Unexplained Infertility: Further investigation
Did anyone get a second opinion to get answers?
, Feb 16 2012 11:14 PM
17 replies to this topic
Posted 16 February 2012 - 11:14 PM
DH and I were diagnosed with unexplained infertility after numerous blood tests, semen analysis, HCG, ultrasound. The doctor kept saying "There's no reason why you can't fall pregnant." When I asked FS if there were any other tests we could try, he replied by saying "How long is a piece of string?" Then he got us to do an unstimulated IUI.
We're both 32 years old. I've never been pregnant. DH has never fathered any other children. We are both perfectly healthy!
Has anyone else been diagnosed with unexplained infertility, gone for a second opinion and found a cause for the infertility? If so, was the fertility treatment adjusted accordingly? Was that treatment successful?
I've never been totally confident in my FS, so just wondering if it's worth getting a second opinion.
Posted 17 February 2012 - 11:22 AM
Have you considered Traditional Chinese Medicine? Western medicine had no reason to explain why my periods were very light, but TCM found stagnated blood in my system and slowly improved the quality of my uterine lining over time with changes in diet, acpuncture and chinese herbs.
I found a general improvement in my AF but unfortunately still unable to get PG - my hormone system just wouldn't respond to the gentle prodding treatment of TCM.
I haven't been to another western FS for a 2nd opinion though.
Posted 17 February 2012 - 03:23 PM
I think you should definately get a 2nd opinion. You don't sound happy with your current fs.
I was originally diagnosed with unexplained infertility. We did 3 rounds of IUI - all bfn, then we started ivf. I m/c'ed 3 times in a row - each transfer implnated but didn't last. My fs did all the standard m/c testing but nothing unusual turned up. I asked him outright and he wasn't willing to try anything different or do any further testing. He was a really lovely fs but I was getting frustrated. Before switching I did some research to find a new fs. I switched to a new fs (at the same clinic) who was more dynamic. I was actually referred to him by some EB ladies and everyone raves about him. He did more testing and found I had elevated NK cells plus super low amh. He adjusted my protocol and we tried again. Unfortunately I have since had a few more m/c's but each time we have tried something new and my fs has been both open to my questions and suggestions and also has his own ideas of what to try.
Anyway, to cut a long story short, it looks like I have poor egg quality so we have done one transfer using donor eggs. Sadly I did m/c but my fs has already put forward ideas to tweak my protocol for our next go, when we are ready to try again.
I just wanted you to know a little of my story so you can see how good it is to have an fs you have faith in, because you really are putting everything into creating a family so you need an fs you are comfortable with, who can give you real reasons for everything, even if they can't explain what is happening or why.
Hope this helps.
Posted 17 February 2012 - 06:40 PM
ms conception my immunologist when i first saw him said to me when a doctor says you have unexplained infertility they are being lazy that they couldnt be bothered further testing you. its always stuck in my mind, so i decided to take matters into my own hands. do heaps of research and get a 2nd opinion, wont hurt. unfortunately we sometimes are just numbers at these clinics and really need to push for answers and tests, and if you are not happy switch. we are the paying customer. goodluck ms. x
Posted 17 February 2012 - 08:16 PM
I definitely second TCM!
We were diagnosed with unexplained (after all the usual plus a laporoscopy) we went straight to ivf. I was happy with that, I didn't want to waste any more time. We used the Chinese herbs in the months leading up plus acupuncture weekly plus right after transfer.
Worked for us!
Posted 18 February 2012 - 10:44 AM
I was in the same boat and the other day we went to our 4th FS visit and he said that we had "unknown infertility". I have been going to a Holistic Chiroprator who has since found that my uterus is backwards and so my pelvis is out of alignment. I wouldn't have known this if I hadn't gone to see him about a sore neck. He treats women who are trying to get pregnant and even women that are actually pregnant. I had a Laproscopy and Hysteroscopy done and my FS said that I had a perfectly healthy uterus and that there was nothing wrong with it. Have you thought that maybe you might be out of alignment?
Also since I have been going to the Chiro he has cured my irregular periods and they now come the same time each month.
I think sometimes we have think outside the box, sometimes FS are not open minded and they should be.
We are frustrated now so we have decided to also do the unstimulated iui treatment and see how we go.
Good Luck with it all, hope this helps x
Posted 18 February 2012 - 10:53 AM
Have you had a laparoscopy?
I was found to have endometriosis during a laparoscopy, despite having no other symptoms. It was removed and I fell pregnant the second cycle after.
Definitely get a second opinion. There could also be issues with egg and sperm quality which don't get picked up on the standard tests.
Posted 18 February 2012 - 11:04 AM
I'm 37 years old and already have a child but found it very difficult to fall pregnant with a second child. My OBGYN couldn't explain why I couldn't fall pregnant again. After 13 months of trying to conceive including 2 months of injecting myself with hormones, my OBGYN suggested I go through IVF. I wasn't mentally ready to go through this so I went to see an old chinese Dr who specialises in Traditional Chinese Medicine. He said that my hormones were totally unbalanced and that it would take at least 3-4 months of taking different chinese herbs to balance it. I was sceptical about it but I wanted to give it a go before I embarked on the journey of IVF. On my third month of taking the herbs I fell pregnant. I am now 4 months pregnant. I'm not sure if I just got lucky, but I do really believe that he helped me.
