Jump to content

March 2010 #1 - Auroras Gluten Free Life


  • Please log in to reply
15 replies to this topic

#1 Nut

Posted 10 March 2010 - 07:22 AM

To help raise awareness during Coeliac Awareness Week, Karen shares her story of her daughters diagnosis of coeliac disease and how life has changed for them since.

Read the story here: http://www.essentialbaby.com.au/parenting/...00315-q6yy.html

You're welcome to leave comments!

Just wanted to add as well that the photo was taken by Jinkyart and provided with permission.

#2 harpersmum

Posted 15 March 2010 - 12:44 PM

Karen, its so nice to see a happy healthy looking picture of your family. Your signature of Aurora with her bloated tummy used to break my heart- the pain that poor little thing must have been in. I started lurking in the food intolerance section after my dad was diagnosed with Coeliacs at age 62. What a shock to have to change the eating habits of a lifetime, he did not cope well initially. I'm please there is so much more info and so many more products avaliable these days. thanks for sharing your story.

#3 Mariamum

Posted 15 March 2010 - 01:29 PM

Karen beautiful family picture, well done for persevering until you got an answer. They always say to follow your instincts, and usually they're right! You're doing a fantastic job with the Gluten Free for Aurora!
Aurora is amazing little girl for taking all in her stride, thank you for sharing your story Karen.

#4 L712

Posted 15 March 2010 - 03:09 PM

Aurora is an amazing girl, and Karen you really need to be proud of the great job you have done educating yourself, family and friends about GF.  I know I have learnt SO much from you.

L
xxx

#5 pinkbubbles

Posted 15 March 2010 - 09:29 PM

Karen, love the pic of you all together its beautiful.
Thanks for sharing your story of Aurora's journey with CD, its been a struggle for all of you.

Myself & my daughter have an intolerance to Gluten so we tend to keep my wheat to a minimum & eat GF most of the time, I am one of the lucky ones but totally understand the crazy cost for familes to buy in the health section. We love the pasta but maybe eat it less these days. We eat meat, rice & veg a lot because of the cost but it is amazing what you can now get GF these days. When I was interstate I was amazed to see Eagle Boys have GF pizza!

Congrats on a great article!


#6 Missy83

Posted 16 March 2010 - 09:56 AM

Karen, I just want to thank you for being so proactive in trying to raise awareness of this very under/misdiagnosed condition.  It was because of your sig of your beautiful aurora that we first realised our 18 month old son's huge belly was possibly a sign of something wrong and after checking out the coeliacs website realised he could very well have coeliacs (very bloated/pale foul smelling bulky poos/only pooing once a week/severe flatulence/failure to gain weight/anaemia/easy bruising/ulcers/skin rashes/dental defects)so decided to try a gluten free diet.  To our shock within a few weeks all his bowel problems were gone and he put on as much weight in a couple of weeks as he had in the previous 10 months!!
So off to the drs we went, unfortunatley even many drs don't know much about coeliacs it would seem.  We advised the dr he was on a gluten free diet and yet he proceeded to order an antibody test (which requires gluten to be being consumed).  It was negative so CD was ruled out.  We were advised by a friend with CD to speak to the Coeliac Society and find out more about the testing and if they could recommend a dr who specialised in diagnosing young children.  Anyway we have now found a dr who agrees the previous testing was useless and only accurate way is to do a biopsy, which we are now booked in for on April 30th.  So I guess we will soon know the answer.  It may also answer the question for a huge number of our family who suffer the same symptoms including myself, DH, my mum, my MIL, my GMIL and my GM who sadly passed away from bowel cancer 6 years ago at 64 years of age.

#7 brazen

Posted 17 March 2010 - 05:38 AM

oh missy, that's a sad story sad.gif i hope that you can get the result your son needs from the testing (he is eating gluten now right? lol) good luck with it!

thanks everyone original.gif i'm glad for the opportunity to be able to raise awareness of coeliac disease, especially during coeliac awareness week!

and special thanks to barb from jinkyart for letting us use her gorgeous picture biggrin.gif

#8 Sunny003

Posted 17 March 2010 - 06:13 AM

Hey Karen,
Great write up!
Just wanted to say thanks again for all the info you have slows me with lately, have passedit on, and can only hope they understand the importance of the biopsy.

