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Fibromyalgia & Chronic Fatigue during pregnancy and beyond
FM, CFS and all similar sharing experiences and coping tactics

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#1 red2012

Posted 23 February 2012 - 05:16 AM

Hi all,

Wondering if there is anyone out there who is going through pregnancy and motherhood with Fibromyalgia, Chronic Fatigue or similar? How are you doing and how are you coping?

Hoping we can share experiences and coping tips with each other!

Myself, I am 25 and pregnant with my first child. I was diagonosed with FM when I was 14 after about 1 year.

Hoping there are other out there willing to share.

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#2 ~MakkaPakka~

Posted 23 February 2012 - 02:21 PM

Hi original.gif

I was diagnosed with CFS in 1999/2000, It was a direct results from an acute case of EBV (glandular fever)  I was left with a lot of complications and only healed to a point.  

I was in a crash for about 3.5 years, it was not nice, I was pretty much bed bound most of the time.

I found an awesome GP, was placed on AD's that worked great as well as started gradual exersise and pretty much live at around 65%-75% (energy levels ect) of what I was before I became ill.

I have gone through 4 pregnancies and births and only had a very few issues with CFS.

It was not untill late last year when I began to crash again.  I have been studying (in my third year doing a Bachelor of Nursing) dealing with the kdis and housework, DS is diagnosed with PDD-NOS (asd) and has a lot of extra appointments and therapies to do at home.  

I have been having B12 injections every three-four days, I am taking 2 x high dose coenzyme tabs along with one high dose vitamin B tablet daily.  I am also taking 2 panadol osteo at night time.

#3 nzbee

Posted 23 February 2012 - 02:29 PM

Hi!  I was diagnosed at age 16 after 5 years of ME (CFS).  It was really hard going through high school and missing out on a lot.  But I did end up with some really great friends out of it!! (you soon learn who your real friends are when you can't spend time with people anymore).

I got pregnant with twins at 21, they were born just after my 22nd birthday.  I found that being pregnant actually stopped my symptoms for quite a while.  None during pregnancy and I got pregnant again when my twins were 5 months old, so I didn't have any symptoms until my 3rd child was about 18months old.  Then when I got pregnant with my 4th child (at 25) I didn't have any symptoms again during the pregnancy or until about 1 year after her birth.  My children are now 9, 9, 8 and 5.

I now find that my symptoms are no where near as bad as when I was younger!  I was bedridden at one stage when I was about 16-17, but these days I find I only have mild symptoms every 6 months or so.

The part I find hard is that my husband didn't know me when I was at my worst so he doesn't really get that I can't do much about being tired etc when I have an episode now, and thinks I am just being lazy and should just get on with things.

#4 Paddlepop

Posted 23 February 2012 - 02:52 PM

I'm 32 and have had CFS since June 2000 when I was 20. I have a super energetic 2 year old daughter. I also have a husband who does the cooking, folding, putting away of laundry, vacuuming and lots of other things.

I was in my final year of uni when I got sick with EBV (gladular fever). It developed into CFS. I managed to complete my degree (yay!!) and graduated with my class. I haven't ever worked since graduating because I am too tired.

I kept hoping for a few years that I would get better, would push myself and then relapse, recover then relapse, and finally learnt to pace myself and deal with the illness better.

After a lot of thought and discussion my husband and I decided that we were ready to have children. CFS had taken so much from me but it wasn't going to take becoming a mother from me. We then went through 2 years of trying to conceive during which time we found out that I had a blocked fallopian tube. We did IVF, I got pregnant on the second embryo transfer, and then had my daughter in January 2010.

She is such a bundle of energy! Complete opposite of me! I wish I had even 10% of her energy. Even my husband gets tired from her energy level. Her high energy can be very difficult for me to cope with. Most nights once my husband is home from work he has to take her outside and play with her to tire her out a bit because I can't. At least I know that she doesn't have CFS.

I found the pregnancy to be quite easy to deal with in terms of CFS. I was completely exhausted in the first trimester but that was due to normal pregnancy exhaustion. Second trimester I felt great, third trimester I swelled and developed mild pre-eclampia. I was really worried about how I would cope during pregnancy but I was fine.

Thankfully my daughter is a "good" baby. She has always slept well and is happy (apart from when she is teething). We bottlefed because she refused to breastfeed at all. In hindsight, it was the best thing for me because I wasn't responsible for every feed, and will do it again when we have a second child. My husband would do the 2am feed and I would do the 5am feed. This way we each got 6 hours straight of sleep and it really helped us both to cope.

He has always done all of her baths. This gives me a 30 to 60 minute break from her (she loves playing in the bath) and I also don't need to expend that energy. They have heaps of fun together anyway, and there is usually laughter coming from the bathroom.

My CFS is still the same as it was prior to pregnancy. Some say that their CFS will go into "remission" and improve after pregnancy but mine hasn't. It also hasn't got any worse.

