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IVF with PGD #95


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#1 Forum Moderator

Posted 28 October 2011 - 08:56 AM

New thread time ladies.

Here's the link to your old thread.

Cheers,
~Mintie~

#2 bright*future

Posted 30 October 2011 - 09:06 PM

Hey all you ladies,

How's things??

Liltuss, how did you go?

Siobhann, lovely to hear from you!  How are you tracking?  Thanks for your Q, I know you went through similar stuff with your testing. We are not the first to find the disorder on this particular gene, but I am led to believe there are many bit of this gene that could have a problem, so we might have found it the first time on this tiny bit of this tiny but HUUUUGE problem? I dunno, I'm not scientific enough!  But, I am hoping and hoping that our testing results will flow through to all the stem cell research that is happening and will help some other people down the track.

ChosenOne - nice to see you back and big congrats on your baby boy, I bet he is bringing bundles of joy. Thanks for popping in, I can speak for myself when I say it is encouraging!

Hi Spock, hi zjb, how are you guys??  Hi to everyone else!!

AFM not much news, we booked in to see the plethora (I love that word and cherish every opporunity to use it) of people we have to see at the clinic at the end of Nov, and just waiting for a bit more info from the lab / geneticist early this week to make sure there will be enough info for us to see these dudes and set everything up. All going well, I expect we will be on the road early next year, being realistic about Christmas breaks for doctors, our own time to get our heads around it all and get through the silly season as unscathed as possible!!  Thanks everyone for encouraging me to book in, the Dr was very happy to hear we were almost there and happy to get us in!  

I'm really beginning to think about healthy eggies now, since we are probably 3 months out and they say that's the timeframe to consider. I am on your regular vitamins, thinking about the CE10 and basically upping the leafy green intake in our lives (and lowering the vino intake!! wink.gif )  .  Is there anything else you ladies have done and seen better results from?

Happy Sunday, hope you have had a lovely weekend and have a fantastic week ahead. May it fly for all of us who are waiting for answers!!!  wink.gif

#3 bright*future

Posted 31 October 2011 - 12:39 PM

Heartbroken.......

There has been some problem at the lab (they wouldn't tell me what has happened) and my DH has to have his testing done again. They couldn't tell me how long it would take, said it wouldn't take the full 6 months, but advised that we should postpone out November appointments.

sad.gif  sad.gif  sad.gif

#4 minidiamond

Posted 31 October 2011 - 01:24 PM

QUOTE (bright*future @ 31/10/2011, 01:39 PM) <{POST_SNAPBACK}>
Heartbroken.......

There has been some problem at the lab (they wouldn't tell me what has happened) and my DH has to have his testing done again. They couldn't tell me how long it would take, said it wouldn't take the full 6 months, but advised that we should postpone out November appointments.

sad.gif  sad.gif  sad.gif

OMG Bright Future !! That is awful for you sweetie, and your poor DH, I am so so sorry.  What a way to bring you down, that is disgraceful that the clinic has stuffed up, whatever it was.   I'm sure you're too upset right now but I would be insisting on an explanation, and some kind of compensation & certainly a committment to when you can expect new results.  Don't hesitate to take it higher when you have the energy - they need to know it can't happen again.

Try to stay as positive as you can, and use that little bit of extra time to work on the eggies.  I have taken COq10 along with Blackmores preconception, thrown in a bit of Vitamin D here & there.  TBH I haven't noticed a massive change in eggs but I am pretty old  rolleyes.gif  After a number of cycles, I must admit Ihave relaxed a little on being super-strict with my diet.  I eat pretty healthily anyway, have a little wine now & then and maybe one full strength coffee every couple of days (one decaf a day).  

I'm not entirely sure of your specifics on fertility but menevit for DH could also be an option, supposed to take 3 months to work.  Have you explored DHEA for eggs ? It isn't for everyone, and certainly not for ladies like me who have polycystic ovaries, but there is some school of thought it's useful.  It's not a wonderdrug, and has side effects but maybe read up.

I hope you can get some more answers soon, sorry again to hear your bad news.  Spend some quality time doing lovely things with your DH so you can make the time pass faster.

Thanks for asking about me, we got two nice blastys but decided that wasn't enough to warrant CGH.  I will pop in here every now & then to see how you're all going, and wish you nothing but the best.  Your time will come I feel sure.

