Jump to content
Idiopathic Intracranial Hypertension Anyone???
26 replies to this topic
Posted 16 March 2012 - 01:25 AM
Hello everyone, I have been suffering for about 5 years now, the pain has been getting progressively worse and I am sick of being told by the doctors that they don't know what is wrong with me! I happened upon this by chance after reading an article on ninemsn and decided to look into it more as it sounds exactly like what I am suffering from! I am waiting for another appointment with my neurologist who has not contacted me for over 3 years. My right eyeball pulsates and sometimes the pain pulsates with it. It has been so bad this past week I have taken so many painkillers, which helped slightly but not completely. It was so bad last week I couldn't even hang the washing on the line. Just lifting my head enough to see where I was hanging it was enough to bring on so much pain on my eye and temple that it brought me to tears. I can't cope with the kids when I am in pain. It hits me pretty bad when I am driving and every little bump in the road brings on the sharp pain in my eye. I thought I was alone until I googled the condition and came across this site. CT scans and MRI's have revealed that I have a boney abnormality in the eye that I suffer with, like moth-eaten erosion of my eye socket. Everytime I go to the gym, or run or bend down to pick something up off the floor, just that rise in blood pressure in my head leaves me feeling fatigued and double visioned and the pain hits hard and I feel like I'm gonna have a stroke or like I have an aneurism, but they would have found that if it was. Does this sound like what you all are suffering with? I'm going to ask my neurologist to test me for this condition next time I see her. It is so depressing because I feel like I have just been left to suffer with one GP telling me I need to find a way to live with it! easier said than done I'm afraid. I am only 74kilo's. which is slightly overweight, Ideally I'd like to be only 60 but I am getting there slowly. It has been hard to lose it after having my third child.
Posted 23 April 2012 - 04:42 PM
I was diagnosed with IIH last week after a visit to the optometrist for new contact lenses featured an unwelcome surprise. The optometrist found a large amount of swelling on my brain behind my eyes and referred me for an urgent appointment with a neuro opthmalogist at the PA in Brisbane. I also saw a neurologist at the same time.
I ended up having a MRI on Thursday which came up clear for anything nasty and my eye tests did not show any issues, so no damage to either eye which was lucky. However my lumbar puncture gave me a pressure reading of 40 when it should have been under 23!!! They managed to bring it down to 22 but I was having sharp pains in my tummy (23 weeks pregnant) so they pulled the plug then.
Back tomorrow to the neuros for another look behind my eyes to see what impact the LP had on my swelling. If all good, I will be monitored and have another LP in 3-4 weeks but if it is still heavily present, I will need to go on Diamox (?). I also need to lose weight even though I am pregnant and really get it off after DS2 is born. Most of my weight is fluid (I have put on 10kg so far) but I had a few extra kilos on me before I was pregnant (I was about 75-80kg, 5'9) so they need to go.
The funny thing is, I haven't had really any symptoms apart from a bad migraine earlier this year and a sinus headache a couple of months ago. My headaches have been very mild and occasional and I honestly thought my dizziness and double vision was from pregnancy as I had a bit of it when I was pregnant with DS1. I was ready to change my optometrist appointment as I was too busy at work - luckily I went anyway!!!!
All I can say is that the whole process has been extremely quick and well organised as I think they wanted to move quickly because my IIH is pregnancy related.
2 user(s) are reading this topic
0 members, 2 guests, 0 anonymous users
It’s mixed in amongst garbled baby talk, but this 10-week-old's apparent attempt at telling her parents that she loves them has made her an internet star.
To say I became obsessed is something of an understatement. Everywhere I went I found cause to be reminded of my impending pain.
One mum says joy is very a personal feeling and expecting all new mums to feel it in the months after their baby born may do more harm than good.
Blogger Kiran Chug explains why she is going to let her toddler make more decisions for himself.
The Silverton family has heard the phrase "it's a girl" for the first time in four generations.
In future when someone I care for, or even someone I barely know, is experiencing a difficult time, I will not overthink it. I'll follow my heart.
Jac Bowie is the founder of Business in Heels, one of the fastest growing women’s networking events in Australia. She shares her story, including how she juggles work with a young family, and ways to work smarter.
Being a mum of identical twin boys stirs up great interest and fascination. It also opens itself up to nosy, invasive questions, as well as huge assumptions.
A mother-of-five who calls her two youngest sons "miracle babies" is just one of many mums seeking financial compensation for their children's unplanned conceptions.
It's a gorgeous song to begin with, but this dad's version of Hallelujah, sung for his young daughter, is especially touching.
While starting solids can be frustrating and messy (yet also fun!), introducing solids can also play havoc on tiny digestive systems.
A mother whose newborn baby was snatched from hospital has spoken of her joy and relief at getting her daughter back.
Are bumpies - bump selfies - really "exhibitionism of the weirdest kind"?
Acknowledging that motherhood isn't a bed of roses – to begrudge lack of time, sleep, money and spontaneity – is sacrilegious and a no-no, especially by mother superior-types.
A sequel is coming soon to the 2011 hit book 'Go the F*** to Sleep' - and this time, it's about mealtimes.
Fill out this quick survey and tell us in 25 words or less your best pregnancy or parenting tip - you'll go in the draw to win a $200 Pumpkin Patch voucher.
Got bored kids? Quickly find the best activities for kids wherever you are in Australia with the Essential Kids app.
Top 5 Articles
While watching your baby grow into a unique little person is exciting and wondrous, the intensity of meeting everyone else?s needs can ever so sneakily overtake your own needs for self-care.
Almost all women will experience bruising, grazing or tearing after a vaginal birth. Depending on the degree of tearing, there are various treatments available.
Outings can be lots of fun with the kids, but there are inevitable challenges. Here's some information about days out to help you be a little more prepared.
I sent invitations on burgundy scrapbooking paper stamped with a field of poppies, and told each person why I wanted him or her there. I warned that there would be nudity.
When your baby?s due date comes and goes without so much as a pop - let alone a bang - it can be disheartening. Mums and a doula share their stories of natural inductions.
As I sat across the table from my friend ? me, a seasoned mother of three; her, a brand new mum ? I thought of all the mistakes an old-hand parent can make when visiting a newborn baby.
Unbearable anxiety, unspeakable joy, constant exhaustion and bouts of frustration ... The many shocks of first-time fatherhood resound in a dad's diary of his son's early months.
Finances may not be as cute as a newborn, but with many women?s working arrangements changing post-baby, monetary matters need attention too.
Are bumpies really "exhibitionism of the weirdest kind", as one writer has claimed?
We've scoured the internet to find gorgeous personalised keepsakes and nursery decor to record baby name and dates. They make great gifts for christenings, name days and birthdays! (All prices in AU.)
We look at your wellbeing, covering health, relationships, beauty and fashion, mind and body.