Jump to content

Weird symtoms, Limbo Land?
sick of worrying


  • Please log in to reply
15 replies to this topic

#1 wca

Posted 04 May 2011 - 03:55 PM

Hi everyone,

Since my son was born (he's now 10 months) I have had lots of weird things going on with my body and am in the process of trying to find out what it is. I have been back and forth to the GP who thought I had anxiety (I get anxiety because all I do is worry about these symptoms), had blood test to check my thyroid and Iron and prolactin hormone, all normal except my Iron was a bit low. I have an appointment in August to see a Neuro and get an MRI as my GP wants to rule out MS or something like a brain tumor unsure.gif I get numbness/tingling/burning sensations in my body at random, an odd feeling in my face and forhead, headaches, mental foggy-ness, dizzyness, hair loss (alot, thought it was post baby hair loss but there is no sign of it slowing down and it is REALLY noticable), vague pain and now recently I am getting pimple type sores on my scalp and a few on my arms and legs, and a bunch of other abnormal things. I just have no idea what it could be and ALL I do all day is stress about what it could be. I hate that I have to wait until August to see the specialist.
I guess what I want to know is how do you keep yourself calm during the waiting? Obviously something is going on with me and Im tired of wondering what it is and terrifed it is something sinister. Is anyone else going through the early "trying to find out what the hell is wrong" phase? I have an appointment with my GP on Monday.

Anni xx

#2 Freckles

Posted 06 May 2011 - 01:06 PM

Hi Anni,

Let me start by saying that I have MS and so have been through the awful, not knowing stress. It is horrendous and is worse in a lot of ways than actually having a diagnosis! I am moving your thread to the Disabilities and Chronic Illnesses section where you may well get more support. It might be wort elaborating on your original post to give people an idea what the issues are.

HTH and that you get an answer!


#3 wca

Posted 06 May 2011 - 01:21 PM

Freckles, thankyou so much for moving my post, I really appreciate it. I am starting to feel like even if it is something very serious, I will be relieved to finally know what is causing these things and get on with dealing with it rather than floating around in limbo. Thanks again smile1.gif

Anni xx

#4 tintin78

Posted 07 May 2011 - 09:35 PM

I have a condition called Vestibular Migraines also known as Migraine Associated Vertigo (MAV)
Some of your symptoms sound very similar to what I have/do experience. Mine started 3 months after my DS was born too.

I went through a period of not knowing either, my GP beleived I was a 'stressed' mother and even prescribed ADs at one stage  huh.gif It was by luck after I asked to see and ENT (as i had a fullness feeling in my ears) that he refferred me onto a neuro who was a bit of a guru with 'odd' symptoms! I had Balance tests/Hearing tests done and they all came back normal. The waiting is awful, but knowing I was being proactive and heading in the right direction did help.

There is a place you can get more info if you want to have a look. It's quite an odd condition that not many people are aware of (doctors included) You can find out some more info here


Good Luck hun.

#5 Guest_Seraphena_*

Posted 07 May 2011 - 10:12 PM

Just lurking and saw your thread original.gif

Have you been checked out for lupus? Did all these symptoms just start out after having your baby or did you also get a virus?.

For your hair loss you can take beta sitosterol. It's really good for helping your hair grow back.



Try not to stress!.

#6 wca

Posted 08 May 2011 - 09:44 AM

Seraphena, I havn't been checked for Lupus yet, but now you mention it, nearly a year ago I was struck by a horrible virus while on holiday and have never been the same since. The virus was awful, fever/sweats/shakes/nausea/aches and is the only time I have been sick enough to literally stay in bed all day for a few days.

Anni xx

#7 wca

Posted 08 May 2011 - 10:22 AM

TinTin, thankyou for your reply original.gif  My GP also put all my symtpms down to stress and anxiety, and even diagnosed me with PND and put me on AD's. I don't feel depressed, and I do get a bit stressed (with 3 kids who wouldn't LOL) and the anxiety is all because I worry about the symtoms.
Thankyou for the link, I will check it out.

Anni xx

#8 Guest_Seraphena_*

Posted 08 May 2011 - 01:43 PM

QUOTE (wca @ 08/05/2011, 09:44 AM) <{POST_SNAPBACK}>
Seraphena, I havn't been checked for Lupus yet, but now you mention it, nearly a year ago I was struck by a horrible virus while on holiday and have never been the same since. The virus was awful, fever/sweats/shakes/nausea/aches and is the only time I have been sick enough to literally stay in bed all day for a few days.

