Jump to content

Our autism journey - part 3


  • Please log in to reply
12 replies to this topic

#1 EBeditor

Posted 20 January 2012 - 12:53 PM

In this series of articles, Essential Baby moderator Nicole tells the story of her son, Alex, who has been diagnosed with autism.

In part 1, Nicole gives a brief introduction to autism spectrum disorders.

http://www.essentialbaby.com.au/toddler/to...0111-1pu7a.html

In part 2, Nicole explains the symptoms which led her to seek an autism diagnosis for Alex:
http://www.essentialbaby.com.au/toddler/to...0111-1pu7v.html

part 3 now up:
http://www.essentialbaby.com.au/toddler/to...0111-1pu7y.html

#2 firstatforty

Posted 20 January 2012 - 08:26 PM

Could you also post this in the special needs section. I never look at this part of the forum and there would be other parents who are the same. Anything that can be done to increase awareness of ASD is great. Thanks to Nicole for doing this, it's not easy for some parents to talk about their child's diagnosis. I look forward to reading the rest of her story.

My son was diagnosed with autism just after he turned 3. I've had a lot of support and advice from the mums in the special needs section. If anyone has questions about Autism Spectrum Disorder please ask in the special needs section. You don't need a diagnosis to post there.

#3 baddmammajamma

Posted 20 January 2012 - 08:36 PM

Thank you for sharing this, Amber, and thanks to Nicole for being so open about her & her family's journey.

Like my friend firstatforty, I don't usually visit this section of EB. I am, however, pleased to see that Nicole's article (the link above) is the most viewed on EB right now.

ASD awareness is so important for many reasons.

First, ASD is now the most common set of developmental disorders in Australia. There are many EBers who have children on the spectrum (or are on the spectrum themselves). There are EBers whose children are at risk for ASD, but these parents might not know the red flags or what to do in the event that they have concerns. That's why you will see several ASD mums continue to post information and share experiences -- to help other families.

Second, and just as important, awareness helps pave the way for acceptance. There is still a lot of  misinformation out there on ASD. Hearing personal stories from families helps make ASD "real" and also serves to drive home how broad and varied the profiles on the spectrum can be.

I echo firstatforty's invitation -- if you have any questions about ASD or are concerned about your own child, please come join us on the Special Needs/Disabilities board. You don't have to have a diagnosis of anything to take part.

#4 EBeditor

Posted 26 January 2012 - 09:46 AM

Sure firstatforty. I will wait until al 3 articles are up.

#5 ~ky~

Posted 26 January 2012 - 10:39 PM

Wow ... I see so much of my son in how you describe Alex.

#6 mumma emm

Posted 29 January 2012 - 08:09 AM

i too have a child that has been diagnosed in june last year with Autism at age 3,  still am struggling to understand what, how and WHY. i have been givin info but it is all txt book cases and it has not helped me really???? need help

#7 kazzy71

Posted 29 January 2012 - 12:35 PM

QUOTE (mumma emm @ 29/01/2012, 09:09 AM) <{POST_SNAPBACK}>
i too have a child that has been diagnosed in june last year with Autism at age 3,  still am struggling to understand what, how and WHY. i have been givin info but it is all txt book cases and it has not helped me really???? need help

Hi Emm, how are u? I am also new 2 all this with Autism,my gran daughter has been diagnosed but we are waiting 4 her app to pick up her paper work,so we dont know yet how bad sad.gif  she is 2 years old,she is a lovely lille girl always happy... a real joy..but I know this may change..I look at her beautiful face and just wonder what is she thinking,does she know what is going on around her,will she ever?? maybe we can do this 2gether  biggrin.gif I was also a single mum,I know how hard it must be 4 you with so many kids,I hope 2 talk soon karen x


#8 Nut

Posted 29 January 2012 - 10:04 PM

Mumma emm - Unfortunately you will probably never get those answers. It's not something you or anyone else caused and no one really knows why. Just a lot of speculation. My approach is rather than concerning myself with the how and why of it is to try and focus on the 'what can I do'.

Having a diagnosis already is an awesome step toward finding what kind of help you need. Because every child is different and every child with Autism is different, their needs are different. The earlier you have it diagnosed the better and you've got that. It opens up so many doors help you can get. To funding and extra help at school.

It's an ever changing landscape for us. Things that DS did a few months ago that have changed now. Even some things I mentioned in my articles have changed.

My recommendation... Find a group of parents of children with Autism. It was through a couple of Facebook groups based in Canberra that I found my way through the actual diagnosis and I have now made some friends who understand what it's all about. People who know why I choose not to go to parks with my children or why I am hesitant to go to certain places for fear of something going wrong. Having friends who get it is probably the most important thing for me. Even if it's just someone to vent to!

If you ever want to chat via PM, feel free to contact me. I have known for a while that DS was on the spectrum, but it is a completely different ballgame when they start school and you have to consider the various therapies. And it can be a little hard at times, when I look at my daughter who is nearly two years younger and I see her doing things DS should really be doing and should have been doing at that age. And that I can even have a better conversation with her at only 2½. But I am lucky to have such a sweet, placid and wonderful little boy who is funny and loving. He just doesn't process things the same way most people do and that's OK.