Edited by Liltuss, 31 October 2011 - 01:39 PM.


#5 bright*future

Posted 31 October 2011 - 01:50 PM

Thanks Liltuss, I've had a bit of fresh air and a cup of tea and feeling less like bursting into tears now (not such a good look at work is it?).

I must clarify it was the hospital lab that has stuffed up somehow, not our IVF clinic.

ETA sorry to hear about your blastys, did you have one transferred in the end? Fingers crossed for you if you did.

Edited by bright*future, 31 October 2011 - 02:39 PM.


#6 eskimoo

Posted 31 October 2011 - 04:29 PM

Sorry to hear that bright*future sad.gif
Hopefully they will be able to use some of the info they collected about hubby to speed up the testing...

#7 Wishful thinking

Posted 11 November 2011 - 03:56 PM

Hello lovely ladies,

Just popping in to say hi!  Seems to be pretty quiet in here but am guessing there is lots of waiting going on as seems to be the way with pgd.

Bright*Future - was so happy to hear that they found the nonsense gene and then devo to further read about the lab mishap cry1.gif  I hope they work really hard to get you back to where you were....

Liltuss - was lurking elsewhere so big hugs.  Fingers crossed that one of your frozen embies will be 'the one'.

Eskimoo - how are you coping with the wait?

Zjb, Siobhan, Spring - Hi! how are you all doing?  Where are you at with your cycles?

Spock - hey!  Will pm you soon.

Sorry to anyone i've missed, hi to anyone else popping in.

Afm - just jumping through all the hoops to start a donor cycle.  May be joining you all again soon as our fs has suggested that if our first donor cycle is not successful that we do pgd on any remaining embies.

Hope everyone is taking care of themselves!

Wishful Thinking. x

Edited by Wishful thinking, 11 November 2011 - 03:57 PM.


#8 bright*future

Posted 15 November 2011 - 09:21 AM

Hi guys,

How is everyone going?  It is quiet in here!  Like you say wishful, the PGD journey is a slow one!

Wishful, lovely to hear from you, what's the donor journey like? I have read a few bits and it sounds like lots of extra stuff to go through. FX for you that it is quick.

Liltuss, I've seen you've been around, stay in touch, will be watching your journey.  I have ordered some CoQ10 as have read stuff about the egg quality and also sperm quality, and am on the Swisse preggo vitamin. Will be force feeding hubs the swisse mens and any CoQ10 I can get down his throat...  I kinda figure, it can't hurt!  I haven't looked into the DHEA but I will do some research, thanks for all that info, I appreciate it.

Thanks so much to you all for your support. I am ok. When it all happened my DH was away for work and I couldn't bring myself to tell him as I knew it would distract him and ruin any good parts of the trip, which I think made things worse. We are well and truly behind, as we had to put off our Nov appointments I can't see us getting into the FS until next year now, with Christmas etc in between.  I think they pretty much shut down, disappear and have a really good break over that time, which they deserve for sure. I am still not really sure what happened in the lab but it turns out it is a new strain / mutation of the gene so they are testing & restesting, intepreting and estimating. We will be happy to contribute to the research down the track but for now we just want the bloody results!!!

Anyhoo - enough about me, how is everyone else. Dying to see some good news in here, fingers crossed and strength to each and every one of us who is going through this bloody difficult journey.

#9 Spock

Posted 15 November 2011 - 05:39 PM

Hi ladies, just popping in as I've been away overseas (2 weddings to attend) for some time.

bright*future, you sound like a patient person, patience seems to be very important for pgd testing. I hope you get some answers soon so you can get cracking early next year.

wishful thinking, hi, hope all is progressing smoothly.

liltuss, have you had a transfer?

eskimoo, chesire cat, zjb, siobhan, spring, hope you're all well.

afm, suffering a bit of jet lag. We are of the next couple of weeks for our donor egg cycle. Fingers crossed.

#10 Mum2TwoDSs

Posted 22 November 2011 - 07:39 PM

Hi ladies,

I just had another failed cycle and this is my third. I have a question about PGD testing. DH and I have a child whom we conceived naturally but we are doing IVF due to MFI and LOR. So far all we have got is BFN. Do you lovely ladies here have any idea if PGD testing would apply to couples like us who have managed to naturaly conceived? I am not sure what exactly PGD is but know it is something about testing the chromosomes?