We are planning to wait at least until our daughter is 3 years old before we consider trying for a second child because I couldn't cope with 2 small children who need heaps of hands-on care. Once she is toilet-trained, can talk, walk and feed herself properly then we can try for the next child! On upside of infertility is that we are really unlikely to accidentally fall pregnant!

I'm happy to share what I have done to cope with CFS and a child. My biggest coping strategy is a husband/partner who will do whatever is needed and is hands-on with the child. Without that I would not cope at all.

Edited by Paddlepop, 23 February 2012 - 02:53 PM.

#5 chicken_bits

Posted 24 May 2012 - 12:04 AM

Just found this thread.

I've had CFS since 2006 and now have a 4 month old DD. During pregnancy my symptoms improved dramatically and I still feel as though I have more energy than pre-pregnancy. My biggest issue at the moment is that my previous coping strategy was pacing. However, with a baby (and a breastfed one at that) it is extremely hard to pace.

She was a great sleeper until about 3.5 months and now she's waking up several times in the night and not settling well at all. She has pretty bad reflux that we're attempting to treat. DH is a wonderful help but there's only so much he can do because he works.

I'm beyond stressed at this point. Afraid of how much my body can handle. I'm on waiting lists for sleep schools and I have a great GP... I just don't know if I can wait that long. Any suggestions?

#6 wintermint

Posted 12 June 2012 - 02:54 PM

Pregnancy brings back my CFS with a vengence!  Hence the almost 6 year gap between children.  I've had cfs since 1993 - glandular fever, chicken pox, appendicitis and several ops helped trigger it.  I can only cope with one energetic child at a time.  Especially as neither of them slept through the night until after they were 2.

#7 kate_123

Posted 16 October 2012 - 05:27 AM

Hi anyone still out there,
I know this appears to be an old thread but I would like to restart it if there are any other newbies out there. Im 27 and TTC. Had a very early miscarriage a few weeks ago and I'm hoping to be pregnant again already but too early to test. I have had cfs for over 5yrs. I manage to work 3days a week as a nurse and cope 'ok' but am obviously very nervous about how my body is going to react to pregnancy and beyond. Things I am particulary concerned about during pregnancy is my blood pressure (I have POTS), my pelvis (I have hypermobility syndrome), coping with morning sickness, lack of sleep and sick leave at work (feel a lot of pressure not to take any and push through). Anyone out there at the same stage as me or got any advice?

#8 Synkitty

Posted 25 April 2013 - 07:33 PM

Hi everyone,
I know I am really late to this thread but I am really glad to hear about other people with similar problems and how they have dealt with them, if anyone has any advice for me it would be greatly appreciated.
I struggle with chronic pain, fatigue and mobility issues (I use a walking stick) after being hit by a car nearly 3 years ago, although not officially diagnosed with fibromyalgia I have the same symptoms. My husband and I were trying for a family when the accident occurred but we were told we needed to wait afterwards in the hopes I would recover from the injuries, after 2 years we were given the go ahead as we realised that I am probably not going to improve any further. I was worried about trauma to my abdomen causing fertility issues so we visited a fertility specialiste and found that although there doesn't seem to be any obvious damage from the car I do have a dydelphic uterus. Because of some other issues we were told we had most likely a nonexistent chance of conceiving naturally and would require ivf, which was fairly devastating as the cost was prohibitive for us to say the least. So I was extremely surprised when I visited my gp a few months later thinking I had some sort of bug and found that I was 6 weeks pregnant, I think I stayed in disbelieving shock for at least 3 weeks after so many things that had gone wrong in the past few years, something finally was going right. We found out that we were lucky we had already had the diagnosis of a dydelphic uterus as it is hard to diagnose when already pregnant and needs extra monitoring, I am currently 4 months in and so far everything is going ok although my Dr has advised me to rest as much as possible.
The first trimester was really difficult with terrible morning sickness and my pain levels skyrocketed, thankfully it has settled a little in the 2nd trimester.
I worry a lot about how things will go with the pregnancy, the thought of how many things might go wrong is terrifying and I want to be as prepared as I can for when the baby comes to make things a bit easier. Does anyone have any suggestions on equipment or anything at all that will help, my husband is very supportive but my family lives far away which will cut down how long my mum will be able to help out.
This is my first child and I am really excited but would like to be as prepared as possible so the burden doesn't fall on my husband as much.
Any advice would be appreciated

#9 Mummabear2014

Posted 15 May 2013 - 06:06 PM

Hey all going through a difficult situation
with not much support and severe ME and fibro
among a list of other issues (high blood pressure, gatsrointestinal issues,pcos, respitory, and the list goes on)

The thing that worries me the most is having a bub while im suffering so badly from ME taking care of the baby during the day while hubby is at work.
At the moment I already sleep most of the day We just found out we are 6 weeks pregnant but im so convinced I wont be able to get through it all
especially being well enough to get through the days after giving birth. Hubby wants to continue but I dont know what to do.
There seems to be no real help around in melbourne and the nurse nannys cost a fortune it doesnt look like the government or council offer any help and ive already been rejected for cleaning and shopping assistance.

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