Jump to content
36 replies to this topic
Posted 24 January 2011 - 07:54 PM
I don't think you ever really stop "worrying" about your condition, i think we just put it to the back of our mind on good days and on bad days just deal with it.
As for the pred, i have been on and off it for nearly 18yrs so i don't think you become immune to it, i am always hoping and praying for a cure and i know they are always doing research and come up with new medications so that's hopeful.
I always try and keep positive after 18yrs i get over it too.
Just make sure you hang in there and make sure you have a good support system
Posted 19 February 2011 - 04:06 PM
Just wanted to say that I'm due to have my 3rd girl any time now and things have gone really well. I'm on infliximab for my UC. I keep remembering where I was at before and after the Christmas period a year ago...a bit too much stress and my UC flared which had been in remission for a number of years. I was drug free before and during my first two pregnancies until the end of 2009 when I lost 12 kg (mind you it got me back to my late teen weight, which although probably my BMI didn't feel great!). I had a really tough time this time last year and was in hospital for a few weeks until they decided that high dose steroids just weren't fixing it up (this was the first time on steroids).
Anyway, long story short, I ended up on Mesasal, Imuran and Infliximab (Remicade in the US). I was told under no circumstances to fall pregnant...hmmm, guess nature has it's way...I was about 5 months into treatment and have now finished imuran but continued on infliximab. Really hard decisions to be made along the way, particularly at the start as everything I saw said I shouldn't be pregnant. But I have a very supportive specialist and IBD nurses, and they were able to reassure me about other cases they were dealing with.
I know it's a little early to confirm that things are all good with bub as I'm still pregnant, BUT - things have gone really well for me, with no major flares, and all ultrasounds etc showing a big healthy bub. My infliximab infusions are usually 8 weekly but it crosses the placenta in the final trimester so I'll be delayed on my next one until after bub is born. Bub also won't be able to have any live vaccines in the first 6 months and they can't confirm if there will be any true immune suppressant effects in her system...hoping not. I'm looking into bf while on the infusion...again the advice from the company is not to...but I've been told that it is an infusion rather than oral for a reason - and that any in the breastmilk would be limited, and then not effective in the bub...I successfully bf both my others to 17 months and am weighing up my options again.
Has anyone else had any experience?
Posted 19 February 2011 - 07:20 PM
I just wanted to say that I have just had a DS after being on Mesasal and Imuran the whole pregnancy. I also have a 3 year old DD (I was on both these medications during this pregnancy also).
I didn't like being on the drugs but I have had several attempts of stopping them only to have symptoms intensify. Both my GI and OB were fully supportive.
When DS was born they tested the cord blood to check the blood count cells in light of me being on imuran. Tests were normal. They have also just conducted a blood test on DS at 2 weeks old which was also normal.
The OB and Paed were quite supportive of me breastfeeding on Imuran, especially given the blood test results. Although it is hard to know for sure, both thought it would be okay to do so. However I made the hard choice of deciding to breastfeed for a week only so that DS got the initial benefits of colostrum etc and move to formula feeding after that. I also followed this approach with my DD when she was born 3 years ago. I personally feel that continuing DS (and DD's) exposure to the drugs after they were born was a risk I didn't think I would sit comfortably with me. I am more upset about stopping breastfeeding this time around but emotions aside I feel it is the best decision for my kids. I also chose to delay the immunisations usually given at birth (Hep B) until later to allow DS's body time to adjust, but at this stage intend to continue with the rest of the immunisation schedule as prescribed.
Best of luck.
Posted 03 March 2011 - 01:05 PM
I was just curious on who had Crohn's Disease before having a baby and did you have any complications with your pregnancy or any tips? I was told when trying to conceive and while pregnant you are not aloud to be on certain medications e.g. Azathioprine also known as imuran.
Just interested as I do have Crohn's Disease and when I am interested in conceiving what do I need to know.
Share your stories and experiences I am interested.
Posted 14 March 2011 - 07:01 PM
Just passing through to let you know that DS1 had his 2 year post resection endoscopy on Thursday last. The Gastro found a small ulcer on his small intestine. Unclear whether this is a recurrence or something else. Will know more in 2 weeks when DS1 sees doc again.
Posted 07 May 2011 - 06:22 PM
Anyone got the Chrons/Colitis Ezy Board Forum link they could share? I can't find it.
Posted 18 August 2011 - 04:20 AM
Hi fellow crohnnies
How are we all going?
Just thought i would stick my head in, i'm having good and bad days. Going in for an op on my uterus week after next due to heavy periods, finally i got to see a gyno and he said he's going to burn the lining, do a d&c and have a bit of a look see that there's nothing sinister in there. Other than that the usual aches and pains and busy with kids, dh started a new job back in March (managerial position) but it means he's working 6 days and is gone from 7:30am to 6:30pm so it's taken a lot of adjustment to the new hours but we're getting there.
Would be good to hear how everyone else is doing
Posted 03 October 2011 - 07:19 PM
im new (sort of), been reading EB for abut 6 months now...
i've got chron's too, very active..diagnosed 3 years ago and on Infliximab and azathioprine.
19w in the third pregnancy an still in a lot of pain on and off (more on then of).
i have 2 wonderful teams taking care of me (both obs/gyn and gastro) and i hope this baby will be born ok and everything will be ok.
nice to meet you all officially
Posted 28 February 2012 - 12:55 AM
Please add me to the list!