Anni xx



I asked about a virus, because Myalgic Encephalomyelitis (M.E.) is a neurological disease caused by a virus (causing central nervous system damage) and has very similar symptoms (not the pimples though). Most doctors are not aware that it is neurological though due to the other name it is often called - Chronic Fatigue Syndrome. But it is classed as a neurological disease by WHO. In order to qualify for a diagnosis of M.E. you need to have muscle exhaustion and weakness after any exertion. It also causes cardiac dysfunction, low blood pressure or low blood pressure upon standing, on going flu like symptoms, numbness and tingling, burning sensations, severe cognitive dysfunction, headaches of a new type and severity, blurred vision, hair loss or thinning etc. It can even cause seizures and paralysis.

The symptoms are very similar to both MS and Lupus

http://www.ahmf.org/infosheet.htm#5

Good luck!

#9 unicorn

Posted 08 May 2011 - 01:55 PM

I hope you get some answers soon WCA, it is a worry not knowing what is going on.

#10 minyaca

Posted 08 May 2011 - 03:55 PM

I hope you get a definitive diagnosis soon, because it is incredibly stressful not knowing.

I had the same symptoms as you, minus the hair loss and pimples, and it turned out to be peripheral neuropathy. My GP thought it was MS and I had to wait a couple of months to see a neurologist. Now that I know the diagnosis, I just live with it, and thankfully the symptoms have lessened a bit over the years.

#11 weekendsrule

Posted 15 May 2011 - 11:35 PM

Just wanted to say hi original.gif

I have had chronic pain for years now, and other 'weird' symptoms for the last year or so.  Most GP's never believed me (I also have PTSD, so am oh so "obviously" stressed and/or attention seeking rolleyes.gif ), and even the one I have now, who has always separated the physical from the mental stuff, is now either asking me what I think shrug.gif or putting it down to stress (my psych wants a MRI of my head as she doesn't think it's stress at all, but my GP won't go for that???).

I don't know what to do any more.  Now that DH is losing his job, can't afford to see a neuro anyway...

We should have a 'limbo' group lol....

#12 justthetwoofus

Posted 16 May 2011 - 12:33 AM

Hi Anni,

I'm going through something very similar and I really do feel for you.

I have had all but one of your symtoms and a list of other wierd symptoms too, including internal and external tremors. Mine happen in episodes that last weeks/months and then disappear. I'm really well at the mo and have been for six or eight weeks now (I love that I have lost count......When I am well I feel comaratively amazing biggrin.gif ). But when I'm not I literally spend most of my time in bed....for weeks on end. Thankfully I have a wonderful bunch of really close friends who rally around to look after me and my son when things go bad.

I have had many many tests including MRI's which have revealed only 3 small tumors on my spinal cord, so far no lesions. I have also had a lot of genetc testing done which I will get the results for on Thursday at my next Neuro app. I still dont have a diagnosis and its true, the waiting and not knowing is really hard. Even when I'm well I still have this awful feeling of looking over my shoulder, wondering when it will come back again and knock me off my feet. I try really hard not to think aboutit and just enjoy being well.

Its a shame your app is so far away. Have you made a timeline of symptoms to give to your Neuro? I made a really detailed list (pages of detailed episodes etc) and my Neuro said it helped a lot.

Do you have a good support network? Someone who you can talk to? Even though my friends are so suppotive and they really do listen, I know that they cant really understand what it feels like......"limbo land". It does really help to vocalise though.

I wish I could tell you how to make the time go faster!

All I can suggest is to try and stay away from google and to somehow mentally be ok with the wait. I am working on that one!

bbighug.gif

I really do feel for you!

#13 jorgo

Posted 16 May 2011 - 12:55 AM

QUOTE (Seraphena @ 08/05/2011, 01:43 PM) <{POST_SNAPBACK}>
I asked about a virus, because Myalgic Encephalomyelitis (M.E.) is a neurological disease caused by a virus (causing central nervous system damage) and has very similar symptoms (not the pimples though). Most doctors are not aware that it is neurological though due to the other name it is often called - Chronic Fatigue Syndrome. But it is classed as a neurological disease by WHO. In order to qualify for a diagnosis of M.E. you need to have muscle exhaustion and weakness after any exertion. It also causes cardiac dysfunction, low blood pressure or low blood pressure upon standing, on going flu like symptoms, numbness and tingling, burning sensations, severe cognitive dysfunction, headaches of a new type and severity, blurred vision, hair loss or thinning etc. It can even cause seizures and paralysis.

