Jump to content

So what now for the NDIS?

  • Please log in to reply
72 replies to this topic

#1 Lunafreya

Posted 19 May 2019 - 09:48 AM

So my son is autistic and on the BDIS. It pays for his speech therapy and hopefully occupational therapy...once we find one

Given Libs got in and the cuts they made won’t be reversed...what KoW? How will we find out? And when?

#2 ~J_WTF~

Posted 19 May 2019 - 10:13 AM

This is my biggest fear with this government...


Posted 19 May 2019 - 10:39 AM

To put it bluntly, it’s ****ed.

#4 *Spikey*

Posted 19 May 2019 - 10:40 AM


As is any hope of equitable funding for schools.

#5 Lunafreya

Posted 19 May 2019 - 11:01 AM

Without it, we wouldn’t have been able to afford speech therapy for my son which has helped so much. It’s a hand up, not a hand out!

#6 purplekitty

Posted 19 May 2019 - 11:08 AM

I'm sorry we failed you all.
I just can't comprehend how we got to this.

#7 YodaTheWrinkledOne

Posted 19 May 2019 - 11:22 AM

pretty much ****ed. :(

#8 SelceLisbeth

Posted 19 May 2019 - 11:33 AM

The recent NDIS survey about lack of services asked whether participants wanted services only in private hands, with price de-regulation and the chance to form your own groups to bargain for group discounts with services.

At a guess, I would say that is where we are heading. The survey was worded carefully, and I suspect many people who responded may not have responded the way they did if they understood the intention.

#9 Lunafreya

Posted 19 May 2019 - 12:03 PM

This is awful.

#10 YodaTheWrinkledOne

Posted 19 May 2019 - 12:09 PM

View PostSelceLisbeth, on 19 May 2019 - 11:33 AM, said:

The recent NDIS survey about lack of services asked whether participants wanted services only in private hands, with price de-regulation and the chance to form your own groups to bargain for group discounts with services.
which is very much in line with Liberal policy and philosophy for most services -> as little government involvement as possible, let the market decide ....

#11 mayahlb

Posted 19 May 2019 - 12:39 PM

We are ****ed. That pretty much is what it means. I’m sure shadow of it will be there so they can go “we are serving people with disabilities” but it will be underfunded, a nightmare to negotiate and likely sparse. I fully expect our package when we are due to negotiate a new plan will be minuscule. Weekly speech therapy? Nah your kid doesn’t need that. He can talk. Fortnightly psych? Nah he’s fine he should know how to cope.

#12 Lunafreya

Posted 19 May 2019 - 03:40 PM

I feel like giving such a serve to my relatives I know voted liberal. Including my own mother.

#13 SelceLisbeth

Posted 19 May 2019 - 03:41 PM

I did on FB. cant hold it in today.

#14 mayahlb

Posted 19 May 2019 - 03:42 PM

View PostLunafreya, on 19 May 2019 - 03:40 PM, said:

I feel like giving such a serve to my relatives I know voted liberal. Including my own mother.

I plan to the next time my MIL/PIL tells me that the government should be doing more to help my kid. If he’s a new plan from NDIS in December I will be shocked. Shocked.

#15 ~J_WTF~

Posted 19 May 2019 - 03:44 PM

I said my bit on FB too.

Just told them they had sent a clear message that vulnerable people in society don’t matter and it hurt!!!

#16 Lunafreya

Posted 19 May 2019 - 03:45 PM

I can’t really vent, have work going for the AEC. :(

#17 SelceLisbeth

Posted 19 May 2019 - 03:46 PM

I wouldnt let that put you off. You are still more than entitled to your political views, L.

#18 Pooks Combusted

Posted 19 May 2019 - 03:49 PM

My son has ASD level 2 and I’m terrified they’ll make him ineligible and we’ll lose the services we’ve only now been able to access.

#19 ~J_WTF~

Posted 19 May 2019 - 03:54 PM

Sorry pooks I liked because it’s exactly as I am feeling. DD level 2 ASD and I am so ****ing scared we will be told it’s not enough under these guys and I don’t know what the future will be like..

I am ****ing crying again because I am so scared!

And I keep getting told that Qld can get ****ed because we did it and I know we did but it wasn’t me. I tried!  

LF if you need to vent do it. Working for the AEC shouldn’t matter!