Your family is gorgeous, thanks for sharing that photo. Oh, down here some allergy group has a list of restaurants and butchers etc that will happily provide you with an allergy friendly meal. Most are very well aware of coeliacs more than other allergies. Might be something like that Aust wide for when travelling?

#9 CheeseRobot

Posted 17 March 2010 - 04:22 PM

Great article Karen!

Like you, I noticed my DD's bloated tummy when she was about 21 months old.  I googled "bloated tummy toddler" and the first thing that came up was Ceoliac Disease.  When i mentioned this to DH he laughed and made a comment about Dr Google.

Needless to say, I followed my motherly instincts and took her to the GP.  Two blood tests and a biopsy later, she was diagnosed with CD.  I cried.  I cried for weeks.  Then we went to a Gluten Free show (where I cried) and I met a woman who's DD was not only Ceoliac but also suffered from a number of debilitating diseases.  After meeting her and her DD I pulled myself together and moved forward!  

So, now, apart from a bit of inconvenience, there is no sadness about DD's CD.  Like your Aroura she is very aware and will always ask before she eats anything (She's 4.5 yrs old now), and like you, I have always cooked fresh food for my kids as well so the whole gluten free thing, in the end once I got over the fear, has been relatively easy.  Still, I must admit, when I go to the shopping centre with my DS its nice to be able to share my lunch with him!!!

Anyway, thanks again for your story and here's to the vaccination being available in the next 5-10 years!



#10 ~Billy~

Posted 17 March 2010 - 09:03 PM

So proud of you Karen for talking about your experience here.  You persevered and you got the results.  Rora's very lucky to have you for her mummy (and especially because you're THE Thermomix Queen!).

All the best to you, Rora and your family.

xxx


#11 melaine

Posted 28 March 2010 - 08:36 PM

My son is just about to have the gene test but the GP seems to think it's very unlikely he has CD because he would be very sick if he did...

He has been complaining of stomach pain, gets bloated, has floating stools and regressed with bowel control. What other symptoms did your daughter have?

I have the antibodies (was tested years ago pre gene screening), but my biopsy was normal at that time.



#12 brazen

Posted 29 March 2010 - 05:33 AM

QUOTE (lissame @ 28/03/2010, 09:36 PM) <{POST_SNAPBACK}>
My son is just about to have the gene test but the GP seems to think it's very unlikely he has CD because he would be very sick if he did...
it's actually possible to have CD with no symptoms so your gp is a bit clueless i think  cool.gif  have a read of this document, it's very good, and perhaps give a copy to your dr...
http://www.coeliacsociety.com.au/downloads...20diagnosis.pdf

good luck original.gif

Edited by brazen, 29 March 2010 - 05:36 AM.


#13 jules363

Posted 30 March 2010 - 08:02 AM

Thank you for sharing your story, Brazen.  Georgia is at high risk for Coeliac disease due to having Down syndrome, and has an annual blood test, which has so far been fine, and she has no symptoms.  I tell you something, I have enough trouble putting a gluten containing meal on the table for the family every night, cooking is neither a passion, nor a strong point, and I fear it greatly if it ever happens!

That is a great photo of Rora, looking so healthy.  Her bloated tummy photo always breaks my heart, too.

#14 melaine

Posted 30 March 2010 - 02:30 PM

Thanks Brazen. I guess we'll just see what the gene test says and go from there. original.gif

#15 ~Danni~

Posted 08 April 2010 - 09:45 PM

Thanks for sharing this Brazen!  You have been such good support for me and Paige since she was diagnosed with Coeliac disease in November last year!  Since being on a GF diet, she has gone from strength to strength!

#16 brazen

Posted 09 April 2010 - 06:34 AM

it is amazing to see how well they do isn't it danni!

jules, hopefully georgia will steer clear, there are lots of worse things than CD but it's just another complication you don't really need lol




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

Recall: Another cot deemed unsafe

Parents are being warned to check their baby's cot is not one of those which have been recalled in recent weeks due to safety concerns.

The truth about breastfeeding and weightloss

Celebrities often state that their post-baby weight loss is down to breastfeeding, and breastfeeding alone. But that's not the reality for all women.

10 weird things little kids do

Most kids have their own personal brand of oddity. It's usually nothing to worry about, but every now and again you might find yourself scratching your head and asking, ?Really? Is that really a thing??