The symptoms are very similar to both MS and Lupus

http://www.ahmf.org/infosheet.htm#5

Good luck!

yep this is me
combined with
thyroid issues
pcos
hyperplastic everythings ( basically things super grow and if left to themselves eventually turn some form of cancerous or "pre cancerous" )
psoriasis
and "epileptic focused" migraines ( which for me as a mild case means if i vaguely feel a headache coming  anyone near me has to watch out for randomly flying pens  forks and knives.... stabbed a friend with a pen in high school once lol... they learnt quickly on days I couldnt think of basic words [ table , chair, shirt]  dont sit within arm reach lol)
but i also get an associated "crawling ants " feeling  over my face and scalp with this

so i'd second thinking of this as a direction.... mind you good bloody luck finding someone who agree it exists


OT
weekends. rule...... cant your psych order an mri on a diagnosis VS medical basis ?


#14 wca

Posted 16 May 2011 - 12:32 PM

Thankyou SO much for the replies everyone!
I saw my GP last week for an update on how I was feeling. She is going to re-check  my Iron levels and do a full blood count and depending on how they are she will do a CT scan (which can be done there apparently) just to check for any obvious abnormalities while I wait to see the neuro in August.
I feel like a drama queen, and worry that the GP thinks I'm being a bit over dramatic about it but I would hate to take the "oh well do nothing and hope t goes away" attitude and then find out too late that it is something very bad. Better to be safe than sorry, plus this has been going on for almost a year now.

WEEKENDSRULE> A Limbo Land group, love it! happy.gif

Anni xx

#15 Guest_Seraphena_*

Posted 17 May 2011 - 08:05 PM

QUOTE (jorgo @ 16/05/2011, 12:55 AM) <{POST_SNAPBACK}>
yep this is me
combined with
thyroid issues
pcos
hyperplastic everythings ( basically things super grow and if left to themselves eventually turn some form of cancerous or "pre cancerous" )
psoriasis
and "epileptic focused" migraines ( which for me as a mild case means if i vaguely feel a headache coming anyone near me has to watch out for randomly flying pens forks and knives.... stabbed a friend with a pen in high school once lol... they learnt quickly on days I couldnt think of basic words [ table , chair, shirt] dont sit within arm reach lol)
but i also get an associated "crawling ants " feeling over my face and scalp with this

so i'd second thinking of this as a direction.... mind you good bloody luck finding someone who agree it exists


Only a stupid doctor would say it doesn't exist, they are also in breach of the world health organisations disease classification if they do not acknowledge and abide by it and can get themselves into A LOT of trouble. Unfortunately as you obviously know there are a lot of those doctors around!. M.E. can best be described as an ongoing enteroviral infection of the brain and spinal cord, hence it's name Myalgic Encephalomyelitis (inflammation of the brain and spinal cord) and is a cousin to Polio, outbreaks of M.E. followed Polio outbreaks. It isn't caused by any other virus, history dating back to 1934 clearly shows this. It's also medically explained with over 5,000 peer reviewed scientific papers clearly showing biomedical abnormalities. M.E. can be easily diagnosed by an expert M.E. specialist through an MRI or SPECT scan (it shows lesions on the brain). LOTS of people are told they have this disease when they actually don't!, a recent study in the UK found that 40% of people diagnosed with it actually didn't have M.E.. Experts have also found that women with M.E. go into menopause 5 years earlier than healthy women, children with mothers that have M.E. are commonly born with learning disabilities, health problems and the enterovirus can be passed through to the baby, causing the baby to get M.E. as well.  It's not a good idea at all for women with M.E. to have children, if only I knew that before having my child (who now has learning difficulties). The death rate for M.E. currently sits at 10% and is due to organ failure and or overwhelming infection.


Edited by Seraphena, 17 May 2011 - 08:40 PM.


