Jump to content

Fibromyalgia & Chronic Fatigue during pregnancy and beyond
FM, CFS and all similar sharing experiences and coping tactics


  • Please log in to reply
8 replies to this topic

#1 red2012

Posted 23 February 2012 - 05:16 AM

Hi all,

Wondering if there is anyone out there who is going through pregnancy and motherhood with Fibromyalgia, Chronic Fatigue or similar? How are you doing and how are you coping?

Hoping we can share experiences and coping tips with each other!

Myself, I am 25 and pregnant with my first child. I was diagonosed with FM when I was 14 after about 1 year.

Hoping there are other out there willing to share.

Red original.gif

#2 ~MakkaPakka~

Posted 23 February 2012 - 02:21 PM

Hi original.gif

I was diagnosed with CFS in 1999/2000, It was a direct results from an acute case of EBV (glandular fever)  I was left with a lot of complications and only healed to a point.  

I was in a crash for about 3.5 years, it was not nice, I was pretty much bed bound most of the time.

I found an awesome GP, was placed on AD's that worked great as well as started gradual exersise and pretty much live at around 65%-75% (energy levels ect) of what I was before I became ill.

I have gone through 4 pregnancies and births and only had a very few issues with CFS.

It was not untill late last year when I began to crash again.  I have been studying (in my third year doing a Bachelor of Nursing) dealing with the kdis and housework, DS is diagnosed with PDD-NOS (asd) and has a lot of extra appointments and therapies to do at home.  

I have been having B12 injections every three-four days, I am taking 2 x high dose coenzyme tabs along with one high dose vitamin B tablet daily.  I am also taking 2 panadol osteo at night time.





#3 nzbee

Posted 23 February 2012 - 02:29 PM

Hi!  I was diagnosed at age 16 after 5 years of ME (CFS).  It was really hard going through high school and missing out on a lot.  But I did end up with some really great friends out of it!! (you soon learn who your real friends are when you can't spend time with people anymore).

I got pregnant with twins at 21, they were born just after my 22nd birthday.  I found that being pregnant actually stopped my symptoms for quite a while.  None during pregnancy and I got pregnant again when my twins were 5 months old, so I didn't have any symptoms until my 3rd child was about 18months old.  Then when I got pregnant with my 4th child (at 25) I didn't have any symptoms again during the pregnancy or until about 1 year after her birth.  My children are now 9, 9, 8 and 5.

I now find that my symptoms are no where near as bad as when I was younger!  I was bedridden at one stage when I was about 16-17, but these days I find I only have mild symptoms every 6 months or so.

The part I find hard is that my husband didn't know me when I was at my worst so he doesn't really get that I can't do much about being tired etc when I have an episode now, and thinks I am just being lazy and should just get on with things.

#4 Paddlepop

Posted 23 February 2012 - 02:52 PM

I'm 32 and have had CFS since June 2000 when I was 20. I have a super energetic 2 year old daughter. I also have a husband who does the cooking, folding, putting away of laundry, vacuuming and lots of other things.

I was in my final year of uni when I got sick with EBV (gladular fever). It developed into CFS. I managed to complete my degree (yay!!) and graduated with my class. I haven't ever worked since graduating because I am too tired.

I kept hoping for a few years that I would get better, would push myself and then relapse, recover then relapse, and finally learnt to pace myself and deal with the illness better.

After a lot of thought and discussion my husband and I decided that we were ready to have children. CFS had taken so much from me but it wasn't going to take becoming a mother from me. We then went through 2 years of trying to conceive during which time we found out that I had a blocked fallopian tube. We did IVF, I got pregnant on the second embryo transfer, and then had my daughter in January 2010.

She is such a bundle of energy! Complete opposite of me! I wish I had even 10% of her energy. Even my husband gets tired from her energy level. Her high energy can be very difficult for me to cope with. Most nights once my husband is home from work he has to take her outside and play with her to tire her out a bit because I can't. At least I know that she doesn't have CFS.

I found the pregnancy to be quite easy to deal with in terms of CFS. I was completely exhausted in the first trimester but that was due to normal pregnancy exhaustion. Second trimester I felt great, third trimester I swelled and developed mild pre-eclampia. I was really worried about how I would cope during pregnancy but I was fine.

Thankfully my daughter is a "good" baby. She has always slept well and is happy (apart from when she is teething). We bottlefed because she refused to breastfeed at all. In hindsight, it was the best thing for me because I wasn't responsible for every feed, and will do it again when we have a second child. My husband would do the 2am feed and I would do the 5am feed. This way we each got 6 hours straight of sleep and it really helped us both to cope.

