Jump to content

Our autism journey - part 3


  • Please log in to reply
12 replies to this topic

#1 EBeditor

Posted 20 January 2012 - 12:53 PM

In this series of articles, Essential Baby moderator Nicole tells the story of her son, Alex, who has been diagnosed with autism.

In part 1, Nicole gives a brief introduction to autism spectrum disorders.

http://www.essentialbaby.com.au/toddler/to...0111-1pu7a.html

In part 2, Nicole explains the symptoms which led her to seek an autism diagnosis for Alex:
http://www.essentialbaby.com.au/toddler/to...0111-1pu7v.html

part 3 now up:
http://www.essentialbaby.com.au/toddler/to...0111-1pu7y.html

#2 firstatforty

Posted 20 January 2012 - 08:26 PM

Could you also post this in the special needs section. I never look at this part of the forum and there would be other parents who are the same. Anything that can be done to increase awareness of ASD is great. Thanks to Nicole for doing this, it's not easy for some parents to talk about their child's diagnosis. I look forward to reading the rest of her story.

My son was diagnosed with autism just after he turned 3. I've had a lot of support and advice from the mums in the special needs section. If anyone has questions about Autism Spectrum Disorder please ask in the special needs section. You don't need a diagnosis to post there.

#3 baddmammajamma

Posted 20 January 2012 - 08:36 PM

Thank you for sharing this, Amber, and thanks to Nicole for being so open about her & her family's journey.

Like my friend firstatforty, I don't usually visit this section of EB. I am, however, pleased to see that Nicole's article (the link above) is the most viewed on EB right now.

ASD awareness is so important for many reasons.

First, ASD is now the most common set of developmental disorders in Australia. There are many EBers who have children on the spectrum (or are on the spectrum themselves). There are EBers whose children are at risk for ASD, but these parents might not know the red flags or what to do in the event that they have concerns. That's why you will see several ASD mums continue to post information and share experiences -- to help other families.

Second, and just as important, awareness helps pave the way for acceptance. There is still a lot of  misinformation out there on ASD. Hearing personal stories from families helps make ASD "real" and also serves to drive home how broad and varied the profiles on the spectrum can be.

I echo firstatforty's invitation -- if you have any questions about ASD or are concerned about your own child, please come join us on the Special Needs/Disabilities board. You don't have to have a diagnosis of anything to take part.

#4 EBeditor

Posted 26 January 2012 - 09:46 AM

Sure firstatforty. I will wait until al 3 articles are up.

#5 ~ky~

Posted 26 January 2012 - 10:39 PM

Wow ... I see so much of my son in how you describe Alex.

#6 mumma emm

Posted 29 January 2012 - 08:09 AM

i too have a child that has been diagnosed in june last year with Autism at age 3,  still am struggling to understand what, how and WHY. i have been givin info but it is all txt book cases and it has not helped me really???? need help

#7 kazzy71

Posted 29 January 2012 - 12:35 PM

QUOTE (mumma emm @ 29/01/2012, 09:09 AM) <{POST_SNAPBACK}>
i too have a child that has been diagnosed in june last year with Autism at age 3,  still am struggling to understand what, how and WHY. i have been givin info but it is all txt book cases and it has not helped me really???? need help

Hi Emm, how are u? I am also new 2 all this with Autism,my gran daughter has been diagnosed but we are waiting 4 her app to pick up her paper work,so we dont know yet how bad sad.gif  she is 2 years old,she is a lovely lille girl always happy... a real joy..but I know this may change..I look at her beautiful face and just wonder what is she thinking,does she know what is going on around her,will she ever?? maybe we can do this 2gether  biggrin.gif I was also a single mum,I know how hard it must be 4 you with so many kids,I hope 2 talk soon karen x


#8 Nut

Posted 29 January 2012 - 10:04 PM

Mumma emm - Unfortunately you will probably never get those answers. It's not something you or anyone else caused and no one really knows why. Just a lot of speculation. My approach is rather than concerning myself with the how and why of it is to try and focus on the 'what can I do'.