#20 SelceLisbeth

Posted 19 May 2019 - 03:58 PM

Youre not alone, J_WTF and pooks. Have been in tears today too wondering what our future holds. Thats the cruelty, not knowing or having any say in whether your children (or myself) will get the help needed, and if not, not knowing how on earth you will cope.

#21 Vicbitt9

Posted 19 May 2019 - 04:02 PM

I’m just gutted for you all. Personally there will be little change for me - me and my husband, no chance of children - safe Labour seat in Canberra.
Even if his cancer is back, we managed the out of pocket costs okay last time and the worst was my loss of wages because of my mental health breaking down so somehow I just need to be strong.
But for the community, our society, our country and even the world (climate wise), well I didn’t think I could feel worse hopelessness but it just shows that when the country is fooled into voting for such uncaring people and policies, that sure as hell brings us all down, like o said - even though technically we’ll be “fine” - how can Australia ever be fine given we’ve shown from this election that we are the society that doesn’t care about our most vulnerable. Something happened inside me last night, it’s like an inner hope that goodness really does triumph was snuffed out forever.
I’m hoping by tomorrow I can get angry because I’m smart, I can do things, and by God, I am not okay with living quietly ina society who vote in such a way to make it seem that support services of all sorts including the NDIS can be taken away.
Again, I hope you are all given some help and as such inspiring parents and advocates I guess that’s all the hope I have to cling to!

#22 Thylacine

Posted 19 May 2019 - 05:35 PM

Yep, we have our annual review meeting in two weeks. Not expecting much this year :(

#23 Bethlehem Babe

Posted 19 May 2019 - 05:40 PM

Remember when they accidentally published a website that said only level 3 autism will be eligible under this government?
Then took it down, claiming it was an error?

Remember when they took money from the ndis budget and used it for drought relief?

Remember when they took the unspent portion and redistributed it to other areas, despite many delays in funding being due to the delays?

That’s where we are headed. More restrictions to access. More delays. More cuts.

#24 annodam

Posted 19 May 2019 - 05:53 PM

View PostSelceLisbeth, on 19 May 2019 - 03:41 PM, said:

I did on FB. cant hold it in today.

Same, I upset the apple cart & was told to "cool my engine".

I'm so sorry for you guys up in QLD, it probably doesn't sound like much right now but try & keep the faith!

#25 Lunafreya

Posted 19 May 2019 - 06:23 PM

I was told to not be angry or call names and calm my farm.

This is my child we are talking about.

1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users


'My parenting style is Survivalist'

A helicopter or tiger mum, I am not.

8 mums reveal their favourite nappy bags

We asked a bunch of mums which nappy bags they love the most.

Why you shouldn't bother throwing a big first birthday party

If you're feeling the pressure to host an all-out, over-the-top shindig for your baby's birthday, I hereby grant you permission to throw the rules out the window.

The 24 baby names on the verge of extinction this year

If you're on the hunt for the perfect baby name and don't want a chart-topper like Oliver or Olivia, then do we have the list for you.

'My mum doesn't seem that interested in my baby'

Q: My mother and I have always been close, but now that I have a baby, she has not helped out as much as I thought she would.

New guidelines: "Bottle-feeding mums need support too"

Breast is best, but mums who can't, or choose not to breastfeed need support too.

Dads also struggle to 'have it all', study finds

Men and women both experience work-family conflict.

Language development may start in the womb

Study found babies can recognise foreign languages before birth.

Meet the baby born from an embryo frozen for 24 years

Experts say little Emma is a record breaking baby.


Top 5 Articles


From our network

Five things you need to know about flu and pregnancy

As the 2017 flu season begins in earnest, here?s what you need to know to protect yourself and baby.

Mum tips to keep your pre-baby budget in check

Money might be funny in a rich man's world (or so ABBA told us), but for the rest of us it's a major consideration – particularly before having a baby.

5 easy ways to make your maternity leave last longer

Maternity leave is a special time for you, your partner and your new little bundle. The last thing you want is for financial worries to stand in the way of that joy.

10 ways to keep your 'buying for baby' costs down

Becoming a parent is full of surprises – not least of all finding out that, for such small beings, babies cause a lot of chaos and expense.

5 ways to prepare to go from two incomes to one

Here are some ideas for getting that budget in shape, ready for being a one income family.


Baby Names

Need some ideas?

See what names are trending this year.

Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.