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Resources, Information and links for extra support groups


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#1 Forum Moderator

Posted 31 May 2008 - 04:44 PM

Here are links for resources and extra support groups. original.gif

Bookshops for Special needs
http://www.australianbooks.info/
http://www.bookinhand.com.au/

Carers
http://www.carersaustralia.com.au/
http://www.carersnsw.asn.au/

Resources
http://www.rucsn.org.au/

OT Products
http://www.therapytoyshop.com/

Another book shop
http://www.therapybookshop.com/

Sensory Products
http://www.sensoryshop.com/

Autism book shop
http://www.autismbookshop.com/

Special needs equipment
Novitatech (assistive technology �€“ symbols, books, switches, computer, AAC; mobility and seating) http://www.novitatech.org.au/default.asp?p=244
Independent living centre - http://www.ilc.asn.au/home.php
Gtk rehab - http://www.e-bility.com/gtkrehab/catalogue.php
Spectronics http://www.spectronicsinoz.com

http://www.littleturtle.biz
they sell the soft crash caps for kids

Wheelchair lifts/ramps and tie-downs for vans etc
http://www.rampboss.com.au/default.htm
http://www.cplqld.org.au/ets/otherproducts...port/index_html

Early Intervention Sydney
http://www.bensoc.asn.au/programs/eip.html

Childrens Services NSW
http://www.csnsw.org.au/ecms/home/pages/co...180&menu_id=747

Family Services NSW
http://www.nswfamilyservices.asn.au/index.html

Child Link NSW
http://www.childlink.com.au/Default.htm
Services in the Northern Sydney and Central Coast regions of NSW

Association of children with a disability
http://www.acd.org.au/home/index.htm

Disability news
http://www.disabilitynews.infoxchange.net.au/index.shtml

Meningoccocal
www.meningococcal-violet.org.au

Cerebral palsy
SA - http://www.novita.org.au/default.asp?p=1
NSW - http://www.thespasticcentre.org.au/index.htm
WA - http://www.cpawa.com.au/
CP Register - http://secure.cpregister-aus.com.au/

Movement Disorders (dystonia, ataxia etc)
http://www.wemove.org/

Autism Associations Australia Wide
NSW http://www.autismnsw.com.au/
VIC http://www.autismvictoria.org.au/
ACT http://autism.anu.edu.au/
QLD http://www.autismqld.asn.au/
SA http://www.autismsa.org.au/
TAS http://www.autismtas.org.au/

Autism/Aspergers/ASD
http://autism.healingwell.com/
http://members.ozemail.com.au/~rbmitch/Asperger.htm
www.isn.net/~jypsy
Wendy Lawson
http://www.mugsy.org/wendy/index2.htm
Wendy is an adult with Autism, she is also an Adult Educator and a Social worker.

Contact Details are:
The DORE Achievement Centre
8 Malvern Ave Chatswood NSW 2067
(This is their main centre & they can advise you of a centre close to you.)
Phone:1300557711
Web: www.dore.com.au

Angelman's Syndrome
http://www.angelmansyndrome.org/

Fragile X
http://members.ozemail.com.au/~fragilex/

Flash Cards and PECS
http://www.winningconnection.com.au/
http://www.geocities.com/rsrac26/homepage.html?1005536426
http://trainland.tripod.com/pecs.htm

Speech Therapy NSW
http://www2.fhs.usyd.edu.au/csd/clinic/index.html
School of Communication Sciences and Disorders. Communication Disorders Treatment & Research Clinic

Makaton/Sign Language
http://myhome.ispdr.net.au/~johnw/

Auslan (Australian Sign Language)
http://www.auslan.org.au

Dyspraxia
http://dyspraxiasup.proboards27.com/index.cgi

Cleft lip and palate
www.cleftpals.org.au
www.widesmiles.org
http://www.cleft.ie/forum/default.asp

