of the time.

I found an awesome GP, was placed on AD's that worked great as well as started gradual exersise and pretty much live at around 65%-75% (energy levels ect) of what I was before I became ill.

I have gone through 4 pregnancies and births and only had a very few issues with CFS.

It was not untill late last year when I began to crash again.  I have been studying (in my third year doing a Bachelor of Nursing) dealing with the kdis and housework, DS is diagnosed with PDD-NOS (asd) and has a lot of extra appointments and therapies to do at home.  

I have been having B12 injections every three-four days, I am taking 2 x high dose coenzyme tabs along with one high dose vitamin B tablet daily.  I am also taking 2 panadol osteo at night time.





#3 nzbee

Posted 23 February 2012 - 02:29 PM

Hi!  I was diagnosed at age 16 after 5 years of ME (CFS).  It was really hard going through high school and missing out on a lot.  But I did end up with some really great friends out of it!! (you soon learn who your real friends are when you can't spend time with people anymore).

I got pregnant with twins at 21, they were born just after my 22nd birthday.  I found that being pregnant actually stopped my symptoms for quite a while.  None during pregnancy and I got pregnant again when my twins were 5 months old, so I didn't have any symptoms until my 3rd child was about 18months old.  Then when I got pregnant with my 4th child (at 25) I didn't have any symptoms again during the pregnancy or until about 1 year after her birth.  My children are now 9, 9, 8 and 5.

I now find that my symptoms are no where near as bad as when I was younger!  I was bedridden at one stage when I was about 16-17, but these days I find I only have mild symptoms every 6 months or so.

The part I find hard is that my husband didn't know me when I was at my worst so he doesn't really get that I can't do much about being tired etc when I have an episode now, and thinks I am just being lazy and should just get on with things.

#4 Paddlepop

Posted 23 February 2012 - 02:52 PM

I'm 32 and have had CFS since June 2000 when I was 20. I have a super energetic 2 year old daughter. I also have a husband who does the cooking, folding, putting away of laundry, vacuuming and lots of other things.

I was in my final year of uni when I got sick with EBV (gladular fever). It developed into CFS. I managed to complete my degree (yay!!) and graduated with my class. I haven't ever worked since graduating because I am too tired.

I kept hoping for a few years that I would get better, would push myself and then relapse, recover then relapse, and finally learnt to pace myself and deal with the illness better.

After a lot of thought and discussion my husband and I decided that we were ready to have children. CFS had taken so much from me but it wasn't going to take becoming a mother from me. We then went through 2 years of trying to conceive during which time we found out that I had a blocked fallopian tube. We did IVF, I got pregnant on the second embryo transfer, and then had my daughter in January 2010.

She is such a bundle of energy! Complete opposite of me! I wish I had even 10% of her energy. Even my husband gets tired from her energy level. Her high energy can be very difficult for me to cope with. Most nights once my husband is home from work he has to take her outside and play with her to tire her out a bit because I can't. At least I know that she doesn't have CFS.

I found the pregnancy to be quite easy to deal with in terms of CFS. I was completely exhausted in the first trimester but that was due to normal pregnancy exhaustion. Second trimester I felt great, third trimester I swelled and developed mild pre-eclampia. I was really worried about how I would cope during pregnancy but I was fine.

Thankfully my daughter is a "good" baby. She has always slept well and is happy (apart from when she is teething). We bottlefed because she refused to breastfeed at all. In hindsight, it was the best thing for me because I wasn't responsible for every feed, and will do it again when we have a second child. My husband would do the 2am feed and I would do the 5am feed. This way we each got 6 hours straight of sleep and it really helped us both to cope.

He has always done all of her baths. This gives me a 30 to 60 minute break from her (she loves playing in the bath) and I also don't need to expend that energy. They have heaps of fun together anyway, and there is usually laughter coming from the bathroom.

My CFS is still the same as it was prior to pregnancy. Some say that their CFS will go into "remission" and improve after pregnancy but mine hasn't. It also hasn't got any worse.