#16 kp444

Posted 02 May 2012 - 11:12 PM

Did you get a diagnosis? I have had some of these weird symptoms and am 7 months post partum. I've had an MRI which was clear and bloods are all normal. I have tingling sensations in my legs, seem to get pins and needles easily. Sometimes just feel foggy and like you feel my only anxiety is due o my symptoms. Wondering if it's all just hormonal





2 user(s) are reading this topic

0 members, 2 guests, 0 anonymous users

 

WIN a $500 Visa debit card

Are you a parent? Simply take our survey for your chance to win a $500 pre-paid VISA debit card.

Dads' smoking before conception increases asthma risk

Fathers who smoke are more likely to have children with asthma even if they quit the habit before their baby is conceived, according to new research.

#birthjusthappened: the photos changing the way we see labour

There's no doubt that post-birth photos can have a powerful effect on women. But are they enough to change the way pregnant women feel about their own impending labours?

Tips for roadtripping with a baby

Techniques that served me well as a baby-free traveller have been rendered useles - but here’s how you can make this season’s road trips smoother than your newborn’s skin.

Gluten and nut-free lunchboxes made easy

Traditionally, packed lunches are packed with gluten (think breads, wraps and biscuits). One mum has created a gluten and nut-free solution.

Is this the new royal baby's name?

This traditional girl's name is the favourite among punters in Britain.

6 creative ways to save childhood memories

For some parents, recording facts like their child’s first word, first tooth and first steps isn’t enough. They’re taking memory collections to the next level.

Breastfeeding mum escorted off plane

Virgin Australia has come under fire after a breastfeeding mum and her 10-month-old son were escorted off a flight.

If toddlers gave performance reviews

Hello there, Mummy. I've been looking forward to this meeting for a while now. Overall, I'd like to say that you've been a great addition to the team so far. You've really been working your tail off. So, kudos to you.

A sweet proposal video worth watching

'The Special Proposal' tells the story of Salvatore asking his girlfriend Caterina a big question.

Why is it taboo for women to breastfeed each other's babies?

Why is the idea of nursing someone else's baby so socially unacceptable?

Win a Ben & Holly's Little Kingdom prize pack

To celebrate the April 1 release of Holly's Magic Wand on DVD and Digital, we are giving away five DVD packs featuring the newest installment of Ben & Holly's Little Kingdom Holly's Magic Wand and many more hours of family entertainment! Enter Now!

Genetic 'miracle baby' born after trailblazing IVF

A new method that screens embryos for more than 200 disorders is already making dreams come true.

Mum-of-three's bikini body inspiration

Rachel Hollis wanted to share a photo of herself in a bikini to encourage other mums to be proud of their bodies.

Sign up to our 30 days of #PlayIQ challenge

Sign up to receive 30 amazing tips and ideas for play with baby during the month of April and submit a picture or tip on our social wall for a chance to win an amazing Fisher-Price prize pack.

Adopting a child in or out of Australia is far from simple

Australians have wildly different experiences on their journeys to adopting children.

Breastfeeding doesn't make you a better mum - feeding your baby does

Given my immense dislike of Hopkins and her opinions, I was genuinely shocked to discover that last week she actually said something that I agreed with.

'Toni, another baby has died': the anguish of watching governments fail our babies

It has been six years since whooping cough claimed the life of four-week-old Dana McCaffery. Her parents are angry that lessons learnt weren't enough to save other babies.

Longer breastfeeding linked to higher IQ

A study of 3500 infants has found that babies who are breastfed grow up to be more intelligent and wealthy.

The 2015 flu vaccine: what's new, who should get it

For certain members of the community, catching flu can lead to severe illness or death. A vaccination can be lifesaving.

Dealing with a nappy escape artist

I hear about the tots that have a penchant for ripping their nappies off and the odd one that even smears the brown stuff on the walls and fine home furnishings, and I shudder.

Hospital apologises for 'traumatising' baby mix-up

St Vincent's Hospital has apologised "unreservedly" for a baby mix-up that left one new mum traumatised.

Special Ticket Offer, Save $8!

The Essential Baby & Toddler Show is back this April! Save $8 off the door price for a limited time only!

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Sign up to our 30 days of #PlayIQ challenge

Sign up to receive 30 amazing tips and ideas for play with baby during the month of April and submit a picture or tip on our social wall for a chance to win an amazing Fisher-Price prize pack.