Deaf children
www.deafchildrenaustralia.org.au

Metabolic Dietary Disorders Australia
http://www.mdda-australia.org/
www.fodsupport.org (Worldwide support group - MCADD, SCADD, LCADD, VLCADD, GA1, GA2 etc)

Cyclic vomiting syndrome
http://www.thedoctorsdoctor.com/diseases/c...ng_syndrome.htm
http://www.drugtopics.com/be_core/content/...icvomiting.html
http://www.rnmag.com/be_core/content/journ...700/k7a048.html

Dysphagia (swallowing difficulties)
http://www.dysphagiaonline.com/
education to overcome eating problems �€“ US site but good for ideas http://www.new-vis.com/index.htm

Gastrostomy (tube feeding)
http://www.scopevic.org.au/therapy_advisory_giss.html
http://www.corpakmedsystems.com/products/enteral/farrell.htm
http://users.erols.com/michael1/PumpkinsPage.htm

Dumping syndrome �€“ common in tube-fed kids
http://medhelp.cc/healthTopics/Dumping.html

Allergy
https://www.allergyfree.com.au/index.cfm

Reflux
Reflux Infant Support Assoc. They can be found at their email address of info@reflux.org.au or PO Box 1598 Fortitude Valley Qld on ph 07 3229 1090.
www.disa.com.au (Distressed Infants Support Association)

Other reflux favourites include:
http://home.vicnet.net.au/~earlyed/oct/oitty.htm
http://groups.msn.com/LivingWithRefluxUK/infants.msnw
http://pages.ivillage.com/chitchat9/
http://www.gastricrefluxsupport.org/refluxinformation.htm

New Zealand:
web: http://www.gastricreflux.org
email: info@gastricreflux.org

Australia:
RISA Inc (Reflux Infants Support Association Inc.)
Address: PO Box 1598 Fortitude Valley Qld 4006.
Australia
Ph: 07 3229 1090
Email: info@reflux.org.au
http://www.reflux.org.au/

D.I.S.A. ( Distressed Infants Support Association)
Address: PO Box 2093
Rowville 3178
Victoria, Australia
Ph: (03) 9513 9640
http://www.disa.com.au

F.I.R.S.A. (Families of Infants Reflux Support Association)
Address: PO Box 807
Elizabeth 5112
South Australia

Who also support families living in the Northern Territory of Australia

America:
PAGER - (Pediatric / Adolescent Gastroesophageal Reflux Association)
Address: PO Box 486
Buckeystown, MD 21717-0486
Email : gergroup@aol.com.
http://www.reflux.org
American site - but heaps of info
www.birthmark.org

For Klippel-trenaunay Syndrome
www.kt-org.com

The Australian Spina Bifida and Hydrocephalus Association
www.asbha.org.au/

Spina Bifida
http://www.google.com.au/search?hl=en&q=sp...=cr%3DcountryAU
http://www.ifglobal.org/home.asp?lang=1&main=1
http://neuro-www.mgh.harvard.edu/forum_2/S...elcomingBa.html

Headache Australia
www.headacheaustralia.org.au/

Northcott Society
www.northcott.com.au/

Sites for hip dysplasia
http://www.hipkidsaustralia.org/
http://www.hip-baby.org
http://www.acd.org.au/noticeboard/story_1b.htm
http://www.facs.gov.au/
http://www.e-bility.com/index.php
http://www.disabilitynews.infoxchange.net.au/
http://www.interchangensw.com.au/links.html
http://www.disability.vic.gov.au/dsonline/...cs?opendocument
https://www.birthdefects.org
http://www.vicnet.net.au/health/disability/

Misc
http://www.pbaustralia.com/The_Program.html

Protective behaviours....
http://www.learninglinks.org.au
Learning Links is an Australian charity and non-profit organisation assisting children who have difficulty learning.

