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Toddler-induced exhaustion


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#26 sam_gamgee

Posted 20 October 2010 - 05:03 PM

QUOTE (~Shtiya~ @ 18/10/2010, 05:19 PM) <{POST_SNAPBACK}>
There is no tiredness in ME/CFS it is debilitating exhaustion, they are not the same thing.

exhaustion  (ɪɡˈzɔːstʃən)  — n  
1.  extreme tiredness; fatigue

... straight from the dictionary.  Your sentence is a bit like saying "there is no water in the ocean, it's not the same thing".  My aunty and another family friend both have ME - I thought that the whole reason for the name change was to stop using "CFS", to avoid confusing a medical condition with natural tiredness or fatigue.  So now, when referring to the illness, people should say ME, and when people refer to chronic fatigue, they're actually referring to continuing tiredness, not ME.

(As a side note, "chronic" is often misused to mean "extreme" or similar.  It actually means recurring or continual.)

Nice blog, Joseph - cracks me up.

Edited by sam_gamgee, 20 October 2010 - 05:04 PM.


#27 Guest_~Shtiya~_*

Posted 20 October 2010 - 09:18 PM

QUOTE (sam_gamgee @ 20/10/2010, 06:03 PM) <{POST_SNAPBACK}>
exhaustion  (ɪɡˈzɔːstʃən)  — n  
1.  extreme tiredness; fatigue

... straight from the dictionary.  Your sentence is a bit like saying "there is no water in the ocean, it's not the same thing".  My aunty and another family friend both have ME - I thought that the whole reason for the name change was to stop using "CFS", to avoid confusing a medical condition with natural tiredness or fatigue.  So now, when referring to the illness, people should say ME, and when people refer to chronic fatigue, they're actually referring to continuing tiredness, not ME.

(As a side note, "chronic" is often misused to mean "extreme" or similar.  It actually means recurring or continual.)


Yes - but I meant there is no "sleepyness" in ME/CFS, as in you can't keep your eyes open. Not generally speaking anyway. It is better to say 'exhaustion" than tiredness because otherwise people just think you are "sleepy" all the time. There has also been no name change, the powers that be refuse to change it because Chronic Fatigue Syndrome leaves it "open". M.E. is also a different illness to CFS, but both fall under the same "umbrella term", which is why we are encouraged to call it ME/CFS.


*Sorry diary~dad*

Edited by ~Shtiya~, 21 October 2010 - 06:02 AM.


#28 diary~dad

Posted 20 October 2010 - 10:02 PM

No need to apologise - happy to learn from the debate.

#29 diary~dad

Posted 20 October 2010 - 10:05 PM

Oh and glad you liked the blog sam_gamgee.

#30 gr8atshopping

Posted 20 October 2010 - 10:49 PM

I enjoyed the blog. Laughter is good for the soul and the exaggeration adds to the amusement level. When the author says the argument went on for twenty minutes, I'm sure we are not meant to take it that literally!

#31 pearlnorma

Posted 21 October 2010 - 12:13 AM

Well I laughed a whole lot reading it. I definately related to it. There is no compromise in our house!! I do it. End of story.  biggrin.gif  I'm still smiling. Of course I'm tired - I refuse to get into the whole 'term used' debate here. We get it. There's a difference between being tired and having the illness. Poor you. Poor me, I have CML , poor everyone. We only know what it's like to be us. We surely shouldn't expect anything else from ourselves. We would all be depressed and suicidal (which I've been before) if we tried to be sympathetic and empathetic to every illness in the world.

Now that I'm pregnant and get up to wee a thousand times a night - YES I'M EXAGERATING I'M VERY SORRY TO THOSE WHO HAVE BLADDER PROBLEMS - I make DH get up to get my drinks during the night because I'm still thirsty all the time!! biggrin.gif  That way we are equal - sort of. happy.gif

We compromised when DD was very little. He got up to get her from her room and I fed her (breastfeeding) and then he put her back to bed. It lasted for the week he had off work. I took over completely after that.

Sorry if I offended anyone.

#32 MotherClucker

Posted 22 October 2010 - 12:13 PM

Great blog DD! I read it all the time and always nod in understanding. Keep up the great work wink.gif

#33 Mikeysdad

Posted 10 December 2010 - 03:18 PM

Even the King Sized bed isnt big enough for us AND Mr 4 years old. sad.gif Great blog!

#34 holmen

Posted 11 January 2011 - 03:42 AM

QUOTE (EBeditor @ 18/10/2010, 11:32 AM) <{POST_SNAPBACK}>
Title has been changed, that was my title not Josephs, although from his article. I did read it as chronic tiredness rather than CFS but if people are uncomfortable with it I'm fine to see it altered.
As someone who suffered from CFS for 3 years, and now the parent of a toddler, I am very glad this title has been changed.  THe difference between CFS and having a toddler is that you can have a break from a toddler, you can never have a break from CFS. It is a devastating and debilitating illness.




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