He has always done all of her baths. This gives me a 30 to 60 minute break from her (she loves playing in the bath) and I also don't need to expend that energy. They have heaps of fun together anyway, and there is usually laughter coming from the bathroom.

My CFS is still the same as it was prior to pregnancy. Some say that their CFS will go into "remission" and improve after pregnancy but mine hasn't. It also hasn't got any worse.

We are planning to wait at least until our daughter is 3 years old before we consider trying for a second child because I couldn't cope with 2 small children who need heaps of hands-on care. Once she is toilet-trained, can talk, walk and feed herself properly then we can try for the next child! On upside of infertility is that we are really unlikely to accidentally fall pregnant!

I'm happy to share what I have done to cope with CFS and a child. My biggest coping strategy is a husband/partner who will do whatever is needed and is hands-on with the child. Without that I would not cope at all.

Edited by Paddlepop, 23 February 2012 - 02:53 PM.


#5 chicken_bits

Posted 24 May 2012 - 12:04 AM

Just found this thread.

I've had CFS since 2006 and now have a 4 month old DD. During pregnancy my symptoms improved dramatically and I still feel as though I have more energy than pre-pregnancy. My biggest issue at the moment is that my previous coping strategy was pacing. However, with a baby (and a breastfed one at that) it is extremely hard to pace.

She was a great sleeper until about 3.5 months and now she's waking up several times in the night and not settling well at all. She has pretty bad reflux that we're attempting to treat. DH is a wonderful help but there's only so much he can do because he works.

I'm beyond stressed at this point. Afraid of how much my body can handle. I'm on waiting lists for sleep schools and I have a great GP... I just don't know if I can wait that long. Any suggestions?

#6 wintermint

Posted 12 June 2012 - 02:54 PM

Pregnancy brings back my CFS with a vengence!  Hence the almost 6 year gap between children.  I've had cfs since 1993 - glandular fever, chicken pox, appendicitis and several ops helped trigger it.  I can only cope with one energetic child at a time.  Especially as neither of them slept through the night until after they were 2.

#7 kate_123

Posted 16 October 2012 - 05:27 AM

Hi anyone still out there,
I know this appears to be an old thread but I would like to restart it if there are any other newbies out there. Im 27 and TTC. Had a very early miscarriage a few weeks ago and I'm hoping to be pregnant again already but too early to test. I have had cfs for over 5yrs. I manage to work 3days a week as a nurse and cope 'ok' but am obviously very nervous about how my body is going to react to pregnancy and beyond. Things I am particulary concerned about during pregnancy is my blood pressure (I have POTS), my pelvis (I have hypermobility syndrome), coping with morning sickness, lack of sleep and sick leave at work (feel a lot of pressure not to take any and push through). Anyone out there at the same stage as me or got any advice?

#8 Synkitty

Posted 25 April 2013 - 07:33 PM

Hi everyone,
I know I am really late to this thread but I am really glad to hear about other people with similar problems and how they have dealt with them, if anyone has any advice for me it would be greatly appreciated.
I struggle with chronic pain, fatigue and mobility issues (I use a walking stick) after being hit by a car nearly 3 years ago, although not officially diagnosed with fibromyalgia I have the same symptoms. My husband and I were trying for a family when the accident occurred but we were told we needed to wait afterwards in the hopes I would recover from the injuries, after 2 years we were given the go ahead as we realised that I am probably not going to improve any further. I was worried about trauma to my abdomen causing fertility issues so we visited a fertility specialiste and found that although there doesn't seem to be any obvious damage from the car I do have a dydelphic uterus. Because of some other issues we were told we had most likely a nonexistent chance of conceiving naturally and would require ivf, which was fairly devastating as the cost was prohibitive for us to say the least. So I was extremely surprised when I visited my gp a few months later thinking I had some sort of bug and found that I was 6 weeks pregnant, I think I stayed in disbelieving shock for at least 3 weeks after so many things that had gone wrong in the past few years, something finally was going right. We found out that we were lucky we had already had the diagnosis of a dydelphic uterus as it is hard to diagnose when already pregnant and needs extra monitoring, I am currently 4 months in and so far everything is going ok although my Dr has advised me to rest as much as possible.
The first trimester was really difficult with terrible morning sickness and my pain levels skyrocketed, thankfully it has settled a little in the 2nd trimester.
I worry a lot about how things will go with the pregnancy, the thought of how many things might go wrong is terrifying and I want to be as prepared as I can for when the baby comes to make things a bit easier. Does anyone have any suggestions on equipment or anything at all that will help, my husband is very supportive but my family lives far away which will cut down how long my mum will be able to help out.
This is my first child and I am really excited but would like to be as prepared as possible so the burden doesn't fall on my husband as much.
Any advice would be appreciated