Having a diagnosis already is an awesome step toward finding what kind of help you need. Because every child is different and every child with Autism is different, their needs are different. The earlier you have it diagnosed the better and you've got that. It opens up so many doors help you can get. To funding and extra help at school.

It's an ever changing landscape for us. Things that DS did a few months ago that have changed now. Even some things I mentioned in my articles have changed.

My recommendation... Find a group of parents of children with Autism. It was through a couple of Facebook groups based in Canberra that I found my way through the actual diagnosis and I have now made some friends who understand what it's all about. People who know why I choose not to go to parks with my children or why I am hesitant to go to certain places for fear of something going wrong. Having friends who get it is probably the most important thing for me. Even if it's just someone to vent to!

If you ever want to chat via PM, feel free to contact me. I have known for a while that DS was on the spectrum, but it is a completely different ballgame when they start school and you have to consider the various therapies. And it can be a little hard at times, when I look at my daughter who is nearly two years younger and I see her doing things DS should really be doing and should have been doing at that age. And that I can even have a better conversation with her at only 2½. But I am lucky to have such a sweet, placid and wonderful little boy who is funny and loving. He just doesn't process things the same way most people do and that's OK.


#9 EBeditor

Posted 20 February 2012 - 03:01 PM

Bumping as we have released part 3  -the process of getting an offical diagnosis.
http://www.essentialbaby.com.au/toddler/to...0111-1pu7y.html

#10 pelimum2dj

Posted 20 February 2012 - 05:16 PM

Nicole

I was interested to read that in the ACT you can get a disabled parking permit.  Can you tell me more about this.  I have two with autism, one severe and one moderate.  Now 9 & 10.  

It is a challenge, but a very rewarding one.  Good luck with your sons schooling.  Just be prepared to go to the department over the school if you think you are getting a raw deal.  I ended up changing schools because the original one required me going to the department for everything.  THe new school is so much better and more accommodating and the attitude has led to immense improvements.  My daughter (9) is just starting to be able to have a conversation, but is still unable to answer a question when asked.



For Emm, my recommendation is not to concefrn yourself with the why.  Be much more focused on how to live with the condition.  This is something that will give results.  


Enjoy the journey.

#11 baddmammajamma

Posted 20 February 2012 - 08:13 PM

Nicole, thanks for sharing so many phases of your journey. Like you, I felt more relief than anything when we received our daughter's diagnosis. It gave us some understanding of her unique wiring and sense of direction re how to best support her.

We are definitely an early intervention success story!

Best of luck to you & your beautiful little boy...and all the best to other families out there who are starting their own ASD journeys.

#12 Nut

Posted 21 February 2012 - 07:28 AM

pelimum2dj - Hi original.gif

Yes I have a disabled parking permit for my son. It's only a newer thing after some parents of children on the spectrum fought hard and won. It's definitely worth looking into.

For me I just had to print out the application form for the sticker and take it to my doctor. In this case it was my paed but a GP is enough. There is no box on the form but my paed ticked limited mobility and wrote a little blurb next to it. Other doctors write a brief explanation on the side or back of the form and sign it. It was handed to me over the counter when I went in to the motor registry. Luckily the lovely woman who served me also has a child with ASD and didn't question it as well.

As for school, so far we have been really lucky. He has a brilliant teacher whom he loves and is very proactive. He met Alex more than once before the year started and took time off last year to go to his 3yo preschool and just see what they do with him and how he is. And being a younger male teacher as well I think is a really positive thing for him. They put in the application early for an LSA who is there two days a week full time. He only goes two days one week and three the next so only one day per fortnight without the extra pair of hands.

There is another little boy in the class on the spectrum as well who is more severe than Alex and seems to get more aid from the LSA, but as long as she spends some time with him giving him the 1:1 he needs it doesn't phase me. I will talk to her this week and see how she is going with him anyway, just to see how she responds.