Mind you, I would not go to just any Traditional Medicine Clinic as anyone can go and study for a few months and get a certificate in TCM. Try and find someone who has a lot of experience in it. Mine was an old chinese doctor from Beijing.
I know that my story is different to yours as I suffered from secondary infertility, but I do hope that it can in some way give you some hope.
I wish you all the best with your journey.
Edited by melliesyd, 18 February 2012 - 11:23 AM.
Posted 18 February 2012 - 01:10 PM
TCM can be a bit of a hard field to navigate - I know a few specialists in Sydney - let me know if you want some names
Posted 18 February 2012 - 03:12 PM
I also just never felt completely "right" with my first FS and personally felt that "unexplained" just meant "yet to work it out"
After 2 years including a year on Clomid and 4 failed IUI's a sought a second opinion and after a laparoscopy was diagnosed with endometriosis (I never had ANY symptoms) and also low ovarian reserve.
Am embarking on IVF next week unless a miracle occurs this month which is highly unlikely. Definitely recommend getting a second opinion and following that gut feel! It certainly can't hurt any, even if it just backs up your current FS's opinion it will at least make you feel more secure with him/her.
Best of luck to you!
Posted 19 February 2012 - 01:22 PM
spitzmum, what is OH in your signature? I have been googling to find what this means lol!
Posted 19 February 2012 - 01:43 PM
DH & I were referred to FS after failing to fall PG after 12 months of trying. We were another couple with unexplained fertility. Long & short our journey was 8 cycles of IVF & no PG. Our doctor at the follow up appointment said to us that there was nothing further they could do for us & couldn't understand why we hadn't fallen PG, even if it did result in a mc.
Two years later we fell PG naturally & 18 months ago, we had our second baby, again naturally conceived.
So, definately seek a 2nd opinion. We were older than U guys so if everything seems to he in working order, trust yourself & your body. I sincerely wish you the best of luck xx
Posted 19 February 2012 - 07:46 PM
We were officially diagnosed as "unexplained" with our first FS. We did 2 years of treatments with him - 6 IUI, 4 IVF and 1 FET - all BFN.
The entire two years, I asked repeatedly about checking for endo and he refused every time. He said even if I did have it it wouldn't make any difference.
After 2 years we switched to a different FS, who happens to specialise in endo. Within 5 mins of meeting me, he agreed I probably had it and would not do any treatments without first doing a lap. The lap showed stage III endo and he removed as much as he could. We did IVF#5 (first with him) 2 months later and that gave us DD.
In our case, "unexplained" meant "insufficiently investigated". But, for others, it can just mean "unlucky" because there truly is nothing wrong.
A second opinion can't hurt. GL with your future TTC.
Posted 19 February 2012 - 07:51 PM
Also want to add to my previous post- endo was also found and removed at my laparoscopy ( I had absolutely no symptoms) and I conceived straight after that. Definitely demand a laparoscopy!
Posted 19 February 2012 - 08:02 PM
Have you had a Hycosy by any chance? I had one in dec last year and fell that cycle. They said my tubes were clear but they hycosy sometimesx just gives them a clean out which helps with conception.
Worked for us. It might for you too.
Posted 19 February 2012 - 09:21 PM
Wow, really good feedback ladies, thanks. Um, to answer some of your questions, FS had us do 4 IUIs, 2 unstimulated, 1 stimulated and 1 cancelled.
During that time, I went to see a naturopath for 9 months. She said my hormones were unbalanced, but I don't think she had much experience with fertility, so I stopped after no results.
I then went to see highly recommended acupuncturists who are absolutely brilliant. They were both nurses in a previous life and familiar with our fertility centres, FS and procedures. After my first meeting with them, she said that it's most likely my lining isn't thick enough to carry a pregnancy because I had very short periods (2-3days). The first time I've been told anything that makes sense to me.
They have been so helpful during my first IVF cycle, which I'm currently going through now. I'm hoping that if something does go wrong with this cycle, that it may indicate where the problems may be? And might find more answers? Obviously I'm really hoping that there's a BFP...but if not...
It's really interesting all the stories about endo, but showing no symptoms of it at all. Haven't had a lap done either. But I will definitely keep those in mind when looking for a new FS. I'm quite keen to try other tests and methods, just not quite sure where to start.
Posted 20 February 2012 - 09:56 AM
spitzmum, what is OH in your signature? I have been googling to find what this means lol!
sorry - Other Half! We are married, but in another forum I frequent, rather than discriminate between husbands, wives, partners etc, we just use OH
Posted 08 March 2012 - 12:21 PM
I had problems for years being in the too hard basket for doctors until I saw my naturopath and had success quite quickly. Stay strong and don't get stressed out with the whole process. My naturopath Fiona Rattur does wonders as I was a complete nervous reck when I first started seeing her. Find someone you are comfortable with (naturopath, herbalist, counsellor) and get some support as the process can be crazy for some of us.
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