We are planning to wait at least until our daughter is 3 years old before we consider trying for a second child because I couldn't cope with 2 small children who need heaps of hands-on care. Once she is toilet-trained, can talk, walk and feed herself properly then we can try for the next child! On upside of infertility is that we are really unlikely to accidentally fall pregnant!

I'm happy to share what I have done to cope with CFS and a child. My biggest coping strategy is a husband/partner who will do whatever is needed and is hands-on with the child. Without that I would not cope at all.

Edited by Paddlepop, 23 February 2012 - 02:53 PM.


#5 chicken_bits

Posted 24 May 2012 - 12:04 AM

Just found this thread.

I've had CFS since 2006 and now have a 4 month old DD. During pregnancy my symptoms improved dramatically and I still feel as though I have more energy than pre-pregnancy. My biggest issue at the moment is that my previous coping strategy was pacing. However, with a baby (and a breastfed one at that) it is extremely hard to pace.

She was a great sleeper until about 3.5 months and now she's waking up several times in the night and not settling well at all. She has pretty bad reflux that we're attempting to treat. DH is a wonderful help but there's only so much he can do because he works.

I'm beyond stressed at this point. Afraid of how much my body can handle. I'm on waiting lists for sleep schools and I have a great GP... I just don't know if I can wait that long. Any suggestions?

#6 wintermint

Posted 12 June 2012 - 02:54 PM

Pregnancy brings back my CFS with a vengence!  Hence the almost 6 year gap between children.  I've had cfs since 1993 - glandular fever, chicken pox, appendicitis and several ops helped trigger it.  I can only cope with one energetic child at a time.  Especially as neither of them slept through the night until after they were 2.

#7 kate_123

Posted 16 October 2012 - 05:27 AM

Hi anyone still out there,
I know this appears to be an old thread but I would like to restart it if there are any other newbies out there. Im 27 and TTC. Had a very early miscarriage a few weeks ago and I'm hoping to be pregnant again already but too early to test. I have had cfs for over 5yrs. I manage to work 3days a week as a nurse and cope 'ok' but am obviously very nervous about how my body is going to react to pregnancy and beyond. Things I am particulary concerned about during pregnancy is my blood pressure (I have POTS), my pelvis (I have hypermobility syndrome), coping with morning sickness, lack of sleep and sick leave at work (feel a lot of pressure not to take any and push through). Anyone out there at the same stage as me or got any advice?

#8 Synkitty

Posted 25 April 2013 - 07:33 PM

Hi everyone,
I know I am really late to this thread but I am really glad to hear about other people with similar problems and how they have dealt with them, if anyone has any advice for me it would be greatly appreciated.
I struggle with chronic pain, fatigue and mobility issues (I use a walking stick) after being hit by a car nearly 3 years ago, although not officially diagnosed with fibromyalgia I have the same symptoms. My husband and I were trying for a family when the accident occurred but we were told we needed to wait afterwards in the hopes I would recover from the injuries, after 2 years we were given the go ahead as we realised that I am probably not going to improve any further. I was worried about trauma to my abdomen causing fertility issues so we visited a fertility specialiste and found that although there doesn't seem to be any obvious damage from the car I do have a dydelphic uterus. Because of some other issues we were told we had most likely a nonexistent chance of conceiving naturally and would require ivf, which was fairly devastating as the cost was prohibitive for us to say the least. So I was extremely surprised when I visited my gp a few months later thinking I had some sort of bug and found that I was 6 weeks pregnant, I think I stayed in disbelieving shock for at least 3 weeks after so many things that had gone wrong in the past few years, something finally was going right. We found out that we were lucky we had already had the diagnosis of a dydelphic uterus as it is hard to diagnose when already pregnant and needs extra monitoring, I am currently 4 months in and so far everything is going ok although my Dr has advised me to rest as much as possible.
The first trimester was really difficult with terrible morning sickness and my pain levels skyrocketed, thankfully it has settled a little in the 2nd trimester.
I worry a lot about how things will go with the pregnancy, the thought of how many things might go wrong is terrifying and I want to be as prepared as I can for when the baby comes to make things a bit easier. Does anyone have any suggestions on equipment or anything at all that will help, my husband is very supportive but my family lives far away which will cut down how long my mum will be able to help out.
This is my first child and I am really excited but would like to be as prepared as possible so the burden doesn't fall on my husband as much.
Any advice would be appreciated