#13 Mum_of_five

Posted 02 June 2013 - 11:39 PM

This is the first time I have been in this forum.. Thankyou so much for sharing your story original.gif My 14 year old was diagnosed with Asperges in Feb this year and reading your story has been so inspiring.. I am now in the process of having my 13 year old assessed ASD..My boys were diagnosed with a language disorder at 3-4 years and I never questioned the diagnosis til my first went to secondary school and I began to question a few behaviours..I do regret not getting a second opinion when they were younger, and blame myself for that.. But it is also not uncommon to go undiagnosed til they reach puberty..




2 user(s) are reading this topic

0 members, 2 guests, 0 anonymous users

 

Get your FREE Baby & Toddler Show ticket!

Get your free ticket to the Sydney Essential Baby & Toddler Show for September 25-27 - register online now.

A solo birth, a wasp swarm and a forest fire: mum and baby's amazing story of survival

Desperate, out of petrol and low on food, a new mother lit a fire in the hope of attracting attention.

Boy found on swing died of hypothermia and dehydration, autopsy finds

The story was chilling and heartbreaking: a three-year-old boy was found dead in a Southern Maryland park, his mother pushing him on the swing.

Child's play and laughter help battle fatigue

Feeling fatigued? Uh-huh, thought as much. Join the queue.

Dad shares entertaining 'how to hold a baby' clip

For many new dads, their own child is the first baby they have ever held. So one dad has posted an instructive YouTube video titled "How to Hold a Baby".

The Australian baby with 100,000 Facebook fans

She may be only eight months old, but Egypt has already amassed more than 100,000 fans and received a letter from royalty - Hollywood royalty that is.

Public welcome outside church for Princess Charlotte's christening

Duke and Duchess of Cambridge have invited well-wishers to see Princess Charlotte outside church in Sandringham on day of her baptism.

Tongue tie: what you need to know

Tongue and lip tie can lead to many problems for babies - and their parents. Here are the signs of tongue tie and how it's treated.

My daughter is small but that doesn't matter

My daughter may be small, but it's my job as her parent to refocus back where it belongs - on who she is as a person

Wet wipes linked to rise in allergic reactions

The government has issued a health warning after a rise in allergic skin reactions has been linked to a preservative found in some wet wipes.

Gay couple in their 80s first to wed in Dallas after Supreme Court ruling

Love may have won, but it came with quite the wait.

William Tyrrell's family marks birthday with cake and renewed appeal

The family of missing boy William Tyrrell will mark his fourth birthday on Friday making a cake to share with friends and family as NSW police renewed their public appeal for information on his disappearance.

What all parents should know about safe babywearing

A picture of Ryan Reynolds always gets the girls talking, and a recently shared photo has done exactly that - but this time, it's for all the wrong reasons.

Baby's head shape reveals potentially fatal condition

Thinking her baby just had an unusually shaped head, a mother was shocked to discover it was instead linked to a dangerous condition.

'Help - my toddler hits me!'

My toddler has started hitting when he gets frustrated, is feeling ignored, or just thinks it might be fun.

Why IVF success rates may not be what you think

Transparency, accountability and responsibilityare essential measures to protect IVF vulnerable patients.

On the 10th anniversary of my son's death

This day marks a significant day. Today marks 10 years since I lost my son Kai.

Mother-in-law 'from hell' inspires survival guide

The happily ever after Nicola Milan had imagined wasn't to be – and she blames her mother-in-law.

Name your baby Quinoa, win a $10K gift card

Choosing a name for your little bundle of joy is always a major decision. It can be something traditional, trendy, creative … or inspired by the menu of your favourite chain restaurant.

Owning a pair of nail scissors does not make me a hairdresser

It's been a whole year since sleeping in until 10am. A whole year since having a peaceful shower.

The 83 children who were tragically let down in the last decade

Over a 10-year period, 83 children died from domestic violence abuse in NSW, with three quarters of the victims aged five years or under, the NSW Ombudsman has revealed.

Expert Q&A: Gross motor skill development in toddlers and preschoolers

Dr Katie Heathershaw answers questions about jumping, toe walking, riding a bike and being pigeon toed.

Is it reasonable to expect your partner to give up drinking in pregnancy?