The app that helps detect signs of autism

Parents can assess their children's progress at critical developmental stages, thanks to this new app.

Long battle to learn the truth about Ariana's birth

Cerise and Tim Lawn spent two years fighting to find out how a healthy pregnancy turned into a nightmare birth, and why their daughter now suffers from disabilities she shouldn't have.

Christina Aguilera announces daughter's name

Christina Aguilera and her fiance, Matt Rutler, have welcomed their daughter into the world.

Couple caught in surrogacy crackdown

An Australian couple caught up in Thailand's surrogacy crackdown have said many parents are distraught and facing dire financial difficulties as are they are unable to bring their surrogate-born babies home.

'Tired' mum dies of undiagnosed diabetes

New mum Nicky Rigby thought her exhaustion was due to the demands of looking after her baby. But the 26-year-old was seriously ill with diabetes, and died due to her condition not being diagnosed.

5 co-sleeping myths busted

In case you are co-sleeping with your baby, and all the ?helpful? advice from others is sending you down the slippery slope of self-doubt, let?s bust a few myths on the topic.

When pregnancy takes you down memory lane

One mum-to-be discovers pregnancy hormones can give rise to some surprising emotions.

What?s your love language?

The secret to making your partner feel special is to know which language of love they favour ? and it?s the same for your kids, too.

Returning to exercise after a caesarean

I had my daughter four months ago via caesarean, and I want to get back into exercise. What are some good first steps I can take?

20 signs of a great relationship

The secret to a perfect relationship is admitting you are wrong after an argument, five kisses a day and sex twice a week, a new survey suggests.

Video: emotional 60-second Robin Williams tribute

Take a minute to remember some of the greatest films of your childhood ... and have a few tissues close at hand.

The realities of escaping domestic violence

?Why doesn?t she just leave?? is the common question people ask when trying to understand domestic violence. For many, leaving the relationship is far from straightforward.

Win back some precious time and get FREE coupons

Membership to eBay's Bubs? Corner is free and includes a $10 coupon to spend on nappies each month - a win for multitasking mums!

Download now: Essential Kids Activity Finder app

Got bored kids? Quickly find the best activities for kids wherever you are in Australia with the Essential Kids app.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Win back some precious time and get FREE coupons

Membership to eBay's Bubs? Corner is free and includes a $10 coupon to spend on nappies each month - a win for multitasking mums!

Do you suffer from Precious Firstborn Syndrome?

Testing ?no more tears? shampoo in your own eyes, warming cucumber sticks so they're not cold straight from the fridge, waking a sleeping baby to check they?re still breathing: these are all symptoms of Precious Firstborn Syndrome.

Ezra's tragic death not in vain, mum says

Little Ezra was a "Harry Houdini" who loved trying to escape the family home. Now, after his tragic death, his parents are doing what they can to help others.

7 mistakes old hands make with new babies

As I sat across the table from my friend ? me, a seasoned mother of three; her, a brand new mum ? I thought of all the mistakes an old-hand parent can make when visiting a newborn baby.

Video: When adults act like children

Ever wondered what would happen if adults were allowed to act like children? This dad's hilarious video clip will give you an idea of what life would be like.

Mums hit hardest as flu cases skyrocket

The number of confirmed cases of influenza in Australia has doubled the number for the same time last year - and women are 25 per cent more likely to get it.

The mum who had four babies in nine months

Feeling exhausted due to the demands of caring for a baby? Imagine the life of this mum, who gave birth to three boys and one girl in just nine months.

Everything baby at Big W

Lowest prices on everything baby, only at Big W. Sale starts August 4 and ends August 20 2014.

Smiggle is painting the town red!

We have 3 Red Smiggle prize packs to give away! Enter by posting a photo of something red to your Instagram.

Mum gives birth at school

Whether they're out of favour traditional names, or the parents were a little creative, here are the least popular names of 2013.

Personalised baby gifts

We've scoured the internet to find gorgeous personalised keepsakes and nursery decor to record baby name and dates. They make great gifts for christenings, name days and birthdays! (All prices in AU.)

 

Mind, body, beauty, life

Making time for me

We look at your wellbeing, covering health, relationships, beauty and fashion, mind and body.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.