Jump to content

Please read and sign once

  • Please log in to reply
597 replies to this topic

#1 2blue1

Posted 23 March 2007 - 07:18 PM

Hi everyone,

Just wanting to see if we could get some accurate numbers of how many people come into this part of EB.

So even if you just lurk and don't post, could you please reply to this thread once and answer the following:

Your name: (optional you don't have to give that info if you don't want to).

Your child's diagnosis, or special needs:

The state you live in (or country):

I will go first.

Name: Anna

Child's diagnosis: Ryley has Wolf-Hirschhorn Syndrome

State: VIC

Thanks original.gif

Edited by starofamp, 23 March 2007 - 07:18 PM.

#2 Cath13

Posted 23 March 2007 - 07:32 PM

Name: Cathy

Child's diagnosis:CODY- Down syndrome, AVSD, Duodenal Atresia, congenital nystagmus, otitis media.

State: NSW

Edited by Cath13, 23 March 2007 - 09:39 PM.

#3 PMU

Posted 23 March 2007 - 07:35 PM

Name: Peta

Child's Diagnosis: Landau-Kleffner Syndrome

State: Vic

#4 madmother

Posted 23 March 2007 - 07:35 PM

Name: Tanya
Child's diagnosis: Asperger Syndrome
State: QLD

#5 haventhadenoughat6

Posted 23 March 2007 - 07:46 PM

NAME:: Kerry

CHILDS DIAGNOSIS:: T'keyah, Dandy Walker syndrome- Agnesis of the corpus callosum- Cerrelbellar vermis Hypoplasia- Hydrochephelus- developement delay- low muscle tone- stridor

CHILDS DIAGNOSIS:: Kye, Lipoma of the corpus callosum- Agnesis of the corpus callosum- Cerrelbellar Vermis Hypoplaisa- Dandy walker varient


Edited by hadenoughat6, 24 March 2007 - 07:35 PM.

#6 ~JASB~

Posted 23 March 2007 - 07:50 PM

Name:  Michaela

Diagnosis:  Adam has Total Colonic Hirschsprungs Disease

State:  Qld

#7 annie77

Posted 23 March 2007 - 08:07 PM

NAME: Annie


Charlotte has DDH (Hip Dysplasia)
She also suffers from possible Absence Seizures
Charlotte was diagnosed at 19 months old with Severe Verbal & Oral Dyspraxia


ETA: New Diagnosis!

Edited by annie77, 17 October 2007 - 01:19 PM.

#8 *Dory*

Posted 23 March 2007 - 08:31 PM

Good idea original.gif

Name: Kathi

Child Diagnosis: Down Syndrome (Matthew)

State/Territory: ACT

Edited by *Dory*, 23 March 2007 - 08:33 PM.

#9 ♥RUBES♥

Posted 23 March 2007 - 09:03 PM

Name: Rubiann

Child Diagnosis: Leslie: Pervassive Development Disorder not otherwise specified, Oppositional Defience Disorder, Conduct Disorder.

Child Diagnosis: Gordon: Stickler Syndrome

State/Territory: S.A

Good Luck, Thank You & Cheers Rubiann.

#10 Tongue~In~Cheek

Posted 23 March 2007 - 09:09 PM

Name: Wendy

Child's diagnosis: Ryan had Silent Reflux/GORD - Thankfully he has just outgrown it.  original.gif  cool.gif

State: S.A.

Edited by wendy1970, 23 March 2007 - 09:11 PM.

#11 hayleymorton

Posted 23 March 2007 - 09:12 PM

my daughter cailtan, 10 months old has:

Severe tracheobronchomalacia, Asthma, Gord, Aspirates on fluid, Blind in one eye(persistant hyperplastic primary viteous), Does not chew and chokes when swallowing.



#12 ~MakkaPakka~

Posted 23 March 2007 - 09:30 PM

Name:  Amanda-Jane

Anja: Sacrococcygeal Teratoma at birth

Kaeden: ASD, ADHD, Mild II

Katja: possible ADD (hypoactive) - waiting for diagnosis

Lena: ADHD, learning diasbility and possible ASD

Remy: showing signs of ASD - waiting for diagnosis

State: QLD

Edited by ~MakkaPakka~, 30 April 2015 - 08:43 PM.

#13 triplets+1

Posted 23 March 2007 - 09:46 PM

Name: Kylie

Child's diagnosis: C has Autism with Intellectual Diss.
B and D have Speech Delays

State: WA

original.gif  Kylie

#14 Lys

Posted 23 March 2007 - 10:09 PM

Name: Lys

Child's Diagnosis: Natalie has DDH (Hip Dysplasia)

State: NSW

Edited by Lys, 23 March 2007 - 10:09 PM.

#15 ~Echolalia~

Posted 23 March 2007 - 10:37 PM

Name:  Denise

Special Needs Kids:  
14 year old boy with queried Asperger's
6 year old with severe allergies
5 year old with autism, Coeliac Disease, immune deficiency, and a few other issues

State:  SA

#16 blackcat

Posted 23 March 2007 - 10:49 PM

Name: Karen

Child's Diagnosis:  Rory has 22q11 Deletion(Velo Cardio Facial Syndrome), CHD, immune deficiency, hypotonia, talipes, development delay.