I know none of us here are doctors or specialists but if anyone has any comment I would love to hear it.   Thanks!

#11 minidiamond

Posted 22 November 2011 - 07:55 PM

Hi Mum2one
I have been in and out of this thread, and people have different reasons for doing PGD.  Some do it because of potential genetic/hereditary conditions (such as cystic fibrosis), others do it due to recurrent miscarriage, normally caused by chromosomal abnormalities.

In essence, it's a 'preventative' measure.  That is, embryos of sufficient quality are tested, and any that don't measure up chromsomally are discarded.  Couples that have conceived naturally certainly undertake it, could be because they've discovered hereditary chromosome disorders after having a child - or they have secondary infertility.

My FS suggested it after 2 miscarriages and due to my age.  I know one or two others have also done it after recurrent miscarriage.  Not all clinics do it, you would need to talk to your FS about it.

Good luck.

Hi to everyone else here, hope you are all doing ok.  I'm having an FET on Sunday, pop in here now & then.  Take care all.

#12 Mum2TwoDSs

Posted 23 November 2011 - 07:37 AM

Thank you Lituss!!! You have explained it so clearly I now understand. Thanks!

#13 bright*future

Posted 23 November 2011 - 07:46 AM

What Liltuss so beautifully said! wink.gif

Good luck Mum2OneDS.

Good luck Liltuss, FX for you.

No news for me, I am silently pulling my hair out but I know we will get there soon.

#14 Wishful thinking

Posted 23 November 2011 - 12:43 PM

Hi all,

Mum2OneDS - we did PGD due to secondary infertility.  We started IVF when we had trouble conceiving no.2 and had around 7 failed cycles (all BFN). All our embryo's looked fantastic so we wanted some answers as to why it wasn't working.  We had 7 embryo's tested in all (over 2 PGD cycles) and all turned out to have chromosomal issues sad.gif

Liltuss - good luck with your upcoming ET!!

Spock - not sure if my pm worked so just want to wish you all the best for your upcoming cycle.

Bright*future - hang in there.  I too am trying to be patient waiting for my donor cycle and its not easy but every day is a step closer.

Will return for more personals soon

Wishful. x

#15 Mum2TwoDSs

Posted 23 November 2011 - 01:55 PM

wishfulthinking, oh i dont really want to call you wishfulthinking! You need to change your name to something positive haha...sorry hope you dont mind me saying that...thanks so much for sharing! We are exactly on the same thingy...I guess with all the BFNs we have had so far...4...it goes to show we definitely have somethting wrong at chromosomal level though the embies looked ok...now I get a better picture of what PGD is all about.  But I know one thing for sure, DH would rather not do any more IVF than to pay for more (PGD). sad.gif I know him tooo well..he is already telling me last night to quit it all...I dont know...

I am really feeling depressed today...think the BFN this time plus AF being super sluggish are really gettiing into me atm. I am giving myself time-out from everything and just want to spend some time wallowing...sorry for being such a downer...few days ago I was feeling I am strong to conquer anything but not now...

#16 Spock

Posted 03 December 2011 - 07:50 PM

hi ladies, it has been very quiet in here.

Mum2oneds, hope you're doing okay now after some good quality wallowing time. We tried pgd testing because of recurrent m/c - 5 in a row.

wishful thinking, I received 2 PMs from you but they were empty??? But thank you for thinking of me and wishing me well. I will PM you.

Liltuss, how did you go?

bright*future, just like the other ladies here you are strong and resilient. I have every faith in you getting through this waiting time. Not long to go.

Chesire cat, zjb, siobhan, eskimoo, hope you're all doing okay.



#17 minidiamond

Posted 04 December 2011 - 09:18 AM

Hi everyone, just popping in to say hi. I doubt we'll go down the PGD track at all now, but I will keep lurking and praying for baby dust for everyone.

How are things with you spocky ?   I hope you are edging slowly closer to your dream & of course hope that for everyone here.  Such a hard & long road but as spock said, the strength you all have is amazing.

AFM, I am over in the 2ww with a hatching blasty (hatching because we were originally planning CGH but only got the two embies).  I have had a BFP on a few HPTs which is great, but as you would all know, really just step one in the process. BT is Thursday. I'd like to start feeling a little different than I have on other BFPs just to give me a sign another m/c isn't going to happen.

Take care all.

Edited by Liltuss, 04 December 2011 - 09:18 AM.


