Jump to content

March 2010 #1 - Auroras Gluten Free Life


  • Please log in to reply
15 replies to this topic

#1 Nut

Posted 10 March 2010 - 07:22 AM

To help raise awareness during Coeliac Awareness Week, Karen shares her story of her daughters diagnosis of coeliac disease and how life has changed for them since.

Read the story here: http://www.essentialbaby.com.au/parenting/...00315-q6yy.html

You're welcome to leave comments!

Just wanted to add as well that the photo was taken by Jinkyart and provided with permission.

#2 harpersmum

Posted 15 March 2010 - 12:44 PM

Karen, its so nice to see a happy healthy looking picture of your family. Your signature of Aurora with her bloated tummy used to break my heart- the pain that poor little thing must have been in. I started lurking in the food intolerance section after my dad was diagnosed with Coeliacs at age 62. What a shock to have to change the eating habits of a lifetime, he did not cope well initially. I'm please there is so much more info and so many more products avaliable these days. thanks for sharing your story.

#3 Mariamum

Posted 15 March 2010 - 01:29 PM

Karen beautiful family picture, well done for persevering until you got an answer. They always say to follow your instincts, and usually they're right! You're doing a fantastic job with the Gluten Free for Aurora!
Aurora is amazing little girl for taking all in her stride, thank you for sharing your story Karen.

#4 L712

Posted 15 March 2010 - 03:09 PM

Aurora is an amazing girl, and Karen you really need to be proud of the great job you have done educating yourself, family and friends about GF.  I know I have learnt SO much from you.

L
xxx

#5 pinkbubbles

Posted 15 March 2010 - 09:29 PM

Karen, love the pic of you all together its beautiful.
Thanks for sharing your story of Aurora's journey with CD, its been a struggle for all of you.

Myself & my daughter have an intolerance to Gluten so we tend to keep my wheat to a minimum & eat GF most of the time, I am one of the lucky ones but totally understand the crazy cost for familes to buy in the health section. We love the pasta but maybe eat it less these days. We eat meat, rice & veg a lot because of the cost but it is amazing what you can now get GF these days. When I was interstate I was amazed to see Eagle Boys have GF pizza!

Congrats on a great article!


#6 Missy83

Posted 16 March 2010 - 09:56 AM

Karen, I just want to thank you for being so proactive in trying to raise awareness of this very under/misdiagnosed condition.  It was because of your sig of your beautiful aurora that we first realised our 18 month old son's huge belly was possibly a sign of something wrong and after checking out the coeliacs website realised he could very well have coeliacs (very bloated/pale foul smelling bulky poos/only pooing once a week/severe flatulence/failure to gain weight/anaemia/easy bruising/ulcers/skin rashes/dental defects)so decided to try a gluten free diet.  To our shock within a few weeks all his bowel problems were gone and he put on as much weight in a couple of weeks as he had in the previous 10 months!!
So off to the drs we went, unfortunatley even many drs don't know much about coeliacs it would seem.  We advised the dr he was on a gluten free diet and yet he proceeded to order an antibody test (which requires gluten to be being consumed).  It was negative so CD was ruled out.  We were advised by a friend with CD to speak to the Coeliac Society and find out more about the testing and if they could recommend a dr who specialised in diagnosing young children.  Anyway we have now found a dr who agrees the previous testing was useless and only accurate way is to do a biopsy, which we are now booked in for on April 30th.  So I guess we will soon know the answer.  It may also answer the question for a huge number of our family who suffer the same symptoms including myself, DH, my mum, my MIL, my GMIL and my GM who sadly passed away from bowel cancer 6 years ago at 64 years of age.

#7 brazen

Posted 17 March 2010 - 05:38 AM

oh missy, that's a sad story sad.gif i hope that you can get the result your son needs from the testing (he is eating gluten now right? lol) good luck with it!

thanks everyone original.gif i'm glad for the opportunity to be able to raise awareness of coeliac disease, especially during coeliac awareness week!

and special thanks to barb from jinkyart for letting us use her gorgeous picture biggrin.gif

#8 Sunny003

Posted 17 March 2010 - 06:13 AM

Hey Karen,
Great write up!
Just wanted to say thanks again for all the info you have slows me with lately, have passedit on, and can only hope they understand the importance of the biopsy.

Your family is gorgeous, thanks for sharing that photo. Oh, down here some allergy group has a list of restaurants and butchers etc that will happily provide you with an allergy friendly meal. Most are very well aware of coeliacs more than other allergies. Might be something like that Aust wide for when travelling?

#9 CheeseRobot

Posted 17 March 2010 - 04:22 PM

Great article Karen!