EB name : TraceyBrown
Real name : Tracey
Location : currently in Montreal Canada but our perm home base is in Central Queensland
diagnosis and how long: diagnosed 2010 but symptoms from 1990, resection, currently on humira
Kids : DS1- 6, DS2-5, DD-3
Does anyone have a child with Crohns? Ds2 is showing signs of it and has been for awile, gastro wants to look at him but I cant get a gp to listen to me! Aggh!
Posted 10 March 2012 - 01:30 PM
Been awhile. I'm going ok. DD is 4 and DS 1 year old now. Still on mesasal and Imuran and coping quite well (UC diagnosed 2002)
traceybrown - your post caught my attention as DD has been complaining of random stomach pains for awhile now. Had her checked out (not colonoscopy though) and nothing showing up as yet. We are trying not to panic and look for UC. What are your DS's symptoms if you don't mind me asking?
Posted 10 April 2012 - 10:36 PM
The little guys symptoms are mostly diahroea, he never has solid poos and can go up to 10 times a day. Sometimes he says he has a sore tummy......
2 user(s) are reading this topic
0 members, 2 guests, 0 anonymous users
At The Baby & Toddler Show, you?ll find everything you need to get ready for your new arrival and guide you through the early weeks and years of parenting.
It was less than a week after my son was born that I first heard it - from my mother.
On the rare occasion I catch sight of you at school, or around town, I think back to our earliest exchange. I?m sure you have no recollection of it at all.
Children showing signs of autism don't usually receive early intervention until well into toddlerhood or later, but a new study suggests infants with symptoms of the developmental disorder might benefit from therapy from as early as six months.
Knatalye Hope and Adeline Faith are a lot like any other identical twin girls, but there is one dramatic difference: they're joined at the chest and shares several internal organs.
I should have seen that my wife wasn't the same person I'd fallen in love with, but we were both too focused on simply trying to get by.
The deaths are too horrible even to think about. Yet we owe it to the children - Fletcher, Mia and Phoebe Hunt - to think long and hard about it all.
A six-month-old girl has died from meningococcal disease just weeks after an application for government funding of a vaccine for the most deadly strain of the virus was rejected.
Being too involved in our children?s play and not allowing our kids enough free time for unstructured activities can mean our kids miss out on the value that play offers.
The Pop Light light shade comes in a flat pack already made - it's up to you to design it as you'd like.
Have we forgotten how to be imaginative, resourceful parents?
Letting your child move as much as possible in the early years ? using all senses, engaging in the real world, preferably outside ? will help them grow up healthier, smarter, calmer and stronger.
This little girl thought she was taking part in a standard game of peek-a-boo, but her dad had a surprise for her.
At some point I became 'me' again, but not the same me that I was ... and that?s not a bad thing.
An ambitious new national initiative aims to address the "national emergency" of domestic violence across Australia.
There has been a fall in the number of stillbirths among some groups of women despite the overall rate remaining stable, a new report reveals.
My baby was a few months old when we first heard the term ?brachial plexus birth injury? and the heart wrenching news that he may never gain full function of his arm.
A flip-flop happy-sad can occur in the same minute, the same second. And it continues forever, throughout a yo-yo mama's tenure, beginning with pregnancy.
First it was weddings. Then it was engagement parties. Now it seems christenings are following the trend of asking guests for money in lieu of gifts.
The new documentary series Crash Test Mummies & Daddies takes a fly-on-the-wall look at the first months of life with a newborn.
Around 30 per cent of children live with eczema every day. A dad shares his son's story and gets advice from an expert.
This hilarious video shows how making new mum friends can be awkward - but reassures that it is possible.
Got bored kids? Quickly find the best activities for kids wherever you are in Australia with the Essential Kids app.
Top 5 Articles
To celebrate the release of the new movie House of Magic, we have 10 double passes and magic sets to give away just in time for these school holidays. Enter Now for a chance to win!
While watching your baby grow into a unique little person is exciting and wondrous, the intensity of meeting everyone else?s needs can ever so sneakily overtake your own needs for self-care.
Almost all women will experience bruising, grazing or tearing after a vaginal birth. Depending on the degree of tearing, there are various treatments available.
Outings can be lots of fun with the kids, but there are inevitable challenges. Here's some information about days out to help you be a little more prepared.
I sent invitations on burgundy scrapbooking paper stamped with a field of poppies, and told each person why I wanted him or her there. I warned that there would be nudity.
When your baby?s due date comes and goes without so much as a pop - let alone a bang - it can be disheartening. Mums and a doula share their stories of natural inductions.
As I sat across the table from my friend ? me, a seasoned mother of three; her, a brand new mum ? I thought of all the mistakes an old-hand parent can make when visiting a newborn baby.
Unbearable anxiety, unspeakable joy, constant exhaustion and bouts of frustration ... The many shocks of first-time fatherhood resound in a dad's diary of his son's early months.
Finances may not be as cute as a newborn, but with many women?s working arrangements changing post-baby, monetary matters need attention too.
After naming her other daughter Princess Tiaamii, glamour model Katie Price needed a special name for her new baby.
We've scoured the internet to find gorgeous personalised keepsakes and nursery decor to record baby name and dates. They make great gifts for christenings, name days and birthdays! (All prices in AU.)
For Shopping, For Advice, For Baby & You. Enjoy a special day out with fabulous shopping from over 200 brands, leading parenting experts offering advice on a range of topics, and amazing children?s entertainment