#9 EBeditor

Posted 20 February 2012 - 03:01 PM

Bumping as we have released part 3  -the process of getting an offical diagnosis.
http://www.essentialbaby.com.au/toddler/to...0111-1pu7y.html

#10 pelimum2dj

Posted 20 February 2012 - 05:16 PM

Nicole

I was interested to read that in the ACT you can get a disabled parking permit.  Can you tell me more about this.  I have two with autism, one severe and one moderate.  Now 9 & 10.  

It is a challenge, but a very rewarding one.  Good luck with your sons schooling.  Just be prepared to go to the department over the school if you think you are getting a raw deal.  I ended up changing schools because the original one required me going to the department for everything.  THe new school is so much better and more accommodating and the attitude has led to immense improvements.  My daughter (9) is just starting to be able to have a conversation, but is still unable to answer a question when asked.



For Emm, my recommendation is not to concefrn yourself with the why.  Be much more focused on how to live with the condition.  This is something that will give results.  


Enjoy the journey.

#11 baddmammajamma

Posted 20 February 2012 - 08:13 PM

Nicole, thanks for sharing so many phases of your journey. Like you, I felt more relief than anything when we received our daughter's diagnosis. It gave us some understanding of her unique wiring and sense of direction re how to best support her.

We are definitely an early intervention success story!

Best of luck to you & your beautiful little boy...and all the best to other families out there who are starting their own ASD journeys.

#12 Nut

Posted 21 February 2012 - 07:28 AM

pelimum2dj - Hi original.gif

Yes I have a disabled parking permit for my son. It's only a newer thing after some parents of children on the spectrum fought hard and won. It's definitely worth looking into.

For me I just had to print out the application form for the sticker and take it to my doctor. In this case it was my paed but a GP is enough. There is no box on the form but my paed ticked limited mobility and wrote a little blurb next to it. Other doctors write a brief explanation on the side or back of the form and sign it. It was handed to me over the counter when I went in to the motor registry. Luckily the lovely woman who served me also has a child with ASD and didn't question it as well.

As for school, so far we have been really lucky. He has a brilliant teacher whom he loves and is very proactive. He met Alex more than once before the year started and took time off last year to go to his 3yo preschool and just see what they do with him and how he is. And being a younger male teacher as well I think is a really positive thing for him. They put in the application early for an LSA who is there two days a week full time. He only goes two days one week and three the next so only one day per fortnight without the extra pair of hands.

There is another little boy in the class on the spectrum as well who is more severe than Alex and seems to get more aid from the LSA, but as long as she spends some time with him giving him the 1:1 he needs it doesn't phase me. I will talk to her this week and see how she is going with him anyway, just to see how she responds.



#13 Mum_of_five

Posted 02 June 2013 - 11:39 PM

This is the first time I have been in this forum.. Thankyou so much for sharing your story original.gif My 14 year old was diagnosed with Asperges in Feb this year and reading your story has been so inspiring.. I am now in the process of having my 13 year old assessed ASD..My boys were diagnosed with a language disorder at 3-4 years and I never questioned the diagnosis til my first went to secondary school and I began to question a few behaviours..I do regret not getting a second opinion when they were younger, and blame myself for that.. But it is also not uncommon to go undiagnosed til they reach puberty..




2 user(s) are reading this topic

0 members, 2 guests, 0 anonymous users

 

Special Ticket Offer, Save $8!

The Essential Baby & Toddler Show is back this April! Save $8 off the door price for a limited time only!

Finding baby name inspiration in unusual places

Sometimes the greatest baby name ideas come from the most unexpected places, as these EB members show.

The case for inducing at 37 weeks

While we often think of pregnancy as a 40 week affair, experts agree that 37 weeks is actually “full term". So is there an argument for inducing all births at 37 weeks?

Does controlled crying really work?

Controlled-crying techniques may help some babies sleep through the night, but for many exhausted new parents, it's just a recipe for more tears all round.

How I taught my infant to use a toilet

As people become more aware of these benefits, I hope more parents will practice this method, so we can cut down on nappies and improve baby bonding.

'I thought it was impossible': Emily Symons pregnant at 45

Aussie actress Emily Symons has announced she is pregnant with her first baby.

Shallow water blackout kills fit, healthy dad

A little girl will grow up without her father after the fit and healthy 34-year-old passed away while doing something he had practised his whole life.

Afternoon naps may be bad for toddlers' sleep

You could be doing yourself a disservice by encouraging your toddler to have an afternoon nap, according to new research.

Best gifts for newborns, new mums and christenings

We've compiled a guide to some of the most popular presents for newborns and new mums, and for christenings and naming days.

Jaime King to be a mum again

Actress Jaime King is pregnant with her second child, giving 16-month-old James a sibling.

Nannies should receive government funding

The Abbott government should extend funding to nannies, and direct childcare payments to low and middle income families, a landmark study on childcare has found. 

Common skin irritations in newborns (and how to treat them)

As many as one in two newborn babies suffer from skin irritations in their first few weeks. So what are the most common rashes and irritations to look out for?