Like you, I noticed my DD's bloated tummy when she was about 21 months old.  I googled "bloated tummy toddler" and the first thing that came up was Ceoliac Disease.  When i mentioned this to DH he laughed and made a comment about Dr Google.

Needless to say, I followed my motherly instincts and took her to the GP.  Two blood tests and a biopsy later, she was diagnosed with CD.  I cried.  I cried for weeks.  Then we went to a Gluten Free show (where I cried) and I met a woman who's DD was not only Ceoliac but also suffered from a number of debilitating diseases.  After meeting her and her DD I pulled myself together and moved forward!  

So, now, apart from a bit of inconvenience, there is no sadness about DD's CD.  Like your Aroura she is very aware and will always ask before she eats anything (She's 4.5 yrs old now), and like you, I have always cooked fresh food for my kids as well so the whole gluten free thing, in the end once I got over the fear, has been relatively easy.  Still, I must admit, when I go to the shopping centre with my DS its nice to be able to share my lunch with him!!!

Anyway, thanks again for your story and here's to the vaccination being available in the next 5-10 years!



#10 ~Billy~

Posted 17 March 2010 - 09:03 PM

So proud of you Karen for talking about your experience here.  You persevered and you got the results.  Rora's very lucky to have you for her mummy (and especially because you're THE Thermomix Queen!).

All the best to you, Rora and your family.

xxx


#11 melaine

Posted 28 March 2010 - 08:36 PM

My son is just about to have the gene test but the GP seems to think it's very unlikely he has CD because he would be very sick if he did...

He has been complaining of stomach pain, gets bloated, has floating stools and regressed with bowel control. What other symptoms did your daughter have?

I have the antibodies (was tested years ago pre gene screening), but my biopsy was normal at that time.



#12 brazen

Posted 29 March 2010 - 05:33 AM

QUOTE (lissame @ 28/03/2010, 09:36 PM) <{POST_SNAPBACK}>
My son is just about to have the gene test but the GP seems to think it's very unlikely he has CD because he would be very sick if he did...
it's actually possible to have CD with no symptoms so your gp is a bit clueless i think  cool.gif  have a read of this document, it's very good, and perhaps give a copy to your dr...
http://www.coeliacsociety.com.au/downloads...20diagnosis.pdf

good luck original.gif

Edited by brazen, 29 March 2010 - 05:36 AM.


#13 jules363

Posted 30 March 2010 - 08:02 AM

Thank you for sharing your story, Brazen.  Georgia is at high risk for Coeliac disease due to having Down syndrome, and has an annual blood test, which has so far been fine, and she has no symptoms.  I tell you something, I have enough trouble putting a gluten containing meal on the table for the family every night, cooking is neither a passion, nor a strong point, and I fear it greatly if it ever happens!

That is a great photo of Rora, looking so healthy.  Her bloated tummy photo always breaks my heart, too.

#14 melaine

Posted 30 March 2010 - 02:30 PM

Thanks Brazen. I guess we'll just see what the gene test says and go from there. original.gif

#15 ~Danni~

Posted 08 April 2010 - 09:45 PM

Thanks for sharing this Brazen!  You have been such good support for me and Paige since she was diagnosed with Coeliac disease in November last year!  Since being on a GF diet, she has gone from strength to strength!

#16 brazen

Posted 09 April 2010 - 06:34 AM

it is amazing to see how well they do isn't it danni!

jules, hopefully georgia will steer clear, there are lots of worse things than CD but it's just another complication you don't really need lol




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

Australia's top baby names of 2014

The numbers have been crunched and it's official: Australian parents are having a bit of an 'O' moment.

As a guilty mum: the best advice for treating head lice

Just like a horror movie ... THEY'RE BAAAAAACK. So what works in treating and avoiding head lice and nits?

No, having a dog is not like having a human child

It's obvious these people dote on their pets, but they're barking up the wrong tree.

Confirmed: Kate Middleton is in labour

The Duchess of Cambridge is in the early stages of labor at St Mary's Hospital.

Baby-led weaning worked for us

My baby wasn't interested in food - until we tried something new. Now she's eating it all, and it often comes from my plate.

Parenting an early walker

Watching your child take their first wobbly steps is one of the best parenting highs you'll ever experience. But with that high comes a new reality.

Overdue and over it

A watched womb never labours ... or at least mine didn't.

'Paralysed bride' becomes a mum

Rachelle Friedman Chapman was preparing to marry the man of her dreams when tragedy struck four years ago.

Why the royal baby will look more like Prince Philip than Prince William

No matter what the occasion the world always seems to be waiting for Prince William and Kate Middleton.

Surprise baby born on toilet

Discovering your wife has just given birth on the toilet would be a surprise for anyone. But the shock would be even greater if neither you or your partner knew you were expecting a baby.

