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#51 angelskies

Posted 24 March 2007 - 11:57 PM

Name: Amy

Child's diagnosis: autism.

State: QLD

#52 Guest_toobusy_*

Posted 25 March 2007 - 08:41 AM

Name: Regi

Childs diagnosis:  DS - possibley high functioning autism or aspergers - waiting to see with more assessments through prep.

Childs diagnosis: Congenital ptosis of the eyelid and a super form of Bells Phenomenon (rolls eye up into head).

State: Victoria

#53 ~*Leanne*~

Posted 25 March 2007 - 11:27 AM

Name Leanne

childs diagnosis Naomi has history of GDD, exp/rec language delays, diagnosed Nov '06 with Autism.



#54 cjandlj

Posted 25 March 2007 - 03:38 PM

Name: Rochelle

Childs diagnosis: Lani 18months has Hirschprungs Disease

State: NSW


#55 lulu7

Posted 25 March 2007 - 03:55 PM

Name: Lulu

Child's diagnosis: Lily (8 months old born, 5.5 months corrected) has a rare spontaneous genetic condition.

State: NSW

#56 Snappy*sam*

Posted 25 March 2007 - 03:56 PM

Name: Sam

Child Special Needs: moderate bilateral deafness, early days.

State: VIC

#57 TazzieD

Posted 25 March 2007 - 04:21 PM

name: Shari

Special needs: Milly was born with DDH (Hip Dysplasia)

Stage: QLD

#58 buggsie

Posted 25 March 2007 - 06:11 PM

Name:  Narelle

Diagnosis :  Andy has Down Syndrome

State:  Victoria

#59 EmandZac

Posted 25 March 2007 - 07:36 PM

Name: Bree

Diagnosis: Isaac has GORD

State: QLD

#60 SeeingPink

Posted 25 March 2007 - 07:39 PM

Your name: (optional you don't have to give that info if you don't want to). Amanda

Your child's diagnosis, or special needs: C1 Esterase Angio Hereditary Oedema (Rare blood disoder)

The state you live in (or country): Western Australia

#61 mez70

Posted 25 March 2007 - 07:40 PM

Hi there
Name Meredith

Childs Diagnosis: DD, has Expressive Language de;ays with very poor articulation, auditory processing issues, Poss Aspbergers or Fragile X (tests inconclusive for frag X) midly disable across all adaptive behaviors.

Childs Diagnosis DS has Asthma.
State Vic

#62 more than just Mum

Posted 25 March 2007 - 07:41 PM

Your name: Brooke

Your child's diagnosis, or special needs: Klippel-Trenaunay Syndrome with Port wine stain and enlargement of her right hand, arm, sholder, breast and neck. Venous malformations.

The state you live in (or country): NSW

#63 Cheryl_v

Posted 25 March 2007 - 08:06 PM

Name: Cheryl

Child's diagnosis: Thud has heart defects, now surgically corrected (tricuspid atresia, transposition of the great arteries, semi-membranous VSD).

State: NSW

#64 cin

Posted 25 March 2007 - 09:50 PM


Child: Victoria - Stickler Sydrome and Pierre Robin Sequence. They are related, she was born with a cleft of the soft palate. She will suffer from vision, hearing and bones problems as she grows and as the Sticklers shows its severity.

Bascially she is a copy of me, all genetic.

#65 LambChop

Posted 25 March 2007 - 10:45 PM

Name: Heather
Child: Austin (5)

Child's diagnosis: Severe Verbal & Oral Dyspraxia, Mild Motor Dyspraxia, Intellectual Disability, Benign Childhood Epilepsy

State: VIC

#66 unique_gem

Posted 26 March 2007 - 06:29 AM

Name:  Carol

Child:  Brielle has Down Syndrome  biggrin.gif

State:  ACT

Edited by unique_gem, 26 March 2007 - 09:39 AM.

#67 sezzmum

Posted 26 March 2007 - 06:40 AM

Name: Sarah

Child: Kyle
Diagnosis: Almost Blind, Severe Epilepsy, Cerebal Palsy, Global Delay development (severe), Microcephely, Chronic Constipation, Sensory Issues, Absent Thyroid, Possible Autisum (i think that's all!)

State: NSW (country)

#68 STB

Posted 26 March 2007 - 09:05 AM

Name: Siobhan

Child: Joel

Diagnosis: Down syndrome

Location: Sydney, NSW

#69 sallyj79

Posted 26 March 2007 - 09:07 AM

Name: Sally

Child: Trinity
Diagnosis: Type 1 diabetes

Location: South Australia

#70 chrisoclaire

Posted 26 March 2007 - 10:06 AM

Name: Christina

Child: Samuel

Diagnosis: Wolf-Hirschhorn Syndrome

Location: Racine, WI in the U.S.

#71 kusha

Posted 26 March 2007 - 11:54 AM

Name: Natasha

Diagnosis: Congenital hypothyroidism

Location: Country NSW

#72 Philly Âû

Posted 26 March 2007 - 01:19 PM

Name: Phillippa

Child: Tristan
Diagnosis: Severe receptive language delay
Further delays diagnosed through Griffith's assessment. Waiting for further diagnoses.  

Location: S.A Adelaide

Edited by Sweet Chilli Philly, 06 January 2008 - 07:45 PM.

#73 shelldar

Posted 26 March 2007 - 05:01 PM

name: Michelle

Child:  Riley

Diagnosis: Haemangioma on head

Location:  Sout East Melbourne, Vic

#74 TeamBlue

Posted 27 March 2007 - 03:35 AM

child's name: Cody (ds1) tyson (ds2)
diagnosis: ds1-Moderate hearing loss in both ears and moderate speech delay,asthma
ds2- birthmark,dermoid cyst near temple,reflux
location : East geelong VIC

Edited by jess_gray, 05 April 2007 - 08:08 AM.

#75 TupperChick

Posted 27 March 2007 - 08:08 AM

I am a lurker these days but still check in every now and then

Name: Kate

Child's diagnosis: Bayley and Lachlan both with Autism

State: VIC

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