#18 bright*future

Posted 05 December 2011 - 09:29 AM

Good morning ladies, and happy Monday!

Liltuss -  tthumbs.gif   Awesome news!!! I can understand your holding back from the celebrations but wow, I am so happy for you!  Sending you sticky healthy vibes!  When are you due to have scans?

Mum2oneDS - how are you going? Hoping you are feeling back on top of things. How old is your DS - is he getting excited about Christmas? Enjoy.

Spock - thank you. how are things for you?

Wishful - how are you?

Hi to all you other ladies, hope you are all well.

AFM - I'm not getting too excited but we have an appt with FS and all the other people next week. I am expecting a very long wait while they finish their special little "work up", so I dunno, early next year is the goal post now.  I'm ok with that.

#19 Spock

Posted 09 December 2011 - 10:34 AM

bright*future, hope your appt next week goes well. Be nice for you to have some firm dates.

hi everyone else

#20 zjb2

Posted 10 December 2011 - 10:35 AM

Hi ladies,

Sorry for the lack of posts, been having problems with my login.

I just wanted to wish bright*future all the best with the appointments and hope the the ball starts rolling soon.

Hi and best of luck to everyone else.

afm, I am not sure that we will be able to do a PGD cycle after all. Since our first cycle which we could have had tested but didn't, we have had a couple of terrible cycles with no embryos suitable for testing.

I will keep watching this thread and wish everyone the best of luck.
zjb.

#21 Spock

Posted 10 December 2011 - 06:07 PM

hi zjb, I hope you get some embies to test soon. You come across as a strong woman. You have also been through the wringer and deserve a good break from all the crap we get thrown at us.

#22 bright*future

Posted 11 December 2011 - 07:54 AM

Hey zjb, thanks so much for your thoughts.  Sending you the best of luck too, hoping that you get a good cycle next with lots of embies.  Stay in touch.

Thanks Spock too for your kind wishes.

Liltuss how are you going? Sounds like that embie is very sticky and burrowing in nicely??

I'll update at the end of the week with how things go....

Hi everyone else!

#23 Farmgal

Posted 20 December 2011 - 11:58 AM

Just wanted to wish everyone a happy Christmas.
All the best for 2012 - may it be a great year for you all.

For those who I have not met before I am a PGD graduate from 2008 and I just wanted to  pop in and say hi and see how you are all going.




#24 siobhan1980

Posted 11 January 2012 - 11:05 AM

Hello special ladies

Sorry I have been MIA for so darn long.  I have been quietly checking in every now and then to follow your journeys and I wish you all the best.  IVF + PGD is such a hard road...but sometimes it can lead to something good, as I have just discovered.

I just wanted to let you guys know that I am currently 12.5 weeks pregnant with twins.  We did another cycle in August and froze 10 embryos and then in November we cycled again and got another 7.  They defrosted the August haul and in the end they were able to test 14 embryos for my heart condition.  We expected a 50/50 split given the way the condition is passed down and everyone (scientists especially) were mortified to learn that only 2 out of 14 were healthy.  And to boot, they were the dodgiest ones- all the stellar fast achievers were affected.  We transfered one blast and one expanding morula and were told not to have high hopes.  We were absolutely crushed- it felt really crap to have the numbers fall that way.

Anyway, it turns out these two were little survivors  after all and they are big and active and everything looks fine so far.  I have my nuchal on Thursday and I am already large and waddling around.  I finally graduated from my ivf clinic to an obsterician and it feels so surreal.

I am very hopeful that we will get to the end (they are due in June) and I hold in my heart a big, wonderful wish that every single girl on this forum will find her little pot of gold at the end of the rainbow.  Please hang in there guys, I totally know how drawn out, expensive, frustrating and often time mysterious and/or unfair the whole process can be.

If anyone would like to see how things progress from here I have a PGD/pregnancy blog:

www.the-smallest-ford.blogspot.com

Thank you so much for being there for me right back to the day in 2008/9 when I poked my head in to ask what PGD was all about.  I found solace here that I was not able to find anywhere else xxx

#25 bright*future

Posted 11 January 2012 - 11:58 AM

Hi Siobhan,

So lovely to hear from you and can I just add that you write beautifully?  I have been following your blog and hoping you would pop in here and share your wonderful news!!

Thanks for your good luck wishes and back at you. I'll be following your story you can be sure! xx


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