From the moment that I fell pregnant with my son, I realised just how much my life had already started to change.

Stroke victim joins class action against makers of popular contraceptive pill

"I was terrified I would always be this way. The pill needs to come with a much higher warning."

Sexy time

Why you should get excited about scheduling sex

Unfortunately, the belief that sex should always be spontaneous is a myth. It just isn't.

When newborn photoshoots get messy

When it comes to newborn photoshoots, it is all about the timing.

Orphaned baby daughter Ayla wakes from coma

Former All Black Jerry Collins' critically injured orphaned daughter has awoken from her coma and is able to bottle-feed.

Dad takes miraculous catch while feeding baby

One American father has taken multitasking to a new level at a Cubs-Dodgers baseball game at Wrigley Field.

'Samuel is our firstborn, and he will never be forgotten'

Having lost their firstborn at one day old, the Carrolls were overjoyed to welcome their daughter Isobel into the world a year later.

Channel 10's Sarah Harris expecting first child

The Studio host Sarah Harris doesn't mind if her first baby is a boy or girl, but she does hope it is born with one thing in particular.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

27 funny ultrasound pictures

Ultrasounds give you a look at your growing baby ... and sometimes what appears to their womb-buddy, or your bub in an amusing position.

The top 6 misleading parenting terms

From 'morning sickness' to 'the terrible twos', there are many parenting terms that are misleading.

When 'good' nannies go bad

While most nannies take pride in their work, there can be some who have a hidden side.

Woman hospitalised for skinny jeans injury

Beware: skinny jeans might be bad for your health.

Gauze seeding: the bacteria-breeding birth trend

A number of women having caesarean deliveries are now taking steps to give their baby a better 'microbiome' start in life.

Jimmy Fallon writes new children's book for dads

Jimmy Fallon, host of NBC's The Tonight Show, recently wrote a children's book about every father's secret wish for their baby's first word to be "dada" - not "mama".

28 names for babies born in winter

Looking for some baby name inspiration for a bub born during the colder months? Here are 28 options from around the world to consider.

The horrible act that sparked a brawl at child's birthday party

The uncle of the seven-year-old girl at the centre of the brawl at child's birthday party in Sydney's west has described the events leading up to the alarming show of violence.

Babies 'benefit from iPads at a young age': study

More often than not, you'll read that screen time for children should be kept to a minimum - but some scientists are now challenging this way of thinking.

Do mums really just obsessively talk about their children?

Natalie Reilly describes three main types of conversations mothers have. And, surprise, they're not all about kids.

Why some dogs might attack babies or young kids

A baby's smell, the noises it makes and even its gaze can contribute to the potential for a dog attack.

Mum demands refund for 'beargina' christening cake

It was meant to be a tasteful cake to help celebrate a three-year-old's christening.

5 things no one warns you about after giving birth

How many times have you been warned about all the sleepless nights you have to 'look forward to' when you become a parent?

Police officer sang nursery rhyme as heartbreaking photo was taken

A police officer arrived at a devastating scene on Thursday: a car crash resulting in all passengers being thrown from the vehicle.

Don't worry, working mums: Just leave Dad in charge at home

Want to open the boardroom doors for women? Encourage - heck, praise - dads who stay home with their children.

Hilaria Baldwin shares post-baby selfie

Just two days after giving birth, actor Alec Balwin's wife posted a post-baby picture on social media.

'Help - my child won't ever do what I ask!'

Compliance is part of the parent-child relationship, but so is resistance. It's all natural.

Postnatal depression support gets $23 million boost in NSW

The Baird government will include $22.8 million in Tuesday's NSW budget to expand a program designed to help parents at risk of postnatal depression (PND).

'I'm just as tired, scared and stressed as you': stay-at-home dad's plea

I'm really lucky to have two great kids, but I found it really tough with so much being aimed at the mothers and not the fathers.

 

FREE TICKET

Get your FREE ticket to the Baby & Toddler Show

Get your free ticket to the Sydney Essential Baby & Toddler Show for September 25-27 - register online now.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.