Jump to content

On going medical nightmare!


  • Please log in to reply
34 replies to this topic

#1 Callie_Kitty

Posted 08 May 2019 - 11:33 AM

I'm now 17 months post baby (my First). It was a regular birth, he was born at about 28 weeks 5 days, in labor at 6am with broken waters & hospital at 8am, delivered vaginally at 11:27am same day, no pain meds, epi etc. I wanted a water birth, but again too fast to get the bath. I ended up birthing on the bed but not on my back, on my knees in squat. I tested positive to strep B and was recommended the antibiotics during labor but delivery progressed too fast so they didn't give them. We had a 2 night hospital stay to monitor for strep b in bub. All was good, born happy and healthy day 2 we went home happily.

Fast forward 3 months later, and I wake up in the morning with extreme lower back pain. Saw GP, she thought it was because bub as quite large and I'm quite petite, and it was muscular and told me to manage with heat/cold and panadol (was breastfeeding).
Another 3 months past and I'm back at the GP with extreme back pain (lower back still),even after doing some stretches and trying to build more muscles and she recommends I see a chiro. And gives me a CT letter. Did 5 treatments at the chiro with zero results. He writes to gp to check further for medical conditions.

Now a month later (November 2018) I see the gp, get sent off for blood tests. Told my CT looked normal. I get the bloods done and find I have mild anemia (suspected cause, heavy periods post baby, on a long waiting list for gyno). Bloods show raised platelets, raised CRP and ESR (basically showing inflammation in the body).

I'm put on a waiting list for gastro, rheumatologist & haematologist. Fast forward to Feb 2019, gastro has given the all clear, haemo conducts some bloods and gives the all clear. I saw the rheumo and after 2 visits he prescribes 750MG of ibuprofen slow release. Pain killers did and do nothing for my pain.

Fast forward to now. I'm experiencing extreme buttock bone pain (on left side only) that shoots down my left thigh.still have a extremely sore lower back and Nothing has worked! Currently trying to get back in to see the GP. Rheumo suspects some form of arthritis, I suspect some form of siatica or damage from the way I birthed. Still no diagnosis.

My pain has only gotten worse and now I'm 17 months post baby and it's killing me now to the point where I can almost not walk anymore. 😢😢 I'm suppose to be starting work soon but can't imagine doing it with this pain.

Anyone experienced this? I'm at a loss and the drs don't seem to know what to do either.

#2 Soontobegran

Posted 08 May 2019 - 11:49 AM

A CT scan is not an accurate way to assess spinal issues, nerve entrapment etc.
I would be requesting an MRI but first you need to see a neurologist.
I am surprised you were recommended a chiro before seeing someone more suited to diagnosing back problems.
You sound as though you have sciatica which can be really debilitating but please get an appropriate referral.
Lots of luck.

#3 TheGreenSheep

Posted 08 May 2019 - 11:56 AM

Exactly what STBG said above ^^^^^^^

Referral to a neurologist or neurosurgeon and an MRI to diagnose the pain.

It sounds like you have been on a wild goose chase and whilst they have all done their jobs and ruled out any causes from their known specialties, the GP hasn't really assessed your pain and managed it effectively.

All the best OP, please let us know how you get on.

#4 purplekitty

Posted 08 May 2019 - 12:29 PM

What STBG said but more investigations are needed.

I'd go to a different GP as well to see if they can improve the analgesia and treatment in the short term so you can function better.
Your GP having sent you to a chiro does not fill me with confidence.

#5 turbulent

Posted 08 May 2019 - 12:34 PM

Check sacroiliac joints? I have ankylosising spondylitis it started off as low back pain, leg pains and in buttocks. Only way to confirm is to check sacroiliac joints, a plain X-ray is enough.

With blood tests showing something going on I would not be happy with the Drs lack of follow up

Edited by turbulent, 08 May 2019 - 12:36 PM.


#6 Callie_Kitty

Posted 08 May 2019 - 12:53 PM

Hi guys thanks for the posts! The rheumo requested a MRI of my lumbar spine through the hospital, it's "non urgent" and is over 2 months away :( I tried to get back to the GP, but they're fully booked till the 17th May. And told me to try a ring on the day appointment which I'll try tomorrow.
I know there can we long waits to see a neurologist but I really think whatever it is is nerve pain. Never had any trouble like this in the past. And the fact that just sitting down or laying down is seeming to press on a nerve and cause me the pain. During the day when ive been moving around for several hours the pain goes unless I move a certain way or sit down for more than 20mins, then I get the pain again in the hip/buttock.

#7 Mumma3

Posted 08 May 2019 - 01:03 PM

Ask for a gyne referral to look at adenomyosis. Many of your symptoms are indicative of this and many GPs are not well informed about it.
Also, did you mean 38 week and 5 days? I’m assuming a typo as your OP says bubs was born at 28+5

Edited by Mumma3, 08 May 2019 - 01:05 PM.


#8 Lees75

Posted 08 May 2019 - 01:23 PM

I would try a women's physio. Like others, I am a little surprised you were sent to a Chiro without a definitive diagnosis, as that is quite risky.