5 spooky photos with babies and children

These five photos show some ghostly images - but are they real? Do you believe in the spirit world?

Does it matter how much time you spend with your children?

Does spending more time with your kids help their development? This is a more complex topic than it may seem.

Rare condition diagnosed during optional scan

A mother who opted for a 4D scan late in pregnancy discovered her unborn baby had a rare brain disorder.

Cleveland captives speak about their decade of terror - and their futures

"I think we were just tired of people talking, trying to tell our stories, and they had no idea, no clue, what we went through."

Proof it's impossible to not join in a toddler's laughter

They say laughter is the best medicine. If that's true Tom Fletcher and his son should live long, healthy lives.

How I really feel about my drug-free birth

Do I feel 'smug'? No. Nor do I feel remotely superior. Each birth was valid and valuable in its own right, producing, as it did, a healthy baby.

How to talk about your pregnancy at work

The workplace isn't always a friendly place for pregnant women. Yet working women inclined to conceal a pregnancy from prying coworkers may be better off opening up and carrying on, according to a new study.

Tell us your story to win!

To celebrate Mother's Day this year we are giving you the chance to win one of five great prizes simply by telling us your story.

The Goss

Sonia Kruger: 'One baby is enough'

The popular TV host has no plans for a sibling for her new daughter Maggie.

Where to get help to help your baby sleep

There is so much pressure about having a baby who sleeps 'all night' , it's no wonder you worry about your baby if she wakes in the night.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Playtime guide:

A new area on our site for all your playtime and learning fun with baby - specially brought to you by Fisher-Price Play IQ?. PLUS your chance to win a year's supply of toys.

Vintage baby names having a comeback

What makes some names have comebacks while others silently fade into oblivion? A few factors come into play.

How to play with your newborn

Even though they're immobile and can't speak, there are plenty of ways you can engage and communicate with your newborn to stimulate their physical, cognitive and emotional development.

Mum of six faked cancer to get donations, police claim

Elizabeth Edmonds' husband posted some devastating news on Facebook last year.

I'll admit it: I have last child parenting fatigue

If you're a new mum and feeling ignored by the older mum/the old hand/the has-been, please know, it's not you, it's me. Blame the last child parenting fatigue.

Cobie Smulders speaks about her battle with ovarian cancer

The 'How I Met Your Mother' star has revealed that she was diagnosed with ovarian cancer at 25 - and was told she'd never conceive naturally.

Essentials your child needs to grow

What does your baby need to grow up healthy? The experts give their advice.

Coroner warns of 'dangerous' cot

A UK coroner has warned of the dangers of a bedside cot after the death of a newborn baby who choked to death this month.

Building your baby's emotional and social skills through play

Babies are social beings who enjoy being around people they know and love, especially you.

Why suicide prevention is everybody's responsibility

Everyone agrees we need to do more to care for people at risk from suicide, the problem is what.

Exhaustion is not the same as tiredness

Having a new baby isn't tiring - it can be downright exhausting.

Five posterior babies, four home births

I was on a high. I'd done it all by myself with no help from anyone.

Mum's list of birthday gift demands goes viral

We're big fans of kids' birthday parties - but this is one bash we're glad we didn't get an invite to.

Kate Middleton to receive 'loyalty discount' for second birth

Everybody loves a bargain - including the Duchess of Cambridge.

Fish & chip shop owner's sad note goes viral

A lengthy note put on the window of a fish & chip shop has gone viral due to the writer's serious doubts about the romance of travel.

Pregnant women need good nutrition advice, not judgment

Pregnant women are under pressure to do all the "right things" to have a healthy child. It results in women feeling judged about their decisions.

William Tyrrell's mum speaks out: 'We hope he is still alive'

The mother of missing toddler William Tyrrell says she has a vision that somebody "picked him up and moved him on ... that's the only way ... to explain for him not to be there".

Family comes first for 23-year-old Tommy Connolly

Most 23-year-old blokes spend their hard earned cash on fun times with mates or romantic dinners with their girlfriend, but not Tommy Connolly.

Newborn all-girl quintuplets 'doing great'

The first all-female quintuplets born in the United States were delivered last week, at 28 weeks and two days.

53 creative pregnancy announcements

Announcing that you're expecting can be a time to express your creativity, sense of humour and imagination. Check out how other parents and parents-to-be have broken the news to friends and family.

IKEA hacks for the nursery and kids' rooms

Are you one of those that know the whole IKEA catalogue by heart? Love their stuff but want to personalise it? Here's some inspiration to help you realise the potential of IKEA furniture and fittings.

 

Top baby names

Baby Names

The numbers are in and we can now bring you the 2014 top baby name list for Australia.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.