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prostate cancer *Updated 1/6*
61 replies to this topic
Posted 29 July 2011 - 06:15 PM
Oh Jules I am so very sorry I guess it is good that it is not aggressive. I hope the bone scans are all clear and they can cure him
Sigh nothing new with my step dad J. He is doing the wait and see approach with the blood tests. There is the 50/50 chance it will reoccur but even with radiation which will damage all the organs that has a 25% chance of coming back so he is holding off that option for as long as possible. The radiologist seems to favour the wait and see whereas his surgeon was hoping to get him on some clinical trial as he fits the aggressive yada which he says is a random trial anyway. He doesn't want to lose all his bowel and bladder function which is what the radiation will do.
Posted 08 August 2011 - 08:25 PM
We got the news on Friday that the cancer has not spread, so that was the greatest news ever, obviously.
We also saw the oncologist on Friday, and he recommended surgery, as did the surgeon we saw. They both said that Gaz will live a good, long life, if he takes it out, whereas with radiation, he runs too much of a risk of it coming back, and then they can't operate. We were hoping against hope that he would be suitable for brachytherapy, and the oncologist said that before he met Gaz, when he was reading the notes about him that morning, he was hoping so too, but having examined Gaz, the cancer was too widespread, over the whole prostate, so brachytherapy would not cover the whole area.
We see the surgeon next month to go on the waiting list for surgery. He said that once Gaz is on the list, it will be 2 - 3 months until the surgery. As the cancer is considered low grade, and slow growing, they seem to think there is no great urgency.
Posted 12 August 2011 - 10:29 AM
glad to hear it is low grade that is the best way to have it means it will be gone and he has a very high cuire rate.
My step dad still has a fair bit of pain and occasional incontinence. His is an aggressive form so I think he is just biding time in avoiding radiation which will affect all the structures.
Best of luck Jules for your DH and I am so glad they caught it early and that is low grade x
Posted 20 August 2011 - 10:47 PM
I haven't been in for a while, so I am a bit late, but I am sorry that Gaz got the diagnosis Jules. Great news that it hasn't spread though, that is a huge thing. I wish him well for his surgery and his treatment and hope that everything turns out well for you all.
Posted 20 August 2011 - 11:19 PM
This isn't a section I pop into often (saw it in the recent posts).
I hope it all goes well for your loved ones. Wishing them all the best.
Posted 20 September 2011 - 11:30 PM
We had an appointment at the hospital today to let them know of the decision to have the surgery, as opposed to radiation. Even though they don't think Gaz's cancer is dangerous at the moment (non-aggressive, but very widespread over the prostate), they still put him category 2A, so his operation will be within 6 weeks at the most. We are kind of taken aback, as initially they said they would put category 2, which would be around 3 months after going on the waiting list. Relieved in a way, that we won't have too much time to think about it, as Gaz is quite daunted by it, the thinking is driving him mad, and I think this has been going on too long already.
Any news from anyone else?
Edited by jules363, 20 September 2011 - 11:30 PM.
Posted 23 September 2011 - 07:17 PM
Jules best of luck for his op xxx Step dad goes back in oct or november he is doing ok still has some pain from the op but his had spread more so more tissue out.
Posted 15 February 2012 - 02:50 PM
Gaz had his surgery on December 8th. Today, we had the pathology follow up, and his tumour had clear margins, and his PSA level was not detectable. The best possible news we could have hoped for...the surgeons expect him to remain prostate cancer free for the rest of his life.
Any news from anyone else?
Posted 20 February 2012 - 12:00 PM
Oh great news Jules
My step dad starts radiation in about 6 weeks time-his PSA had risen this check and it was time to do it. Cure rate is 70%. So fingers crossed it will be all gone.
Posted 23 December 2013 - 12:37 PM
Hello everyone. This is the only thread I can find about PC. I know it's old, but I was hoping to hear how all your DH's and Other family members are going?
DH was diagnosed with PC today. He had a dodgy rectal exam and subsequent bioposy. He is having a CT on Friday. Seeing specialist on Jan 10. He is 46.
Every male in his family and extended family has had it, so it was bound to happen.
His PSA was only 0.85 so we thought all was good, but it's not unfortunately.
Wondering if anyone suffers from long term incontinence or impotence? I just want him healthy. Don't care about the rest.
Hope everyone is well.
Posted 23 December 2013 - 12:54 PM
Hi what-ever - as a Physiotherapist who has worked with gentlemen before and after prostatectomies here is some feedback that I hope you find useful:
- These days, most doctors are very good at sparing nerves and preventing impotence in particular. Sometimes though, it does take a little while to get things going again. This is something I don't deal with much at all.
- A lot of guys find the incontinence very upsetting and this is where I would strongly recommend your DH go and see a Physiotherapist BEFORE having surgery to work on pelvic floor and deep tummy stabilizers. Having the knowledge and understanding of this before surgery, makes the recovery afterwards a lot more easy!
- After the surgery, it is very common to have incontinence so just have pads ready to go and don't make a big deal about it. Every surgeon has his/her own protocol but usually, pelvic floor exercises can commence after 2 weeks post surgery. I would then recommend going back to see the Physiotherapist to ensure he has the correct technique etc.
- Keep a diary - I really recommend keeping a symptom diary. Get him to record what he did/what he drank and any episodes of incontinence etc. It is often hard to remember but having this diary will show him his improvements which is key to maintaining that esteem.
I hope that helps. The Australian Physiotherapy Association website will be able to provide you with names of Physiotherapists in your local area who practice continence physiotherapy.
All the best xo
Posted 13 January 2014 - 08:55 AM
Thanks ethansmumma. Surgery is in 3 weeks. We have a physio appt organised for prior. I'm not stressed about the incontinence (he is), and apparently the nerve sparing surgery he is having has an 80% success rate for avoiding impotence. Surgeon seems thorough and didn't rush us at our apt the other day. CT showed no spread which is a relief. I will get him to start a diary.
Thankyou for your advice.
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