Tips for flying with a baby

Travelling with kids requires a whole other set of skills - ones that I have learned through (sometimes unfortunate) trial and error.

How to stay calm in an emergency

I’m not expecting you to be as calm as you might be right now. What I mean is that if your panic levels are through the roof during a stressful situation, let’s bring them down to just under the ceiling.

Toddler gets 'drunk' after cranberry juice mix-up

A toddler was taken to hospital after a waitress served her sangria instead of cranberry juice at a US restaurant.

We need to stop using this word when we talk about childbirth

Is it shaming to point out that women are often being let down in birth?

The certificate helping parents deal with pregnancy loss

For some people, this certificate will offer a sense of validation that their child was acknowledged as being here and now gone, and will help them with life post-loss.

The phenomenon of phantom pregnancy kicks

'Phantom pregnancy kicks’ are encountered by many mums months - or even years - after their pregnancy is over.

The health insurance advice you can't afford to ignore

There's one simple switch that could save you hundreds of dollars a year in private health insurance.

4D scans show how smoking affects babies still in the womb

The harmful effects of smoking during pregnancy on unborn babies may be seen in tiny movements in their faces using 4D ultrasound scans, research has found.

The most dangerous toddler food trends

Pete Evans' paleo cookbook for kids caused a storm, but there are plenty of other unsafe food trends for babies and toddlers.

Infection killed new mum of twins

Modern medicine could not save 19-year-old Sophie Burgess who died 48 hours after giving birth to twins in the UK.

How to babyproof your job interview

Once upon a time, I was a fan of job interviews. That all changed after I'd switched careers, had a baby and decided to spend the first year at home with her.

Grieving families give warnings after toddler deaths

Two Queensland families are grieving the loss of their toddler sons after the boys drowned in separate incidents last week.

Man faces jail after giving woman abortion pill smoothie

A Norwegian man is facing jail after putting abortion pills in his ex-girlfriend's smoothie, causing her to have a miscarriage.

'He's a blessing': family of baby born without eyes

Jordy Jackson was born without eyes. He has anophthalmia, which affects one in every 100,000 babies born.

Win one of 5 Cadbury Easter Hampers

With Easter fast approaching, Cadbury are giving away 5 Cadbury Easter Hampers. Enter Now!

Super fit model Sarah Stage defends her pregnancy body

Model Sarah Stage has defended her pregnancy body after critics claimed her slim figure at eight-and-a-half months pregnant wasn't "normal".

Win a Ben & Holly's Little Kingdom and Peppa Pig prize pack

To celebrate the April 1 release of Holly's Magic Wand on DVD and Digital, Essential Baby and Entertainment One are giving away five bumper DVD packs featuring the newest installment of Ben & Holly's Little Kingdom Holly's Magic Wand and many more hours of family entertainment! Enter Now!

Why I post breastfeeding photos online

I love to take pictures of my children. In some of the pictures, my younger son is nursing.

The day I broke my baby

There are things I wish I didn't know. I wish I didn't know that companies make tiny braces, small enough to hold necks no bigger than a wrist.

Geeky baby gear

If your family is more into Star Wars, gaming and the periodic table than most, you might want to check out these geek-chic baby items.

Grandbabies: the babies born looking old

Not a day under 65 and a lifetime of struggle! That's the look of these newborns, who look adorably older than their real age. Social networking site Reddit recently featured user submissions of adorable grandbabies, here are our favourites.

53 creative pregnancy announcements

Announcing that you're expecting can be a time to express your creativity, sense of humour and imagination. Check out how other parents and parents-to-be have broken the news to friends and family.

IKEA hacks for the nursery and kids' rooms

Are you one of those that know the whole IKEA catalogue by heart? Love their stuff but want to personalise it? Here's some inspiration to help you realise the potential of IKEA furniture and fittings.

36 baby names inspired by food and drinks

A French court may have ruled out Nutella as a baby name, but that doesn't have to stop you from taking inspiration from the supermarket (or bottle shop). See what parents in the US have chosen for their delicious little ones.

Clever breastfeeding products

Check out this range of products designed to help make your breastfeeding journey more enjoyable, manageable and convenient.

 

Sign up now!

30 days of #PlayIQ challenge

Receive a daily email from Essential Baby during April with great play tips and ideas, then submit your baby at play photos to our Playwall, Instagram or Twitter for your chance to win.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.