#9 Mummabear2014

Posted 15 May 2013 - 06:06 PM

Hey all going through a difficult situation
with not much support and severe ME and fibro
among a list of other issues (high blood pressure, gatsrointestinal issues,pcos, respitory, and the list goes on)

The thing that worries me the most is having a bub while im suffering so badly from ME taking care of the baby during the day while hubby is at work.
At the moment I already sleep most of the day We just found out we are 6 weeks pregnant but im so convinced I wont be able to get through it all
especially being well enough to get through the days after giving birth. Hubby wants to continue but I dont know what to do.
There seems to be no real help around in melbourne and the nurse nannys cost a fortune it doesnt look like the government or council offer any help and ive already been rejected for cleaning and shopping assistance.




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

Heartwarming prank gives single mum the house she was hired to clean

Cara Simmons arrived at work to clean a large and beautiful house in time for a party planned for that evening. It was soon hers.

Why we should stop telling new parents to 'enjoy every moment'

A few weeks ago, some dear friends of mine had their first baby. As the proud dad texted me a picture I had to fight the natural instinct to say “Enjoy every moment!”

Transgender dad breastfeeds his babies

A transgender man who breastfed his first baby - despite having his breasts removed as part of his transformation from female to male - has now had a second child.

Couple face $1 million medical bill and bankruptcy after babymoon birth

A Canadian couple were slammed with a million dollar medical bill after their daughter was prematurely during their babymoon.

Win one of 5 Little Tikes Cozy Coupe Sport

Australia?s No 1 selling car is now available in a Sports model and we have 5 to give away to some lucky Essential Baby families.

Cigarettes, junk food dominate supermarket sales growth

One in every five dollars spent at supermarkets goes on cigarettes or junk food, according to industry data.

Teacher under fire for breastfeeding in class

There is no doubt mums have a right to continue breastfeeding after they have returned to work, but one teacher in the US has taken it to the extreme.

Video: Baby sniffs beardless dad to make sure it's him

She looks him up and down and then touches his chin, but baby Lindsey still isn't sure this clean-shaven man is her dad.

The tragedy of losing a favourite teddy bear

We were green and uninitiated, perhaps a little naïve when it came to the favourite toy responsibility.

It's possible to workout while pregnant

Medical experts say intense fitness routines can be done safely during pregnancy - if the mums-to-be follow some guidelines.

Baby for Asher Keddie and Vincent Fantauzzo

Fans followed every step of her on-screen pregnancy in Offspring, now Asher Keddie is going to be a mum in real life too.

What parents really want for their kids

Are our hopes, dreams and expectations for our children what they really need?

'I had a feeling something was seriously wrong': the fight for Kaden's diagnosis

Before even giving birth, Katie Myers' maternal instincts warned her something was wrong with her baby.

When your pregnancy causes a relationship rift

Some dads-to-be don't miss a beat when their partner is pregnant; others struggle with a range of issues and can become withdrawn, right when their support is needed most.

Couple uses group photo trick to announce pregnancy to loved ones

Katharine and Kris Camilli devised a clever trick to immortalise their family and friends' reaction to their exciting pregnancy news.

Why Tracey Spicer has given up make-up

"After 30 years on television, I had become what I despised: a painted doll who spent an hour a day and close to $200 a week putting on a mask."

Empowering bikini photo of 46-year-old mum goes viral

When a group of teenagers made rude remarks about her body as she walked past them in a bikini at the local beach, Julie Cross refused to cover up.

Devastated widow discovers she's pregnant the day before husband's funeral

They had been trying to conceive a baby for seven years. Tragically Kristy Kirchner found out she was pregnant the day before her husband Royce's funeral.

Win a family pass to Disney Live!

We have 4 family passes to give away to see Disney Live! presents Three Classic Fairy Tales, touring Australia this December/January.

Gabriella Goat sues Peppa Pig

Every toddler's favourite television pig is being sued by an Italian woman who shares a name with a Peppa Pig character.

Meet the Mpregs, the male pregnancy enthusiasts

"Men can't have babies - that's something only women can do! But our community is full of like-minded people who wish otherwise."

Your new motherhood survival kit

Forget about the bright, pretty baby things - while you're in survival mode, all you'll need are the essentials.