10 wall decals for the nursery or playroom

Wall decals are the answer to creating a beautiful nursery or children's space without lifting a paint brush, a spirit level or even a hammer.

Preschooler walks 2.4km home alone

Three-year-old Cain Trainor headed off home after his first day at a new preschool without telling anyone.

Video: Why mums get nothing done

In spite of being in an almost constant state of motion while looking after the kids and trying to keep things together at home, it can seem as though parents have managed to get nothing on the to-do list done by the end of the day.

The middle name game

The middle name is no longer an afterthought, and parents' inspiration comes from many places.

Have a baby or your money back - but there's a catch

A new IVF scheme offers couples the chance to fall pregnant and give birth - or get their money back. But there's more to it than you might think.

A rare glimpse inside the womb

A baby born still inside the amniotic sac gave US doctors a rare glimpse at life inside the womb.

Battered mum forced to write to her attacker ex in jail

Three years ago Jason Hughes viciously attacked his ex-partner. Now she has to write to him three times a year.

Woman pleads not guilty to ultrasound scam

A West Australian woman will fight allegations that she scammed expectant mums by selling them fake ultrasound pictures of babies.

Download now: Essential Kids Activity Finder app

Got bored kids? Quickly find the best activities for kids wherever you are in Australia with the Essential Kids app.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Brain damaged mum receives compensation

A Sydney mother who suffered brain damage when she was hit by a car while pushing her newborn baby in a pram has reached a confidential out-of-court settlement with the driver's insurance company.

Indigenous midwives break down the barriers

A culturally sensitive midwifery service has gained the trust and respect of Aboriginal women.

The Katering Show's next big delivery

Most mums-to-be plan to take things easy and perhaps have a little break from work as the birth of their baby draws near. Not Kate McCartney.

53 creative pregnancy announcements

Announcing that you're expecting can be a time to express your creativity, sense of humour and imagination. Check out how other parents and parents-to-be have broken the news to friends and family.

Why I have mixed feelings about Cindy Crawford's leaked photo

Last week an un-retouched photo of model Cindy Crawford surfaced, showing the 48-year-old mother-of -two posing in underwear.

How to create a Peppa Pig pancake

Thought your toddler could not love pancakes any more than they already do? How about if the breakfast treat came in the shape of every two-year-old's favourite cartoon character?

'It's a little life, not a little loss': pregnancy after miscarriage

I thought I was never going to be able to have a successful pregnancy. I decided that I wasn't going to form an emotional attachment with this baby.

Bonds Baby Search 2015: what you need to know

February 18 marks the start of one of the most prolific annual baby competitions in Australia: the Bonds Baby Search. And this year is going to be more special than ever.

Who will manage your Facebook account when you're gone?

This is not something that people like to talk about, but Facebook has announced that it will grant users more control over what happens to their pages after they die.

Struggling mum of four wins $188 million

Mother of four Marie Holmes was financially struggling after quitting her jobs at Walmart and McDonald's in order to care for her children.

Pregnant obese women a 'relatively new problem', coroner hears

A first-time mother whose daughter died hours after her frightening birth insists she was never told of the risks of being obese and pregnant.

'I'm angry as hell': the story behind mum's passionate vaccination plea

She has labelled parents who do not vaccinate their children "misinformed imbeciles" - and for that, she makes no apologies.

IKEA hacks for the nursery and kids' rooms

Are you one of those that know the whole IKEA catalogue by heart? Love their stuff but want to personalise it? Here's some inspiration to help you realise the potential of IKEA furniture and fittings.

8 different kinds of tantrums

I never thought I’d say this, but for a brief moment last week, Kim Kardashian and I had something in common: both our kids had public tantrums.

Polycystic ovary syndrome: symptoms, treatment and your fertility

Polycystic ovary syndrome (PCOS) is the most common female hormonal condition, affecting roughly one in 12 Australian women.

What's the best position for giving birth?

If doing it on your back is out, what's the best position for labour and birth?

Wife forgives snake catcher husband for car surprise

With Valentine's Day coming up, Nat Gilbert could be forgiven for thinking her husband might be planning a surprise for her.

Kids who meet milestones at their own pace

We usually only hear the success stories: tales of the two-year-old who’s talking, running and completely toilet trained. But other stories need to be told too.

Ruby shines as Bonds Baby

Sarah Kiss has a word of advice for proud mums and dads who are keen to enter their babies in this year's Bonds Baby Search Competition - just have fun.

Why dads should go to sleep school

If your family needs to go to sleep school, go with them. You are part of that family and you are part of the solution.

36 baby names inspired by food and drinks

A French court may have ruled out Nutella as a baby name, but that doesn't have to stop you from taking inspiration from the supermarket (or bottle shop). See what parents in the US have chosen for their delicious little ones.

Clever breastfeeding products

Check out this range of products designed to help make your breastfeeding journey more enjoyable, manageable and convenient.

 

Win a KitchenAid Mixer

Let's celebrate 300,000 fans on Facebook

To celebrate, and to thank our amazing fans, we?re giving away a KitchenAid Artisan Tilt-Head Stand Mixer.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.