#9 Mummabear2014

Posted 15 May 2013 - 06:06 PM

Hey all going through a difficult situation
with not much support and severe ME and fibro
among a list of other issues (high blood pressure, gatsrointestinal issues,pcos, respitory, and the list goes on)

The thing that worries me the most is having a bub while im suffering so badly from ME taking care of the baby during the day while hubby is at work.
At the moment I already sleep most of the day We just found out we are 6 weeks pregnant but im so convinced I wont be able to get through it all
especially being well enough to get through the days after giving birth. Hubby wants to continue but I dont know what to do.
There seems to be no real help around in melbourne and the nurse nannys cost a fortune it doesnt look like the government or council offer any help and ive already been rejected for cleaning and shopping assistance.




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

Special Ticket Offer, Save $8!

The Essential Baby & Toddler Show is back this April! Save $8 off the door price for a limited time only!

Finding baby name inspiration in unusual places

Sometimes the greatest baby name ideas come from the most unexpected places, as these EB members show.

The case for inducing at 37 weeks

While we often think of pregnancy as a 40 week affair, experts agree that 37 weeks is actually “full term". So is there an argument for inducing all births at 37 weeks?

Does controlled crying really work?

Controlled-crying techniques may help some babies sleep through the night, but for many exhausted new parents, it's just a recipe for more tears all round.

How I taught my infant to use a toilet

As people become more aware of these benefits, I hope more parents will practice this method, so we can cut down on nappies and improve baby bonding.

'I thought it was impossible': Emily Symons pregnant at 45

Aussie actress Emily Symons has announced she is pregnant with her first baby.

Shallow water blackout kills fit, healthy dad

A little girl will grow up without her father after the fit and healthy 34-year-old passed away while doing something he had practised his whole life.

Afternoon naps may be bad for toddlers' sleep

You could be doing yourself a disservice by encouraging your toddler to have an afternoon nap, according to new research.

Best gifts for newborns, new mums and christenings

We've compiled a guide to some of the most popular presents for newborns and new mums, and for christenings and naming days.

Jaime King to be a mum again

Actress Jaime King is pregnant with her second child, giving 16-month-old James a sibling.

Nannies should receive government funding

The Abbott government should extend funding to nannies, and direct childcare payments to low and middle income families, a landmark study on childcare has found. 

Common skin irritations in newborns (and how to treat them)

As many as one in two newborn babies suffer from skin irritations in their first few weeks. So what are the most common rashes and irritations to look out for?

10 wall decals for the nursery or playroom

Wall decals are the answer to creating a beautiful nursery or children's space without lifting a paint brush, a spirit level or even a hammer.

Preschooler walks 2.4km home alone

Three-year-old Cain Trainor headed off home after his first day at a new preschool without telling anyone.

Video: Why mums get nothing done

In spite of being in an almost constant state of motion while looking after the kids and trying to keep things together at home, it can seem as though parents have managed to get nothing on the to-do list done by the end of the day.

The middle name game

The middle name is no longer an afterthought, and parents' inspiration comes from many places.

Have a baby or your money back - but there's a catch

A new IVF scheme offers couples the chance to fall pregnant and give birth - or get their money back. But there's more to it than you might think.

A rare glimpse inside the womb

A baby born still inside the amniotic sac gave US doctors a rare glimpse at life inside the womb.

Battered mum forced to write to her attacker ex in jail

Three years ago Jason Hughes viciously attacked his ex-partner. Now she has to write to him three times a year.

Woman pleads not guilty to ultrasound scam

A West Australian woman will fight allegations that she scammed expectant mums by selling them fake ultrasound pictures of babies.