#9 Callie_Kitty

Posted 08 May 2019 - 01:35 PM

View PostMumma3, on 08 May 2019 - 01:03 PM, said:

Ask for a gyne referral to look at adenomyosis. Many of your symptoms are indicative of this and many GPs are not well informed about it.
Also, did you mean 38 week and 5 days? I’m assuming a typo as your OP says bubs was born at 28+5
Yes!  So sorry!  38 weeks and 5 days 😳 he wasn't premie.  I've got a gyn referral for the local hospital and was told I'd get an appointment within 6 months. So just waiting for a date.

Edited by Callie_Kitty, 08 May 2019 - 01:42 PM.


#10 Callie_Kitty

Posted 08 May 2019 - 01:42 PM

View PostLees75, on 08 May 2019 - 01:23 PM, said:

I would try a women's physio. Like others, I am a little surprised you were sent to a Chiro without a definitive diagnosis, as that is quite risky.

Yes I agree :/ I think she was under the impression I was just experiencing muscular issues (no idea what a chiro could do for that). I'm 5ft, bub was born at 3kgs and packed the chub on after birth in the 90th percentile for height/weight until 12 months old when it slowed ,still a big boy tho (daddy is 6ft 3inch, so it's to be expected). The first few visits to the GP was her just saying its muscular, try stretching, light impact exercise etc. It was several visits later she decided on scans, bloods etc.
While pregnant I never had any issues with my back until he dropped down low from around 30 weeks onwards and it was more pelvic pain from him being low & on my bowel and bladder.

Also feel when I did the scan they scanned too high up in doing the lumbar spine  & they should have looked down lower in the sacroiliac joints/tail bone area :/

Edited by Callie_Kitty, 08 May 2019 - 01:44 PM.


#11 Rozzie2018

Posted 08 May 2019 - 07:46 PM

It sounds a bit like fermoacetabular impingement (FAI). My symptoms were intense shooting pain from my right hip down my leg and lots of pain when sitting and lying in bed. I had a hip arthroscopy to correct it and lots of physio. A good physio should be able to rule it out and you could do so too, check Google. If that is the case you need to see an orthopaedic surgeon.

#12 Callie_Kitty

Posted 09 May 2019 - 11:38 AM

I've got an appointment today with the GP, going to run the idea of sciatica past her and ask for some referrals to investigate down lower spine.  I'll update after GP appointment, fingers crossed because I'm in so muvh pain today :(

#13 turbulent

Posted 09 May 2019 - 11:46 AM

Good luck Callie, I hope you get some support and the referrals you need.

#14 Mrs Claus

Posted 09 May 2019 - 11:47 AM

View PostMumma3, on 08 May 2019 - 01:03 PM, said:

Ask for a gyne referral to look at adenomyosis. Many of your symptoms are indicative of this and many GPs are not well informed about it.
Also, did you mean 38 week and 5 days? I’m assuming a typo as your OP says bubs was born at 28+5

This was going to be my suggestion too. Hope you have some luck today

#15 Callie_Kitty

Posted 09 May 2019 - 01:25 PM

Hi guys, back from the GP. Was tough, few tears were shed 😢 all the test results have all came back clear for disc damage, nerve damage & joint damage in the lumbar spine. She explained that analgesic options are limited as I still breast feed my 17 month old and nsaids are in effective on my pain...
She didn't seem to know what more to do, other than a chronic pain management dr. I suggested it could be sciatica and she said the mri I had sometime ago doesn't show any nerve damage to indicate sciatica or even a nerve problem.
I requested to maybe see a specialist who knows more about nerves and can send me for different tests, she was pretty reluctant that a neurologist would even see me given I have back issues with no indication of nerve damage or brain issues, but wrote a referral anyway and suggested to wait and see...

So that's where Im at... Gyno in 6 plus months, neuro in god knows how long... I've requested to see the rheumo sooner to see if maybe he can push his mri sooner or try me on another medicine, but due to breastfeeding everything is limited.  😢

#16 purplekitty

Posted 09 May 2019 - 01:38 PM

When did you have the last MRI?

Neuropathic pain is difficult to treat with standard analgesia such as NSAIDS.
I would ring the rheumatologists toes if there is a cancellation because of the pain.
The symptoms you describe require investigation and treatment.
You can't function.

#17 Lees75

Posted 09 May 2019 - 01:54 PM

I think you will find that a good physio will be much better at diagnosing this type of problem than a GP. You don't need a referral to see a physio, so I would just book in with one that comes well recommended in your area. You can do this while you wait to get in to the specialist.

#18 SplashingRainbows

Posted 09 May 2019 - 02:34 PM

Agree. Physio will be relatively cheap too compared to specialists. Will not hurt to seek an opinion.

#19 EmmDasher

Posted 09 May 2019 - 03:38 PM

Has anyone looked at your sacroiliac joint and the muscles surrounding that? I would have thought so because it’s a pretty common pregnancy related complaint. A physio would be ideal for that job. If your body is all loosey-goosey after childbirth and then you’re sitting a lot breastfeeding a big baby (which can be a bit awkward and taxing on the body), maybe something is not quite right in that area.