More than 100,000 cars recalled globally after death of pregnant woman

The announcement of a mass recall comes as Malaysian police investigate the death of pregnant woman in July.

I had a 'good baby' but still suffered from postnatal depression

I had a much wanted precious baby girl, a 'good baby' who slept well, self settled and was mostly content. It just seemed implausible to think I could succumb to depression.

Download now: Essential Kids Activity Finder app

Got bored kids? Quickly find the best activities for kids wherever you are in Australia with the Essential Kids app.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Win one of 5 Little Tikes Cozy Coupe Sport

Australia?s No 1 selling car is now available in a Sports model and we have 5 to give away to some lucky Essential Baby families.

Join PADDINGTON on the red carpet!

To celebrate the release of PADDINGTON, we are giving five lucky winners the chance to win a family pass to the exclusive Australian Premiere in Sydney on December 7!

Knowing you are one of the lucky ones

I am secure, confident and strong, but the responsibility of protecting my children can almost bring me undone.

Why I am so emotional now I have kids?

There are so many ways in which parenthood changes us as women, but one of the most noticeable, for me, has been the changing state of my emotions.

Baby survives despite sharing womb with 'foreign body'

Baby Maia was conceived against the odds, only to find she was sharing a womb with an ominous "foreign body".

Video: Baby shows dog how to jump - or vice versa

They say dog is man's best friend, but this playful pooch seems to have chosen a jumping baby as her number one buddy.

10 ways to soothe a crying baby

New paernts can get frustrated when their newborn gets fussy and can't settle down. When you're feeling overwhelmed, try some of these simple tips to help soothe your baby.

20 baby names that are becoming more popular every year

The data-lovers at nameberry.com have been at it again – this time, they’ve discovered the names that are continually rising up the ranks, ready to take out some top spots in the next few years.

10 great meals to make for new parents

Ideally, you want to give food that isn’t expensive to make, isn't too difficult to create, and freezes well; stews, bakes, soups and pasta sauces are perfect.

'It's not you, it's me': Boston bombing survivor mum to have leg amputated

Rebekah DiMartino is going through a break-up. She even wrote a farewell love letter. But it's not to her husband.

What it's like to go through early menopause

In a cruel twist, Carla had been breastfeeding and perimenopausal at the same time. But she's far from the only one to go through menopause early.

Restaurant served alcohol to two-year-old

Busy restaurants can be forgiven for getting food and drink orders mixed up from time to time, but not when the confusion leads to a two-year-old being served an alcoholic cocktail instead of the child-friendly beverage they ordered.

Julia Morris tells of miscarriage on a flight

Julia Morris has spoken about the devastation of suffering a miscarriage while on an international flight.

Woman's survival after birth 'a story of two miracles'

A US mother is home and tending to her new baby less than a month after surviving without a pulse for 45 minutes.

Eating ice may give mental boost to the iron deficient: study

A new study proposes that, like a strong cup of coffee, ice may give those with insufficient iron a much-needed mental boost.

Tiny lives in caring hands: Thank U NICU Day

Each year in Australia, over 40,000 newborns need the help of a special care nursery or neonatal intensive care unit. One day a year, the staff are honoured by the parents they help through those dark days.

I paid $50,000 to have a girl

This time my husband and I hadn't taken any chances. We had paid $50,000 and travelled 13,000 kilometres to make sure the baby growing inside me was female.

Weird pregnancy products

Some pregnancy products come to market and are just awesome. Others just leave you scratching your head.

Dear firstborn, I'm sorry

Being a first-time mum is tough for so many reasons – particularly because you really have no idea what you're doing.

A trace of sesame could kill my son

Helen Richardson son's had two anaphylactic reactions in a month. It's traumatic for everyone.

When you know before the test says yes

It wasn't a pregnancy test or missed period that told me I was pregnant with my second baby; it was too early for those things. A doner kebab told me I was going to be a mum again.

What not to do when your partner is in labour

Robbie Williams stole the show during his wife Ayda's labour, pretty much demonstrating everything on the "what not to do when your partner is in labour" list.

Best maternity swimwear and beach cover-ups

Thinking about a tropical babymoon but have nothing to wear? Here are some great swimwear and beach cover-up options for mums-to-be.

Dad breastfeeds his babies

Trevor Macdonald has now been pregnant twice, and is successfully breastfeeding his newest family member.

 

How many weeks til Christmas?

On your To-Do list

Get the "Santa" shopping done without the kids in tow.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.