Medicare
http://www.hic.gov.au/

MyDr �€“ Australian site with factsheets on just about everything from constipation, reflux, diabetes. Information on different tests and investigations (although from an adult perspective, not a child �€“ some things are done a bit differently for kids) also information on medications
http://www.mydr.com.au

Hospitals
Kids Hospital Westmead, Sydney
http://www.chw.edu.au/
http://medlineplus.gov/
www.nsw.gov.au/health.asp
www.dadhc.nsw.gov.au

#2 ss75

Posted 10 February 2009 - 11:07 AM

I am a volunteer for the Touched By Olivia Foundation. We are raising funds to build all-abilities playgrounds around Australia. Our first, at Timbrell Park, Five Dock NSW, should be open later this year.

The dream is that all children, regardless of their ability, can play together. These playgrounds will also provide a welcome social outlet and community link for many families.

Keep an eye on our website for more details:
www.touchedbyolivia.com.au

#3 Jessie01

Posted 05 October 2009 - 10:26 PM

http://www.mytime.net.au/

"MyTime groups provide facilitated peer support for mums, dads, grandparents and anyone caring for children with a disability, developmental delay or chronic medical condition. Socialise and share ideas and information with others who understand the rewards and intensity of caring for a child with special needs."

#4 Jessie01

Posted 21 October 2009 - 09:19 PM

Developmental Delay - an information guide for parents

For anyone wanting further information on what a "development delay" is, this is the best pamphlet that I have read - Easy to understand in non-technical language...

http://www.rch.org.au/emplibrary/cdr/DevDelay.pdf

#5 LambChop

Posted 25 April 2010 - 07:56 AM

http://www.new-vis.com/fym/papers/p-feed18.htm

This is a fantasic article about food capability progression and various sensitivity/mechanical issue impacts, was a real help to me to work out Austins 'food therapy' to take him from white mush to a healthy meal with colour & texture original.gif

#6 whydoibother

Posted 21 February 2012 - 07:06 PM

No mention of blind/vision impaired links

http://www.visionaustralia.org.au/

http://www.guidedogswa.com.au/

Also Better Start Funding http://betterstart.net.au/




#7 mondays

Posted 19 April 2013 - 10:55 AM

The Australian Patients Association Ltd
http://www.patients.org.au/  

03 8849 8461  helpline for any aspect of healthcare system nationally.

The Australian Patients Association is an  independent   not-for-profit organisation dedicated to championing and  protecting the   rights and interests of patients, and improving overall  patient care   and health outcomes

* Improve patient outcomes and enhance the welfare of    patients, carers and their families by working co-operatively with all    sectors of the healthcare industry.

* advocate for the    rights and interests of patients in developing a higher quality, more    affordable and readily accessible healthcare system for all Australians



#8 DyslexiaSydney

Posted 02 October 2014 - 12:51 PM

Dyslexia Sydney Support Group
A non profit parent run support group for dyslexics, parents, teachers, tutors and others wishing to share and learn information about dyslexia. Lots of information, advice and free guides. All welcome.

Contact Belinda dyslexiasydney@yahoo.com.au

Twitter
Dyslexia Sydney@sydney_dyslexia

Pinterest boards dyslexia information and resources, spelling, maths, reading/phonics, assistive technology, anxiety, guides.
http://www.pinterest...-support-group/

Open Facebook page for community dyslexia awareness
https://www.facebook...p?ref=bookmarks

Closed Facebook group for discussion and support
Dyslexia guides available
https://www.facebook...DyslexiaSydney/


#9 cooler

Posted 21 October 2014 - 06:15 PM

www.facebook.com/arohaangels for free second hand disability equipment for those with not funding, limited funding, or waiting on funding.

www.justjuniorsdisability.com for a range of paediatric special needs equipment

www.facebook.com/groups/SKOZbuysell a place to buy, sell, swap or give away special needs gear.

#10 Quirk

Posted 02 March 2015 - 11:47 AM

I see the WA Autism association isn't listed with the other states...

https://www.autism.org.au/




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