Download now: Essential Kids Activity Finder app

Got bored kids? Quickly find the best activities for kids wherever you are in Australia with the Essential Kids app.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Brain damaged mum receives compensation

A Sydney mother who suffered brain damage when she was hit by a car while pushing her newborn baby in a pram has reached a confidential out-of-court settlement with the driver's insurance company.

Indigenous midwives break down the barriers

A culturally sensitive midwifery service has gained the trust and respect of Aboriginal women.

The Katering Show's next big delivery

Most mums-to-be plan to take things easy and perhaps have a little break from work as the birth of their baby draws near. Not Kate McCartney.

53 creative pregnancy announcements

Announcing that you're expecting can be a time to express your creativity, sense of humour and imagination. Check out how other parents and parents-to-be have broken the news to friends and family.

Why I have mixed feelings about Cindy Crawford's leaked photo

Last week an un-retouched photo of model Cindy Crawford surfaced, showing the 48-year-old mother-of -two posing in underwear.

How to create a Peppa Pig pancake

Thought your toddler could not love pancakes any more than they already do? How about if the breakfast treat came in the shape of every two-year-old's favourite cartoon character?

'It's a little life, not a little loss': pregnancy after miscarriage

I thought I was never going to be able to have a successful pregnancy. I decided that I wasn't going to form an emotional attachment with this baby.

Bonds Baby Search 2015: what you need to know

February 18 marks the start of one of the most prolific annual baby competitions in Australia: the Bonds Baby Search. And this year is going to be more special than ever.

Who will manage your Facebook account when you're gone?

This is not something that people like to talk about, but Facebook has announced that it will grant users more control over what happens to their pages after they die.

Struggling mum of four wins $188 million

Mother of four Marie Holmes was financially struggling after quitting her jobs at Walmart and McDonald's in order to care for her children.

Pregnant obese women a 'relatively new problem', coroner hears

A first-time mother whose daughter died hours after her frightening birth insists she was never told of the risks of being obese and pregnant.

'I'm angry as hell': the story behind mum's passionate vaccination plea

She has labelled parents who do not vaccinate their children "misinformed imbeciles" - and for that, she makes no apologies.

IKEA hacks for the nursery and kids' rooms

Are you one of those that know the whole IKEA catalogue by heart? Love their stuff but want to personalise it? Here's some inspiration to help you realise the potential of IKEA furniture and fittings.

8 different kinds of tantrums

I never thought I’d say this, but for a brief moment last week, Kim Kardashian and I had something in common: both our kids had public tantrums.

Polycystic ovary syndrome: symptoms, treatment and your fertility

Polycystic ovary syndrome (PCOS) is the most common female hormonal condition, affecting roughly one in 12 Australian women.

What's the best position for giving birth?

If doing it on your back is out, what's the best position for labour and birth?

Wife forgives snake catcher husband for car surprise

With Valentine's Day coming up, Nat Gilbert could be forgiven for thinking her husband might be planning a surprise for her.

Kids who meet milestones at their own pace

We usually only hear the success stories: tales of the two-year-old who’s talking, running and completely toilet trained. But other stories need to be told too.

Ruby shines as Bonds Baby

Sarah Kiss has a word of advice for proud mums and dads who are keen to enter their babies in this year's Bonds Baby Search Competition - just have fun.

Why dads should go to sleep school

If your family needs to go to sleep school, go with them. You are part of that family and you are part of the solution.

36 baby names inspired by food and drinks

A French court may have ruled out Nutella as a baby name, but that doesn't have to stop you from taking inspiration from the supermarket (or bottle shop). See what parents in the US have chosen for their delicious little ones.

Clever breastfeeding products

Check out this range of products designed to help make your breastfeeding journey more enjoyable, manageable and convenient.

 

Win a KitchenAid Mixer

Let's celebrate 300,000 fans on Facebook

To celebrate, and to thank our amazing fans, we?re giving away a KitchenAid Artisan Tilt-Head Stand Mixer.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.