#20 limakilo

Posted 09 May 2019 - 04:58 PM

In the mean time, could you see someone like a physio that specialises in post birth care, or an Osteo?
I am waiting on hip surgery for something totally different, and see an osteopath every fortnight for massage, dry needling, cupping etc and it helps better than the heavy pain meds I am on.
My physio is also great, I get ultrasound with her.

#21 Callie_Kitty

Posted 09 May 2019 - 06:24 PM

View PostEmmDasher, on 09 May 2019 - 03:38 PM, said:

Has anyone looked at your sacroiliac joint and the muscles surrounding that? I would have thought so because it’s a pretty common pregnancy related complaint. A physio would be ideal for that job. If your body is all loosey-goosey after childbirth and then you’re sitting a lot breastfeeding a big baby (which can be a bit awkward and taxing on the body), maybe something is not quite right in that area.

The rheumo requested a mri and apparently (according to the Dr) that's going to be checking my SJ joints. I've thought about physio but during pregnancy I found them not every good and they didn't do anything for me during my visits (maybe it was just a bad clinic?). But that experience turned me off. Financially we aren't in a good place right now. We had savings to last to the 18th month mark and those have gone sooner than expected with all the medical appointments and medications.
I'm without work and sadly cannot work :( we aren't eligible for parenting payment apparently, so I don't think physio is on the table sadly. :(

#22 little lion

Posted 09 May 2019 - 06:31 PM

I am sorry you are in pain still.

I may be barking up the wrong tree but perhaps further pain relief hasn’t been suggested by the GP due to breastfeeding and this is likely to be the case with some meds a rheumatologist might want to give you. Do you intend to continue breastfeeding for a while yet? It is a pity the doc didn’t talk with you more about options and left you hanging.

If you can find funds for physio I would look for someone who focuses on that area of the body or maybe a pregnancy/women’s health physio?

#23 Grassyrat

Posted 09 May 2019 - 06:33 PM

I think you need to have a nuclear medicine bone scan to rule out a micro fracture of the coccyx from having a big Bub. It's possible that a tiny fracture can be missed on CT and MRI and seen on the bone scan.

I've seen this go untreated and it's extremely painful with the symptoms you describe. If this is what you have and conservative treatment doesn't work, removal of the coccyx is normally performed with really good outcomes.

Also, they will be able to see if you have any areas of active facet joint arthritis that may benefit from steroid injections. Disappointing that the neuro hasn't gone down this path, as most patients that present to us get given both and MRI and bone scan referral as the scans both show different abnormalities.

#24 Pocket...

Posted 09 May 2019 - 10:18 PM

I'm another amazed that the gp didn't send you to a physio first. I'd save what you can, even if it takes a while, and go to a physio, try and find one recommended by a friend, or with good online reviews.

#25 overlytired

Posted 10 May 2019 - 05:43 AM

A good physio is more interested in seeing a positive outcome thank having you come back for a prolonged period of time.

Can you afford an initial consult where you're upfront about your situation? They could then prepare an exercise plan for you to do on your own, and a few follow-up appointments to check for progress?




2 user(s) are reading this topic

0 members, 2 guests, 0 anonymous users

 

'My parenting style is Survivalist'

A helicopter or tiger mum, I am not.

8 mums reveal their favourite nappy bags

We asked a bunch of mums which nappy bags they love the most.

Why you shouldn't bother throwing a big first birthday party

If you're feeling the pressure to host an all-out, over-the-top shindig for your baby's birthday, I hereby grant you permission to throw the rules out the window.

The 24 baby names on the verge of extinction this year

If you're on the hunt for the perfect baby name and don't want a chart-topper like Oliver or Olivia, then do we have the list for you.

'My mum doesn't seem that interested in my baby'

Q: My mother and I have always been close, but now that I have a baby, she has not helped out as much as I thought she would.

New guidelines: "Bottle-feeding mums need support too"

Breast is best, but mums who can't, or choose not to breastfeed need support too.

Dads also struggle to 'have it all', study finds

Men and women both experience work-family conflict.

Language development may start in the womb

Study found babies can recognise foreign languages before birth.

Meet the baby born from an embryo frozen for 24 years

Experts say little Emma is a record breaking baby.

 
Advertisement
 
Advertisement
 
 
 

From our network

Five things you need to know about flu and pregnancy

As the 2017 flu season begins in earnest, here?s what you need to know to protect yourself and baby.

Mum tips to keep your pre-baby budget in check

Money might be funny in a rich man's world (or so ABBA told us), but for the rest of us it's a major consideration – particularly before having a baby.

5 easy ways to make your maternity leave last longer

Maternity leave is a special time for you, your partner and your new little bundle. The last thing you want is for financial worries to stand in the way of that joy.

10 ways to keep your 'buying for baby' costs down

Becoming a parent is full of surprises – not least of all finding out that, for such small beings, babies cause a lot of chaos and expense.

5 ways to prepare to go from two incomes to one

Here are some ideas for getting that budget in shape, ready for being a one income family.

 

Baby Names

Need some ideas?

See what names are trending this year.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.