State:  SA

#17 Guest_Bindyi_*

Posted 23 March 2007 - 11:17 PM

NAME: Belinda
CHILDS DX: ASD H/F ADHD Sensory Intergration Disorder
Protein & Iron Deficiant..Asthmatic.

#18 hannahbug

Posted 23 March 2007 - 11:27 PM

Name:  Katherine
State:  QLD

Epilepsy x 2, Autism, Hypotonia, Hemangioma ( back and liver), Coeliacs, Gross Motor Delay Development, Anxiety

I have PTSD and OCD and PND(3 times)

Edited by Mumofive, 23 March 2007 - 11:26 PM.

#19 baby_number_3

Posted 24 March 2007 - 12:32 AM

Name: Erica

Child's diagnosis: Brice (11) PDD-NOS

Child's diagnosis: Mason (14weeks) Septo-Optic Dysplasia


#20 Ms*Congeniality

Posted 24 March 2007 - 01:05 AM

Name: Taryn

Child's Diagnosis: DS with speech and gross motor developmental
delay. Possible global delay.

State: WA

#21 DreamMum

Posted 24 March 2007 - 02:23 AM

Good idea


NAME: Wendy

CHILD: MEGAN (DD1) EMILY (DD2) biggrin.gif


#22 foofoo

Posted 24 March 2007 - 06:20 AM

Name:  Melissa

Child:  Liam (3 years old) - Pervassive Development Disorder - NOS

State:  Victoria

#23 ~*~mumzlilcookie~*~

Posted 24 March 2007 - 10:17 AM

NAME.. sue
CHILD .charlotte... Diagnosed with VHL . It is expected that by the time Charlotte is 10yo she will have cancer tumours all over her body. Severe developmental delay. Esophagitis. Seizures. Dysmorphic features. Milestones at 12-15 months only, only sitting and commando crawling..not walking.
NEW UPDATED: Central sleep apnoea requiring oxygen whilst sleeping. Laryngeal cleft Type 1.Unactive thyroid gland.5 lots of meds twice daily


Edited by ~*~mumzlilcookie~*~, 25 November 2009 - 06:18 PM.

#24 AngelaK

Posted 24 March 2007 - 10:19 AM


Name: Angela

Child Diagnosis: Down Syndrome (Hannah)

State/Territory: Victoria

#25 Starbuck

Posted 24 March 2007 - 11:05 AM


Child: DD#2 - Cystic Fibrosis, Tracheomalacia and asthma.

State: NSW

22 user(s) are reading this topic

0 members, 22 guests, 0 anonymous users


Five things you need to know about flu and pregnancy

As the 2017 flu season begins in earnest, here?s what you need to know to protect yourself and baby.

How dare anyone accuse a mum of 'milking' a miscarriage

A heartless comment from a stranger shocked the already devastated radio host Em Rusciano.

How breast milk can help relieve your baby's teething pain

Try one mum's simple parenting hack to ease your baby's discomfort.

Top 10 common health myths busted

To help combat the misinformation and spread good health, here are the most common health myths compared to fact.

How to make flying with a toddler more bearable

After almost three years of living in Canada, it was time to pack our bags, bundle up our three children (including our two and a half year old Toddler) and pray to the heavens above, before flying to Aussie Land to see our family and friends.

Breastfeeding may help with caesarean pain, says new study

Breastfeeding after a caesarean section may help manage persistent pain, finds new research on the post-birth experience of new mothers.

Recall notice: fourth cot recalled in less than one month

A recall notice has been issued for yet another cot sold in Australia -the White New Zealand Pine 3-in-1 Baby Sleigh Cot Bed with Drawers.

A baby girl, a baffling disease - and the only way to help her is to hurt her

Every morning, Kevin Federici pulls on a head lamp, sterilises a sewing needle and prepares to prick his baby girl all over her tiny body.

If you make your own baby food you'll love this Instagram account

Tired of making carrot purée? Take a look at this mum's homemade baby food creations.

The unique baby names literally no one is choosing

After a unique baby name for your little one? Here are the monikers no one chose in 2016.

'It's such a boost': mum receives 'thanks for breastfeeding in public' card

It was the boost one mum needed at just the right time.

Sharing makes young children happy - just don't force them

There are many emotional benefits to sharing, but only if it's voluntary.

5 ways to a healthy pregnancy

An easy pregnancy that results in a healthy baby: that's the dream.


Top 5 Articles


From our network

Five things you need to know about flu and pregnancy

As the 2017 flu season begins in earnest, here?s what you need to know to protect yourself and baby.

Mum tips to keep your pre-baby budget in check

Money might be funny in a rich man's world (or so ABBA told us), but for the rest of us it's a major consideration – particularly before having a baby.

5 easy ways to make your maternity leave last longer

Maternity leave is a special time for you, your partner and your new little bundle. The last thing you want is for financial worries to stand in the way of that joy.

10 ways to keep your 'buying for baby' costs down

Becoming a parent is full of surprises – not least of all finding out that, for such small beings, babies cause a lot of chaos and expense.

5 ways to prepare to go from two incomes to one

Here are some ideas for getting that budget in shape, ready for being a one income family.


Baby Names

Need some ideas?

See what names are trending this year.

Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.